Jane & Nick

[Guest guest]

Jane, am just now reading your post about the bad days that Nick is

having and my heart aches to hear this news. There isn't a heck of a

whole lot that I can say except to let you know that in some small

way, we are all hear for you should you feel the need to talk. Donna

hit the nail right on the head when she said that sometimes even when

things look real bad, they can totally turn around and that's what I

will believe will happen here. The two of you have fougth this

monster to damn long to give in to it now and I know in my heart that

the moment Nick starts to feel a little better, and he will, he'll

gear right back up into the fighting mode.

In the meantime, as you have expressed so many times to me, keep the

faith, the hope and let God lead the way.

Big, big hugs your way,

Monika

> > Today Nick is supposed to have an onc. visit,blood work,get

> hydrated,and he

> > doesn't want to go. The last ten days he has had no

> appetitie,finds it

> > difficult to swallow ad won't get off the sofa. One daughter made

> him a liver soup,a

> > potage,

> > and brought salmon. He sat at the table on the Sat.,before

> Father's day and

> > that was it. The next day he kind of had a meltdown. he had a

> fever 100.8 and

> > since the Mito-

> > mycin can have an effect on your immune system,I called the onc.

> > group,covering physician responded almost immediately,prescribed

> Levaquin,5-500 mg tablets

> > once a day for five days. he walked from sofa to toilet,showered

> and took a

> > sleeping

> > pill and eventually went to sleep. Monday he felt very bad,was

> shaky(he is

> > sometimes) and all day I had to coax him to drink water or

> anything. That night

> > watching T.V. he sort of tumble over,and whopped up what little

he

> had eaten

> > and had

> > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at

> entrance to

> > office. He was in

> > pain and the Dr. told him counts were screwed up but basically

ok.

> I don't

> > drive.

> > Our daughter who still lives at home had the day off. We got him

> > home,esconced

> > on the sofa,went to pick up a prescription and were back in less

> then

> > fifteen.

> > Every day is worse,he seems to feel like the world is picking on

> him,and the

> > Dr. had given him five Zofrans(which cost a fortune) and they

> controlled the

> > vommitting.

> > He was dizzy,then slept about three hours,he could not stand to

> take a shower

> > so

> > he used the tub,hard to get in and out of. I know the side

effects

> sometimes

> > can

> > be scary but he was never like this. Kind of a funk. Now

> today,another

> > daughter and her husband are driving us to his appt. He says he

> can't go because it

> > pains him

> > to sit up straight. When the clock strikes 9 i will call the

> oncology nurse

> > from AvMed

> > and ask her what to do. Hid regular PCP had back surgery and his

> son is a

> > part

> > of the pracise but I will call and try to get him to see Nick. We

> are blessed

> > that all

> > four of our kids(adult) live here in miami. They think this

sudden

> change is

> > scary.

> > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes

> testing positive

> > in the

> > initial operation. It wnet to liver, then it seemed the Avastin

> caused those

> > tumors

> > to shrink. Six months later,they came back with a vengance. back

> to

> > chemo,5FU,

> > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those

tumors.

> P.E.T.+

> > C.A.T

> > showed now both lobes involved,plus a mass in two other areas

plus

> 2 small

> > spots

> > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible

> nausea,mouth sores,and

> > diarreha. Stop that,last Thursday started Mitomycin,one of the

new

> HC3 class

> > of drugs. Had chest x-ray. Dr. says shows some improvement but

> principal tumor

> > still there. He tales the generic hydoco apap for the pain,which

> is constant.

> > He tries

> > not to take them if he can help it. He cannot sit to

> drive,momentarily he

> > can't walk

> > more than bed to bath and to sofa. He has lost interest these

last

> past few

> > days in everything and that scares me. We belong to a nmber of

> prayer groups

> > and that has sutained us before so I am asking you to say a

> special one for us

> > today. Nick has

> > always been an advocate for others. pays their bills for

> them,shops for them,

> > takes them to Dr.s etc.gets people in touch with those who can

> help and to

> > see him just

> > lying there,one hand shaking and not even talking to our

> Beagle or the

> > birds

> > 4 paraketts that always sing for him,is more than I can bare.

> Sorry to let go

> > but if

> > I let it out,then I can go on. God Bless Jane/cargeiver to Nick

> my husband

> > of 44 years

> >

> >

> >

[Guest guest]

Liz,

I'm going to send up an extra prayer for good news for Galen on

Monday.

Sharon

> Jane

> Sorry to hear about Nick, and all the probs right now!

> You have been so good about giving others encouragement and help,

> that I just wish all goes well for u & Hubby!

>

> My hubby Galen the one that had the old stockyard remedy haha

> He is 68,with liver met.(tried removing the right lobe during

surgery

> found out couldn't do it cuz tumor lying on portal vein)having a

lot

> of probs. with blood pressure dropping, gets stumbling and

confused,

> well we have been cutting dosage of B/P meds back and seems to help

> but still needs cut more I believe.

> He has finished his Avastin and took CT scan we find out results

> Monday and what will happen from there!

>

> Just wanted to let you know tho that hugs and prayers are with you,

> and just try to keep hangin in there!

>

> Liz

[Guest guest]

Liz,

I'm going to send up an extra prayer for good news for Galen on

Monday.

Sharon

> Jane

> Sorry to hear about Nick, and all the probs right now!

> You have been so good about giving others encouragement and help,

> that I just wish all goes well for u & Hubby!

>

> My hubby Galen the one that had the old stockyard remedy haha

> He is 68,with liver met.(tried removing the right lobe during

surgery

> found out couldn't do it cuz tumor lying on portal vein)having a

lot

> of probs. with blood pressure dropping, gets stumbling and

confused,

> well we have been cutting dosage of B/P meds back and seems to help

> but still needs cut more I believe.

> He has finished his Avastin and took CT scan we find out results

> Monday and what will happen from there!

>

> Just wanted to let you know tho that hugs and prayers are with you,

> and just try to keep hangin in there!

>

> Liz

[Guest guest]

Liz,

I'm going to send up an extra prayer for good news for Galen on

Monday.

Sharon

> Jane

> Sorry to hear about Nick, and all the probs right now!

> You have been so good about giving others encouragement and help,

> that I just wish all goes well for u & Hubby!

>

> My hubby Galen the one that had the old stockyard remedy haha

> He is 68,with liver met.(tried removing the right lobe during

surgery

> found out couldn't do it cuz tumor lying on portal vein)having a

lot

> of probs. with blood pressure dropping, gets stumbling and

confused,

> well we have been cutting dosage of B/P meds back and seems to help

> but still needs cut more I believe.

> He has finished his Avastin and took CT scan we find out results

> Monday and what will happen from there!

>

> Just wanted to let you know tho that hugs and prayers are with you,

> and just try to keep hangin in there!

>

> Liz

[Guest guest]

It's the prayers and faith that keep us going. Nick came home,today,July1st

in the

care of Vitas Hospice. The cancer just spread and they cannot control it and

to give more chemo will only cause more pain. We have accepted the Dr.s

decision and ask God for the grace to do what has to be done. Fortunately all

the

kids have come in and out and the grandkids too. He is a great man, a good

husband,great dad and wonderful grandfather. he was you friend for life and and

seldom had a harsh word.

We will have this time with him,reminisce about the good times and share his

pain

and sorrow at having to leave us. He will live his foorprints on the sands of

time

and I have had 44 years to be happy about. Miracles happen, I won't say we

don't want one or believe in one. we all do. Tuesday he received the Sacrament

of ExtremeUnction

and received a piece of the Host yesterday. It quieted the tremors and he

seemed more at peace. We have all accepted the fact that it is time to release

him from

the wracking pain and we ask Godto give us the grace to accpet this. Jane

[Guest guest]

It's the prayers and faith that keep us going. Nick came home,today,July1st

in the

care of Vitas Hospice. The cancer just spread and they cannot control it and

to give more chemo will only cause more pain. We have accepted the Dr.s

decision and ask God for the grace to do what has to be done. Fortunately all

the

kids have come in and out and the grandkids too. He is a great man, a good

husband,great dad and wonderful grandfather. he was you friend for life and and

seldom had a harsh word.

We will have this time with him,reminisce about the good times and share his

pain

and sorrow at having to leave us. He will live his foorprints on the sands of

time

and I have had 44 years to be happy about. Miracles happen, I won't say we

don't want one or believe in one. we all do. Tuesday he received the Sacrament

of ExtremeUnction

and received a piece of the Host yesterday. It quieted the tremors and he

seemed more at peace. We have all accepted the fact that it is time to release

him from

the wracking pain and we ask Godto give us the grace to accpet this. Jane

[Guest guest]

Dear Jane - My prayers are with you and Nick as you face this time of

acceptance and loss. May God bind you closer together and may you have

some more days of good time for Nick. You two have been so loving and

giving during your own struggle with this disease, I pray that things

will go as well as possible from here on out. God bless you both.

Peggy

Abuelopop@... wrote:

> It's the prayers and faith that keep us going. Nick came

> home,today,July1st

> in the

> care of Vitas Hospice. The cancer just spread and they cannot control

> it and

> to give more chemo will only cause more pain. We have accepted the Dr.s

> decision and ask God for the grace to do what has to be done.

> Fortunately all the

> kids have come in and out and the grandkids too. He is a great man, a

> good

> husband,great dad and wonderful grandfather. he was you friend for

> life and and

> seldom had a harsh word.

> We will have this time with him,reminisce about the good times and

> share his

> pain

> and sorrow at having to leave us. He will live his foorprints on the

> sands of

> time

> and I have had 44 years to be happy about. Miracles happen, I won't

> say we

> don't want one or believe in one. we all do. Tuesday he received the

> Sacrament

> of ExtremeUnction

> and received a piece of the Host yesterday. It quieted the tremors and he

> seemed more at peace. We have all accepted the fact that it is time

> to release

> him from

> the wracking pain and we ask Godto give us the grace to accpet this. Jane

>

>

>

[Guest guest]

Dear Jane - My prayers are with you and Nick as you face this time of

acceptance and loss. May God bind you closer together and may you have

some more days of good time for Nick. You two have been so loving and

giving during your own struggle with this disease, I pray that things

will go as well as possible from here on out. God bless you both.

Peggy

Abuelopop@... wrote:

> It's the prayers and faith that keep us going. Nick came

> home,today,July1st

> in the

> care of Vitas Hospice. The cancer just spread and they cannot control

> it and

> to give more chemo will only cause more pain. We have accepted the Dr.s

> decision and ask God for the grace to do what has to be done.

> Fortunately all the

> kids have come in and out and the grandkids too. He is a great man, a

> good

> husband,great dad and wonderful grandfather. he was you friend for

> life and and

> seldom had a harsh word.

> We will have this time with him,reminisce about the good times and

> share his

> pain

> and sorrow at having to leave us. He will live his foorprints on the

> sands of

> time

> and I have had 44 years to be happy about. Miracles happen, I won't

> say we

> don't want one or believe in one. we all do. Tuesday he received the

> Sacrament

> of ExtremeUnction

> and received a piece of the Host yesterday. It quieted the tremors and he

> seemed more at peace. We have all accepted the fact that it is time

> to release

> him from

> the wracking pain and we ask Godto give us the grace to accpet this. Jane

>

>

>

[Guest guest]

Dear Jane - My prayers are with you and Nick as you face this time of

acceptance and loss. May God bind you closer together and may you have

some more days of good time for Nick. You two have been so loving and

giving during your own struggle with this disease, I pray that things

will go as well as possible from here on out. God bless you both.

Peggy

Abuelopop@... wrote:

> It's the prayers and faith that keep us going. Nick came

> home,today,July1st

> in the

> care of Vitas Hospice. The cancer just spread and they cannot control

> it and

> to give more chemo will only cause more pain. We have accepted the Dr.s

> decision and ask God for the grace to do what has to be done.

> Fortunately all the

> kids have come in and out and the grandkids too. He is a great man, a

> good

> husband,great dad and wonderful grandfather. he was you friend for

> life and and

> seldom had a harsh word.

> We will have this time with him,reminisce about the good times and

> share his

> pain

> and sorrow at having to leave us. He will live his foorprints on the

> sands of

> time

> and I have had 44 years to be happy about. Miracles happen, I won't

> say we

> don't want one or believe in one. we all do. Tuesday he received the

> Sacrament

> of ExtremeUnction

> and received a piece of the Host yesterday. It quieted the tremors and he

> seemed more at peace. We have all accepted the fact that it is time

> to release

> him from

> the wracking pain and we ask Godto give us the grace to accpet this. Jane

>

>

>

[Guest guest]

Jane- I am so sorry to hear that things have progressed. You both

have been such an inspiration with your kind and helpful words. I

wish I could express myself so well. Please know that my thoughts

and prayers are with you both however. I pray that with some support

Nick can get comfortable enough to have some good times left to spend

together with family.

Take care,

Kris

[Guest guest]

Jane- I am so sorry to hear that things have progressed. You both

have been such an inspiration with your kind and helpful words. I

wish I could express myself so well. Please know that my thoughts

and prayers are with you both however. I pray that with some support

Nick can get comfortable enough to have some good times left to spend

together with family.

Take care,

Kris

[Guest guest]

Jane- I am so sorry to hear that things have progressed. You both

have been such an inspiration with your kind and helpful words. I

wish I could express myself so well. Please know that my thoughts

and prayers are with you both however. I pray that with some support

Nick can get comfortable enough to have some good times left to spend

together with family.

Take care,

Kris

[Guest guest]

I will be keeping your family in my thoughts. I am sorry to hear

that things have progressed further but hopefully Nick will get

comfortable and you will both get some peace.

Kristi

[Guest guest]

I will be keeping your family in my thoughts. I am sorry to hear

that things have progressed further but hopefully Nick will get

comfortable and you will both get some peace.

Kristi

[Guest guest]

I will be keeping your family in my thoughts. I am sorry to hear

that things have progressed further but hopefully Nick will get

comfortable and you will both get some peace.

Kristi

[Guest guest]

Jane

So sorry to hear this, for the short time I have been here you and

Nick have been such an inspiration in all you have been through!

All I can say is I'm so sorry and my prayers are with you and family!

> It's the prayers and faith that keep us going. Nick came

home,today,July1st

> in the

> care of Vitas Hospice. The cancer just spread and they cannot

control it and

> to give more chemo will only cause more pain. We have accepted the

Dr.s

> decision and ask God for the grace to do what has to be done.

Fortunately all the

> kids have come in and out and the grandkids too. He is a great man,

a good

> husband,great dad and wonderful grandfather. he was you friend for

life and and

> seldom had a harsh word.

> We will have this time with him,reminisce about the good times and

share his

> pain

> and sorrow at having to leave us. He will live his foorprints on

the sands of

> time

> and I have had 44 years to be happy about. Miracles happen, I won't

say we

> don't want one or believe in one. we all do. Tuesday he received

the Sacrament

> of ExtremeUnction

> and received a piece of the Host yesterday. It quieted the tremors

and he

> seemed more at peace. We have all accepted the fact that it is

time to release

> him from

> the wracking pain and we ask Godto give us the grace to accpet

this. Jane

>

>

>

[Guest guest]

Jane

So sorry to hear this, for the short time I have been here you and

Nick have been such an inspiration in all you have been through!

All I can say is I'm so sorry and my prayers are with you and family!

> It's the prayers and faith that keep us going. Nick came

home,today,July1st

> in the

> care of Vitas Hospice. The cancer just spread and they cannot

control it and

> to give more chemo will only cause more pain. We have accepted the

Dr.s

> decision and ask God for the grace to do what has to be done.

Fortunately all the

> kids have come in and out and the grandkids too. He is a great man,

a good

> husband,great dad and wonderful grandfather. he was you friend for

life and and

> seldom had a harsh word.

> We will have this time with him,reminisce about the good times and

share his

> pain

> and sorrow at having to leave us. He will live his foorprints on

the sands of

> time

> and I have had 44 years to be happy about. Miracles happen, I won't

say we

> don't want one or believe in one. we all do. Tuesday he received

the Sacrament

> of ExtremeUnction

> and received a piece of the Host yesterday. It quieted the tremors

and he

> seemed more at peace. We have all accepted the fact that it is

time to release

> him from

> the wracking pain and we ask Godto give us the grace to accpet

this. Jane

>

>

>

[Guest guest]

Jane

So sorry to hear this, for the short time I have been here you and

Nick have been such an inspiration in all you have been through!

All I can say is I'm so sorry and my prayers are with you and family!

> It's the prayers and faith that keep us going. Nick came

home,today,July1st

> in the

> care of Vitas Hospice. The cancer just spread and they cannot

control it and

> to give more chemo will only cause more pain. We have accepted the

Dr.s

> decision and ask God for the grace to do what has to be done.

Fortunately all the

> kids have come in and out and the grandkids too. He is a great man,

a good

> husband,great dad and wonderful grandfather. he was you friend for

life and and

> seldom had a harsh word.

> We will have this time with him,reminisce about the good times and

share his

> pain

> and sorrow at having to leave us. He will live his foorprints on

the sands of

> time

> and I have had 44 years to be happy about. Miracles happen, I won't

say we

> don't want one or believe in one. we all do. Tuesday he received

the Sacrament

> of ExtremeUnction

> and received a piece of the Host yesterday. It quieted the tremors

and he

> seemed more at peace. We have all accepted the fact that it is

time to release

> him from

> the wracking pain and we ask Godto give us the grace to accpet

this. Jane

>

>

>

[Guest guest]

You are in my prayers as always. Your faith is so strong that I know it will

support you in whatever comes. I will be praying for healing and peace for you

both.

If there is anything else I can do please let me know.

Love and God's blessings

Narice

[Guest guest]

You are in my prayers as always. Your faith is so strong that I know it will

support you in whatever comes. I will be praying for healing and peace for you

both.

If there is anything else I can do please let me know.

Love and God's blessings

Narice

[Guest guest]

You are in my prayers as always. Your faith is so strong that I know it will

support you in whatever comes. I will be praying for healing and peace for you

both.

If there is anything else I can do please let me know.

Love and God's blessings

Narice

[Guest guest]

Liz: Thank you and all the wonderful group praying for us. He is riddled

with this in-

sideous disease and it has taken it's toll. We are blessed with this Vitas

Hospice

Group,our own family and neighbors,friends and co workers. So many people

have

written to say miracles are still there. We received info on many new trials,

from the MiamiCyberKnife Group,from many sources. It will literally take a

miracle,and yes,

if we have a choice that is proority #1. He takes little food,has

withdrawn,speaks but

sort of far away,then clearly,so we kind of reread a lot of the things we

downloaded and some of the beautiful thoughts,expressions and e-mails and it is

a

great comfort.

Thanks,again Nick & Jane

[Guest guest]

Had a hemmorage Sat./went to hospice unit/bleeding stopped/can't seem to

swallow

home again today 7/05/04. Funny thing..hair regrowing,if he can'r swallow

much

the may put in a tube. B/P 100/64 Stopped most meds. Strangely enough he

fells

little pain. Has some moments when he is very very clear,others when he is

off

in his own space. This long week end everyone(Thank God) was off and they all

came and spent some time with him. So many people stopped and said they were

praying and that they read somethings on the net. Life is full of suprises. I

thank all

of you for the prayers and support,it's like I'm here but not here. The

hospice unit has

32 beds only about three empty and the people who work there are very special

They are kind,caring,give hugs and talk like you are their special friend or

family and

do all the work. I have visited a hospice unit on two occassions but I was

not touched

by the disease at that time. It seems one in every 7 persons has some form of

cancer. I just never realized this man eating demon had such a grasp on

humanity

and ow sometimes people lives change so rapidly and that the support from

those

who you never really met would mean so much because you share the same

carnival ride. The roller coaster. Like the soldiers and sailors manning the

front

lines,I don't think you could survive without faith and the comfort of

others. We have

set up the hosital bed in the family room and the parapehnalia that goes with

it.

We are blessed by neighbors who care and that love and grace keep us going.

Nick & Jane

[Guest guest]

Had a hemmorage Sat./went to hospice unit/bleeding stopped/can't seem to

swallow

home again today 7/05/04. Funny thing..hair regrowing,if he can'r swallow

much

the may put in a tube. B/P 100/64 Stopped most meds. Strangely enough he

fells

little pain. Has some moments when he is very very clear,others when he is

off

in his own space. This long week end everyone(Thank God) was off and they all

came and spent some time with him. So many people stopped and said they were

praying and that they read somethings on the net. Life is full of suprises. I

thank all

of you for the prayers and support,it's like I'm here but not here. The

hospice unit has

32 beds only about three empty and the people who work there are very special

They are kind,caring,give hugs and talk like you are their special friend or

family and

do all the work. I have visited a hospice unit on two occassions but I was

not touched

by the disease at that time. It seems one in every 7 persons has some form of

cancer. I just never realized this man eating demon had such a grasp on

humanity

and ow sometimes people lives change so rapidly and that the support from

those

who you never really met would mean so much because you share the same

carnival ride. The roller coaster. Like the soldiers and sailors manning the

front

lines,I don't think you could survive without faith and the comfort of

others. We have

set up the hosital bed in the family room and the parapehnalia that goes with

it.

We are blessed by neighbors who care and that love and grace keep us going.

Nick & Jane

[Guest guest]

Had a hemmorage Sat./went to hospice unit/bleeding stopped/can't seem to

swallow

home again today 7/05/04. Funny thing..hair regrowing,if he can'r swallow

much

the may put in a tube. B/P 100/64 Stopped most meds. Strangely enough he

fells

little pain. Has some moments when he is very very clear,others when he is

off

in his own space. This long week end everyone(Thank God) was off and they all

came and spent some time with him. So many people stopped and said they were

praying and that they read somethings on the net. Life is full of suprises. I

thank all

of you for the prayers and support,it's like I'm here but not here. The

hospice unit has

32 beds only about three empty and the people who work there are very special

They are kind,caring,give hugs and talk like you are their special friend or

family and

do all the work. I have visited a hospice unit on two occassions but I was

not touched

by the disease at that time. It seems one in every 7 persons has some form of

cancer. I just never realized this man eating demon had such a grasp on

humanity

and ow sometimes people lives change so rapidly and that the support from

those

who you never really met would mean so much because you share the same

carnival ride. The roller coaster. Like the soldiers and sailors manning the

front

lines,I don't think you could survive without faith and the comfort of

others. We have

set up the hosital bed in the family room and the parapehnalia that goes with

it.

We are blessed by neighbors who care and that love and grace keep us going.

Nick & Jane