Re: Brain

[Guest guest]

I still have chemo brain after 6 years...I guess it's gonna be

permanent. I used to reconcile my checking account to the penny every

month, now I'm doing good if I glance at my statement to be sure

everything that cleared was mine and correct! I put an extra $200 in

my checking account and didn't add it to my checkbook balance, so that

I wouldn't bounce checks. So far, that has worked for me. I also

find that a lot of tedious things that I used to love to do (cross

stitch, quilling, puzzles, etc.) have become chores that I no longer

enjoy. Wish I could tell you that it gets better, but mine hasn't!

Hugs,

>

> I recently had am MRI of my brain, I just did not feel right, I am

> forgetting more. I was scared my Onc was going to tell me I have

> alzheimer's. Instead I was told I have shrinkage to my brain. I am

> only 50 she said this only happens to old people. Maybe because of

> all the chemo I went through. Within the past week I have forgot to

> put several deductions in our checkin account and was charged 120 in

> overdraft fees. I am so mad at myself I'm shaking. My husband asked

if

> I wanted him to take over the fiances. I do but I used to be good at

> it. I feel like I'm giving up a part of my life.

>

[Guest guest]

June wrote: " No, I don't have that particular problem but I do get

confused more easily in stores.  I'll be looking around a store for something I

specifically went in there for, a store I know well, groceries, department,

whatever, and I cannot remember where what I need is, milk, the canned goods

aisle, spices, where the hell did they put the flour for crying out loud.  I

know they have signs but I'm used to just navigating by memory.  It's one of

the reasons I really love Trader Joe's right now, it's small and easy to go up

and down aisles and find what I need, LOL.  I'm also finding I'm having trouble

typing, I keep typing in the wrong letters like I'll type a p for a b or a u

for a w.  Luckily I notice it looking at the word as I type and fix it right

then but it's like my mind is confused on where the letters are on the keyboard

sometimes. "

________

June, that is just what I am talking about. Lost in stores I have been in

before, cant remember where things are in stores, very scary.

It didnt help that I moved to Chicagoland from the Twin Cities right after

chemo, just about. Imagine how well I am getting

around *here*! URG. I do not like grocery shopping at all, and my husband

usually does it. Occasionally I will go with him. There

is a Starbucks in the store, and I sit there and wait for him sometimes.

It sounds strange, but I did feel a place in the center of my brain, sort of,

where I believe directions originate: I sort of felt this area of the

brain wasnt working, was damaged. Neurons are fast growing/fast moving cells,

and chemo kills those off.

I have a specific fear of losing my typing abilities -- I also use my hands for

sign-language, for cooking/baking, for painting (oils)

and have for my whole life been very agile w/ my hands (the " fastest typist in

the west! " ). I hope like hell this never happens

to me. It would be another huge loss. I am sorry to hear that you suffer from

a mild bit of loss there. I believe it is related

to chemo. I also think that over time, the brain will heal. I didnt know how

much I depended on my keen sense of direction

until it was lost. So the saying goes.

Take care,

--

Ogut

The Whole Brain Game -- It's Not What You Think But How You Think It

No, I don't have that particular problem but I do get confused more easily in stores. I'll be looking around a store for something I specifically went in there for, a store I know well, groceries, department, whatever, and I cannot remember where what I need is, milk, the canned goods aisle, spices, where the hell did they put the flour for crying out loud. I know they have signs but I'm used to just navigating by memory. It's one of the reasons I really love Trader Joe's right now, it's small and easy to go up and down aisles and find what I need, LOL. I'm also finding I'm having trouble typing, I keep typing in the wrong letters like I'll type a p for a b or a u for a w. Luckily I notice it looking at the word as I type and fix it right then but it's like my mind is confused on where the letters are on the keyboard sometimes.

LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/

-----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of lisaogut@...Sent: Tuesday, November 29, 2005 11:14 PMTo: breastcancer2 Subject: Re: Re: BrainHi all,I am responding late, I know! With the holidays, I just got to my br. ca. group e's. I had pretty severe chemo brain after the chemo, but in one area only (mostly?): that of knowing directions. I used to be able to tell whether I was traveling in the right or wrong direction as a passenger, even while reading a book. I just would *know*, and I would inform the driver. I even knew where we were, where we were suppose to be during a cross country road trip, all while reading in the passenger seat. After chemo, I went to a restaurant with my hubby, had to go to the bathroom three times, and *all three times* got completely and terribly, terrifyingly lost in the restaurant trying to find my way back to the table. *In a restaurant*! I have gotten better, but stil am not back to whre I used to be re. knowing directions. Anyone else have this problem in the directions area?-- OgutThe Whole Brain Game -- It's Not What You Think But How You Think It

[Guest guest]

Yes but I haven't seemed to lose my sense of direction in general, outside of stores that is. Of course, I live in CA where everything is N, S, E or W. Not to difficult navigate unless you're in S.F. or L.A. The typing thing is not too horrible (yet) but it is annoying. I'm not the fastest typist in the west but my skills improved immensely when I started working on PCs as a tech, oh, about 18 years ago, when they were first out and didn't have hard drives and kb & mb were really known only to techs and gb was unheard of as yet and nobody ever dreamed we'd ever have gb hard drives, LOL. On a typewriter I couldn't type to save my life. Anyway, I just get confused where the letters are about once a sentence so far.

LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/

________June, that is just what I am talking about. Lost in stores I have been in before, cant remember where things are in stores, very scary.It didnt help that I moved to Chicagoland from the Twin Cities right after chemo, just about. Imagine how well I am gettingaround *here*! URG. I do not like grocery shopping at all, and my husband usually does it. Occasionally I will go with him. Thereis a Starbucks in the store, and I sit there and wait for him sometimes.It sounds strange, but I did feel a place in the center of my brain, sort of, where I believe directions originate: I sort of felt this area of thebrain wasnt working, was damaged. Neurons are fast growing/fast moving cells, and chemo kills those off.I have a specific fear of losing my typing abilities -- I also use my hands for sign-language, for cooking/baking, for painting (oils)and have for my whole life been very agile w/ my hands (the "fastest typist in the west!"). I hope like hell this never happensto me. It would be another huge loss. I am sorry to hear that you suffer from a mild bit of loss there. I believe it is relatedto chemo. I also think that over time, the brain will heal. I didnt know how much I depended on my keen sense of directionuntil it was lost. So the saying goes. :(Take care, -- OgutThe Whole Brain Game -- It's Not What You Think But How You Think It

[Guest guest]

Yes but I haven't seemed to lose my sense of direction in general, outside of stores that is. Of course, I live in CA where everything is N, S, E or W. Not to difficult navigate unless you're in S.F. or L.A. The typing thing is not too horrible (yet) but it is annoying. I'm not the fastest typist in the west but my skills improved immensely when I started working on PCs as a tech, oh, about 18 years ago, when they were first out and didn't have hard drives and kb & mb were really known only to techs and gb was unheard of as yet and nobody ever dreamed we'd ever have gb hard drives, LOL. On a typewriter I couldn't type to save my life. Anyway, I just get confused where the letters are about once a sentence so far.

LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/

________June, that is just what I am talking about. Lost in stores I have been in before, cant remember where things are in stores, very scary.It didnt help that I moved to Chicagoland from the Twin Cities right after chemo, just about. Imagine how well I am gettingaround *here*! URG. I do not like grocery shopping at all, and my husband usually does it. Occasionally I will go with him. Thereis a Starbucks in the store, and I sit there and wait for him sometimes.It sounds strange, but I did feel a place in the center of my brain, sort of, where I believe directions originate: I sort of felt this area of thebrain wasnt working, was damaged. Neurons are fast growing/fast moving cells, and chemo kills those off.I have a specific fear of losing my typing abilities -- I also use my hands for sign-language, for cooking/baking, for painting (oils)and have for my whole life been very agile w/ my hands (the "fastest typist in the west!"). I hope like hell this never happensto me. It would be another huge loss. I am sorry to hear that you suffer from a mild bit of loss there. I believe it is relatedto chemo. I also think that over time, the brain will heal. I didnt know how much I depended on my keen sense of directionuntil it was lost. So the saying goes. :(Take care, -- OgutThe Whole Brain Game -- It's Not What You Think But How You Think It

[Guest guest]

and : I to, have chemo brain...it's been a year and a half (?) and still having problems.....I have applied for SSD and had to hire a lawyer....., how long did it take for you to get the SSD, if that is what you got? Could you tell me more? "of all the things I've lost; I miss my mind the most" I could go on and on about this. It's been horrible for me........councelors, ect. Now I'm heading for a neuro eval this Fri. , I SO hear you!!!!!!! Things that used to be fun are now a chore because I can't concentrate or retain much.......My memory is like an alzheimers patient....and it too scares me.........Dr.s used to say "Oh, it will come back" it has only gotton worse.......I have just begun to see a physcologist that helps one "learn" to deal with pain.......she recently said to me "your memory concerns me" (this is after I told her about the chemo brain) DAH!!!!!! it concerns

her? she doesn't get it. Not too many dr.s do unfortunatly. It's a battle I know for sure. Any info you have to share with me would be greatly appreciated. Thanks so much Sincerely, Darlene Malone wrote: I would like to ask if anyone is working with the chemo brain problem. I finally went on disability because of this problem.senalb <no_reply > wrote: I still have chemo brain after 6 years...I guess it's gonna be permanent. I used to reconcile my checking account to the penny every month, now I'm doing good if I glance at my statement to be sure everything that cleared

was mine and correct! I put an extra $200 in my checking account and didn't add it to my checkbook balance, so that I wouldn't bounce checks. So far, that has worked for me. I also find that a lot of tedious things that I used to love to do (cross stitch, quilling, puzzles, etc.) have become chores that I no longer enjoy. Wish I could tell you that it gets better, but mine hasn't! Hugs, >> I recently had am MRI of my brain, I just did not feel right, I am > forgetting more. I was scared my Onc was going to tell me I have > alzheimer's. Instead I was told I have shrinkage to my brain. I am > only 50 she said this only happens to old people. Maybe because of > all the chemo I went through. Within the past week I have forgot to > put several deductions in

our checkin account and was charged 120 in > overdraft fees. I am so mad at myself I'm shaking. My husband asked if > I wanted him to take over the fiances. I do but I used to be good at > it. I feel like I'm giving up a part of my life.>

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[Guest guest]

and : I to, have chemo brain...it's been a year and a half (?) and still having problems.....I have applied for SSD and had to hire a lawyer....., how long did it take for you to get the SSD, if that is what you got? Could you tell me more? "of all the things I've lost; I miss my mind the most" I could go on and on about this. It's been horrible for me........councelors, ect. Now I'm heading for a neuro eval this Fri. , I SO hear you!!!!!!! Things that used to be fun are now a chore because I can't concentrate or retain much.......My memory is like an alzheimers patient....and it too scares me.........Dr.s used to say "Oh, it will come back" it has only gotton worse.......I have just begun to see a physcologist that helps one "learn" to deal with pain.......she recently said to me "your memory concerns me" (this is after I told her about the chemo brain) DAH!!!!!! it concerns

her? she doesn't get it. Not too many dr.s do unfortunatly. It's a battle I know for sure. Any info you have to share with me would be greatly appreciated. Thanks so much Sincerely, Darlene Malone wrote: I would like to ask if anyone is working with the chemo brain problem. I finally went on disability because of this problem.senalb <no_reply > wrote: I still have chemo brain after 6 years...I guess it's gonna be permanent. I used to reconcile my checking account to the penny every month, now I'm doing good if I glance at my statement to be sure everything that cleared

was mine and correct! I put an extra $200 in my checking account and didn't add it to my checkbook balance, so that I wouldn't bounce checks. So far, that has worked for me. I also find that a lot of tedious things that I used to love to do (cross stitch, quilling, puzzles, etc.) have become chores that I no longer enjoy. Wish I could tell you that it gets better, but mine hasn't! Hugs, >> I recently had am MRI of my brain, I just did not feel right, I am > forgetting more. I was scared my Onc was going to tell me I have > alzheimer's. Instead I was told I have shrinkage to my brain. I am > only 50 she said this only happens to old people. Maybe because of > all the chemo I went through. Within the past week I have forgot to > put several deductions in

our checkin account and was charged 120 in > overdraft fees. I am so mad at myself I'm shaking. My husband asked if > I wanted him to take over the fiances. I do but I used to be good at > it. I feel like I'm giving up a part of my life.>

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[Guest guest]

Well I have had it for 15 1/2 years. It sure isn't getting any better.

Hugs

marianne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: Re: Brain

and :

I to, have chemo brain...it's been a year and a half (?) and still having problems.....I have applied for SSD and had to hire a lawyer....., how long did it take for you to get the SSD, if that is what you got? Could you tell me more? "of all the things I've lost; I miss my mind the most"

I could go on and on about this. It's been horrible for me........councelors, ect. Now I'm heading for a neuro eval this Fri.

, I SO hear you!!!!!!! Things that used to be fun are now a chore because I can't concentrate or retain much.......My memory is like an alzheimers patient....and it too scares me.........Dr.s used to say "Oh, it will come back" it has only gotton worse.......I have just begun to see a physcologist that helps one "learn" to deal with pain.......she recently said to me "your memory concerns me" (this is after I told her about the chemo brain) DAH!!!!!! it concerns her? she doesn't get it. Not too many dr.s do unfortunatly. It's a battle I know for sure. Any info you have to share with me would be greatly appreciated.

Thanks so much

Sincerely,

Darlene Malone wrote:

I would like to ask if anyone is working with the chemo brain problem. I finally went on disability because of this problem.senalb <no_reply > wrote: I still have chemo brain after 6 years...I guess it's gonna be permanent. I used to reconcile my checking account to the penny every month, now I'm doing good if I glance at my statement to be sure everything that cleared was mine and correct! I put an extra $200 in my checking account and didn't add it to my checkbook balance, so that I wouldn't bounce checks. So far, that has worked for me. I also find that a lot of tedious things that I used to love to do (cross stitch, quilling, puzzles, etc.) have become chores that I no longer enjoy. Wish I could tell you that it gets better, but mine hasn't! Hugs, >> I recently had am MRI of my brain, I just did not feel right, I am > forgetting more. I was scared my Onc was going to tell me I have > alzheimer's. Instead I was told I have shrinkage to my brain. I am > only 50 she said this only happens to old people. Maybe because of > all the chemo I went through. Within the past week I have forgot to > put several deductions in our checkin account and was charged 120 in > overdraft fees. I am so mad at myself I'm shaking. My husband asked if > I wanted him to take over the fiances. I do but I used to be good at > it. I feel like I'm giving up a part of my life.>

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

It took me six months. I colleted before after the mets to my lung for four years. My problems are, I can't concentrate, I forget things really easy, the dc's call it a congitive disorder. I used to all the time I'm lucky to read a page a day. I never know what day or date it is until I look at a calendar. If you want to try for SSD just apply and see what happen's. I used Bender & Bender. & nne Svihlik wrote:

Well I have had it for 15 1/2 years. It sure isn't getting any better.

Hugs

marianne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: Re: Brain

and :

I to, have chemo brain...it's been a year and a half (?) and still having problems.....I have applied for SSD and had to hire a lawyer....., how long did it take for you to get the SSD, if that is what you got? Could you tell me more? "of all the things I've lost; I miss my mind the most"

I could go on and on about this. It's been horrible for me........councelors, ect. Now I'm heading for a neuro eval this Fri.

, I SO hear you!!!!!!! Things that used to be fun are now a chore because I can't concentrate or retain much.......My memory is like an alzheimers patient....and it too scares me.........Dr.s used to say "Oh, it will come back" it has only gotton worse.......I have just begun to see a physcologist that helps one "learn" to deal with pain.......she recently said to me "your memory concerns me" (this is after I told her about the chemo brain) DAH!!!!!! it concerns her? she doesn't get it. Not too many dr.s do unfortunatly. It's a battle I know for sure. Any info you have to share with me would be greatly appreciated.

Thanks so much

Sincerely,

Darlene Malone wrote:

I would like to ask if anyone is working with the chemo brain problem. I finally went on disability because of this problem.senalb <no_reply > wrote: I still have chemo brain after 6 years...I guess it's gonna be permanent. I used to reconcile my checking account to the penny every month, now I'm doing good if I glance at my statement to be sure everything that cleared was mine and correct! I put an extra $200 in my checking account and didn't add it to my checkbook balance, so that I wouldn't bounce checks. So far, that has worked for me. I also find that a lot of tedious things that I used to love to do (cross stitch, quilling, puzzles, etc.) have become chores that I no longer enjoy. Wish I could tell you that it gets better, but mine hasn't! Hugs, >> I recently had am MRI of my brain, I just did not feel right, I am > forgetting

more. I was scared my Onc was going to tell me I have > alzheimer's. Instead I was told I have shrinkage to my brain. I am > only 50 she said this only happens to old people. Maybe because of > all the chemo I went through. Within the past week I have forgot to > put several deductions in our checkin account and was charged 120 in > overdraft fees. I am so mad at myself I'm shaking. My husband asked if > I wanted him to take over the fiances. I do but I used to be good at > it. I feel like I'm giving up a part of my life.>

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

It took me six months. I colleted before after the mets to my lung for four years. My problems are, I can't concentrate, I forget things really easy, the dc's call it a congitive disorder. I used to all the time I'm lucky to read a page a day. I never know what day or date it is until I look at a calendar. If you want to try for SSD just apply and see what happen's. I used Bender & Bender. & nne Svihlik wrote:

Well I have had it for 15 1/2 years. It sure isn't getting any better.

Hugs

marianne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: Re: Brain

and :

I to, have chemo brain...it's been a year and a half (?) and still having problems.....I have applied for SSD and had to hire a lawyer....., how long did it take for you to get the SSD, if that is what you got? Could you tell me more? "of all the things I've lost; I miss my mind the most"

I could go on and on about this. It's been horrible for me........councelors, ect. Now I'm heading for a neuro eval this Fri.

, I SO hear you!!!!!!! Things that used to be fun are now a chore because I can't concentrate or retain much.......My memory is like an alzheimers patient....and it too scares me.........Dr.s used to say "Oh, it will come back" it has only gotton worse.......I have just begun to see a physcologist that helps one "learn" to deal with pain.......she recently said to me "your memory concerns me" (this is after I told her about the chemo brain) DAH!!!!!! it concerns her? she doesn't get it. Not too many dr.s do unfortunatly. It's a battle I know for sure. Any info you have to share with me would be greatly appreciated.

Thanks so much

Sincerely,

Darlene Malone wrote:

I would like to ask if anyone is working with the chemo brain problem. I finally went on disability because of this problem.senalb <no_reply > wrote: I still have chemo brain after 6 years...I guess it's gonna be permanent. I used to reconcile my checking account to the penny every month, now I'm doing good if I glance at my statement to be sure everything that cleared was mine and correct! I put an extra $200 in my checking account and didn't add it to my checkbook balance, so that I wouldn't bounce checks. So far, that has worked for me. I also find that a lot of tedious things that I used to love to do (cross stitch, quilling, puzzles, etc.) have become chores that I no longer enjoy. Wish I could tell you that it gets better, but mine hasn't! Hugs, >> I recently had am MRI of my brain, I just did not feel right, I am > forgetting

more. I was scared my Onc was going to tell me I have > alzheimer's. Instead I was told I have shrinkage to my brain. I am > only 50 she said this only happens to old people. Maybe because of > all the chemo I went through. Within the past week I have forgot to > put several deductions in our checkin account and was charged 120 in > overdraft fees. I am so mad at myself I'm shaking. My husband asked if > I wanted him to take over the fiances. I do but I used to be good at > it. I feel like I'm giving up a part of my life.>

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