Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Rose-Marie, Glad to see you think the lamictal is doing something for , is she coping ok with any side effects? When was in tonic status late last yr we saw all sorts of weird and wonderful seizure types that were actually different manifestations of tonic seizures that included something like you are describing here. His head would get jerked around to the side, sometimes just his neck twisting, sometimes his whole body - often accompanied by cycling movements and weird sorts of laughter or smiling afterwards. Were hers like that? Or more like a continual jerking? I didn't see any of those twisting ones that lasted 10 mins or more with him though - the prolonged ones were more when he was having a full on nasty convulsive type vibratory one, v simliar to a tonic clonic seizure, but not quite as 'rhythmic'. Ugh. ----- Original Message ----- > What kind of seizure would have a rather long (>10 min.) bouts of marionette-like jerking as its symptom? began these about a month ago, and the introduction of Lamictal has eliminated them. Yippee! Still, I'm curious as to what they were, as they were nearly continual at one point and interrupted only by tonic seizures. She would try to hold her attention to the telly or to look at us when we talked to her, but the jerking would pull her head around. Needless to say, our whole family is delighted to see them gone! I'm just curious how these would be classified... > > Rose-Marie > mom to (age 8) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Rose-Marie, Glad to see you think the lamictal is doing something for , is she coping ok with any side effects? When was in tonic status late last yr we saw all sorts of weird and wonderful seizure types that were actually different manifestations of tonic seizures that included something like you are describing here. His head would get jerked around to the side, sometimes just his neck twisting, sometimes his whole body - often accompanied by cycling movements and weird sorts of laughter or smiling afterwards. Were hers like that? Or more like a continual jerking? I didn't see any of those twisting ones that lasted 10 mins or more with him though - the prolonged ones were more when he was having a full on nasty convulsive type vibratory one, v simliar to a tonic clonic seizure, but not quite as 'rhythmic'. Ugh. ----- Original Message ----- > What kind of seizure would have a rather long (>10 min.) bouts of marionette-like jerking as its symptom? began these about a month ago, and the introduction of Lamictal has eliminated them. Yippee! Still, I'm curious as to what they were, as they were nearly continual at one point and interrupted only by tonic seizures. She would try to hold her attention to the telly or to look at us when we talked to her, but the jerking would pull her head around. Needless to say, our whole family is delighted to see them gone! I'm just curious how these would be classified... > > Rose-Marie > mom to (age 8) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Rose-Marie, Glad to see you think the lamictal is doing something for , is she coping ok with any side effects? When was in tonic status late last yr we saw all sorts of weird and wonderful seizure types that were actually different manifestations of tonic seizures that included something like you are describing here. His head would get jerked around to the side, sometimes just his neck twisting, sometimes his whole body - often accompanied by cycling movements and weird sorts of laughter or smiling afterwards. Were hers like that? Or more like a continual jerking? I didn't see any of those twisting ones that lasted 10 mins or more with him though - the prolonged ones were more when he was having a full on nasty convulsive type vibratory one, v simliar to a tonic clonic seizure, but not quite as 'rhythmic'. Ugh. ----- Original Message ----- > What kind of seizure would have a rather long (>10 min.) bouts of marionette-like jerking as its symptom? began these about a month ago, and the introduction of Lamictal has eliminated them. Yippee! Still, I'm curious as to what they were, as they were nearly continual at one point and interrupted only by tonic seizures. She would try to hold her attention to the telly or to look at us when we talked to her, but the jerking would pull her head around. Needless to say, our whole family is delighted to see them gone! I'm just curious how these would be classified... > > Rose-Marie > mom to (age 8) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Hi Rose-Marie, I'm glad these funny sz have stopped. We had three emergency visits to hospital since last December with strange sz. Rohan was almost trembling and would jerk his head violently every few seconds. This was very unusual. They didn't do any EEGs and one Dr. even suggested they weren't sz but then changed his mind because Rohan's eyes were quivering too, when they lifted his eyelids. All I know is that the sz are connected with Keppra. Since then the dose was reduced and we have seen them (to a much lesser degree) on a couple of occasions. On a much lower dose of Keppra he has many more sz. so we are trying to tread this fine line. Was on any other AED before Lamictal? From our experience I wonder whether they could be to with reducing/inceasing an AED? Saro....Rohan's mum & Hill wrote: > Hi Rose-Marie, > Glad to see you think the lamictal is doing something for , is she > coping ok with any side effects? > When was in tonic status late last yr we saw all sorts of > weird and > wonderful seizure types that were actually different manifestations of > tonic > seizures that included something like you are describing here. > His head would get jerked around to the side, sometimes just his neck > twisting, sometimes his whole body - often accompanied by cycling > movements > and weird sorts of laughter or smiling afterwards. > Were hers like that? Or more like a continual jerking? I didn't see > any of > those twisting ones that lasted 10 mins or more with him though - the > prolonged ones were more when he was having a full on nasty convulsive > type > vibratory one, v simliar to a tonic clonic seizure, but not quite as > 'rhythmic'. Ugh. > > > > ----- Original Message ----- > > > > What kind of seizure would have a rather long (>10 min.) bouts of > marionette-like jerking as its symptom? began these about a month > ago, and the introduction of Lamictal has eliminated them. Yippee! > Still, > I'm curious as to what they were, as they were nearly continual at one > point > and interrupted only by tonic seizures. She would try to hold her > attention > to the telly or to look at us when we talked to her, but the jerking would > pull her head around. Needless to say, our whole family is delighted > to see > them gone! I'm just curious how these would be classified... > > > > Rose-Marie > > mom to (age 8) > > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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