Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Lem That worries me about going down 1mg a week. Since I got down to 5mg my dr is taking me down 1mg every 2 months. Be careful and if it doesn't feel right let the dr k`now imediately. Ah,you all went without me..........we need to do it again before gets too cold. Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Teddi... I have a question for you. When you had your mastectomy, did you experience lymphedema after? That's where the lymph fluid makes the arm and hand swell. I'm on antibiotics for it but they aren't working 100% yet. It's very uncomfortable...throbs a little andI don't have full use of my right hand, which is very bad for me and my work. Just wondered how common this is. Thanks, Annette -----Original Message-----From: TeddiFromOK@... Sent: Thursday, October 17, 2002 11:22 PMTo: OurMyositis Subject: Re: Lem Checking inLemThat worries me about going down 1mg aweek. Since I got down to 5mg my dr istaking me down 1mg every 2 months.Be careful and if it doesn't feel right letthe dr k`now imediately.Ah,you all went without me..........we needto do it again before gets too cold.Teddimailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Teddi... I have a question for you. When you had your mastectomy, did you experience lymphedema after? That's where the lymph fluid makes the arm and hand swell. I'm on antibiotics for it but they aren't working 100% yet. It's very uncomfortable...throbs a little andI don't have full use of my right hand, which is very bad for me and my work. Just wondered how common this is. Thanks, Annette -----Original Message-----From: TeddiFromOK@... Sent: Thursday, October 17, 2002 11:22 PMTo: OurMyositis Subject: Re: Lem Checking inLemThat worries me about going down 1mg aweek. Since I got down to 5mg my dr istaking me down 1mg every 2 months.Be careful and if it doesn't feel right letthe dr k`now imediately.Ah,you all went without me..........we needto do it again before gets too cold.Teddimailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Teddi... I have a question for you. When you had your mastectomy, did you experience lymphedema after? That's where the lymph fluid makes the arm and hand swell. I'm on antibiotics for it but they aren't working 100% yet. It's very uncomfortable...throbs a little andI don't have full use of my right hand, which is very bad for me and my work. Just wondered how common this is. Thanks, Annette -----Original Message-----From: TeddiFromOK@... Sent: Thursday, October 17, 2002 11:22 PMTo: OurMyositis Subject: Re: Lem Checking inLemThat worries me about going down 1mg aweek. Since I got down to 5mg my dr istaking me down 1mg every 2 months.Be careful and if it doesn't feel right letthe dr k`now imediately.Ah,you all went without me..........we needto do it again before gets too cold.Teddimailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi, Lem. Well, maybe it's best to give this stupid Rheumy a 2nd chance. Maybe he was having an off day or something. However, I feel if you're still unhappy with him after this next appt. (on my b-day, I might add), then definately don't go back, regardless of what your GP says. It's your health that's on the line. Thanks for the wishes for my trip to Montreal. I appreciate any and all prayers. God bless you both, Dawn lem1432 wrote: > Hello everybody, I went to my regular doctor the other day. Had a > check up got my flu shot. I was telling him how my appt. went with > Dr. Stupid rhummy and he thought I should go back to him. He thought > I should give him more time to get aquainted with me and my case, he > also said he would like to see me off the pred. and that cutting down > 1 mg. every week was not to fast. He had his nurse call and make me > another appt. with the nut because we didnt make one so I have one > with this nut for Nov. 1st. He said I didnt have much choice since he > was the only doctor in the ins. network. He also told me he talked to > the MDA clinic about me seeing a doctor there and they told him they > would only send me to a dermatolgist. Well I dont need that, my skin > is cleared up so it wouldnt do any good. He thought once they seen me > and the shape I'm in they would do more for me and he wants me to go, > so maybe I will get a appt. there soon. I am sure getting disgusted > and discouraged with these doctors, but I know we all seem to have to > go through this until we find Dr. Right. > Dawn, I sure wish you well on your Dr. appt., beck and I will pray > all goes well for you. > Zanna & Vicki, I hope you are feeling better. > Sue, always glad to hear from you and read your post. Hope you and > your dad are doing good. > Lynn, you let them growing boys eat up the brownies, lol. Hope you > are doing good. > Teddi, beck and I went to Lubys yesterday and ate at " our table " and > talked about you and our lunch there with you, was your ears burning, > haha. Hope you are doing good. > Hi to everyone else and hope everyone is feeling better, stronger. > Take care all. Lem > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi, Lem. Well, maybe it's best to give this stupid Rheumy a 2nd chance. Maybe he was having an off day or something. However, I feel if you're still unhappy with him after this next appt. (on my b-day, I might add), then definately don't go back, regardless of what your GP says. It's your health that's on the line. Thanks for the wishes for my trip to Montreal. I appreciate any and all prayers. God bless you both, Dawn lem1432 wrote: > Hello everybody, I went to my regular doctor the other day. Had a > check up got my flu shot. I was telling him how my appt. went with > Dr. Stupid rhummy and he thought I should go back to him. He thought > I should give him more time to get aquainted with me and my case, he > also said he would like to see me off the pred. and that cutting down > 1 mg. every week was not to fast. He had his nurse call and make me > another appt. with the nut because we didnt make one so I have one > with this nut for Nov. 1st. He said I didnt have much choice since he > was the only doctor in the ins. network. He also told me he talked to > the MDA clinic about me seeing a doctor there and they told him they > would only send me to a dermatolgist. Well I dont need that, my skin > is cleared up so it wouldnt do any good. He thought once they seen me > and the shape I'm in they would do more for me and he wants me to go, > so maybe I will get a appt. there soon. I am sure getting disgusted > and discouraged with these doctors, but I know we all seem to have to > go through this until we find Dr. Right. > Dawn, I sure wish you well on your Dr. appt., beck and I will pray > all goes well for you. > Zanna & Vicki, I hope you are feeling better. > Sue, always glad to hear from you and read your post. Hope you and > your dad are doing good. > Lynn, you let them growing boys eat up the brownies, lol. Hope you > are doing good. > Teddi, beck and I went to Lubys yesterday and ate at " our table " and > talked about you and our lunch there with you, was your ears burning, > haha. Hope you are doing good. > Hi to everyone else and hope everyone is feeling better, stronger. > Take care all. Lem > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi Annette When i had my masectomy they didn't take the lymph nodes and I didn't have the arm & hand swelling. I do have swelling in the fleshy part in`my armpit and still after over 6 years have some numbness in the chest area. It is finally going away somewhat. I didn't have chemo or radiation. Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Thanks, Teddi. I have the numbness too, but it really doesn't bother me. Makes it hard to shave under that arm, though...I just don't do it as often as I used to. Annette -----Original Message-----From: TeddiFromOK@... Sent: Friday, October 18, 2002 12:13 PMTo: OurMyositis Subject: RE: Lem Checking inHi AnnetteWhen i had my masectomy they didn't takethe lymph nodes and I didn't have the arm & hand swelling. I do have swelling in thefleshy part in`my armpit and still after over6 years have some numbness in the chestarea. It is finally going away somewhat.I didn't have chemo or radiation.Teddimailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Thanks, Teddi. I have the numbness too, but it really doesn't bother me. Makes it hard to shave under that arm, though...I just don't do it as often as I used to. Annette -----Original Message-----From: TeddiFromOK@... Sent: Friday, October 18, 2002 12:13 PMTo: OurMyositis Subject: RE: Lem Checking inHi AnnetteWhen i had my masectomy they didn't takethe lymph nodes and I didn't have the arm & hand swelling. I do have swelling in thefleshy part in`my armpit and still after over6 years have some numbness in the chestarea. It is finally going away somewhat.I didn't have chemo or radiation.Teddimailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
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