Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 What about those with normal swallowing problem, but still having trouble gaining weight, like me? Remember, whenever I eat a lot, I rarely or don't gain weight? Unless it's the same kiind of foods everyday ya know. What do you call those defiencies/problems? I do noticed that my friend , use the gtube and he have gained weight, dang man! Now, he's around 100-110, phew! He beat me by 20-25 lbs, lol! Even Heidi beat me too, lol! Ol' Chipper > wrote: Bonni, The growth for CHARGE kids will be affecting by the hospitalizations, the extra effort needed to breath (for some) and the possible growth hormone deficiencies. Most kids with CHARGE are at the 3rd percentile for height and weight--and they struggle to gain weight even wtih feeding tubes. B. > > > > TransUnion ITC > > www.transunionitc.co.za > > > > > > > Hi as you know Cherise is finally at home,Lana is very pleased about > that,she is a bit heartsore today,went to the pediatrician and she told them > Cherise has growth problems,she weighed 2.5kg's at birth and will be 3 > months old on the 5th,she now weighs 3.9kg,according to them this is not > right,I dont know much about this what do you think?told her not to worry > about that for now,she must concentrate on today,but I know its easy for me > to say.Is there something that can be done?Regards > > > > > > > > Bonni Coetzer > Reception Alpha sales & user support > Cell > Tel / (031) 5738504 > Fax / 2 > bcoetzer@... > > > > > > <http://tuitc.dm.ltc.co.za/tracker/index2.php? id=21 & email=bcoetzer@transunio > nitc.co.za> > > > > > > > > > > > TC Dynamic Email from <http://www.techconcepts.co.za/email/> Technology > Concepts > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 What about those with normal swallowing problem, but still having trouble gaining weight, like me? Remember, whenever I eat a lot, I rarely or don't gain weight? Unless it's the same kiind of foods everyday ya know. What do you call those defiencies/problems? I do noticed that my friend , use the gtube and he have gained weight, dang man! Now, he's around 100-110, phew! He beat me by 20-25 lbs, lol! Even Heidi beat me too, lol! Ol' Chipper > wrote: Bonni, The growth for CHARGE kids will be affecting by the hospitalizations, the extra effort needed to breath (for some) and the possible growth hormone deficiencies. Most kids with CHARGE are at the 3rd percentile for height and weight--and they struggle to gain weight even wtih feeding tubes. B. > > > > TransUnion ITC > > www.transunionitc.co.za > > > > > > > Hi as you know Cherise is finally at home,Lana is very pleased about > that,she is a bit heartsore today,went to the pediatrician and she told them > Cherise has growth problems,she weighed 2.5kg's at birth and will be 3 > months old on the 5th,she now weighs 3.9kg,according to them this is not > right,I dont know much about this what do you think?told her not to worry > about that for now,she must concentrate on today,but I know its easy for me > to say.Is there something that can be done?Regards > > > > > > > > Bonni Coetzer > Reception Alpha sales & user support > Cell > Tel / (031) 5738504 > Fax / 2 > bcoetzer@... > > > > > > <http://tuitc.dm.ltc.co.za/tracker/index2.php? id=21 & email=bcoetzer@transunio > nitc.co.za> > > > > > > > > > > > TC Dynamic Email from <http://www.techconcepts.co.za/email/> Technology > Concepts > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 How can I get my nephew, age 10, who doesn't want to use his G-tube at night for extra nutrition. He is a very picky eater, because he has so few teeth (from the CHARGE) and dosn't have any adult teeth. He is so tiny, and wants to sit in the front seat of my car, and I keep telling him he has to eat more so he can gain weight and sit in the front. His 3-year old brother almost weighs as much as him. His other two younger brothers (8 & 7) also are much bigger than he is. We are thinking of growth hormone when he hits 11 or 12. > What about those with normal swallowing problem, but still having > trouble gaining weight, like me? Remember, whenever I eat a lot, I > rarely or don't gain weight? Unless it's the same kiind of foods > everyday ya know. What do you call those defiencies/problems? I do > noticed that my friend , use the gtube and he have gained weight, > dang man! Now, he's around 100-110, phew! He beat me by 20-25 lbs, > lol! Even Heidi beat me too, lol! > Ol' Chipper > > > wrote: > Bonni, > > The growth for CHARGE kids will be affecting by the > hospitalizations, the extra effort needed to breath (for some) and > the possible growth hormone deficiencies. Most kids with CHARGE are > at the 3rd percentile for height and weight--and they struggle to > gain weight even wtih feeding tubes. > > B. > > > > > > > > > > TransUnion ITC > > > > www.transunionitc.co.za > > > > > > > > > > > > > > Hi as you know Cherise is finally at home,Lana is very pleased > about > > that,she is a bit heartsore today,went to the pediatrician and she > told them > > Cherise has growth problems,she weighed 2.5kg's at birth and will > be 3 > > months old on the 5th,she now weighs 3.9kg,according to them this > is not > > right,I dont know much about this what do you think?told her not > to worry > > about that for now,she must concentrate on today,but I know its > easy for me > > to say.Is there something that can be done?Regards > > > > > > > > > > > > > > > > Bonni Coetzer > > Reception Alpha sales & user support > > Cell > > Tel / (031) 5738504 > > Fax / 2 > > bcoetzer@... > > > > > > > > > > > > <http://tuitc.dm.ltc.co.za/tracker/index2.php? > id=21 & email=bcoetzer@transunio > > nitc.co.za> > > > > > > > > > > > > > > > > > > > > > > TC Dynamic Email from <http://www.techconcepts.co.za/email/> > Technology > > Concepts > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 Chip- I don't think we know why some of you guys don't gain weight. Aubrie is like you -- she eats well, has a good appetite, no swallowing problems now, no significant heart problems now -- there's nothing to explain her small size. She is starting to gain weight better lately, but at age 8 and 2nd grade she's less than 50 lb and appears more like a kindergartener. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 Chip- I don't think we know why some of you guys don't gain weight. Aubrie is like you -- she eats well, has a good appetite, no swallowing problems now, no significant heart problems now -- there's nothing to explain her small size. She is starting to gain weight better lately, but at age 8 and 2nd grade she's less than 50 lb and appears more like a kindergartener. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 its charge thats my opinion lol > > Chip- > I don't think we know why some of you guys don't gain weight. Aubrie is > like you -- she eats well, has a good appetite, no swallowing problems > now, > no significant heart problems now -- there's nothing to explain her small > size. She is starting to gain weight better lately, but at age 8 and 2nd > grade she's less than 50 lb and appears more like a kindergartener. > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 its charge thats my opinion lol > > Chip- > I don't think we know why some of you guys don't gain weight. Aubrie is > like you -- she eats well, has a good appetite, no swallowing problems > now, > no significant heart problems now -- there's nothing to explain her small > size. She is starting to gain weight better lately, but at age 8 and 2nd > grade she's less than 50 lb and appears more like a kindergartener. > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi Ann, Please know that growth hormone plays a larger part in a child's life than just height. Growth hormone also plays a role in a child's energy level, muscle development and sexual development. Additionally, you mentioned your nephew doesn't have adult teeth - this could also be a result of growth hormone deficiency. There is an article on the Magic Foundation website (all about growth hormone deficiency and treatment) at http://www.magicfoundation.org/www/docs/108.24/growth_hormone_deficiency_chi ldren_dental.html Our son with CHARGE was diagnosed Growth hormone Deficient when he was two years old and began receiving growth hormone injections at that time. It would be VERY important for your nephew to see an Endocrinologist soon to determine if he is growth hormone deficient and if so, begin treatment. Good luck and keep us posted! Sally (Mom to Andy, 24) P.S. Andy is 5'7 " and weighs 149# > > > Subject: Re: Re: Growth problems > > How can I get my nephew, age 10, who doesn't want to use his G-tube at > night for extra nutrition. He is a very picky eater, because he has so > few teeth (from the CHARGE) and dosn't have any adult teeth. He is so > tiny, and wants to sit in the front seat of my car, and I keep telling > him he has to eat more so he can gain weight and sit in the front. His > 3-year old brother almost weighs as much as him. His other two younger > brothers (8 & 7) also are much bigger than he is. We are thinking of > growth hormone when he hits 11 or 12. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi Ann, Please know that growth hormone plays a larger part in a child's life than just height. Growth hormone also plays a role in a child's energy level, muscle development and sexual development. Additionally, you mentioned your nephew doesn't have adult teeth - this could also be a result of growth hormone deficiency. There is an article on the Magic Foundation website (all about growth hormone deficiency and treatment) at http://www.magicfoundation.org/www/docs/108.24/growth_hormone_deficiency_chi ldren_dental.html Our son with CHARGE was diagnosed Growth hormone Deficient when he was two years old and began receiving growth hormone injections at that time. It would be VERY important for your nephew to see an Endocrinologist soon to determine if he is growth hormone deficient and if so, begin treatment. Good luck and keep us posted! Sally (Mom to Andy, 24) P.S. Andy is 5'7 " and weighs 149# > > > Subject: Re: Re: Growth problems > > How can I get my nephew, age 10, who doesn't want to use his G-tube at > night for extra nutrition. He is a very picky eater, because he has so > few teeth (from the CHARGE) and dosn't have any adult teeth. He is so > tiny, and wants to sit in the front seat of my car, and I keep telling > him he has to eat more so he can gain weight and sit in the front. His > 3-year old brother almost weighs as much as him. His other two younger > brothers (8 & 7) also are much bigger than he is. We are thinking of > growth hormone when he hits 11 or 12. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi Ann, Please know that growth hormone plays a larger part in a child's life than just height. Growth hormone also plays a role in a child's energy level, muscle development and sexual development. Additionally, you mentioned your nephew doesn't have adult teeth - this could also be a result of growth hormone deficiency. There is an article on the Magic Foundation website (all about growth hormone deficiency and treatment) at http://www.magicfoundation.org/www/docs/108.24/growth_hormone_deficiency_chi ldren_dental.html Our son with CHARGE was diagnosed Growth hormone Deficient when he was two years old and began receiving growth hormone injections at that time. It would be VERY important for your nephew to see an Endocrinologist soon to determine if he is growth hormone deficient and if so, begin treatment. Good luck and keep us posted! Sally (Mom to Andy, 24) P.S. Andy is 5'7 " and weighs 149# > > > Subject: Re: Re: Growth problems > > How can I get my nephew, age 10, who doesn't want to use his G-tube at > night for extra nutrition. He is a very picky eater, because he has so > few teeth (from the CHARGE) and dosn't have any adult teeth. He is so > tiny, and wants to sit in the front seat of my car, and I keep telling > him he has to eat more so he can gain weight and sit in the front. His > 3-year old brother almost weighs as much as him. His other two younger > brothers (8 & 7) also are much bigger than he is. We are thinking of > growth hormone when he hits 11 or 12. Quote Link to comment Share on other sites More sharing options...
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