Re: Re: Personal CHARGE Blogs and Web Sites

[Guest guest]

I love your blog...I visit it almost every day! (Remember we emailed back and

forth a few times after you read about Maxwell through Ali blog) But I

want more photos of adorable !!! He is soooo cute and I love your funny

stories about him. And I am delighted to hear about his new school...especially

the note you got from the teacher!

I will add it as well! Thanks Moriah! I think you could help out alot of us

moms of babies with your experience with . You are obviously a very strong

advocate on his behalf!

Take care! Amy

zandycards wrote:

Hi Amy

I'm more of a lurker on this list but I wanted to chime in here &

add my blog to the list. It's not soley about but you can see

how he's doing & what we're up to.

is doing so great these days (he's 7 1/2). I should get more

involved here as I do have questions from time to time. We recently

found the most amazing school & we're so happy after 18 months

of total school hell.

Here is my blog: http://moriahbettencourt.typepad.com

Moriah Bettencourt

>

> Hello everyone!!!

>

> It seems like more and more CHARGE families are having websites

and blogs dedicated to their little one's progress...as well as

adult CHARGErs chronicling (sp?) their lives. I absolutely love

this and think how wonderful it would have been to read some of

these when Max was first diagnosed. I remember having a very

difficult time locating personal stories.

>

> What does everything think about having a list of CHARGE

personal sites linked to the CHARGE foundation website? I think

reading about the parent's love of their CHARGE child and reading

about an adult's success would be very encouraging for a families.

>

> Just a thought!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

I love your blog...I visit it almost every day! (Remember we emailed back and

forth a few times after you read about Maxwell through Ali blog) But I

want more photos of adorable !!! He is soooo cute and I love your funny

stories about him. And I am delighted to hear about his new school...especially

the note you got from the teacher!

I will add it as well! Thanks Moriah! I think you could help out alot of us

moms of babies with your experience with . You are obviously a very strong

advocate on his behalf!

Take care! Amy

zandycards wrote:

Hi Amy

I'm more of a lurker on this list but I wanted to chime in here &

add my blog to the list. It's not soley about but you can see

how he's doing & what we're up to.

is doing so great these days (he's 7 1/2). I should get more

involved here as I do have questions from time to time. We recently

found the most amazing school & we're so happy after 18 months

of total school hell.

Here is my blog: http://moriahbettencourt.typepad.com

Moriah Bettencourt

>

> Hello everyone!!!

>

> It seems like more and more CHARGE families are having websites

and blogs dedicated to their little one's progress...as well as

adult CHARGErs chronicling (sp?) their lives. I absolutely love

this and think how wonderful it would have been to read some of

these when Max was first diagnosed. I remember having a very

difficult time locating personal stories.

>

> What does everything think about having a list of CHARGE

personal sites linked to the CHARGE foundation website? I think

reading about the parent's love of their CHARGE child and reading

about an adult's success would be very encouraging for a families.

>

> Just a thought!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

moriah if you want me to invite you to gmail just email me

ellen.howe@... and i can invite yo gmail is for people like you each

post is separated into categorys so then so thsi has 25 post this one

category instead of that many indevidiual emails its all in oen bulk email

its great i love it

>

> Hi Amy!

>

> Of course I remember you, when I seen your name I posted! I love

> your blog too, Max reminds me soooo much of when was a

> baby. Reading your blog is like going back to that little squishy

> baby I loved so much . Hopefully someday I'll be up in your area &

> we can get together. We love it up there & one of my good friends

> just had a baby up there.

>

> I do want to try to get more involved here, I tried a couple of

> times but it's hard to keep up with. I need to figure out how to

> change my email address through here because the one on my profile

> is no longer active.

>

> Talk to you soon!

> Moriah

>

>

> > >

> > > Hello everyone!!!

> > >

> > > It seems like more and more CHARGE families are having websites

> > and blogs dedicated to their little one's progress...as well as

> > adult CHARGErs chronicling (sp?) their lives. I absolutely love

> > this and think how wonderful it would have been to read some of

> > these when Max was first diagnosed. I remember having a very

> > difficult time locating personal stories.

> > >

> > > What does everything think about having a list of CHARGE

> > personal sites linked to the CHARGE foundation website? I think

> > reading about the parent's love of their CHARGE child and reading

> > about an adult's success would be very encouraging for a

> families.

> > >

> > > Just a thought!

> > >

> > >

> > > Amy McKinley

> > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> > > maxupdate.blogspot.com

> > >

> > > ---------------------------------

> > > How low will we go? Check out Yahoo! Messenger's low PC-to-

> Phone

> > call rates.

> > >

> > >

[Guest guest]

moriah if you want me to invite you to gmail just email me

ellen.howe@... and i can invite yo gmail is for people like you each

post is separated into categorys so then so thsi has 25 post this one

category instead of that many indevidiual emails its all in oen bulk email

its great i love it

>

> Hi Amy!

>

> Of course I remember you, when I seen your name I posted! I love

> your blog too, Max reminds me soooo much of when was a

> baby. Reading your blog is like going back to that little squishy

> baby I loved so much . Hopefully someday I'll be up in your area &

> we can get together. We love it up there & one of my good friends

> just had a baby up there.

>

> I do want to try to get more involved here, I tried a couple of

> times but it's hard to keep up with. I need to figure out how to

> change my email address through here because the one on my profile

> is no longer active.

>

> Talk to you soon!

> Moriah

>

>

> > >

> > > Hello everyone!!!

> > >

> > > It seems like more and more CHARGE families are having websites

> > and blogs dedicated to their little one's progress...as well as

> > adult CHARGErs chronicling (sp?) their lives. I absolutely love

> > this and think how wonderful it would have been to read some of

> > these when Max was first diagnosed. I remember having a very

> > difficult time locating personal stories.

> > >

> > > What does everything think about having a list of CHARGE

> > personal sites linked to the CHARGE foundation website? I think

> > reading about the parent's love of their CHARGE child and reading

> > about an adult's success would be very encouraging for a

> families.

> > >

> > > Just a thought!

> > >

> > >

> > > Amy McKinley

> > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> > > maxupdate.blogspot.com

> > >

> > > ---------------------------------

> > > How low will we go? Check out Yahoo! Messenger's low PC-to-

> Phone

> > call rates.

> > >

> > >

[Guest guest]

moriah if you want me to invite you to gmail just email me

ellen.howe@... and i can invite yo gmail is for people like you each

post is separated into categorys so then so thsi has 25 post this one

category instead of that many indevidiual emails its all in oen bulk email

its great i love it

>

> Hi Amy!

>

> Of course I remember you, when I seen your name I posted! I love

> your blog too, Max reminds me soooo much of when was a

> baby. Reading your blog is like going back to that little squishy

> baby I loved so much . Hopefully someday I'll be up in your area &

> we can get together. We love it up there & one of my good friends

> just had a baby up there.

>

> I do want to try to get more involved here, I tried a couple of

> times but it's hard to keep up with. I need to figure out how to

> change my email address through here because the one on my profile

> is no longer active.

>

> Talk to you soon!

> Moriah

>

>

> > >

> > > Hello everyone!!!

> > >

> > > It seems like more and more CHARGE families are having websites

> > and blogs dedicated to their little one's progress...as well as

> > adult CHARGErs chronicling (sp?) their lives. I absolutely love

> > this and think how wonderful it would have been to read some of

> > these when Max was first diagnosed. I remember having a very

> > difficult time locating personal stories.

> > >

> > > What does everything think about having a list of CHARGE

> > personal sites linked to the CHARGE foundation website? I think

> > reading about the parent's love of their CHARGE child and reading

> > about an adult's success would be very encouraging for a

> families.

> > >

> > > Just a thought!

> > >

> > >

> > > Amy McKinley

> > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> > > maxupdate.blogspot.com

> > >

> > > ---------------------------------

> > > How low will we go? Check out Yahoo! Messenger's low PC-to-

> Phone

> > call rates.

> > >

> > >