Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 WOW, WOW, WOW--- Patty is an inspiration to all of us moms trying to raise our little miracles and help them work to their full potential. Nice to hear something positive happening in the adult world. It can be done! Yeah Patty , mom to Makenna (age 5) > > I just have to share about Patty's day yesterday. She has been doing so well > at Easter Seals on training on the Computer that they and her MA Commission > for the Deaf/blind have extended her training for 20 more days. (Patty's > completed Word, Works, and PowerPoint) > When I picked her up at the train station she had an even bigger bounce in > her step than usual and a smile that spread across the town! When she got in > the car she was overjoyed and said her D/B case manager came to see her at > Easter Seals and they had a great talk and that this woman was going to call me > immediately. > > Well,....... when the woman called her voice was as bubbly as Patty's. She > said that they had a great meeting and had planned a few things. The first is > we're having a meeting at Easter Seals to discuss the next step in finding > Patty a job. Without us asking she is going to get Patty an interpreter so she > can follow the meeting. For those of you who don't know Patty is totally oral > but signs as well. When she's in a conversation with more than one person she > has to " fill in the blanks " of what people are saying. > > Then she said that she was thrilled to learn about and see all that Patty was > doing. She commented on Patty's wonderful humor, her ability to not stay > stuck on one topic but move on, her determination, her great work ethnic, her > wonderful appearance and that she had never seen Patty like this. I explained > that what she was seeing was--PATTY! She had met Patty after she had been > sitting here with nothing to do for almost a year. Patty wasn't in a good spot but > was better than any other person would be in that situation. She had met > Patty when there were people saying she wouldn't be able to do something, when > Patty had been losing hope and dreams. But now that she's active and feeling as > though she is achieving even a little bit in life Patty has gone back to being > Patty. Who she was seeing and having in depth conversations with was who > Patty is and who we advocate for her to be allowed to be. She could see now the > difference of Patty being in unique stresses and due to that the uniqueness of > CHARGE and Patty. Oh this woman was so delighted. I had to let go of the " I > told you so " feeling and just allow this woman to be overjoyed in her > understanding. And boy was she overjoyed! > > Next, Patty's been on a waiting list for an apartment for individuals who are > deaf/blind. She went from being over 300 two years ago to being 33 last > November. Of course when we call the staff there give little information as to > where she is on the list. So -- this woman showed up at the place personally > and spoke to them. She went to bat for Patty. I can't tell you how happy that > made Patty. Now she knows there is someone else in her corner besides us! > > Apparently Patty has an ID card for transportation that she uses for the > train but there is a conductor who makes her pay. She got the conductors name and > ID. Don't you just love her! Patty spoke to her case manager about this and > they are going to make her an ID from the Commission for the Blind. That way > she'll get the transportation for free without a question. > > Also her case manager stated that Patty is doing incredibly well at Easter > Seals. Really, really well. Everyone there likes her and is impressed with > what she has achieved in such little time. Sure they don't know CHARGE but they > have all tried to learn. They respect what they don't know and then move on. > They respect! > > They told her Patty is determined, has a great work ethic, is kind, friendly > to all, has a great sense of humor and better yet that Patty has potential. > They told her she will go farther than they ever expected. Again, " told you > so " was in my mind but how thrilling is it that they see...... > > There was so much more to this conversation and it was all good. > > There is now a direction in Patty's life. There is a plan. And more than > that there is respect for her as a person. Patty wakes up every day excited to > go out the door and feels fulfilled when she comes home. > > And by the way, not only is Patty doing well there because she is starting to > have a life, she is doing well here. She cleans, cooks, and even helps me > get out the door in the morning so we won't be late. Yesterday she had my coat, > purse, keys and phone at the door because I've been running late the last few > days. Got to love her. And she has accomplished all this with having four > ear infections in and now is congested again. That hasn't stopped her. Little > does. > > Life for my daughter is starting to look up again. The point is she'll have > a life that is separate from us! > > Each and every one of our sons and daughters have that right as adults. > > I'm just thrilled to tears. > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 WOW, WOW, WOW--- Patty is an inspiration to all of us moms trying to raise our little miracles and help them work to their full potential. Nice to hear something positive happening in the adult world. It can be done! Yeah Patty , mom to Makenna (age 5) > > I just have to share about Patty's day yesterday. She has been doing so well > at Easter Seals on training on the Computer that they and her MA Commission > for the Deaf/blind have extended her training for 20 more days. (Patty's > completed Word, Works, and PowerPoint) > When I picked her up at the train station she had an even bigger bounce in > her step than usual and a smile that spread across the town! When she got in > the car she was overjoyed and said her D/B case manager came to see her at > Easter Seals and they had a great talk and that this woman was going to call me > immediately. > > Well,....... when the woman called her voice was as bubbly as Patty's. She > said that they had a great meeting and had planned a few things. The first is > we're having a meeting at Easter Seals to discuss the next step in finding > Patty a job. Without us asking she is going to get Patty an interpreter so she > can follow the meeting. For those of you who don't know Patty is totally oral > but signs as well. When she's in a conversation with more than one person she > has to " fill in the blanks " of what people are saying. > > Then she said that she was thrilled to learn about and see all that Patty was > doing. She commented on Patty's wonderful humor, her ability to not stay > stuck on one topic but move on, her determination, her great work ethnic, her > wonderful appearance and that she had never seen Patty like this. I explained > that what she was seeing was--PATTY! She had met Patty after she had been > sitting here with nothing to do for almost a year. Patty wasn't in a good spot but > was better than any other person would be in that situation. She had met > Patty when there were people saying she wouldn't be able to do something, when > Patty had been losing hope and dreams. But now that she's active and feeling as > though she is achieving even a little bit in life Patty has gone back to being > Patty. Who she was seeing and having in depth conversations with was who > Patty is and who we advocate for her to be allowed to be. She could see now the > difference of Patty being in unique stresses and due to that the uniqueness of > CHARGE and Patty. Oh this woman was so delighted. I had to let go of the " I > told you so " feeling and just allow this woman to be overjoyed in her > understanding. And boy was she overjoyed! > > Next, Patty's been on a waiting list for an apartment for individuals who are > deaf/blind. She went from being over 300 two years ago to being 33 last > November. Of course when we call the staff there give little information as to > where she is on the list. So -- this woman showed up at the place personally > and spoke to them. She went to bat for Patty. I can't tell you how happy that > made Patty. Now she knows there is someone else in her corner besides us! > > Apparently Patty has an ID card for transportation that she uses for the > train but there is a conductor who makes her pay. She got the conductors name and > ID. Don't you just love her! Patty spoke to her case manager about this and > they are going to make her an ID from the Commission for the Blind. That way > she'll get the transportation for free without a question. > > Also her case manager stated that Patty is doing incredibly well at Easter > Seals. Really, really well. Everyone there likes her and is impressed with > what she has achieved in such little time. Sure they don't know CHARGE but they > have all tried to learn. They respect what they don't know and then move on. > They respect! > > They told her Patty is determined, has a great work ethic, is kind, friendly > to all, has a great sense of humor and better yet that Patty has potential. > They told her she will go farther than they ever expected. Again, " told you > so " was in my mind but how thrilling is it that they see...... > > There was so much more to this conversation and it was all good. > > There is now a direction in Patty's life. There is a plan. And more than > that there is respect for her as a person. Patty wakes up every day excited to > go out the door and feels fulfilled when she comes home. > > And by the way, not only is Patty doing well there because she is starting to > have a life, she is doing well here. She cleans, cooks, and even helps me > get out the door in the morning so we won't be late. Yesterday she had my coat, > purse, keys and phone at the door because I've been running late the last few > days. Got to love her. And she has accomplished all this with having four > ear infections in and now is congested again. That hasn't stopped her. Little > does. > > Life for my daughter is starting to look up again. The point is she'll have > a life that is separate from us! > > Each and every one of our sons and daughters have that right as adults. > > I'm just thrilled to tears. > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Oh, Bonnie, It's the norm now apparently that I just don't have the time to write. To Andy's disbelief, I fell asleep at least twice already tonight (just cannot make myself go to bed to stay at 8:00), but I keep having nights/mornings of getting up with Miss Kate at 3:00 or so. I am a zombie and disgusted! All of that said: your post has raised my spirits tremendously. I'm so happy for you and your entire family. You give me hope that it's truly worthwhile to keep plugging away at change. On that note, our Regional Center is being audited because (dah) it's not making sure that the various local agencies - as well as itself - are providing for the clients. Don't know what this will mean yet, but I'm extremely concerned... But, again, I think of you and yours and smile and know that things will move forward here as well. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Oh, Bonnie, It's the norm now apparently that I just don't have the time to write. To Andy's disbelief, I fell asleep at least twice already tonight (just cannot make myself go to bed to stay at 8:00), but I keep having nights/mornings of getting up with Miss Kate at 3:00 or so. I am a zombie and disgusted! All of that said: your post has raised my spirits tremendously. I'm so happy for you and your entire family. You give me hope that it's truly worthwhile to keep plugging away at change. On that note, our Regional Center is being audited because (dah) it's not making sure that the various local agencies - as well as itself - are providing for the clients. Don't know what this will mean yet, but I'm extremely concerned... But, again, I think of you and yours and smile and know that things will move forward here as well. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Dearest Bonnie, You told them so. xo pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Dearest Bonnie, You told them so. xo pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Martha, If it means what I think it means then theree will be cuts coming. Programs are getting cut or revamped all over the place. Or it could also be someimtng great- that theyl'll be forced to provide for clients in reasonable time. What do you mean Regional Center? Is serviced by deaf/blind? Hope you get some sleep. Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Ellen, Do you know why- because they can. Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 bonnie world wide cuts its happening hear 5to > > Martha, > > If it means what I think it means then theree will be cuts > coming. Programs > are getting cut or revamped all over the place. Or it could also be > someimtng > great- that theyl'll be forced to provide for clients in reasonable time. > > > What do you mean Regional Center? Is serviced by deaf/blind? > > Hope you get some sleep. > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 very true they can so they do > > Ellen, > > Do you know why- because they can. > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Bonnie - I have been off list, but am so glad I was able to pop on and see this. How incredibly wonderful for Patty and for you! It gives me tears of joy as well. Now to disappear into tax papers again, although I would much prefer to stay on line and see how people are doing. Kim > I just have to share about Patty's day yesterday. She has been doing so well > at Easter Seals on training on the Computer that they and her MA Commission > for the Deaf/blind have extended her training for 20 more days. (Patty's > completed Word, Works, and PowerPoint) > When I picked her up at the train station she had an even bigger bounce in > her step than usual and a smile that spread across the town! When she got in > the car she was overjoyed and said her D/B case manager came to see her at > Easter Seals and they had a great talk and that this woman was going to call me > immediately. > > Well,....... when the woman called her voice was as bubbly as Patty's. She > said that they had a great meeting and had planned a few things. The first is > we're having a meeting at Easter Seals to discuss the next step in finding > Patty a job. Without us asking she is going to get Patty an interpreter so she > can follow the meeting. For those of you who don't know Patty is totally oral > but signs as well. When she's in a conversation with more than one person she > has to " fill in the blanks " of what people are saying. > > Then she said that she was thrilled to learn about and see all that Patty was > doing. She commented on Patty's wonderful humor, her ability to not stay > stuck on one topic but move on, her determination, her great work ethnic, her > wonderful appearance and that she had never seen Patty like this. I explained > that what she was seeing was--PATTY! She had met Patty after she had been > sitting here with nothing to do for almost a year. Patty wasn't in a good spot but > was better than any other person would be in that situation. She had met > Patty when there were people saying she wouldn't be able to do something, when > Patty had been losing hope and dreams. But now that she's active and feeling as > though she is achieving even a little bit in life Patty has gone back to being > Patty. Who she was seeing and having in depth conversations with was who > Patty is and who we advocate for her to be allowed to be. She could see now the > difference of Patty being in unique stresses and due to that the uniqueness of > CHARGE and Patty. Oh this woman was so delighted. I had to let go of the " I > told you so " feeling and just allow this woman to be overjoyed in her > understanding. And boy was she overjoyed! > > Next, Patty's been on a waiting list for an apartment for individuals who are > deaf/blind. She went from being over 300 two years ago to being 33 last > November. Of course when we call the staff there give little information as to > where she is on the list. So -- this woman showed up at the place personally > and spoke to them. She went to bat for Patty. I can't tell you how happy that > made Patty. Now she knows there is someone else in her corner besides us! > > Apparently Patty has an ID card for transportation that she uses for the > train but there is a conductor who makes her pay. She got the conductors name and > ID. Don't you just love her! Patty spoke to her case manager about this and > they are going to make her an ID from the Commission for the Blind. That way > she'll get the transportation for free without a question. > > Also her case manager stated that Patty is doing incredibly well at Easter > Seals. Really, really well. Everyone there likes her and is impressed with > what she has achieved in such little time. Sure they don't know CHARGE but they > have all tried to learn. They respect what they don't know and then move on. > They respect! > > They told her Patty is determined, has a great work ethic, is kind, friendly > to all, has a great sense of humor and better yet that Patty has potential. > They told her she will go farther than they ever expected. Again, " told you > so " was in my mind but how thrilling is it that they see...... > > There was so much more to this conversation and it was all good. > > There is now a direction in Patty's life. There is a plan. And more than > that there is respect for her as a person. Patty wakes up every day excited to > go out the door and feels fulfilled when she comes home. > > And by the way, not only is Patty doing well there because she is starting to > have a life, she is doing well here. She cleans, cooks, and even helps me > get out the door in the morning so we won't be late. Yesterday she had my coat, > purse, keys and phone at the door because I've been running late the last few > days. Got to love her. And she has accomplished all this with having four > ear infections in and now is congested again. That hasn't stopped her. Little > does. > > Life for my daughter is starting to look up again. The point is she'll have > a life that is separate from us! > > Each and every one of our sons and daughters have that right as adults. > > I'm just thrilled to tears. > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
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