Re: Frustrating Dr. Appt.

[Guest guest]

Hi ,

What a JERK! I hope you don't let his ridiculous attitude drag you down. I

would do the 100mg MWF until your regular rheumy gets back in May and see if

that doesn't have you feeling a little better. I don't know if it's

something you're able to take or if it would help but Tylenol has put out an

arthritis formula that's a high dosage and time released for 8 hours. I

take it when I'm having a really bad day and the Vioxx just isn't enough.

Unfortunately, unless you find a doctor who believes in AP and is also in

your insurance group you sort of do have to be your own doctor. You are the

person who is ultimately responsible for your health. Do what your gut tells

you is right and go with your instincts .....I have only regreted the times

when I have not done this because in my experience I have only run into

trouble by not doing what I knew deep down was the right thing. Try to

follow the diet as best you can because I believe it helps too. Hang in

there. You have all of us behind you cheering you on and willing to help

when you need it.

Keep fighting......Hope you're feeling better soon.

Dee

[Guest guest]

Dear ,

I am only on 50mg. Mon and Thurs and am still herxing on this small dose,

though it is bearable. Normal healthy people take much higher doses daily

for acne and they don't herx because they haven't got micoplasma all through

their bodies. The fact that you are herxing tells me that you are right on

target. These doctors are just ignorant. If I were you I would only trust

the ones who know what they are doing. The Roadback protocol has been used

successfully and safely for over 50 years. You only need to take as much

mino as you can cope with. Don't over do it.

Love,

Roseamry.

rheumatic Frustrating Dr. Appt.

> Hi all-

>

> Well, I just got back from the Dr. and I am furious. He was absolutely

> no help at all. I had to see a different Rheumy because mine is out of

> town.

>

> I went in and told him all of my symptoms, and how I have had to quit

> one job because I am so sick, and I haven't even been able to leave the

> house for a couple of weeks. He listened, said he was going to check my

> lab results and be right back.

>

> He came back and said...well, your tests look fine, let me look at your

> joints. So he did, but I am not having much swelling so I knew that

> would not tell him much. I also let him know that I didn't have much

> swelling in my last flare, but that this is , much like that flare was.

>

> After he looked at my joints, he basically said that if it was up to

> him he would call off all of this treatment because it doesn't look to

> him like I even have RA (beacuse I am not swelling right now). He

> wouldn't help me find a NSAID that won't hurt my stomach, and just said

> to keep taking Vicodin even though I told him I hate taking it because

> of the way it makes me feel, and that the only reason I am taking it is

> because I can't stand the pain! So then he tried to throw prednisone in

> my face and I refused so he became even more frustrate with me.

>

> I asked him about changing the Mino to MWF, and he laughed and said I

> may as well just stop taking it. He felt that low of a dose would do

> nothing for RA, and he doesn't even think 100mg/ daily is enough to

> have an effect. I also asked him about getting something to help clear

> up the yeast infection, (since two rounds of diflucan haven't done it)

> and he said, " If you can't tolerate the side effects of the Mino, maybe

> you should just stop taking it. " WHAT A JERK!! I was so mad!! So

> basically I feel like I need to be my own Dr.! I go in for the

> colonoscopy/ endoscopy monday, so maybe after that I can get some help.

> I can't get in to see my regular RA doc until May 8!

>

> Just thought I'd share my frustration and let you all know I am still

> looking for a good Dr. in the Portland area covered by Kaiser

> insurance. Hopefully that book will come in the mail soon so I can know

> more about what is going on, since I am gettin NO medical support.

> No wonder so many people with these diseases are depressed! The Dr.'s

> make you feel like you are crazy. Well I know one thing for sure, I

> that Dr. had to live with this for a day, he would have a whole new

> attitude!!

>

> I am so grateful for your support and all of the info I have gotten

> here. I would definately have quit AP long ago if it weren't for all of

> the great success stories you have shared which give me hope..

>

> Hoping all of you are doing well (or at least better),

>

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

I agree with Rose one of the things that made me decide to do the AP was because a doctor put me on some antibiotics I had never taken before and it made me very ill.. so when I came across the web site about it I thought that a herx must have been what was happening. I also had to lower mine and work up VERY slowly to a higher dose. I was blessed to have a doctor that I could say well the people on my list said I should lower the dose.. and she listened even though my husband who was bringing my meds to me at the time because I was unable to get out of bed lowered it before we went and saw her again.

It is your body, not the doctors do what you FEEL is right for you.

Okay this is my rant of the day... hope this does not offend anyone!

I believe that there are a lot of very caring doctors out there but I have also seen the other side doctors who think they know everything... there way is THE ONLY way. Well they are not gods and we should not give them so much power. I think most of the people here are like me and check into what every the doc says, either by asking for advise here or going on the net to look up drugs and their benefits.

If a doctor insist on things being their way I leave and do not go back. I know my own body better than someone who I have spent maybe 20 minutes with... and I am tired oh so tired of being told that I need to be on anti-depressants...

Yes, I get depressed sometimes but in general I have a good attitude and it is most of the time very positive.

A doctor is only someone who has training it does not mean that he/she has all the answers and if they can not admit to that and look for the answers then I believe they are not doing us any good

There is so much information at their disposal but some do not think they need to continue to learn new things.

Our teachers are tested to make sure they are up to date but doctor's are not!!!

okay I am finished with my ranting of the day... by the way I have a wonderful doctor (GP) he understands the pain and that scores some really big points with me!!!! I even told one doctor who said oh you are just depressed, I looked at him and said there is a big difference between being depressed and being in constant pain!!!! I AM IN PAIN!! he went into a long lecture on depression I informed him I have been on antidepressants they do not help me sleep, I did not need them at the time!!! I need something to Help with the pain.. he then had me do a test that we already knew the outcome but it only cost us another 1,000... Needless to say I have not been back to him.....

now I am really done I promise!!!

Peace,

SherryDear ,I am only on 50mg. Mon and Thurs and am still herxing on this small dose,though it is bearable. Normal healthy people take much higher doses dailyfor acne and they don't herx because they haven't got micoplasma all throughtheir bodies. The fact that you are herxing tells me that you are right ontarget. These doctors are just ignorant. If I were you I would only trustthe ones who know what they are doing. The Roadback protocol has been usedsuccessfully and safely for over 50 years. You only need to take as muchmino as you can cope with. Don't over do it.Love,Roseamry. rheumatic Frustrating Dr. Appt.> Hi all->> Well, I just got back from the Dr. and I am furious. He was absolutely> no help at all. I had to see a different Rheumy because mine is out of> town.>> I went in and told him all of my symptoms, and how I have had to quit> one job because I am so sick, and I haven't even been able to leave the> house for a couple of weeks. He listened, said he was going to check my> lab results and be right back.>> He came back and said...well, your tests look fine, let me look at your> joints. So he did, but I am not having much swelling so I knew that> would not tell him much. I also let him know that I didn't have much> swelling in my last flare, but that this is , much like that flare was.>> After he looked at my joints, he basically said that if it was up to> him he would call off all of this treatment because it doesn't look to> him like I even have RA (beacuse I am not swelling right now). He> wouldn't help me find a NSAID that won't hurt my stomach, and just said> to keep taking Vicodin even though I told him I hate taking it because> of the way it makes me feel, and that the only reason I am taking it is> because I can't stand the pain! So then he tried to throw prednisone in> my face and I refused so he became even more frustrate with me.>> I asked him about changing the Mino to MWF, and he laughed and said I> may as well just stop taking it. He felt that low of a dose would do> nothing for RA, and he doesn't even think 100mg/ daily is enough to> have an effect. I also asked him about getting something to help clear> up the yeast infection, (since two rounds of diflucan haven't done it)> and he said, "If you can't tolerate the side effects of the Mino, maybe> you should just stop taking it." WHAT A JERK!! I was so mad!! So> basically I feel like I need to be my own Dr.! I go in for the> colonoscopy/ endoscopy monday, so maybe after that I can get some help.> I can't get in to see my regular RA doc until May 8!>> Just thought I'd share my frustration and let you all know I am still> looking for a good Dr. in the Portland area covered by Kaiser> insurance. Hopefully that book will come in the mail soon so I can know> more about what is going on, since I am gettin NO medical support.> No wonder so many people with these diseases are depressed! The Dr.'s> make you feel like you are crazy. Well I know one thing for sure, I> that Dr. had to live with this for a day, he would have a whole new> attitude!!>> I am so grateful for your support and all of the info I have gotten> here. I would definately have quit AP long ago if it weren't for all of> the great success stories you have shared which give me hope..>> Hoping all of you are doing well (or at least better),> >>>> To unsubscribe, email: rheumatic-unsubscribeegroups>>>

[Guest guest]

Dear Debi,

I really don't know. It would be good if you could get the test done. Have

you read The New Arthritis Breakthrough by Henry Scammell? This will give

you a clearer picture of what is happening. It may be that you need a higher

dose. Does anyone else have any ideas?

Rosemary.

rheumatic Frustrating Dr. Appt.

> >

> > > Hi all-

> > >

> > > Well, I just got back from the Dr. and I am furious. He was absolutely

> > > no help at all. I had to see a different Rheumy because mine is out of

> > > town.

> > >

> > > I went in and told him all of my symptoms, and how I have had to quit

> > > one job because I am so sick, and I haven't even been able to leave

the

> > > house for a couple of weeks. He listened, said he was going to check

my

> > > lab results and be right back.

> > >

> > > He came back and said...well, your tests look fine, let me look at

your

> > > joints. So he did, but I am not having much swelling so I knew that

> > > would not tell him much. I also let him know that I didn't have much

> > > swelling in my last flare, but that this is , much like that flare

was.

> > >

> > > After he looked at my joints, he basically said that if it was up to

> > > him he would call off all of this treatment because it doesn't look to

> > > him like I even have RA (beacuse I am not swelling right now). He

> > > wouldn't help me find a NSAID that won't hurt my stomach, and just

said

> > > to keep taking Vicodin even though I told him I hate taking it

because

> > > of the way it makes me feel, and that the only reason I am taking it

is

> > > because I can't stand the pain! So then he tried to throw prednisone

in

> > > my face and I refused so he became even more frustrate with me.

> > >

> > > I asked him about changing the Mino to MWF, and he laughed and said I

> > > may as well just stop taking it. He felt that low of a dose would do

> > > nothing for RA, and he doesn't even think 100mg/ daily is enough to

> > > have an effect. I also asked him about getting something to help clear

> > > up the yeast infection, (since two rounds of diflucan haven't done it)

> > > and he said, " If you can't tolerate the side effects of the Mino,

maybe

> > > you should just stop taking it. " WHAT A JERK!! I was so mad!! So

> > > basically I feel like I need to be my own Dr.! I go in for the

> > > colonoscopy/ endoscopy monday, so maybe after that I can get some

help.

> > > I can't get in to see my regular RA doc until May 8!

> > >

> > > Just thought I'd share my frustration and let you all know I am still

> > > looking for a good Dr. in the Portland area covered by Kaiser

> > > insurance. Hopefully that book will come in the mail soon so I can

know

> > > more about what is going on, since I am gettin NO medical support.

> > > No wonder so many people with these diseases are depressed! The Dr.'s

> > > make you feel like you are crazy. Well I know one thing for sure, I

> > > that Dr. had to live with this for a day, he would have a whole new

> > > attitude!!

> > >

> > > I am so grateful for your support and all of the info I have gotten

> > > here. I would definately have quit AP long ago if it weren't for all

of

> > > the great success stories you have shared which give me hope..

> > >

> > > Hoping all of you are doing well (or at least better),

> > >

> > >

> > >

> > >

> > > To unsubscribe, email: rheumatic-unsubscribeegroups

> > >

> > >

> > >

[Guest guest]

Hi Joe,

If you can, get your hands on a copy of " The New Arthritis Breakthrough " by

Henry Scammell. In it you will not only find lots of useful information but

stories from many people who were in a great deal of pain and using many

other drugs offered by their doctors before they found AP.

Perhaps the dose of antibiotic you're on is too high? Just a thought.

Anyway, the book will make it all alot clearer for you.

Be Well,

Dee

[Guest guest]

Hello: I was just wonder-ing ! Is it ever to late to take minocycline ! mean-ing should we or is it best to take it at the frist two weeks that we have Arthritis. I know that some of us, well even my self I did not know untill mos's & or year's later. I was just wonder-ing if I'm wast-ing my time kill-ing my self with this Hex-ing. Joe rheumatic Frustrating Dr. Appt.> Hi all->> Well, I just got back from the Dr. and I am furious. He was absolutely> no help at all. I had to see a different Rheumy because mine is out of> town.>> I went in and told him all of my symptoms, and how I have had to quit> one job because I am so sick, and I haven't even been able to leave the> house for a couple of weeks. He listened, said he was going to check my> lab results and be right back.>> He came back and said...well, your tests look fine, let me look at your> joints. So he did, but I am not having much swelling so I knew that> would not tell him much. I also let him know that I didn't have much> swelling in my last flare, but that this is , much like that flare was.>> After he looked at my joints, he basically said that if it was up to> him he would call off all of this treatment because it doesn't look to> him like I even have RA (beacuse I am not swelling right now). He> wouldn't help me find a NSAID that won't hurt my stomach, and just said> to keep taking Vicodin even though I told him I hate taking it because> of the way it makes me feel, and that the only reason I am taking it is> because I can't stand the pain! So then he tried to throw prednisone in> my face and I refused so he became even more frustrate with me.>> I asked him about changing the Mino to MWF, and he laughed and said I> may as well just stop taking it. He felt that low of a dose would do> nothing for RA, and he doesn't even think 100mg/ daily is enough to> have an effect. I also asked him about getting something to help clear> up the yeast infection, (since two rounds of diflucan haven't done it)> and he said, "If you can't tolerate the side effects of the Mino, maybe> you should just stop taking it." WHAT A JERK!! I was so mad!! So> basically I feel like I need to be my own Dr.! I go in for the> colonoscopy/ endoscopy monday, so maybe after that I can get some help.> I can't get in to see my regular RA doc until May 8!>> Just thought I'd share my frustration and let you all know I am still> looking for a good Dr. in the Portland area covered by Kaiser> insurance. Hopefully that book will come in the mail soon so I can know> more about what is going on, since I am gettin NO medical support.> No wonder so many people with these diseases are depressed! The Dr.'s> make you feel like you are crazy. Well I know one thing for sure, I> that Dr. had to live with this for a day, he would have a whole new> attitude!!>> I am so grateful for your support and all of the info I have gotten> here. I would definately have quit AP long ago if it weren't for all of> the great success stories you have shared which give me hope..>> Hoping all of you are doing well (or at least better),> >>>> To unsubscribe, email: rheumatic-unsubscribeegroups>>>

[Guest guest]

Dear Joe,

I don't know how old you are, but would hope you can improve your quality of life. In The New Arthritis Breakthrough, there are stories of people who are not young, but are enjoying their lives now becuase of this therapy. There are many stories of people who have been very ill for many years, recovering on this. It's easy to give up especially if depression sets in. Maybe you need to lower the dose if the Herx is too much for you. I hope you have a good doctor. Stay in touch with this group. We will help you.

Rosemary.

rheumatic Frustrating Dr. Appt.> Hi all->> Well, I just got back from the Dr. and I am furious. He was absolutely> no help at all. I had to see a different Rheumy because mine is out of> town.>> I went in and told him all of my symptoms, and how I have had to quit> one job because I am so sick, and I haven't even been able to leave the> house for a couple of weeks. He listened, said he was going to check my> lab results and be right back.>> He came back and said...well, your tests look fine, let me look at your> joints. So he did, but I am not having much swelling so I knew that> would not tell him much. I also let him know that I didn't have much> swelling in my last flare, but that this is , much like that flare was.>> After he looked at my joints, he basically said that if it was up to> him he would call off all of this treatment because it doesn't look to> him like I even have RA (beacuse I am not swelling right now). He> wouldn't help me find a NSAID that won't hurt my stomach, and just said> to keep taking Vicodin even though I told him I hate taking it because> of the way it makes me feel, and that the only reason I am taking it is> because I can't stand the pain! So then he tried to throw prednisone in> my face and I refused so he became even more frustrate with me.>> I asked him about changing the Mino to MWF, and he laughed and said I> may as well just stop taking it. He felt that low of a dose would do> nothing for RA, and he doesn't even think 100mg/ daily is enough to> have an effect. I also asked him about getting something to help clear> up the yeast infection, (since two rounds of diflucan haven't done it)> and he said, "If you can't tolerate the side effects of the Mino, maybe> you should just stop taking it." WHAT A JERK!! I was so mad!! So> basically I feel like I need to be my own Dr.! I go in for the> colonoscopy/ endoscopy monday, so maybe after that I can get some help.> I can't get in to see my regular RA doc until May 8!>> Just thought I'd share my frustration and let you all know I am still> looking for a good Dr. in the Portland area covered by Kaiser> insurance. Hopefully that book will come in the mail soon so I can know> more about what is going on, since I am gettin NO medical support.> No wonder so many people with these diseases are depressed! The Dr.'s> make you feel like you are crazy. Well I know one thing for sure, I> that Dr. had to live with this for a day, he would have a whole new> attitude!!>> I am so grateful for your support and all of the info I have gotten> here. I would definately have quit AP long ago if it weren't for all of> the great success stories you have shared which give me hope..>> Hoping all of you are doing well (or at least better),> >>>> To unsubscribe, email: rheumatic-unsubscribeegroups>>>

[Guest guest]

Joe - did you reduce your dose? What dose of minocycline are you taking

now? No, it's never too late to take minocycline, but if you've been sick

for a long while, you need to start at a very low dose to avoid stirring

up more toxins (and therefore pain) than you can cope with. You're not

wasting your time but you have to get the dose right for you at this time.

Chris.

On Tue, 10 Apr 2001, ph Doherty wrote:

> Hello: I was just wonder-ing ! Is it ever to late to take minocycline !

mean-ing should we or is it best to take it at the frist two weeks that we

have Arthritis. I know that some of us, well even my self I did not know

untill mos's & or year's later. I was just wonder-ing if I'm wast-ing my time

kill-ing my self with this Hex-ing. Joe