Re: my THS results after being on meds....?

[Guest guest]

> I got my blood test back yesterday, they say my THS kevel was .52

> and there normal range is between .40-5.20 So I am at the lower end

> of a normal range, but should i adjust my meds to make it a bit

> higher? They called yesterday and told me my results and said just

> to stay on the level i am, i feel fine, i am not overly tired, and i

> don't think i have any other major symtoms of my THS level being

> low.

Jodi - Glad you're feeling good! Your TSH is not low enough for a

thycan - it should be >0.1. Our TSH needs to be suppressed, NOT in

the normal range. I am not clear who it is that called to give you

the results and tell you to stay on this level - was it the surgeon?

The nuclear med doc? the endo? You do need a higher dose of

T4, but you should not adjust your dose yourself - it needs to

be done by the doctor.

I seem to recall that you have a bit of a challenge with the endo you

currently have, and that he didn't seem to understand thyca protocol.

> Sometimes my head feels a little stuffed, and clogged, but

> only a few times a week. But other then that I feel great. I go to

> the Endo on jan 13th for the first time since my RAI, and being on

> meds, so i was just wondering what I should ask and do about the

> meds....

I'd ask him about increasing the dose (and then you'd need to get the

new endo to re-test you in 6-8 weeks), but if he's unwilling to do so,

you may need to wait, and make it a priority to find a good endo in

Vegas who can adjust your meds as needed - have you gotten some

suggestions from other group members about endos there?

>( i am on synthroid 0.125.. i am not sure if that is a

> normal amount or not...

There's really no " normal " amount:

I'll quote in a recent post -

" According to Dr. Ain, " the mean replacement dose of levothyroxine is

2.0 micrograms per kilogram (2.2 lbs) per day. For example, a 165 lb

person would average 150 micrograms daily to suppress their TSH. Of

course, there is a wide range of variation and there are many factors

which are involved.

( http://groups.yahoo.com/group/Thyca/message/11763 ) "

One of the docs at the conference says he starts with about 1 mcg/lb,

and then adjusts from there.

> They did do a full blood work up with the

> t3, and t4 and a few other things, but they said all the bloodwrok

> was in the normal range. I will get copys of all my bloodwork when

> i go for my files ( i am moving to vegas on the 28th of jan, and

> will have to find a new doc and endo.

> take care and thanks in advance for any info

> jodi

Good luck with finding a good endo and with the move!!

Cheers,

Alisa

Currently - 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: WBS (2 mCi) and 100 mCi RAI --- 6/6/2002: WBS - No mets

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID thoughts, tips, ideas -

http://groups.yahoo.com/group/Thyca/message/25430