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Hi Dawn,

That's a gorgeous kid you've got there! So accepting and mature and the sign

of a lovely human being. Regarding the blood, we have a mobile service over

here for people in your predicament. I'm sure there must be something

similar there too, I hope so. I was also wondering if there would be anyone

else to drive the girls to dancing? Just a thought.

Take care,

Lesley

>

>Reply-To: OurMyositis

>To: " OurMyositis " <OurMyositis >

>Subject: I'm amazed...

>Date: Mon, 07 Oct 2002 15:49:27 -0300

>

>I'm amazed at how mature Marlee (my 6 yr. old) is for her age. I

>normally take hubby to work on Monday's in order for me to have blood

>work and get groceries, etc., since we only have one working vehicle.

>However, now that he's taking this job in Fredericton (an hour in the

>opposite direction), I won't be able to do that, so I won't have the car

>any now. Well, I'm not sure if you remember me mentioning that both of

>my girls were going to start dance classes (tonight was supposed to have

>been their first night) but since we won't have a way to get there, I

>had to break the news that there wouldn't be dance this year. They were

>both soooo excited, but especially Marlee, so I was not looking forward

>to telling them. I cried last night even at the thought of telling

>them. So today she gets in and starts bouncing off the walls because of

>dance and after I told her, she just said " oh well, next year " . She

>said she was disappointed but she made me a very proud mama. She knows

>that we're going to get another vehicle once I get this stupid

>Disability, so she said she'll be patient. How sweet is that!! She

>handles everything like that, including my disability and the knowledge

>that I can't be like all her friend's moms. And she loves me to pieces

>anyway. As for Emma, she's happy go lucky anyway and has most likely

>forgotten about dance already. LOL. Kids!!

>

>Dawn

>

>PS......Don't even ask me how I'm going to have blood taken every week

>now. I think I'm going to call my GP tomorrow and ask if I can change

>it to once every 2 weeks, and surely to heavens I'll be able to find

>someone who will take pity on me. Or perhaps I'll check with the Red

>Cross and see if they could help.

>

_________________________________________________________________

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Hi Dawn,

That's a gorgeous kid you've got there! So accepting and mature and the sign

of a lovely human being. Regarding the blood, we have a mobile service over

here for people in your predicament. I'm sure there must be something

similar there too, I hope so. I was also wondering if there would be anyone

else to drive the girls to dancing? Just a thought.

Take care,

Lesley

>

>Reply-To: OurMyositis

>To: " OurMyositis " <OurMyositis >

>Subject: I'm amazed...

>Date: Mon, 07 Oct 2002 15:49:27 -0300

>

>I'm amazed at how mature Marlee (my 6 yr. old) is for her age. I

>normally take hubby to work on Monday's in order for me to have blood

>work and get groceries, etc., since we only have one working vehicle.

>However, now that he's taking this job in Fredericton (an hour in the

>opposite direction), I won't be able to do that, so I won't have the car

>any now. Well, I'm not sure if you remember me mentioning that both of

>my girls were going to start dance classes (tonight was supposed to have

>been their first night) but since we won't have a way to get there, I

>had to break the news that there wouldn't be dance this year. They were

>both soooo excited, but especially Marlee, so I was not looking forward

>to telling them. I cried last night even at the thought of telling

>them. So today she gets in and starts bouncing off the walls because of

>dance and after I told her, she just said " oh well, next year " . She

>said she was disappointed but she made me a very proud mama. She knows

>that we're going to get another vehicle once I get this stupid

>Disability, so she said she'll be patient. How sweet is that!! She

>handles everything like that, including my disability and the knowledge

>that I can't be like all her friend's moms. And she loves me to pieces

>anyway. As for Emma, she's happy go lucky anyway and has most likely

>forgotten about dance already. LOL. Kids!!

>

>Dawn

>

>PS......Don't even ask me how I'm going to have blood taken every week

>now. I think I'm going to call my GP tomorrow and ask if I can change

>it to once every 2 weeks, and surely to heavens I'll be able to find

>someone who will take pity on me. Or perhaps I'll check with the Red

>Cross and see if they could help.

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Hi Dawn,

That's a gorgeous kid you've got there! So accepting and mature and the sign

of a lovely human being. Regarding the blood, we have a mobile service over

here for people in your predicament. I'm sure there must be something

similar there too, I hope so. I was also wondering if there would be anyone

else to drive the girls to dancing? Just a thought.

Take care,

Lesley

>

>Reply-To: OurMyositis

>To: " OurMyositis " <OurMyositis >

>Subject: I'm amazed...

>Date: Mon, 07 Oct 2002 15:49:27 -0300

>

>I'm amazed at how mature Marlee (my 6 yr. old) is for her age. I

>normally take hubby to work on Monday's in order for me to have blood

>work and get groceries, etc., since we only have one working vehicle.

>However, now that he's taking this job in Fredericton (an hour in the

>opposite direction), I won't be able to do that, so I won't have the car

>any now. Well, I'm not sure if you remember me mentioning that both of

>my girls were going to start dance classes (tonight was supposed to have

>been their first night) but since we won't have a way to get there, I

>had to break the news that there wouldn't be dance this year. They were

>both soooo excited, but especially Marlee, so I was not looking forward

>to telling them. I cried last night even at the thought of telling

>them. So today she gets in and starts bouncing off the walls because of

>dance and after I told her, she just said " oh well, next year " . She

>said she was disappointed but she made me a very proud mama. She knows

>that we're going to get another vehicle once I get this stupid

>Disability, so she said she'll be patient. How sweet is that!! She

>handles everything like that, including my disability and the knowledge

>that I can't be like all her friend's moms. And she loves me to pieces

>anyway. As for Emma, she's happy go lucky anyway and has most likely

>forgotten about dance already. LOL. Kids!!

>

>Dawn

>

>PS......Don't even ask me how I'm going to have blood taken every week

>now. I think I'm going to call my GP tomorrow and ask if I can change

>it to once every 2 weeks, and surely to heavens I'll be able to find

>someone who will take pity on me. Or perhaps I'll check with the Red

>Cross and see if they could help.

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Why do you have your blood drawn every week? I have only had it every month to monitor the disease. Now it is closer to 6 weeks. Seems like a lot.

That is cool about Marlee. Sometimes kids surprise you!

Zanna

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Why do you have your blood drawn every week? I have only had it every month to monitor the disease. Now it is closer to 6 weeks. Seems like a lot.

That is cool about Marlee. Sometimes kids surprise you!

Zanna

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Share on other sites

Why do you have your blood drawn every week? I have only had it every month to monitor the disease. Now it is closer to 6 weeks. Seems like a lot.

That is cool about Marlee. Sometimes kids surprise you!

Zanna

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Share on other sites

Unfortunatley, no. We're 1/2 hour away from town and my family all works and I

don't really know too many others in my community. Luckily, my kids are okay

with the fact that they will definately be taking dance next year. I'm not sure

about the blood thing, but I'll check into it.

Dawn

lesley prior wrote:

> Hi Dawn,

> That's a gorgeous kid you've got there! So accepting and mature and the sign

> of a lovely human being. Regarding the blood, we have a mobile service over

> here for people in your predicament. I'm sure there must be something

> similar there too, I hope so. I was also wondering if there would be anyone

> else to drive the girls to dancing? Just a thought.

> Take care,

> Lesley

>

> >

> >Reply-To: OurMyositis

> >To: " OurMyositis " <OurMyositis >

> >Subject: I'm amazed...

> >Date: Mon, 07 Oct 2002 15:49:27 -0300

> >

> >I'm amazed at how mature Marlee (my 6 yr. old) is for her age. I

> >normally take hubby to work on Monday's in order for me to have blood

> >work and get groceries, etc., since we only have one working vehicle.

> >However, now that he's taking this job in Fredericton (an hour in the

> >opposite direction), I won't be able to do that, so I won't have the car

> >any now. Well, I'm not sure if you remember me mentioning that both of

> >my girls were going to start dance classes (tonight was supposed to have

> >been their first night) but since we won't have a way to get there, I

> >had to break the news that there wouldn't be dance this year. They were

> >both soooo excited, but especially Marlee, so I was not looking forward

> >to telling them. I cried last night even at the thought of telling

> >them. So today she gets in and starts bouncing off the walls because of

> >dance and after I told her, she just said " oh well, next year " . She

> >said she was disappointed but she made me a very proud mama. She knows

> >that we're going to get another vehicle once I get this stupid

> >Disability, so she said she'll be patient. How sweet is that!! She

> >handles everything like that, including my disability and the knowledge

> >that I can't be like all her friend's moms. And she loves me to pieces

> >anyway. As for Emma, she's happy go lucky anyway and has most likely

> >forgotten about dance already. LOL. Kids!!

> >

> >Dawn

> >

> >PS......Don't even ask me how I'm going to have blood taken every week

> >now. I think I'm going to call my GP tomorrow and ask if I can change

> >it to once every 2 weeks, and surely to heavens I'll be able to find

> >someone who will take pity on me. Or perhaps I'll check with the Red

> >Cross and see if they could help.

> >

>

> _________________________________________________________________

> Join the world’s largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

>

>

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Unfortunatley, no. We're 1/2 hour away from town and my family all works and I

don't really know too many others in my community. Luckily, my kids are okay

with the fact that they will definately be taking dance next year. I'm not sure

about the blood thing, but I'll check into it.

Dawn

lesley prior wrote:

> Hi Dawn,

> That's a gorgeous kid you've got there! So accepting and mature and the sign

> of a lovely human being. Regarding the blood, we have a mobile service over

> here for people in your predicament. I'm sure there must be something

> similar there too, I hope so. I was also wondering if there would be anyone

> else to drive the girls to dancing? Just a thought.

> Take care,

> Lesley

>

> >

> >Reply-To: OurMyositis

> >To: " OurMyositis " <OurMyositis >

> >Subject: I'm amazed...

> >Date: Mon, 07 Oct 2002 15:49:27 -0300

> >

> >I'm amazed at how mature Marlee (my 6 yr. old) is for her age. I

> >normally take hubby to work on Monday's in order for me to have blood

> >work and get groceries, etc., since we only have one working vehicle.

> >However, now that he's taking this job in Fredericton (an hour in the

> >opposite direction), I won't be able to do that, so I won't have the car

> >any now. Well, I'm not sure if you remember me mentioning that both of

> >my girls were going to start dance classes (tonight was supposed to have

> >been their first night) but since we won't have a way to get there, I

> >had to break the news that there wouldn't be dance this year. They were

> >both soooo excited, but especially Marlee, so I was not looking forward

> >to telling them. I cried last night even at the thought of telling

> >them. So today she gets in and starts bouncing off the walls because of

> >dance and after I told her, she just said " oh well, next year " . She

> >said she was disappointed but she made me a very proud mama. She knows

> >that we're going to get another vehicle once I get this stupid

> >Disability, so she said she'll be patient. How sweet is that!! She

> >handles everything like that, including my disability and the knowledge

> >that I can't be like all her friend's moms. And she loves me to pieces

> >anyway. As for Emma, she's happy go lucky anyway and has most likely

> >forgotten about dance already. LOL. Kids!!

> >

> >Dawn

> >

> >PS......Don't even ask me how I'm going to have blood taken every week

> >now. I think I'm going to call my GP tomorrow and ask if I can change

> >it to once every 2 weeks, and surely to heavens I'll be able to find

> >someone who will take pity on me. Or perhaps I'll check with the Red

> >Cross and see if they could help.

> >

>

> _________________________________________________________________

> Join the world’s largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

>

>

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The blood is taken weekly to measure my INR for the blood clots. They

take the CPK at the same time, just because I'm there anyway.

Dawn

mrsxanadu@... wrote:

> Why do you have your blood drawn every week? I have only had it

> every month to monitor the disease. Now it is closer to 6 weeks.

> Seems like a lot.

>

> That is cool about Marlee. Sometimes kids surprise you!

>

> Zanna

>

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The blood is taken weekly to measure my INR for the blood clots. They

take the CPK at the same time, just because I'm there anyway.

Dawn

mrsxanadu@... wrote:

> Why do you have your blood drawn every week? I have only had it

> every month to monitor the disease. Now it is closer to 6 weeks.

> Seems like a lot.

>

> That is cool about Marlee. Sometimes kids surprise you!

>

> Zanna

>

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