Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 ring the mum see fi she knows anything bout it argh > > Hi, all, > This should be brief because I have a lot of checking to do on the > internet all of a sudden; still, I need to vent just a bit. > Tomorrow was to be when we signed the lease for 's house. I had > a call from our case manager at @ 6:00 this evening (i.e., she didn't > leave > work on time) telling me, among other things, not to sign the lease. This > has something to do with the other client or her mother, is not financial > in > nature (I asked), so I don't know what the heck is going on. > I have a good friend here, an ex-president of MO's NOW, in fact, who > works at a local crisis center in the area of abuse among other things. > I'll > be going over the county's convicted molester (sp?) list tonight thanks to > her but really only know that confidentiality prohibits our case manager > from telling us squat. So much for tomorrow's plan to introduce to > her eventual new abode. > I'm all for confidentiality, but I damn sure want to know what's wrong. > This is my daughter! > Off to do research. Please remember to meet everyone who could > possibly give you information for the/in the future. This is eating me! > Martha --- As always, thanks for being there. > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 ring the mum see fi she knows anything bout it argh > > Hi, all, > This should be brief because I have a lot of checking to do on the > internet all of a sudden; still, I need to vent just a bit. > Tomorrow was to be when we signed the lease for 's house. I had > a call from our case manager at @ 6:00 this evening (i.e., she didn't > leave > work on time) telling me, among other things, not to sign the lease. This > has something to do with the other client or her mother, is not financial > in > nature (I asked), so I don't know what the heck is going on. > I have a good friend here, an ex-president of MO's NOW, in fact, who > works at a local crisis center in the area of abuse among other things. > I'll > be going over the county's convicted molester (sp?) list tonight thanks to > her but really only know that confidentiality prohibits our case manager > from telling us squat. So much for tomorrow's plan to introduce to > her eventual new abode. > I'm all for confidentiality, but I damn sure want to know what's wrong. > This is my daughter! > Off to do research. Please remember to meet everyone who could > possibly give you information for the/in the future. This is eating me! > Martha --- As always, thanks for being there. > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 ring the mum see fi she knows anything bout it argh > > Hi, all, > This should be brief because I have a lot of checking to do on the > internet all of a sudden; still, I need to vent just a bit. > Tomorrow was to be when we signed the lease for 's house. I had > a call from our case manager at @ 6:00 this evening (i.e., she didn't > leave > work on time) telling me, among other things, not to sign the lease. This > has something to do with the other client or her mother, is not financial > in > nature (I asked), so I don't know what the heck is going on. > I have a good friend here, an ex-president of MO's NOW, in fact, who > works at a local crisis center in the area of abuse among other things. > I'll > be going over the county's convicted molester (sp?) list tonight thanks to > her but really only know that confidentiality prohibits our case manager > from telling us squat. So much for tomorrow's plan to introduce to > her eventual new abode. > I'm all for confidentiality, but I damn sure want to know what's wrong. > This is my daughter! > Off to do research. Please remember to meet everyone who could > possibly give you information for the/in the future. This is eating me! > Martha --- As always, thanks for being there. > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Martha - the saga does continue! It is time to get a legislator involved She has the money, yet they won't set it up for her alone and then you have to worry about the client history, but confidentiality says it can't be shared? TBSS! Info must be shared when lack of disclosure can cause potential harm to someone. Have you contacted those groups I emailed about who help people with disabilities buy their own homes and set up a therapeutic community around them? Kim > Hi, all, > This should be brief because I have a lot of checking to do on the > internet all of a sudden; still, I need to vent just a bit. > Tomorrow was to be when we signed the lease for 's house. I had > a call from our case manager at @ 6:00 this evening (i.e., she didn't leave > work on time) telling me, among other things, not to sign the lease. This > has something to do with the other client or her mother, is not financial in > nature (I asked), so I don't know what the heck is going on. > I have a good friend here, an ex-president of MO's NOW, in fact, who > works at a local crisis center in the area of abuse among other things. I'll > be going over the county's convicted molester (sp?) list tonight thanks to > her but really only know that confidentiality prohibits our case manager > from telling us squat. So much for tomorrow's plan to introduce to > her eventual new abode. > I'm all for confidentiality, but I damn sure want to know what's wrong. > This is my daughter! > Off to do research. Please remember to meet everyone who could > possibly give you information for the/in the future. This is eating me! > Martha --- As always, thanks for being there. > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Martha - the saga does continue! It is time to get a legislator involved She has the money, yet they won't set it up for her alone and then you have to worry about the client history, but confidentiality says it can't be shared? TBSS! Info must be shared when lack of disclosure can cause potential harm to someone. Have you contacted those groups I emailed about who help people with disabilities buy their own homes and set up a therapeutic community around them? Kim > Hi, all, > This should be brief because I have a lot of checking to do on the > internet all of a sudden; still, I need to vent just a bit. > Tomorrow was to be when we signed the lease for 's house. I had > a call from our case manager at @ 6:00 this evening (i.e., she didn't leave > work on time) telling me, among other things, not to sign the lease. This > has something to do with the other client or her mother, is not financial in > nature (I asked), so I don't know what the heck is going on. > I have a good friend here, an ex-president of MO's NOW, in fact, who > works at a local crisis center in the area of abuse among other things. I'll > be going over the county's convicted molester (sp?) list tonight thanks to > her but really only know that confidentiality prohibits our case manager > from telling us squat. So much for tomorrow's plan to introduce to > her eventual new abode. > I'm all for confidentiality, but I damn sure want to know what's wrong. > This is my daughter! > Off to do research. Please remember to meet everyone who could > possibly give you information for the/in the future. This is eating me! > Martha --- As always, thanks for being there. > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Martha - the saga does continue! It is time to get a legislator involved She has the money, yet they won't set it up for her alone and then you have to worry about the client history, but confidentiality says it can't be shared? TBSS! Info must be shared when lack of disclosure can cause potential harm to someone. Have you contacted those groups I emailed about who help people with disabilities buy their own homes and set up a therapeutic community around them? Kim > Hi, all, > This should be brief because I have a lot of checking to do on the > internet all of a sudden; still, I need to vent just a bit. > Tomorrow was to be when we signed the lease for 's house. I had > a call from our case manager at @ 6:00 this evening (i.e., she didn't leave > work on time) telling me, among other things, not to sign the lease. This > has something to do with the other client or her mother, is not financial in > nature (I asked), so I don't know what the heck is going on. > I have a good friend here, an ex-president of MO's NOW, in fact, who > works at a local crisis center in the area of abuse among other things. I'll > be going over the county's convicted molester (sp?) list tonight thanks to > her but really only know that confidentiality prohibits our case manager > from telling us squat. So much for tomorrow's plan to introduce to > her eventual new abode. > I'm all for confidentiality, but I damn sure want to know what's wrong. > This is my daughter! > Off to do research. Please remember to meet everyone who could > possibly give you information for the/in the future. This is eating me! > Martha --- As always, thanks for being there. > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Kim, I'm almost as red-faced as I am tired. No, I cannot find the links you sent, though I haven't checked posts I saved to my CHARGE and transition folders. Sorry, I'm just wiped out. If you have the patience, please send them again. I promise to be as considerate when you need me later! I have often told people on this list to contact their state folks, but I'm suddenly so sick of fighting. I don't think I really thought the federal court of appeals (another thing I suddenly refuse to put in caps) would end the battles, but god, I'm tired. Remember you young'uns to keep your proverbial ducks in a row. Put your issues in folders and keep them! There must be some other way, Kim. I guess I know there isn't. I'm off to soak, get up early to meet the realtor, and see what happens. Our (state) regional center people are coming in on a Saturday to deal with whatever is happening. I just wish I knew what was going on. Again, this is our daughter! And I could go on and on. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 take ur knife with you > > Kim, > I'm almost as red-faced as I am tired. No, I cannot find the links you > sent, though I haven't checked posts I saved to my CHARGE and > transition folders. Sorry, I'm just wiped out. If you have the patience, > please send them again. I promise to be as considerate when you need > me later! I have often told people on this list to contact their state > folks, but > I'm suddenly so sick of fighting. I don't think I really thought the > federal > court of appeals (another thing I suddenly refuse to put in caps) would > end the battles, but god, I'm tired. Remember you young'uns to keep your > proverbial ducks in a row. Put your issues in folders and keep them! > There must be some other way, Kim. I guess I know there isn't. I'm off > to > soak, get up early to meet the realtor, and see what happens. Our (state) > regional center people are coming in on a Saturday to deal with whatever > is happening. I just wish I knew what was going on. Again, this is our > daughter! > And I could go on and on. > Martha > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 take ur knife with you > > Kim, > I'm almost as red-faced as I am tired. No, I cannot find the links you > sent, though I haven't checked posts I saved to my CHARGE and > transition folders. Sorry, I'm just wiped out. If you have the patience, > please send them again. I promise to be as considerate when you need > me later! I have often told people on this list to contact their state > folks, but > I'm suddenly so sick of fighting. I don't think I really thought the > federal > court of appeals (another thing I suddenly refuse to put in caps) would > end the battles, but god, I'm tired. Remember you young'uns to keep your > proverbial ducks in a row. Put your issues in folders and keep them! > There must be some other way, Kim. I guess I know there isn't. I'm off > to > soak, get up early to meet the realtor, and see what happens. Our (state) > regional center people are coming in on a Saturday to deal with whatever > is happening. I just wish I knew what was going on. Again, this is our > daughter! > And I could go on and on. > Martha > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 take ur knife with you > > Kim, > I'm almost as red-faced as I am tired. No, I cannot find the links you > sent, though I haven't checked posts I saved to my CHARGE and > transition folders. Sorry, I'm just wiped out. If you have the patience, > please send them again. I promise to be as considerate when you need > me later! I have often told people on this list to contact their state > folks, but > I'm suddenly so sick of fighting. I don't think I really thought the > federal > court of appeals (another thing I suddenly refuse to put in caps) would > end the battles, but god, I'm tired. Remember you young'uns to keep your > proverbial ducks in a row. Put your issues in folders and keep them! > There must be some other way, Kim. I guess I know there isn't. I'm off > to > soak, get up early to meet the realtor, and see what happens. Our (state) > regional center people are coming in on a Saturday to deal with whatever > is happening. I just wish I knew what was going on. Again, this is our > daughter! > And I could go on and on. > Martha > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Ellen, I didn't think that anything or anyone could make me smile right now, but you somehow managed. It's really hard because I believe that our Regional Center people are truly trying to be helpful. It's just this _____ mother and whatever issues no one will tell us. And now, I'm really going to soak. Martha I rather like the idea of a knife, but I think we'd all have to go together as a protest movement. Lord, how that dates me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Ellen, I didn't think that anything or anyone could make me smile right now, but you somehow managed. It's really hard because I believe that our Regional Center people are truly trying to be helpful. It's just this _____ mother and whatever issues no one will tell us. And now, I'm really going to soak. Martha I rather like the idea of a knife, but I think we'd all have to go together as a protest movement. Lord, how that dates me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Ellen, I didn't think that anything or anyone could make me smile right now, but you somehow managed. It's really hard because I believe that our Regional Center people are truly trying to be helpful. It's just this _____ mother and whatever issues no one will tell us. And now, I'm really going to soak. Martha I rather like the idea of a knife, but I think we'd all have to go together as a protest movement. Lord, how that dates me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 whoa Martha, this sounds scary; esp since you were just about to sign the lease! yikes... hope you get some info and soon... Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
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