Re: Re: blood ketones/glucose/...anyone

[Guest guest]

jgmsteele@... wrote:

> Hi ,

> Have you ever done any blood ketone testing for ?

Only once and I just posted about that to Cammie a little while ago.

Whether lab error or not, it came back less than one, I think maybe 0.2

or something, can't remember exactly now. And that was with perfect

seizure control. So it doesn't make much sense, but when we ever get

control back again I wouldn't mind tracking just to see if its still out

of whack

[Guest guest]

Congratulations --having a neuro listen to you and help answer your questions

There is no " right " answer

All kids seem to react so differently to Ketone levels, glucose levels,

ratios etc...

Some of our kids only need the 80's ketones and others need 160

I believe that the fine-tuning of blood ketone and glucose testings should be

" tried "

We try ratio change up/down, calories up/down, hydration, etc...

When we are at a loss, and our child is still having seizures, TRY everything

Maybe a part of the puzzle can be solved

I do not believe it is just one thing, but a combination of factors to help

with seizure control, for some kids

Just think, some have complete seizure control on a " basic " keto diet and

never know what fine-tuning is

Some learn a " new " diagnosis, because the diet is or has stopped working

The glucose levels help with my daughter, in that if levels creep up--we get

to " double-check " --Illness?, Extra Calories?, Too-little calories?, etc..

But I believe that this is not a seizure predictor or a way of fine-tuning to

the point of being seizure-free

It has been said before--is it the Ketones?, Lower glucose levels?, calorie

reduction?, increase in fats?, ---what actually is the main component to help

with seizure control??

As we all have seen--it is different for all kids AND it seems to change

with our kids--

Is their an answer to all of this?

I am still waiting!

I know this diet is always being fine-tuned BUT look when our kids were on

meds-or the meds they remain on?

We or should I say the Neuros are always tweaking the dose to obtain levels

for optimum seizure control

Guess we will continue to tweak the diet

And try urine and blood tests

And enjoy our children every second

We are truly blessed with our children

Our children are all amazing-and blessed!

Sandi

[Guest guest]

Congratulations --having a neuro listen to you and help answer your questions

There is no " right " answer

All kids seem to react so differently to Ketone levels, glucose levels,

ratios etc...

Some of our kids only need the 80's ketones and others need 160

I believe that the fine-tuning of blood ketone and glucose testings should be

" tried "

We try ratio change up/down, calories up/down, hydration, etc...

When we are at a loss, and our child is still having seizures, TRY everything

Maybe a part of the puzzle can be solved

I do not believe it is just one thing, but a combination of factors to help

with seizure control, for some kids

Just think, some have complete seizure control on a " basic " keto diet and

never know what fine-tuning is

Some learn a " new " diagnosis, because the diet is or has stopped working

The glucose levels help with my daughter, in that if levels creep up--we get

to " double-check " --Illness?, Extra Calories?, Too-little calories?, etc..

But I believe that this is not a seizure predictor or a way of fine-tuning to

the point of being seizure-free

It has been said before--is it the Ketones?, Lower glucose levels?, calorie

reduction?, increase in fats?, ---what actually is the main component to help

with seizure control??

As we all have seen--it is different for all kids AND it seems to change

with our kids--

Is their an answer to all of this?

I am still waiting!

I know this diet is always being fine-tuned BUT look when our kids were on

meds-or the meds they remain on?

We or should I say the Neuros are always tweaking the dose to obtain levels

for optimum seizure control

Guess we will continue to tweak the diet

And try urine and blood tests

And enjoy our children every second

We are truly blessed with our children

Our children are all amazing-and blessed!

Sandi