Re: Kinda numb, just need your ears for a couple minuts...

[Guest guest]

Chantelle,

It must be so hard to feel so helpless when people just keep shuffling you

around like you're a piece of meat. At least you got some appointments and

a prescription that might help you in the meantime. It must be so hard to

have expectations (like that you're going to get help and things will get

better, etc) and then be disappointed and learn that you have to go tell

ANOTHER bunch of people all the same stuff you had to spill out to the last

group of people.

I know it's hard because you have had a difficult day to keep trying to

think positive but at least the funding went through for you and you did get

somewhere today with the appointments, etc. Keep us posted darling and

don't give up.

Sending big hugs,

--

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

[Guest guest]

Chantelle,

It must be so hard to feel so helpless when people just keep shuffling you

around like you're a piece of meat. At least you got some appointments and

a prescription that might help you in the meantime. It must be so hard to

have expectations (like that you're going to get help and things will get

better, etc) and then be disappointed and learn that you have to go tell

ANOTHER bunch of people all the same stuff you had to spill out to the last

group of people.

I know it's hard because you have had a difficult day to keep trying to

think positive but at least the funding went through for you and you did get

somewhere today with the appointments, etc. Keep us posted darling and

don't give up.

Sending big hugs,

--

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

[Guest guest]

Chantelle,

It must be so hard to feel so helpless when people just keep shuffling you

around like you're a piece of meat. At least you got some appointments and

a prescription that might help you in the meantime. It must be so hard to

have expectations (like that you're going to get help and things will get

better, etc) and then be disappointed and learn that you have to go tell

ANOTHER bunch of people all the same stuff you had to spill out to the last

group of people.

I know it's hard because you have had a difficult day to keep trying to

think positive but at least the funding went through for you and you did get

somewhere today with the appointments, etc. Keep us posted darling and

don't give up.

Sending big hugs,

--

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

[Guest guest]

Chantelle - I hope it gets easier for you. What a painful process.

Lori Myers

's mom in Dallas Texas

Kinda numb, just need your ears for a couple minuts...

I guess I will start with some positive news. Ive been dx with post

tramatic stress dissorder, borderline personality dissorder and ocd.

I am going to get a neurological study done (hopefully all the

proper ways of testing for sezures) and im going to have a sleep

study done. They also want to put me on Selexa. I never heard of

that or do I know what it is.

Bad news, the place i was refered to was just a place like community

care where they refere patients to other people but dont actualy

have any programs to treat me. Sigh, im feeling so numb. I told them

everything. I mean everything. Just for them to tell me that they

are just a refuring place. They dont have anything to help me.

Im tired of being shuffled from one person to another. I carry my

medical stuff in my backpack like its my life. Expose myself then

get sent to the next person.

The people who want to help me are powerless and cant do anything.

The people who should be helping just dump be on the next person.

Then at work my coworker decided today we are going to deal with the

issue with her and me. After all the stuff i had to do today i just

couldnt deal with it. I was standing by the road waiting for the bus

really wanting to end it all. I havnt been able to stop crying for

the last 2 hours. I dont know what to do any more.

Chantelle

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

Chantelle - I hope it gets easier for you. What a painful process.

Lori Myers

's mom in Dallas Texas

Kinda numb, just need your ears for a couple minuts...

I guess I will start with some positive news. Ive been dx with post

tramatic stress dissorder, borderline personality dissorder and ocd.

I am going to get a neurological study done (hopefully all the

proper ways of testing for sezures) and im going to have a sleep

study done. They also want to put me on Selexa. I never heard of

that or do I know what it is.

Bad news, the place i was refered to was just a place like community

care where they refere patients to other people but dont actualy

have any programs to treat me. Sigh, im feeling so numb. I told them

everything. I mean everything. Just for them to tell me that they

are just a refuring place. They dont have anything to help me.

Im tired of being shuffled from one person to another. I carry my

medical stuff in my backpack like its my life. Expose myself then

get sent to the next person.

The people who want to help me are powerless and cant do anything.

The people who should be helping just dump be on the next person.

Then at work my coworker decided today we are going to deal with the

issue with her and me. After all the stuff i had to do today i just

couldnt deal with it. I was standing by the road waiting for the bus

really wanting to end it all. I havnt been able to stop crying for

the last 2 hours. I dont know what to do any more.

Chantelle

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

Chantelle - I hope it gets easier for you. What a painful process.

Lori Myers

's mom in Dallas Texas

Kinda numb, just need your ears for a couple minuts...

I guess I will start with some positive news. Ive been dx with post

tramatic stress dissorder, borderline personality dissorder and ocd.

I am going to get a neurological study done (hopefully all the

proper ways of testing for sezures) and im going to have a sleep

study done. They also want to put me on Selexa. I never heard of

that or do I know what it is.

Bad news, the place i was refered to was just a place like community

care where they refere patients to other people but dont actualy

have any programs to treat me. Sigh, im feeling so numb. I told them

everything. I mean everything. Just for them to tell me that they

are just a refuring place. They dont have anything to help me.

Im tired of being shuffled from one person to another. I carry my

medical stuff in my backpack like its my life. Expose myself then

get sent to the next person.

The people who want to help me are powerless and cant do anything.

The people who should be helping just dump be on the next person.

Then at work my coworker decided today we are going to deal with the

issue with her and me. After all the stuff i had to do today i just

couldnt deal with it. I was standing by the road waiting for the bus

really wanting to end it all. I havnt been able to stop crying for

the last 2 hours. I dont know what to do any more.

Chantelle

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

Chantelle,

I just don't know what exactly to say. You must know by now that we're

all here for you and admire you endlessly. I guess that doesn't help much

right now. I hate that you have such big problems and seem to feel so

alone. I've felt like that, too, and I don't have CHARGE. I don't know how

we get through these times, but we do; we must. My father was very ill

with high blood pressure and heart problems most of his life. One line he

used with me, even when I was very, very young, was that we didn't know if

the people in heaven had good wine and fine cheese. I know how silly

that might sound, but it's pulled me through over and over again. Here,

despite the awful problems that crop up, we can still know that there will

be some fine things. It's the best damn advice I ever received.

With much warmth and caring sent your way --- Martha

[Guest guest]

Chantelle,

I just don't know what exactly to say. You must know by now that we're

all here for you and admire you endlessly. I guess that doesn't help much

right now. I hate that you have such big problems and seem to feel so

alone. I've felt like that, too, and I don't have CHARGE. I don't know how

we get through these times, but we do; we must. My father was very ill

with high blood pressure and heart problems most of his life. One line he

used with me, even when I was very, very young, was that we didn't know if

the people in heaven had good wine and fine cheese. I know how silly

that might sound, but it's pulled me through over and over again. Here,

despite the awful problems that crop up, we can still know that there will

be some fine things. It's the best damn advice I ever received.

With much warmth and caring sent your way --- Martha

[Guest guest]

Chantelle,

I just don't know what exactly to say. You must know by now that we're

all here for you and admire you endlessly. I guess that doesn't help much

right now. I hate that you have such big problems and seem to feel so

alone. I've felt like that, too, and I don't have CHARGE. I don't know how

we get through these times, but we do; we must. My father was very ill

with high blood pressure and heart problems most of his life. One line he

used with me, even when I was very, very young, was that we didn't know if

the people in heaven had good wine and fine cheese. I know how silly

that might sound, but it's pulled me through over and over again. Here,

despite the awful problems that crop up, we can still know that there will

be some fine things. It's the best damn advice I ever received.

With much warmth and caring sent your way --- Martha

[Guest guest]

lol they have god comunion wine dont they LOL thats another story been to to

many funeral or wddings heeheh well at least uknow wat it is xxxxxxxx

>

> Chantelle,

> I just don't know what exactly to say. You must know by now that we're

> all here for you and admire you endlessly. I guess that doesn't help much

> right now. I hate that you have such big problems and seem to feel so

> alone. I've felt like that, too, and I don't have CHARGE. I don't know

> how

> we get through these times, but we do; we must. My father was very ill

> with high blood pressure and heart problems most of his life. One line he

> used with me, even when I was very, very young, was that we didn't know if

> the people in heaven had good wine and fine cheese. I know how silly

> that might sound, but it's pulled me through over and over again. Here,

> despite the awful problems that crop up, we can still know that there will

> be some fine things. It's the best damn advice I ever received.

> With much warmth and caring sent your way --- Martha

>

>

>

>

[Guest guest]

In a message dated 3/21/2006 9:15:58 P.M. Eastern Standard Time,

Peppermint.Chey@... writes:

The people who want to help me are powerless and cant do anything.

The people who should be helping just dump be on the next person.

Chantelle,

I also share your frustration with the " system " . Sometimes

they talk the part but all the red tape and run around you get results in

nothing at the end. It is sad but causes apathy as a result. And we as families

are caught in the middle. I do feel for you.

[Guest guest]

In a message dated 3/21/2006 9:15:58 P.M. Eastern Standard Time,

Peppermint.Chey@... writes:

The people who want to help me are powerless and cant do anything.

The people who should be helping just dump be on the next person.

Chantelle,

I also share your frustration with the " system " . Sometimes

they talk the part but all the red tape and run around you get results in

nothing at the end. It is sad but causes apathy as a result. And we as families

are caught in the middle. I do feel for you.

[Guest guest]

In a message dated 3/21/2006 9:15:58 P.M. Eastern Standard Time,

Peppermint.Chey@... writes:

The people who want to help me are powerless and cant do anything.

The people who should be helping just dump be on the next person.

Chantelle,

I also share your frustration with the " system " . Sometimes

they talk the part but all the red tape and run around you get results in

nothing at the end. It is sad but causes apathy as a result. And we as families

are caught in the middle. I do feel for you.

[Guest guest]

oh hun, i understand what a shock that must be, im here if you want to talk

you know that (((BIG HUGS)))

>

> lol they have god comunion wine dont they LOL thats another story been to

> to

> many funeral or wddings heeheh well at least uknow wat it is xxxxxxxx

>

>

> >

> > Chantelle,

> > I just don't know what exactly to say. You must know by now that

> we're

> > all here for you and admire you endlessly. I guess that doesn't help

> much

> > right now. I hate that you have such big problems and seem to feel so

> > alone. I've felt like that, too, and I don't have CHARGE. I don't know

> > how

> > we get through these times, but we do; we must. My father was very ill

> > with high blood pressure and heart problems most of his life. One line

> he

> > used with me, even when I was very, very young, was that we didn't know

> if

> > the people in heaven had good wine and fine cheese. I know how silly

> > that might sound, but it's pulled me through over and over again. Here,

> > despite the awful problems that crop up, we can still know that there

> will

> > be some fine things. It's the best damn advice I ever received.

> > With much warmth and caring sent your way --- Martha

> >

> >

> >

> >

[Guest guest]

Chantelle,

I am sorry this is so rough. To clarify the people there were able to

put " labels " on your symptoms and to prescribe the antidepressant.

Now are they referring you to a counselor - is that the part they

cannot help with???? Did you share with the doctors that you have

times when you just want to end it?

Please keep us posted on how you feel on the celexa. I hope it helps

while these other tests are run.

Hugs to you as you go through so much.

Kim

[Guest guest]

Chantelle,

I am sorry this is so rough. To clarify the people there were able to

put " labels " on your symptoms and to prescribe the antidepressant.

Now are they referring you to a counselor - is that the part they

cannot help with???? Did you share with the doctors that you have

times when you just want to end it?

Please keep us posted on how you feel on the celexa. I hope it helps

while these other tests are run.

Hugs to you as you go through so much.

Kim

[Guest guest]

Chantelle,

I am sorry this is so rough. To clarify the people there were able to

put " labels " on your symptoms and to prescribe the antidepressant.

Now are they referring you to a counselor - is that the part they

cannot help with???? Did you share with the doctors that you have

times when you just want to end it?

Please keep us posted on how you feel on the celexa. I hope it helps

while these other tests are run.

Hugs to you as you go through so much.

Kim

[Guest guest]

Chantelle,

Celexa is an anti- depressant. I was on it for a little while about a year

after my son was born. It took about 2-3 weeks for me to actually feel better

but it did really help me. I had drastic mood swings and the doctor felt I had

a chamical imbalance after the birth of my son the year before. It helped to

stablilize my moods and allow me to think a bit more rationally. It was not

long term and I am not taking it now(although some days I wonder why!!).

I feel for you and your frustrations. It must feel helpless but I also admire

your strength. This is not said lightly. Your ability to perservere will help

you through this rough time. I just wish you had some answers and support.

Colleen

Ardsley, PA, mom to , 8, CHARGE, Sam, 4

[Guest guest]

Chantelle,

Celexa is an anti- depressant. I was on it for a little while about a year

after my son was born. It took about 2-3 weeks for me to actually feel better

but it did really help me. I had drastic mood swings and the doctor felt I had

a chamical imbalance after the birth of my son the year before. It helped to

stablilize my moods and allow me to think a bit more rationally. It was not

long term and I am not taking it now(although some days I wonder why!!).

I feel for you and your frustrations. It must feel helpless but I also admire

your strength. This is not said lightly. Your ability to perservere will help

you through this rough time. I just wish you had some answers and support.

Colleen

Ardsley, PA, mom to , 8, CHARGE, Sam, 4

[Guest guest]

Chantelle,

" Just hold on " ! Sometimes that's all we can do. Try to take things one day

at a time and give yourself room to do things that you enjoy. You are such

an inspiration to all of us. I deal with depression on some level and I know

it can be overwhelming, but there will be better days. Alot of times just

reading what everyone here is going through shakes me out of it. I truly

hope you find a little peace.

Lots of love,

Jeanie & MacKenzie

[Guest guest]

Chantelle,

" Just hold on " ! Sometimes that's all we can do. Try to take things one day

at a time and give yourself room to do things that you enjoy. You are such

an inspiration to all of us. I deal with depression on some level and I know

it can be overwhelming, but there will be better days. Alot of times just

reading what everyone here is going through shakes me out of it. I truly

hope you find a little peace.

Lots of love,

Jeanie & MacKenzie

[Guest guest]

Chantelle, I'm so sorry that you had such a rough day. I know that it

is common for places to refer to the next no matter who you are, so

don't feel isolated in this situation--it happens to all of us. I

will tell you that I was put on Celexa--I believe that is what has

been recommended to you. I was on Zoloft before that, because I have

a lot of anxiety and a dedency toward depression. Zoloft worked for

me, but it also made me really dizzy if I deviated from it at all.

The Celexa seems to work just as well--and really fast (they say it

takes a month, but I felt better in just a couple of days). I believe

you can take it as needed rather than every day because some people

take it for severe forms of PMS and only take it prior to their cycle

starting. When I don't take it for a couple of days, I realize I

haven't taken it becuase my mood changes, but I don't feel dizzy or

ill at all. Good luck to you!

B.

>

> I guess I will start with some positive news. Ive been dx with post

> tramatic stress dissorder, borderline personality dissorder and ocd.

> I am going to get a neurological study done (hopefully all the

> proper ways of testing for sezures) and im going to have a sleep

> study done. They also want to put me on Selexa. I never heard of

> that or do I know what it is.

>

> Bad news, the place i was refered to was just a place like community

> care where they refere patients to other people but dont actualy

> have any programs to treat me. Sigh, im feeling so numb. I told them

> everything. I mean everything. Just for them to tell me that they

> are just a refuring place. They dont have anything to help me.

>

> Im tired of being shuffled from one person to another. I carry my

> medical stuff in my backpack like its my life. Expose myself then

> get sent to the next person.

>

> The people who want to help me are powerless and cant do anything.

> The people who should be helping just dump be on the next person.

>

> Then at work my coworker decided today we are going to deal with the

> issue with her and me. After all the stuff i had to do today i just

> couldnt deal with it. I was standing by the road waiting for the bus

> really wanting to end it all. I havnt been able to stop crying for

> the last 2 hours. I dont know what to do any more.

>

> Chantelle

>

[Guest guest]

Chantelle, I'm so sorry that you had such a rough day. I know that it

is common for places to refer to the next no matter who you are, so

don't feel isolated in this situation--it happens to all of us. I

will tell you that I was put on Celexa--I believe that is what has

been recommended to you. I was on Zoloft before that, because I have

a lot of anxiety and a dedency toward depression. Zoloft worked for

me, but it also made me really dizzy if I deviated from it at all.

The Celexa seems to work just as well--and really fast (they say it

takes a month, but I felt better in just a couple of days). I believe

you can take it as needed rather than every day because some people

take it for severe forms of PMS and only take it prior to their cycle

starting. When I don't take it for a couple of days, I realize I

haven't taken it becuase my mood changes, but I don't feel dizzy or

ill at all. Good luck to you!

B.

>

> I guess I will start with some positive news. Ive been dx with post

> tramatic stress dissorder, borderline personality dissorder and ocd.

> I am going to get a neurological study done (hopefully all the

> proper ways of testing for sezures) and im going to have a sleep

> study done. They also want to put me on Selexa. I never heard of

> that or do I know what it is.

>

> Bad news, the place i was refered to was just a place like community

> care where they refere patients to other people but dont actualy

> have any programs to treat me. Sigh, im feeling so numb. I told them

> everything. I mean everything. Just for them to tell me that they

> are just a refuring place. They dont have anything to help me.

>

> Im tired of being shuffled from one person to another. I carry my

> medical stuff in my backpack like its my life. Expose myself then

> get sent to the next person.

>

> The people who want to help me are powerless and cant do anything.

> The people who should be helping just dump be on the next person.

>

> Then at work my coworker decided today we are going to deal with the

> issue with her and me. After all the stuff i had to do today i just

> couldnt deal with it. I was standing by the road waiting for the bus

> really wanting to end it all. I havnt been able to stop crying for

> the last 2 hours. I dont know what to do any more.

>

> Chantelle

>