Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 > I realize that I'm nothing but a fucking moron < ok, the rest of your post is acceptable, but this is NOT. you are NOT a moron, you're overwhelmed, that's all. nobody is expected to fall into this life and know what to do with it, we're all learning along the way. > Forgive me I'm tired, and I needed to scream. Kris < no need to apologize, that's what we're here for " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 > I realize that I'm nothing but a fucking moron < ok, the rest of your post is acceptable, but this is NOT. you are NOT a moron, you're overwhelmed, that's all. nobody is expected to fall into this life and know what to do with it, we're all learning along the way. > Forgive me I'm tired, and I needed to scream. Kris < no need to apologize, that's what we're here for " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 > I realize that I'm nothing but a fucking moron < ok, the rest of your post is acceptable, but this is NOT. you are NOT a moron, you're overwhelmed, that's all. nobody is expected to fall into this life and know what to do with it, we're all learning along the way. > Forgive me I'm tired, and I needed to scream. Kris < no need to apologize, that's what we're here for " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 this is all totally allowable kris! excpet for the part where you call yourself a moron. how do you figure that? i am sure you are not a moron. i am sure you are tired and overwhelmed. we all are at times. (((kris)))) keep screaming! michelle mg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 this is all totally allowable kris! excpet for the part where you call yourself a moron. how do you figure that? i am sure you are not a moron. i am sure you are tired and overwhelmed. we all are at times. (((kris)))) keep screaming! michelle mg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 You're not allowed to feel stupid here. We ALL keep learning more about our kids, no matter how long we've know what we're dealing with. I hope you get some sleep SOON! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 You're not allowed to feel stupid here. We ALL keep learning more about our kids, no matter how long we've know what we're dealing with. I hope you get some sleep SOON! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 You're not allowed to feel stupid here. We ALL keep learning more about our kids, no matter how long we've know what we're dealing with. I hope you get some sleep SOON! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Kristi, You are NOT a moron. You're a tired mom in an impossible sitaution. You didn't ask for this, none of us did. Give yourself a break and lean on us whenever you need to. Take care hon Tuna ===== You can learn many things from children. How much patience you have, for instance. - lin P. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Kristi, You are NOT a moron. You're a tired mom in an impossible sitaution. You didn't ask for this, none of us did. Give yourself a break and lean on us whenever you need to. Take care hon Tuna ===== You can learn many things from children. How much patience you have, for instance. - lin P. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 {{{KRIS}}} Scream, hon, scream. We've all had those feelings. We know. We understand. We accept. And we love. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 {{{KRIS}}} Scream, hon, scream. We've all had those feelings. We know. We understand. We accept. And we love. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 {{{KRIS}}} Scream, hon, scream. We've all had those feelings. We know. We understand. We accept. And we love. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 I have talked with the docs about this and all but wanted your input everyone. WIth the MicKey, what way have you found is the best to vent your child and how much air do you get? I thought it was so much easier with his old Gtube...either he doesn't retain much air or I am having a difficult time venting him. Sometimes he does feel a little bloated, but yet I get nothing out. Thoughts? and Melton wrote: , also has a G-tube, and a few times we see a little bit of blood come up into the tube. But, last summer we had a huge scare. We were venting her, and out of nowhere, she vomits what looks like wet coffee grounds! It freaked us out. Thankfully my aunt is a nurse, and we made a call to her right away. By our description, she said it was " old " blood. About every 20 minutes, Meagan would woof up more blood. We started to think she was going to bleed to death! We finally took her to the ER, where they admitted her right away, and ran all the tests....hemoglobin, test to see if it was blood she was woofing up, etc.. Sure enough it was blood, and no her blood levels hadn't dropped. She does not have a nissen, but does has severe reflux, so they scoped her to see if damage had occurred from her reflux. He saw nothing, and went all the way down to her g tube site. While there, he biopsied her stomach. Everything came back normal and looked fairly normal. Inside of her stomach, at the tube site, was a little pink. He said that her tube site may have been bumped hard, tugged at, or might have gotten caught on something causing it to be tweaked too much. This sometimes causes a raw area to bleed very slowly. I didn't buy this, because of the volume that had come out of her. He then explained that it only takes a very little amount of blood mixed with saliva, and other stomach juices, to look like a lot of blood. He used a glass of water and a drop of red food coloring as an example. He said the body sees blood as something that should not be there, so the body wants it out. And, we all know that our mouth waters horrendously before we vomit. She must have been feeling sick from the blood mouth watering, swallowing it, and then losing it. That was our experience...I only share it with you to help ease your mind. , mommy to Meagan (CHaRgE) and 17 months, and big brother 3 1/2 years, married to the best daddy in the world for 9 years -- Evan - G-tube - Blood - Help! (especially AZ Kim) Below is Evan's blog entry from today. Let me preface it briefly by saying Evan was supposed to have surgery yesterday (orchipexy/circumcision/tubes in ears/repeat hearing tests), but it was cancelled because first he had a cold and subsequently developed an ear infection. He is on antibiotics for the ear infection and seems to be doing much better. This morning Evan woke up around 6 am--his usual bright and happy self. The antibiotics for his ear infection had kicked in, and the 24-hr urine culture had come back negative. We finished off his over-night feeding, and I gave him a bath around 7 am (Evan is definately a morning person!). Around 7:45, I was in the kitchen getting all Evan's medicines drawn up to give to him. was venting his G-tube (essentially burping--we generally have to do this after each meal). called me back to the bedroom. The entire length of tubing (about 8 inches of 1/4 " diameter tubing) was full of a very dark brown fluid that looked like blood. We have seen small amounts of blood in the tubing before (from suctioning), but this was enough to send us into a small panic. We called Dr. Oldham, who had us bring Evan right in (3rd office visit this week!). He tested the fluid and confirmed it was blood, but it was " old " blood (been there at least 24 hrs). We lavaged Evan's stomach (put in ~1 oz of sterile saline solution, gently jiggled Evan around, and then sucked it back out) and did not find any fresh blood. Dr. Oldham also checked his hemoglobin levels (to make sure he has not been slowly losing blood and are just now noticing it), which was fine. He also tested the stomach juice for a bacteria H. pylori that is known to cause stomach ulcers, which was also negative. Dr. Oldham spoke with the surgical team at Children's who put in his G-tube, repaired his hiatal hernia, and also performed the Nissen fundoplication (the upper part of his stomach was wrapped around the esophagus to help with the acid reflux). The surgeons want to see him Monday or Tuesday to run an upper GI to help determine what is wrong. There are three possible causes for the blood. First, he could have severe esophagitis from acid reflux (given he is currently medicated for this, Dr. Oldham doesn't think this is the culprit). Second, with all the stress he has undergone in his short little life, he could have a bleeding ulcer. Third, the Nissen could have come undone. Evan is not in any discomfort at all. In fact, while we were waiting for Dr. Oldham his was giggling and cooing away just like his old self. Part of me is praying that it is not the Nissen failing, but then that is something that can be fixed fairly easily surgically (I think now that he is bigger, it could even be done laproscopically so the incision would be much smaller than the first one). A bleeding ulcer sounds so horrible. We will keep you all posted once we have some news. I know that Kim has some experience with Nissen failure with Dylan. What were the signs and symptoms that he had? Anyone else have a Nissen fail? Anyone have any experience with bleeding ulcers? Thanks for the help, (mom to Evan, 8.5 months) --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. 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Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 I have talked with the docs about this and all but wanted your input everyone. WIth the MicKey, what way have you found is the best to vent your child and how much air do you get? I thought it was so much easier with his old Gtube...either he doesn't retain much air or I am having a difficult time venting him. Sometimes he does feel a little bloated, but yet I get nothing out. Thoughts? and Melton wrote: , also has a G-tube, and a few times we see a little bit of blood come up into the tube. But, last summer we had a huge scare. We were venting her, and out of nowhere, she vomits what looks like wet coffee grounds! It freaked us out. Thankfully my aunt is a nurse, and we made a call to her right away. By our description, she said it was " old " blood. About every 20 minutes, Meagan would woof up more blood. We started to think she was going to bleed to death! We finally took her to the ER, where they admitted her right away, and ran all the tests....hemoglobin, test to see if it was blood she was woofing up, etc.. Sure enough it was blood, and no her blood levels hadn't dropped. She does not have a nissen, but does has severe reflux, so they scoped her to see if damage had occurred from her reflux. He saw nothing, and went all the way down to her g tube site. While there, he biopsied her stomach. Everything came back normal and looked fairly normal. Inside of her stomach, at the tube site, was a little pink. He said that her tube site may have been bumped hard, tugged at, or might have gotten caught on something causing it to be tweaked too much. This sometimes causes a raw area to bleed very slowly. I didn't buy this, because of the volume that had come out of her. He then explained that it only takes a very little amount of blood mixed with saliva, and other stomach juices, to look like a lot of blood. He used a glass of water and a drop of red food coloring as an example. He said the body sees blood as something that should not be there, so the body wants it out. And, we all know that our mouth waters horrendously before we vomit. She must have been feeling sick from the blood mouth watering, swallowing it, and then losing it. That was our experience...I only share it with you to help ease your mind. , mommy to Meagan (CHaRgE) and 17 months, and big brother 3 1/2 years, married to the best daddy in the world for 9 years -- Evan - G-tube - Blood - Help! (especially AZ Kim) Below is Evan's blog entry from today. Let me preface it briefly by saying Evan was supposed to have surgery yesterday (orchipexy/circumcision/tubes in ears/repeat hearing tests), but it was cancelled because first he had a cold and subsequently developed an ear infection. He is on antibiotics for the ear infection and seems to be doing much better. This morning Evan woke up around 6 am--his usual bright and happy self. The antibiotics for his ear infection had kicked in, and the 24-hr urine culture had come back negative. We finished off his over-night feeding, and I gave him a bath around 7 am (Evan is definately a morning person!). Around 7:45, I was in the kitchen getting all Evan's medicines drawn up to give to him. was venting his G-tube (essentially burping--we generally have to do this after each meal). called me back to the bedroom. The entire length of tubing (about 8 inches of 1/4 " diameter tubing) was full of a very dark brown fluid that looked like blood. We have seen small amounts of blood in the tubing before (from suctioning), but this was enough to send us into a small panic. We called Dr. Oldham, who had us bring Evan right in (3rd office visit this week!). He tested the fluid and confirmed it was blood, but it was " old " blood (been there at least 24 hrs). We lavaged Evan's stomach (put in ~1 oz of sterile saline solution, gently jiggled Evan around, and then sucked it back out) and did not find any fresh blood. Dr. Oldham also checked his hemoglobin levels (to make sure he has not been slowly losing blood and are just now noticing it), which was fine. He also tested the stomach juice for a bacteria H. pylori that is known to cause stomach ulcers, which was also negative. Dr. Oldham spoke with the surgical team at Children's who put in his G-tube, repaired his hiatal hernia, and also performed the Nissen fundoplication (the upper part of his stomach was wrapped around the esophagus to help with the acid reflux). The surgeons want to see him Monday or Tuesday to run an upper GI to help determine what is wrong. There are three possible causes for the blood. First, he could have severe esophagitis from acid reflux (given he is currently medicated for this, Dr. Oldham doesn't think this is the culprit). Second, with all the stress he has undergone in his short little life, he could have a bleeding ulcer. Third, the Nissen could have come undone. Evan is not in any discomfort at all. In fact, while we were waiting for Dr. Oldham his was giggling and cooing away just like his old self. Part of me is praying that it is not the Nissen failing, but then that is something that can be fixed fairly easily surgically (I think now that he is bigger, it could even be done laproscopically so the incision would be much smaller than the first one). A bleeding ulcer sounds so horrible. We will keep you all posted once we have some news. I know that Kim has some experience with Nissen failure with Dylan. What were the signs and symptoms that he had? Anyone else have a Nissen fail? Anyone have any experience with bleeding ulcers? Thanks for the help, (mom to Evan, 8.5 months) --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 I have talked with the docs about this and all but wanted your input everyone. WIth the MicKey, what way have you found is the best to vent your child and how much air do you get? I thought it was so much easier with his old Gtube...either he doesn't retain much air or I am having a difficult time venting him. Sometimes he does feel a little bloated, but yet I get nothing out. Thoughts? and Melton wrote: , also has a G-tube, and a few times we see a little bit of blood come up into the tube. But, last summer we had a huge scare. We were venting her, and out of nowhere, she vomits what looks like wet coffee grounds! It freaked us out. Thankfully my aunt is a nurse, and we made a call to her right away. By our description, she said it was " old " blood. About every 20 minutes, Meagan would woof up more blood. We started to think she was going to bleed to death! We finally took her to the ER, where they admitted her right away, and ran all the tests....hemoglobin, test to see if it was blood she was woofing up, etc.. Sure enough it was blood, and no her blood levels hadn't dropped. She does not have a nissen, but does has severe reflux, so they scoped her to see if damage had occurred from her reflux. He saw nothing, and went all the way down to her g tube site. While there, he biopsied her stomach. Everything came back normal and looked fairly normal. Inside of her stomach, at the tube site, was a little pink. He said that her tube site may have been bumped hard, tugged at, or might have gotten caught on something causing it to be tweaked too much. This sometimes causes a raw area to bleed very slowly. I didn't buy this, because of the volume that had come out of her. He then explained that it only takes a very little amount of blood mixed with saliva, and other stomach juices, to look like a lot of blood. He used a glass of water and a drop of red food coloring as an example. He said the body sees blood as something that should not be there, so the body wants it out. And, we all know that our mouth waters horrendously before we vomit. She must have been feeling sick from the blood mouth watering, swallowing it, and then losing it. That was our experience...I only share it with you to help ease your mind. , mommy to Meagan (CHaRgE) and 17 months, and big brother 3 1/2 years, married to the best daddy in the world for 9 years -- Evan - G-tube - Blood - Help! (especially AZ Kim) Below is Evan's blog entry from today. Let me preface it briefly by saying Evan was supposed to have surgery yesterday (orchipexy/circumcision/tubes in ears/repeat hearing tests), but it was cancelled because first he had a cold and subsequently developed an ear infection. He is on antibiotics for the ear infection and seems to be doing much better. This morning Evan woke up around 6 am--his usual bright and happy self. The antibiotics for his ear infection had kicked in, and the 24-hr urine culture had come back negative. We finished off his over-night feeding, and I gave him a bath around 7 am (Evan is definately a morning person!). Around 7:45, I was in the kitchen getting all Evan's medicines drawn up to give to him. was venting his G-tube (essentially burping--we generally have to do this after each meal). called me back to the bedroom. The entire length of tubing (about 8 inches of 1/4 " diameter tubing) was full of a very dark brown fluid that looked like blood. We have seen small amounts of blood in the tubing before (from suctioning), but this was enough to send us into a small panic. We called Dr. Oldham, who had us bring Evan right in (3rd office visit this week!). He tested the fluid and confirmed it was blood, but it was " old " blood (been there at least 24 hrs). We lavaged Evan's stomach (put in ~1 oz of sterile saline solution, gently jiggled Evan around, and then sucked it back out) and did not find any fresh blood. Dr. Oldham also checked his hemoglobin levels (to make sure he has not been slowly losing blood and are just now noticing it), which was fine. He also tested the stomach juice for a bacteria H. pylori that is known to cause stomach ulcers, which was also negative. Dr. Oldham spoke with the surgical team at Children's who put in his G-tube, repaired his hiatal hernia, and also performed the Nissen fundoplication (the upper part of his stomach was wrapped around the esophagus to help with the acid reflux). The surgeons want to see him Monday or Tuesday to run an upper GI to help determine what is wrong. There are three possible causes for the blood. First, he could have severe esophagitis from acid reflux (given he is currently medicated for this, Dr. Oldham doesn't think this is the culprit). Second, with all the stress he has undergone in his short little life, he could have a bleeding ulcer. Third, the Nissen could have come undone. Evan is not in any discomfort at all. In fact, while we were waiting for Dr. Oldham his was giggling and cooing away just like his old self. Part of me is praying that it is not the Nissen failing, but then that is something that can be fixed fairly easily surgically (I think now that he is bigger, it could even be done laproscopically so the incision would be much smaller than the first one). A bleeding ulcer sounds so horrible. We will keep you all posted once we have some news. I know that Kim has some experience with Nissen failure with Dylan. What were the signs and symptoms that he had? Anyone else have a Nissen fail? Anyone have any experience with bleeding ulcers? Thanks for the help, (mom to Evan, 8.5 months) --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 My daughter is five and has had a MicKey button for about 4 years. We vent her before every bolus feed. We find that if we vent her first then sit her up with the tubing connected, air is pushed out. We then do her flovent puffs (this takes 2-3 minutes), it usually takes a little time for her burps to start. Finally, if she hasn't burped during all this we massage her belly a bit. Hope this was helpful. , mom to Makenna , > also has a G-tube, and a few times we see a little bit of blood > come up into the tube. But, last summer we had a huge scare. We were venting > her, and out of nowhere, she vomits what looks like wet coffee grounds! It > freaked us out. Thankfully my aunt is a nurse, and we made a call to her > right away. By our description, she said it was " old " blood. About every 20 > minutes, Meagan would woof up more blood. We started to think she was going > to bleed to death! We finally took her to the ER, where they admitted her > right away, and ran all the tests....hemoglobin, test to see if it was blood > she was woofing up, etc.. Sure enough it was blood, and no her blood levels > hadn't dropped. She does not have a nissen, but does has severe reflux, so > they scoped her to see if damage had occurred from her reflux. He saw > nothing, and went all the way down to her g tube site. While there, he > biopsied her stomach. Everything came back normal and looked fairly normal. > Inside of her stomach, at the tube site, was a little pink. He said that her > tube site may have been bumped hard, tugged at, or might have gotten caught > on something causing it to be tweaked too much. This sometimes causes a raw > area to bleed very slowly. I didn't buy this, because of the volume that had > come out of her. He then explained that it only takes a very little amount > of blood mixed with saliva, and other stomach juices, to look like a lot of > blood. He used a glass of water and a drop of red food coloring as an > example. He said the body sees blood as something that should not be there, > so the body wants it out. And, we all know that our mouth waters > horrendously before we vomit. She must have been feeling sick from the blood > mouth watering, swallowing it, and then losing it. > > That was our experience...I only share it with you to help ease your mind. > > > , mommy to Meagan (CHaRgE) and 17 months, and big brother > 3 1/2 years, married to the best daddy in the world for 9 years > -- Evan - G-tube - Blood - Help! (especially AZ Kim) > > Below is Evan's blog entry from today. Let me preface it briefly by saying > Evan was supposed to have surgery yesterday (orchipexy/circumcision/tubes in > ears/repeat hearing tests), but it was cancelled because first he had a cold > and subsequently developed an ear infection. He is on antibiotics for the > ear infection and seems to be doing much better. > > This morning Evan woke up around 6 am--his usual bright and happy self. > The antibiotics for his ear infection had kicked in, and the 24-hr urine > culture had come back negative. We finished off his over-night feeding, and > I gave him a bath around 7 am (Evan is definately a morning person!). > > Around 7:45, I was in the kitchen getting all Evan's medicines drawn up to > give to him. was venting his G-tube (essentially burping--we > generally have to do this after each meal). called me back to the > bedroom. The entire length of tubing (about 8 inches of 1/4 " diameter > tubing) was full of a very dark brown fluid that looked like blood. We have > seen small amounts of blood in the tubing before (from suctioning), but this > was enough to send us into a small panic. > > We called Dr. Oldham, who had us bring Evan right in (3rd office visit this > week!). He tested the fluid and confirmed it was blood, but it was " old " > blood (been there at least 24 hrs). We lavaged Evan's stomach (put in ~1 oz > of sterile saline solution, gently jiggled Evan around, and then sucked it > back out) and did not find any fresh blood. Dr. Oldham also checked his > hemoglobin levels (to make sure he has not been slowly losing blood and are > just now noticing it), which was fine. He also tested the stomach juice for > a bacteria H. pylori that is known to cause stomach ulcers, which was also > negative. > > Dr. Oldham spoke with the surgical team at Children's who put in his G-tube, > repaired his hiatal hernia, and also performed the Nissen fundoplication > (the upper part of his stomach was wrapped around the esophagus to help with > the acid reflux). The surgeons want to see him Monday or Tuesday to run an > upper GI to help determine what is wrong. > > There are three possible causes for the blood. First, he could have severe > esophagitis from acid reflux (given he is currently medicated for this, Dr. > Oldham doesn't think this is the culprit). Second, with all the stress he > has undergone in his short little life, he could have a bleeding ulcer. > Third, the Nissen could have come undone. > > Evan is not in any discomfort at all. In fact, while we were waiting for Dr. > Oldham his was giggling and cooing away just like his old self. Part of me > is praying that it is not the Nissen failing, but then that is something > that can be fixed fairly easily surgically (I think now that he is bigger, > it could even be done laproscopically so the incision would be much smaller > than the first one). A bleeding ulcer sounds so horrible. > > We will keep you all posted once we have some news. > > I know that Kim has some experience with Nissen failure with Dylan. What > were the signs and symptoms that he had? Anyone else have a Nissen fail? > Anyone have any experience with bleeding ulcers? > > Thanks for the help, > > (mom to Evan, 8.5 months) > > > --------------------------------- > New Yahoo! Messenger with Voice. Call regular phones from your PC and save > big. > > Quote Link to comment Share on other sites More sharing options...
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