ms-patients- could be Lyme.

[Guest guest]

Dear Sherry,

Hope you are doing O.K. The following attachment is an excellent article about people who thought they had M.S. when they really had Lyme, and the major improvements when they got the correct treatment. My computer is up to date with all the virus scans so the attachment should be fine. We will be seeing an Infectious Diseases specialist who treats Lyme on Feb 14. (Great treat for Valentine's Day!!!) Hope to get some better treatment then. We have to travel up to Sydney (about 12 hour drive) as there is no-one treating or even acknowledging Lyme here in Melbourne as far as I know.

All the best for the new year,

Rosemary Trudeau.

Lyme disease patients previously misdiagnosed with multiple sclerosis

************************************************************************

as of 9 September 1998

Sources:

Google Usenet Advanced Search

http://groups.google.com/advanced_group_search

Search the LymeNet Flash Discussion

http://www2.lymenet.org/domino/flash.nsf/$$search

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Definite Lyme disease instead of multiple sclerosis:

Subject: Re: Lyme's Research (long sigh)

Date: 11 Aug 1998 00:00:00 GMT

From: amandar@... re:elayne444@... (Elayne444)

Newsgroups: alt.support.mult-sclerosis

[Elayne mailto:elayne444@... NJ]

" I have a friend who had an MS diagnosis for ten years. She was finally

tested for lyme after recalling a rash years earlier, had positive

serology, and a positive csf for lyme. She was put on iv antibiotics and

is completely symptom free now for five years, her brain lesions are

gone, and she's the picture of health. "

alt.support.mult-sclerosis: Re: Lyme's Research (long sigh)

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=a7d74d06913f80\

f5,17 & seekm=01bdc577%24de760ae0%2473e0869f%40arowe.tinet.ie#p

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Subject: Not MS, they were wrong!

Date: 15 Mar 1998 00:00:00 GMT

From: smccaw@...

Newsgroups: sci.med.diseases.lyme

[steve McCaw mailto:smccaw@... CA]

" After 6 months of doctors telling me that I must come to terms with MS;

the doctor who I was seeing for a differential diagnosis of lyme finally

called with a positive result from a LUAT done at Igenex. "

sci.med.diseases.lyme: Not MS, they were wrong!

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=2ace00ebbcfb91\

4c,5 & seekm=6eh6nm%24nnm%241%40nnrp1.dejanews.com#p

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Subject: Re: Can Lyme aggravate MS?

Date: 09 Mar 1998 00:00:00 GMT

From: mrsmeister@... (MrsMeister)

Newsgroups: sci.med.diseases.lyme

[Martha Behrle mailto:mrsmeister@... northern NJ]

" Since my diagnosis and treatment with Lyme I have personally

communicated with over 100 people with MS diagnoses who have pursued

Lyme as the original cause of their problems... two of these people are

enrolled in the NIH study on chronic Lyme... the doctors at the NIH are

beginning to wonder if perhaps there is a connection between the

two.... "

sci.med.diseases.lyme: Re: Can Lyme aggravate MS?

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=e9e2c9d6f7eeae\

47,17 & seekm=19980309013101.UAA04456%40ladder03.news.aol.com#p

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Subject: Re: Migraines and MS

Date: 10 Jan 1998 00:00:00 GMT

From: wwthe1st@... (WWthe1st)

Newsgroups: alt.support.mult-sclerosis

[ mailto:wwthe1st@... ]

Are you sure you are diagnosed correctly! Migraines and MS Symptoms can

be lyme. I was first diagnosed with MS. Then Lyme. My LYme tests were

always equivocal. I was put on aggressive IV ANTIBIOTIC Thereapy. My

MRI now shows my lesions are much smaller. My symtoms including my

migraines have all but gone. I am continuing on Antibiotics by mouth and

getting better month by month! Good luck!

alt.support.mult-sclerosis: Re: Migraines and MS

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=fd84ed55012f3c\

d7,30 & seekm=19980110160201.LAA28630%40ladder02.news.aol.com#p

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Subject: Re: Bacterial Etiology for MS

Date: 09 Nov 1997 00:00:00 GMT

From: jorban@...

Newsgroups: alt.support.mult-sclerosis

[Joe Orban mailto:jorban@... ]

" My mother was diagnosed with Chronic progressive MS for 15 years. She

recently found out she has Lyme Disease and has responded to antibiotic

treatment. "

alt.support.mult-sclerosis: Re: Bacterial Etiology for MS

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=18ad8374c81198\

11,30 & seekm=19971113042300.XAA01542%40ladder02.news.aol.com#p

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Subject: Re: MS and Fibromyalgia

Date: 14 Oct 1997 00:00:00 GMT

From: Haynes <jchco@...>

Newsgroups: alt.support.mult-sclerosis

[Kathy Cavert Kansas City, MO - deceased]

My Lyme was once diagnosed with lupus, fibromyalgia, MS, etc. and guess

what. IV Rocephin for 16 weeks completely brought my brain, body,

pain, memory, confusion, dizziness, headache, backache, paresthesias,

weakness, stiffness and so on back to feeling normal again. It was a

bacteria afterall, causing all the hubbub.

alt.support.mult-sclerosis: Re: MS and Fibromyalgia

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=28c349a08a6ea7\

c7,21 & seekm=34430E89.4BB2%40sprintmail.com#p

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Subject: Re: URGENT - I am in Hospital, 6th nerve paralysis

Date: 26 Sep 1996 00:00:00 GMT

From: Joanne Mann <poohbear@...>

Newsgroups: sci.med.diseases.lyme

[Joanne Mann mailto:poohbear@... FL]

I too had double vision and was told I had MS. They wanted to put me in

the hospital and give me IV steroids and I said no thank you. I then

went to a friend of mine who is a doctor, after I had found out that

the brain lesions that were detected by my MRI could also indicate Lyme

disease, and asked for appropiate abx for lyme she was a little hesitant

but she asked a colleague what was the right abx for Lyme and put me on

IM Rocephin for a month. I also took a lot of vit B12. Anyway after

about 2 months my vision was fine and still is.

sci.med.diseases.lyme: Re: URGENT - I am in Hospital, 6th nerve paralysis

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=f5793904ed8c1e\

16,10 & seekm=52e1c4%2472%40dopey.magg.net#p

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Subject: Re: lyme disease/multiple sclerosis connection

Date: 28 Jul 1996 00:00:00 GMT

From: mas74@...

Newsgroups: sci.med.diseases.lyme

[sandy mailto:mas74@... FL]

Having had an MS diagnosis too, I can certainly relate to your daughter.

My MS was due to Lyme disease infection, acquired in 1981. It wasn't

until I remembered my Erthema Migrans rash, that I realized that Lyme

was a possibility. Unfortunately, many do not get a rash and get saddled

with the MS diagnosis. IV antibiotics have helped me dramatically too.

sci.med.diseases.lyme: Re: lyme disease/multiple sclerosis connection

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=3648265cd03071\

7,4 & seekm=4tett8%24due%40newsbf02.news.aol.com#p

=====

Other Lyme disease/multiple sclerosis patients:

----------------------------------------------

Subject: Re: Is MS-like Plaque Ever Seen In Lyme Patients?

Date: 12 Aug 1997 00:00:00 GMT

From: bluesox111@... (BlueSox111)

Newsgroups: sci.med.diseases.lyme

[ Polkowski mailto:bluesox111@... County, NJ]

" Yes, I too know of a woman in California who went from a diagnosis of

MS and had to sit in a wheelchair, to the diagnosis of Lyme and after

treatment runs miles every day now. "

sci.med.diseases.lyme: Re: Is MS-like Plaque Ever Seen In Lyme Patients?

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=cc98400084db61\

d2,15 & seekm=33F14D88.4C50%40sprintmail.com#p

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Subject: Re: MS Mystery in Eastern WA towns

Date: 03 May 1997 00:00:00 GMT

From: " Rita Stanley " <ritastan@...>

Newsgroups: sci.med.diseases.lyme

[Rita Stanley mailto:ritastan@... Portland, OR]

" And in Oregon, Harney county has one of the highest MS rates in the

country. One person who was diagnosed as having MS could not get anyone

in OR to even test him for Lyme. He went to CA, got a work up (positive

Lyme tests!!), and a year and one half of antibiotics later is much

improved. "

sci.med.diseases.lyme: Re: MS Mystery in Eastern WA towns

http://groups.google.com/groups?hl=en & lr=lang_en & safe=off & ic=1 & th=4ff62405d49b58\

cc,6 & seekm=01bc5772%249761f980%241fe892cf%40default#p

---------------

See:

Lyme Disease Misdiagnosed as Multiple Sclerosis (MS)

http://www.geocities.com/HotSprings/Spa/6772/ms-index.html

---------------

Prepared by

Art Doherty

Lompoc, California

doherty@...