Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Chantelle, your comments are fascinating. I'm so tired (still have here waking at 4:00). Even so, I want to say a few things --- if I'm goofy, well, so are some of you at times! is not as " high functioning " (how I hate that phrase) as you are, but I am convinced that she is usually fully aware of how strangers react to her when it's negative. A non-Perkins' psych once wondered aloud what went through 's mind during encounters and problems she faced in general. When she was young, we had NO guidance on CHARGE, not even deafblindness except what I searched for endlessly. For the most part the professionals were welcoming and helpful. Still, our locals asked if I couldn't " make " quiet when she was gleeful - i.e., couldn't I make her socially acceptable. Reading this list now, I doubt that I'd be faced with such unreality if she were born now. There would be support from early on. We had none, and I'm certain that has scars upon scars because of how weak I was. That said, I am dumbfounded since she's moved back to Springfield. She hugs me many times daily and pats my back! She no longer yells when she visits what we trust will become her own home. I KNOW she has horrendous scars. I KNOW that I caused many of them. I sense, however, that she and I are finally coming to terms with each other with lots of love --- and pats on the back. Sorry. I needed to ramble. This house fiasco is unbelievable. The state will not open an individual house even though K's money could pay for the whole thing. Andy and I are so used to legal battles that we're having to sit on ourselves to just keep quiet and work oh so pleasantly with everyone... Again, sorry, but I needed to write. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Oops, I guess my post should have been sent to Chantelle individually. Chalk the oversight up to nights with never more than 4 hours of sleep. I'm just too darn old for this! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 lol no its ok i like knowing hwo k is going how is the house stuff going anyway martha > > Oops, I guess my post should have been sent to Chantelle individually. > Chalk the oversight up to nights with never more than 4 hours of sleep. > I'm > just too darn old for this! Martha > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 No-- we all benefited from that exchange! Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Re: Being disabled... Oops, I guess my post should have been sent to Chantelle individually. Chalk the oversight up to nights with never more than 4 hours of sleep. I'm just too darn old for this! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 No-- we all benefited from that exchange! Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Re: Being disabled... Oops, I guess my post should have been sent to Chantelle individually. Chalk the oversight up to nights with never more than 4 hours of sleep. I'm just too darn old for this! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 No-- we all benefited from that exchange! Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Re: Being disabled... Oops, I guess my post should have been sent to Chantelle individually. Chalk the oversight up to nights with never more than 4 hours of sleep. I'm just too darn old for this! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Martha- Doesn't it speak volumes about 's understanding of the world that she can express to you her acceptance of all of your parental foibles? I used to worry that I was the one there for all the bad stuff and Aubrie would come to hate me for it. But the opposite is true. She knows that I've been there for her through it all, that I would have spared her any of it if I could, and that I'll always support her through the best and the worst. It's a powerful connection to have with your child -- even greater than " typical " parent-child relations. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Martha- Doesn't it speak volumes about 's understanding of the world that she can express to you her acceptance of all of your parental foibles? I used to worry that I was the one there for all the bad stuff and Aubrie would come to hate me for it. But the opposite is true. She knows that I've been there for her through it all, that I would have spared her any of it if I could, and that I'll always support her through the best and the worst. It's a powerful connection to have with your child -- even greater than " typical " parent-child relations. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Martha- Doesn't it speak volumes about 's understanding of the world that she can express to you her acceptance of all of your parental foibles? I used to worry that I was the one there for all the bad stuff and Aubrie would come to hate me for it. But the opposite is true. She knows that I've been there for her through it all, that I would have spared her any of it if I could, and that I'll always support her through the best and the worst. It's a powerful connection to have with your child -- even greater than " typical " parent-child relations. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Thankyou, you gave me a perfect topic for my essay for my class that im finishing atm. I just thought i should thank you cause id be stuck writing why Hamilton downtown should be a bus only area. Chantelle Quote Link to comment Share on other sites More sharing options...
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