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Re: Hugs to Sharon

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No hair loss for Rick on CPT-11. That's not completely true .....

he lost a lot on his legs! ;-) He just started back on CPT-11

(after a year on a different drug) ..... but since the whole brain

radiation took his hair ......... I won't be able to assess the

results this time. :-) I've know a few that did lose their hair,

but at least there's a good shot it might not happen.

Best Wishes,

Donna Sisco

S/O Rick, 50, Arkansas

09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

60%+ Tumor Burden in Liver

09/24/02 - 10cm Tumor removed from Colon

10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

06/11/03 - Appt at MD - Suggested changing chemo – failing

current treatment

07/25/03 - Began Oxaliplatin/Xeloda Chemo

10/20/03 - Increased Xeloda – Still failing treatment

11/12/03 - Added Celebrex - continued failure

01/15/04 - Switched to FOLFOX4 chemo

02/23/04 - CEA drops 80 points

02/25/04 - First Symptoms of Brain Problem

03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Junction of Left

Frontal and Parietal Lobe

03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

03/15/04 - Last WBR Treatment

03/18/04 – Took last Decadron - extremely fast weaning process

03/22/04 - First Grand Mal Seizure (5 day hospital stay)

03/22/04 - Back on Decadron, added Dilantin & Insulin

04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

04/13/04 – Not metabolizing Dilantin – adding Keppra

04/20/04 - Switched to CPT-11 with Erbitux

05/04/04 – Beginning weaning from Dilantin, will stay on Keppra

> Dear Sharon and all--

> First, big hugs to you Sharon; let's trust that things will be all

> right for your husband.

> For those of you who shared good news: a big YAY!

> For those of you who share from the 'battlefield': Thank you for

your

> individual stories of strength in the face of adversity.

> My own battlefield peaceful right now--am to start on CPT-11 and

> Avastin but missed one week for low counts and last week for

diarrhea

> (body decided to give me a little practice with CPT-11). So I

took

> advantage of two 'free' weeks, gardened hard, enjoyed grandkids

and

> time out in the country, hosted a brunch (REAL eggs Benedict). A

CPT-

> 11 question: who had hair loss? And did it stay away (the hair)

until

> the treatment ended?

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No hair loss for Rick on CPT-11. That's not completely true .....

he lost a lot on his legs! ;-) He just started back on CPT-11

(after a year on a different drug) ..... but since the whole brain

radiation took his hair ......... I won't be able to assess the

results this time. :-) I've know a few that did lose their hair,

but at least there's a good shot it might not happen.

Best Wishes,

Donna Sisco

S/O Rick, 50, Arkansas

09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

60%+ Tumor Burden in Liver

09/24/02 - 10cm Tumor removed from Colon

10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

06/11/03 - Appt at MD - Suggested changing chemo – failing

current treatment

07/25/03 - Began Oxaliplatin/Xeloda Chemo

10/20/03 - Increased Xeloda – Still failing treatment

11/12/03 - Added Celebrex - continued failure

01/15/04 - Switched to FOLFOX4 chemo

02/23/04 - CEA drops 80 points

02/25/04 - First Symptoms of Brain Problem

03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Junction of Left

Frontal and Parietal Lobe

03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

03/15/04 - Last WBR Treatment

03/18/04 – Took last Decadron - extremely fast weaning process

03/22/04 - First Grand Mal Seizure (5 day hospital stay)

03/22/04 - Back on Decadron, added Dilantin & Insulin

04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

04/13/04 – Not metabolizing Dilantin – adding Keppra

04/20/04 - Switched to CPT-11 with Erbitux

05/04/04 – Beginning weaning from Dilantin, will stay on Keppra

> Dear Sharon and all--

> First, big hugs to you Sharon; let's trust that things will be all

> right for your husband.

> For those of you who shared good news: a big YAY!

> For those of you who share from the 'battlefield': Thank you for

your

> individual stories of strength in the face of adversity.

> My own battlefield peaceful right now--am to start on CPT-11 and

> Avastin but missed one week for low counts and last week for

diarrhea

> (body decided to give me a little practice with CPT-11). So I

took

> advantage of two 'free' weeks, gardened hard, enjoyed grandkids

and

> time out in the country, hosted a brunch (REAL eggs Benedict). A

CPT-

> 11 question: who had hair loss? And did it stay away (the hair)

until

> the treatment ended?

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Share on other sites

Guest guest

No hair loss for Rick on CPT-11. That's not completely true .....

he lost a lot on his legs! ;-) He just started back on CPT-11

(after a year on a different drug) ..... but since the whole brain

radiation took his hair ......... I won't be able to assess the

results this time. :-) I've know a few that did lose their hair,

but at least there's a good shot it might not happen.

Best Wishes,

Donna Sisco

S/O Rick, 50, Arkansas

09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

60%+ Tumor Burden in Liver

09/24/02 - 10cm Tumor removed from Colon

10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

06/11/03 - Appt at MD - Suggested changing chemo – failing

current treatment

07/25/03 - Began Oxaliplatin/Xeloda Chemo

10/20/03 - Increased Xeloda – Still failing treatment

11/12/03 - Added Celebrex - continued failure

01/15/04 - Switched to FOLFOX4 chemo

02/23/04 - CEA drops 80 points

02/25/04 - First Symptoms of Brain Problem

03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Junction of Left

Frontal and Parietal Lobe

03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

03/15/04 - Last WBR Treatment

03/18/04 – Took last Decadron - extremely fast weaning process

03/22/04 - First Grand Mal Seizure (5 day hospital stay)

03/22/04 - Back on Decadron, added Dilantin & Insulin

04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

04/13/04 – Not metabolizing Dilantin – adding Keppra

04/20/04 - Switched to CPT-11 with Erbitux

05/04/04 – Beginning weaning from Dilantin, will stay on Keppra

> Dear Sharon and all--

> First, big hugs to you Sharon; let's trust that things will be all

> right for your husband.

> For those of you who shared good news: a big YAY!

> For those of you who share from the 'battlefield': Thank you for

your

> individual stories of strength in the face of adversity.

> My own battlefield peaceful right now--am to start on CPT-11 and

> Avastin but missed one week for low counts and last week for

diarrhea

> (body decided to give me a little practice with CPT-11). So I

took

> advantage of two 'free' weeks, gardened hard, enjoyed grandkids

and

> time out in the country, hosted a brunch (REAL eggs Benedict). A

CPT-

> 11 question: who had hair loss? And did it stay away (the hair)

until

> the treatment ended?

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