Re: blood ketones/glucose/...anyone

[Guest guest]

Hi ,

Have you ever done any blood ketone testing for ? We are

just starting for Macie. Her urine sticks are almost always 80-160.

In hospital, her blood level was in the 2's or 3's (target range 4-

6). I feel like we've wasted a lot of time by not trying this...of

course our last neuro used only urine.

I asked our new dietitian about glucose monitoring and explained

to her that we had little success in figuring out any patterns. She

said in her experience the glucose readings were not much help in

trying to fine tune or predict seizure control. She said there is a

natural ebb and flow of glucose in the body, and it doesn't take much

to upset that. Sometimes you'll have abnormal readings from some

process at work in your body (fighting off illness, etc.) and never

know why.

I thought this was interesting and might explain why we never got

any useful info from Macie's glucose readings. Of course, Macie may

just be the exception (she usually is). I'm interested to see what

others have to say about this. I know some of you use it

successfully.

Just wanted to share....

Thanks,

Glenna

> > > > HI Cleo,

> > > > We just got back from a visit to Macie's new epilepsy

center.

> > > > They are using blood ketone measurements, and we never did

> before.

> > > > The dietitian gave us the machine, and the neuro wrote a

> > > prescription

> > > > for the strips. She said they run $5 or $6 a strip (I can't

> wait

> > > to

> > > > see what our insurance ends up paying!!).

> > > > The brand we have is a Precision Extra by Medisense. It

> also

> > > > does glucose with a different strip. There may be others out

> there.

> > >

> > > >

> > > > Best wishes,

> > > >

> > > > Glenna

> > > >

> > > > FYI: Macie's urine ketones have been consistently high. Her

> blood

> > > > ketones while in hospital (24 hours) were in the 2's and

3's.

> They

> > > > said the 4-6 range is usually necessary for seizure control.

> We're

> > > > hoping this will be a helpful tool for us, as much as we hate

to

> > > > stick her

> > > >

> > > >

> > > >

> > > >

> > > > >

> > > > > Hi all,

> > > > >

> > > > > I read a while back about a home tester for ketones in the

> blood?

> > > > >

> > > > > Where was that from, u.k.?

> > > > >

> > > > > Thanks,

> > > > >

> > > > > Cleo

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Hi ,

Guess I caught the tail end of your postings...sorry to have you

repeat.

Thanks,

Glenna

-- In ketogenic , mmc@n... wrote:

> jgmsteele@y... wrote:

>

> > Hi ,

> > Have you ever done any blood ketone testing for ?

>

> Only once and I just posted about that to Cammie a little while ago.

> Whether lab error or not, it came back less than one, I think maybe

0.2

> or something, can't remember exactly now. And that was with perfect

> seizure control. So it doesn't make much sense, but when we ever get

> control back again I wouldn't mind tracking just to see if its

still out

> of whack

>

>

>

>

[Guest guest]

Hi ,

Guess I caught the tail end of your postings...sorry to have you

repeat.

Thanks,

Glenna

-- In ketogenic , mmc@n... wrote:

> jgmsteele@y... wrote:

>

> > Hi ,

> > Have you ever done any blood ketone testing for ?

>

> Only once and I just posted about that to Cammie a little while ago.

> Whether lab error or not, it came back less than one, I think maybe

0.2

> or something, can't remember exactly now. And that was with perfect

> seizure control. So it doesn't make much sense, but when we ever get

> control back again I wouldn't mind tracking just to see if its

still out

> of whack

>

>

>

>

[Guest guest]

Hi ,

Guess I caught the tail end of your postings...sorry to have you

repeat.

Thanks,

Glenna

-- In ketogenic , mmc@n... wrote:

> jgmsteele@y... wrote:

>

> > Hi ,

> > Have you ever done any blood ketone testing for ?

>

> Only once and I just posted about that to Cammie a little while ago.

> Whether lab error or not, it came back less than one, I think maybe

0.2

> or something, can't remember exactly now. And that was with perfect

> seizure control. So it doesn't make much sense, but when we ever get

> control back again I wouldn't mind tracking just to see if its

still out

> of whack

>

>

>

>