Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 I would like to say a big `thank you' to those responsible for the group. I can say categorically that I have gained more understanding of the condition from using this site than from the most of the consultants I have seen. All, bar one, have seemed totally unaware of the many idiosyncrasies of the condition; many of these are commonly discussed by the group. I agree with a previous contributor who felt that resources such as these go largely untapped by the medical profession. I presume that they are probably more interested in `academic' issues than exploring human-interest stories. In this respect, I have found the AF database interesting and helpful. On a personal note, I have recently seen a cardiologist who specialises in arryrthmias (although not an out-and-out EP) and, at least, we were `talking' the same language. A sad indictment of the situation in Britain is that I waited nine months to see him. In this time I suffered two further episodes! Has anyone else met the same blank stares in the consulting room? in Wales 40M-flec 100mg per day-warfarin 3mg per day-magnesium and omega-3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 My AF episodes were diagnosed quickly at our local General hospital in Cheshire. When it was decided that I might need an ablation by the cardiologists there, I was referred to Wythenshawe Hospital, a South Manchester University Hospital. It took less than two months to see a real EP, but then had to be referred to a cardio-thoracic surgeon because a defect was found. Now I am going to be operated on by Steve Hunter in the Cook University Hospital, Middlesbro. Apart from knowing about my defect, he has also been trained recently in microwave abalation by Adam Saltman of Massachusetts. Seems I may have struck lucky - except that I have been waiting since mid-March for the op for a condition which can be fatal. Best wishes Sue > > I could not agree with you more with this one. I am > surprised that > as you life in Wales they know what AF is, I am serious on > this and not taking the Micky. I live in London and went > through a series of Drs both NHS and private and only the web > saved me after making > contact with A Dr in the USA, I able to make contact with > an Ep In London. Up to that Point I did not know what an EP > was or there were such Dr. > > It was so insane in the end that I was complaining of Pain in > my chest, shortness of breath extreme tiredness and was > Categorically informed in no uncertain terms this was > nothing to > do with AF. YEA and pigs Fly Honest. > > > I have leaned to my great cost,what ever is wrong with you go > to a Dr who > works in that area, not somebody who dabbles. > > C Uk > Ps I ended up in France for my treatment. > > > > > >I would like to say a big `thank you' to those responsible > >for the group. I can say categorically that I have gained > more > >understanding of the condition from using this site than > from the > >most of the consultants I have seen. > > > >All, bar one, have seemed totally unaware of the many > idiosyncrasies > >of the condition; many of these are commonly discussed by > the group. > >I agree with a previous contributor who felt that resources > such as > >these go largely untapped by the medical profession. I > presume that > >they are probably more interested in `academic' issues than > >exploring human-interest stories. > > > >In this respect, I have found the AF database interesting > and > >helpful. On a personal note, I have recently seen a > cardiologist who > >specializes in arryrthmias (although not an out-and-out EP) > and, at > >least, we were `talking' the same language. A sad indictment > >of the situation in Britain is that I waited nine months to > see him. > >In this time I suffered two further episodes! > > > >Has anyone else met the same blank stares in the consulting > room? > > > > in Wales > >40M-flec 100mg per day-warfarin 3mg per day-magnesium and > omega-3 > > > > > > > > > >> > Codling > Hornchurch Essex England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 My AF episodes were diagnosed quickly at our local General hospital in Cheshire. When it was decided that I might need an ablation by the cardiologists there, I was referred to Wythenshawe Hospital, a South Manchester University Hospital. It took less than two months to see a real EP, but then had to be referred to a cardio-thoracic surgeon because a defect was found. Now I am going to be operated on by Steve Hunter in the Cook University Hospital, Middlesbro. Apart from knowing about my defect, he has also been trained recently in microwave abalation by Adam Saltman of Massachusetts. Seems I may have struck lucky - except that I have been waiting since mid-March for the op for a condition which can be fatal. Best wishes Sue > > I could not agree with you more with this one. I am > surprised that > as you life in Wales they know what AF is, I am serious on > this and not taking the Micky. I live in London and went > through a series of Drs both NHS and private and only the web > saved me after making > contact with A Dr in the USA, I able to make contact with > an Ep In London. Up to that Point I did not know what an EP > was or there were such Dr. > > It was so insane in the end that I was complaining of Pain in > my chest, shortness of breath extreme tiredness and was > Categorically informed in no uncertain terms this was > nothing to > do with AF. YEA and pigs Fly Honest. > > > I have leaned to my great cost,what ever is wrong with you go > to a Dr who > works in that area, not somebody who dabbles. > > C Uk > Ps I ended up in France for my treatment. > > > > > >I would like to say a big `thank you' to those responsible > >for the group. I can say categorically that I have gained > more > >understanding of the condition from using this site than > from the > >most of the consultants I have seen. > > > >All, bar one, have seemed totally unaware of the many > idiosyncrasies > >of the condition; many of these are commonly discussed by > the group. > >I agree with a previous contributor who felt that resources > such as > >these go largely untapped by the medical profession. I > presume that > >they are probably more interested in `academic' issues than > >exploring human-interest stories. > > > >In this respect, I have found the AF database interesting > and > >helpful. On a personal note, I have recently seen a > cardiologist who > >specializes in arryrthmias (although not an out-and-out EP) > and, at > >least, we were `talking' the same language. A sad indictment > >of the situation in Britain is that I waited nine months to > see him. > >In this time I suffered two further episodes! > > > >Has anyone else met the same blank stares in the consulting > room? > > > > in Wales > >40M-flec 100mg per day-warfarin 3mg per day-magnesium and > omega-3 > > > > > > > > > >> > Codling > Hornchurch Essex England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 In a message dated 8/5/04 6:34:31 PM Eastern Daylight Time, lynne55790@... writes: > I so hated the first > one that I cannot even imagine how back the second one will be.. > Lynne, You have picked a great Hospital. Brigham & Women's. You have a top notch Doctor and staff waiting to do their job and bring you good health. Your apprehensive and scared a bit. You've been down this road before. Your own the edge of recovery. Don't fall off. Think of the years of good health waiting for you. Your still a young woman with a lot to look forward to. This bump in the road, the maze, is your gateway to good health. Believe in yourself. We're all behind you. I'm sure many would like to be in our shoes! Let the good times roll! It's only rock'n roll! Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Thank you so much for your words of encouragement Rich, I am just a baby , I guess....I love life and want to live like I know we all do , just a while longer But thank you, Rich. > > > > Lynne, > You have picked a great Hospital. Brigham & Women's. You have a top notch > Doctor and staff waiting to do their job and bring you good health. Your > apprehensive and scared a bit. You've been down this road before. Your own the edge of > recovery. Don't fall off. Think of the years of good health waiting for you. > Your still a young woman with a lot to look forward to. This bump in the road, > the maze, is your gateway to good health. Believe in yourself. We're all > behind you. I'm sure many would like to be in our shoes! Let the good times roll! > It's only rock'n roll! > Rich O > > > Quote Link to comment Share on other sites More sharing options...
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