Re: Re: Depakote MY SON IS A MESS to all

[Guest guest]

Dear Carolyn, , Glenna, Sandi and Arian, and anyone I missed

Thanks for all of you repsponses. I honestly feel like I have a newborn

again. And to think we are thinking about having another child-am I crazy or

what?? slept really good on the depakote and really has always been

a

good sleeper. However, the last 6 mos on the depakote he would come into our

room at 4 am and fall right back asleep. It has gradually gotten worse and now

he is not sleeping. Maybe 1-2 hours combined. He is grunting alot and

fidgeting and agitated. Its like he is tired but can't sleep. But, the tics??

we

were seeing are diminishing and I have not seen any in a few days.

His neuro gave us Zanaflex to give him for sleep and it puts him to sleep but

he wakes up after a few hours. Last night I gave it to him when he woke up

and it put him to sleep but then a alarm clock went off in him room (don't ask

me why) and woke him up. I could just scream. I also think the mood

stabilizer in the dekapote may have helped . We're just waiting to

get

everything weaned to see what we are really dealing with. I know he has ADD and

ADHD but I have always wondered if there is an underlying mood disorder going

on. It is so hard to know when there has always been so much going on ie.

seizures, food allergies, weaning. Since the seizures started or should I say

were confirmed almost 5 years ago, it seems that there are always so many

factors to consider when trying to find out what is going on and that is so

frustrating about the docs because they just want to give him Ritalin or

Risperdal

and call it a day. Now that the seizures are gone (knock on wood) I am not

opposed to that if it is necessary but I just want to know the true culprit of

the

issues. Right now I know that the depakote plays a huge part in it but is

there any underlying problem as well??? I wonder about food allergies and gluten

etc.

Well, its comforting to know that we are not alone in this big world and

means so much to have the support from all of you! Also, does anyone know of

something that works for keeping a child asleep??

Many thanks

[Guest guest]

Dear Carolyn, , Glenna, Sandi and Arian, and anyone I missed

Thanks for all of you repsponses. I honestly feel like I have a newborn

again. And to think we are thinking about having another child-am I crazy or

what?? slept really good on the depakote and really has always been

a

good sleeper. However, the last 6 mos on the depakote he would come into our

room at 4 am and fall right back asleep. It has gradually gotten worse and now

he is not sleeping. Maybe 1-2 hours combined. He is grunting alot and

fidgeting and agitated. Its like he is tired but can't sleep. But, the tics??

we

were seeing are diminishing and I have not seen any in a few days.

His neuro gave us Zanaflex to give him for sleep and it puts him to sleep but

he wakes up after a few hours. Last night I gave it to him when he woke up

and it put him to sleep but then a alarm clock went off in him room (don't ask

me why) and woke him up. I could just scream. I also think the mood

stabilizer in the dekapote may have helped . We're just waiting to

get

everything weaned to see what we are really dealing with. I know he has ADD and

ADHD but I have always wondered if there is an underlying mood disorder going

on. It is so hard to know when there has always been so much going on ie.

seizures, food allergies, weaning. Since the seizures started or should I say

were confirmed almost 5 years ago, it seems that there are always so many

factors to consider when trying to find out what is going on and that is so

frustrating about the docs because they just want to give him Ritalin or

Risperdal

and call it a day. Now that the seizures are gone (knock on wood) I am not

opposed to that if it is necessary but I just want to know the true culprit of

the

issues. Right now I know that the depakote plays a huge part in it but is

there any underlying problem as well??? I wonder about food allergies and gluten

etc.

Well, its comforting to know that we are not alone in this big world and

means so much to have the support from all of you! Also, does anyone know of

something that works for keeping a child asleep??

Many thanks

[Guest guest]

,

Ariane again. The sleep thing brought back more memories of the wean from

hell. Our beach week....Dillon would get up at 2 AM and try to leave the house.

We were sure we would find him in the ocean one morning. My husband had to

sleep in front of the bedroom door. Dillon (and us) hardly slept at all

during the wean. I think it is all related. Take your time and once you are

done

weaning don't forget it can still take weeks to completely be out of his

system. After all that, then see how he is doing. I have twins with ADD and

Dillon has shown symptoms of the same BUT only when he is actively seizing,

sick,

and /or going up and down on meds. It seems there have been very few moments

in his life where he is completely stable and at these times he seems like a

very normal boy and not ADD at all. I would not add ADD meds to the mix anytime

soon. There is a risk of developing tourettes that is slightly increased for

kids with a history of seizures.

Hang in there:-)

Ariane

(Dillon,7, ketokid for 2 years now on tegretol)

[Guest guest]

First--I thought there was a post of a child seizure-free---then the docs

started treating the Add/ADHD with ??a med?? and seizures returned and did

not

go away even when the med was removed

Please --if anyone reads this and can help-??

Sandi

[Guest guest]

First--I thought there was a post of a child seizure-free---then the docs

started treating the Add/ADHD with ??a med?? and seizures returned and did

not

go away even when the med was removed

Please --if anyone reads this and can help-??

Sandi

[Guest guest]

First--I thought there was a post of a child seizure-free---then the docs

started treating the Add/ADHD with ??a med?? and seizures returned and did

not

go away even when the med was removed

Please --if anyone reads this and can help-??

Sandi

[Guest guest]

My son is on Adderall for ADHD. Yes, it can lower the threshold for

seizures -- all of the stimulants can. We've been fortunate that we've

not seen increased seizures with it --- but I would recommend only

starting a stimulant when NOTHING else is going on, so you can evaluate

if it makes a difference.

Kathy

On Mon, 9 Feb 2004 07:58:17 EST SJVC5@... writes:

> First--I thought there was a post of a child seizure-free---then the

> docs

> started treating the Add/ADHD with ??a med?? and seizures returned

> and did not

> go away even when the med was removed

>

> Please --if anyone reads this and can help-??

>

> Sandi

>

>

>

[Guest guest]

My son is on Adderall for ADHD. Yes, it can lower the threshold for

seizures -- all of the stimulants can. We've been fortunate that we've

not seen increased seizures with it --- but I would recommend only

starting a stimulant when NOTHING else is going on, so you can evaluate

if it makes a difference.

Kathy

On Mon, 9 Feb 2004 07:58:17 EST SJVC5@... writes:

> First--I thought there was a post of a child seizure-free---then the

> docs

> started treating the Add/ADHD with ??a med?? and seizures returned

> and did not

> go away even when the med was removed

>

> Please --if anyone reads this and can help-??

>

> Sandi

>

>

>