ENT appt

[Guest guest]

Ok we saw the ENT. He basically agreed that should have a auditory trainer

or FM in the classroom and that he should be in a classroom with total

communication but otherwise normally developing children. In other words if it

is HI class or not it doesn't really matter as long as the only issue the

children have is speech and language and they use total communication. I

thought fair enough that is kind of what I was thinking too. He is going to

write up his recomendations. He wasn't a whole lot of help as far as testing or

aids goes and he didn't say anything about being able to see him in his office

to get the FM for personal use. He defered us to audiology as far as the

hearing aid goes. We see them April 7, but we have already seen those audi's

and one insisted he was fine and that the ABR didn't matter and the other told

us if they amplified the high frequencies the low frequencies would be over

amplified. So obviously she doesn't work with programable hearing aids or

thought it was useless and didn't want to bother. I am really frustrated but at

least one part is over and that is we have the recomendation from the doctor

that he needs an FM and a HI class.

[Guest guest]

,

I'm glad that you have a doctor that is willing to help out. Now that he is

writing for to be in a class with typically developing children, do you

know where he will go? Will it be at the same school? How soon can you get him

moved to the new class. Are you going to have to do an new IEP first? I hope

the school will help things move smoothly and they won't drag their feet about

the changes. Let us know what happens. Take care and God Bless.

Natasha~Mommy to~

(8/25/97) & *Sierra (11/28/00)

*Multiple Craniosynostosis, Crouzon's Syndrome,

Asthma, Trach, Tracheamalacia, Subglottic Stenosis,

Chonal Stenosis, FTT, GERD, G-tube & Nissan,

Profound hearing loss. Sierra's story:

www.cappskids.org/CAPPSCranioKidSierra.htm

ENT appt

Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with total

communication but otherwise normally developing children. In other words if it

is HI class or not it doesn't really matter as long as the only issue the

children have is speech and language and they use total communication. I

thought fair enough that is kind of what I was thinking too. He is going to

write up his recomendations. He wasn't a whole lot of help as far as testing or

aids goes and he didn't say anything about being able to see him in his office

to get the FM for personal use. He defered us to audiology as far as the

hearing aid goes. We see them April 7, but we have already seen those audi's

and one insisted he was fine and that the ABR didn't matter and the other told

us if they amplified the high frequencies the low frequencies would be over

amplified. So obviously she doesn't work with programable hearing aids or

thought it was useless and didn't want to bother. I am really frustrated but at

least one part is over and that is we have the recomendation from the doctor

that he needs an FM and a HI class.

[Guest guest]

,

I'm glad that you have a doctor that is willing to help out. Now that he is

writing for to be in a class with typically developing children, do you

know where he will go? Will it be at the same school? How soon can you get him

moved to the new class. Are you going to have to do an new IEP first? I hope

the school will help things move smoothly and they won't drag their feet about

the changes. Let us know what happens. Take care and God Bless.

Natasha~Mommy to~

(8/25/97) & *Sierra (11/28/00)

*Multiple Craniosynostosis, Crouzon's Syndrome,

Asthma, Trach, Tracheamalacia, Subglottic Stenosis,

Chonal Stenosis, FTT, GERD, G-tube & Nissan,

Profound hearing loss. Sierra's story:

www.cappskids.org/CAPPSCranioKidSierra.htm

ENT appt

Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with total

communication but otherwise normally developing children. In other words if it

is HI class or not it doesn't really matter as long as the only issue the

children have is speech and language and they use total communication. I

thought fair enough that is kind of what I was thinking too. He is going to

write up his recomendations. He wasn't a whole lot of help as far as testing or

aids goes and he didn't say anything about being able to see him in his office

to get the FM for personal use. He defered us to audiology as far as the

hearing aid goes. We see them April 7, but we have already seen those audi's

and one insisted he was fine and that the ABR didn't matter and the other told

us if they amplified the high frequencies the low frequencies would be over

amplified. So obviously she doesn't work with programable hearing aids or

thought it was useless and didn't want to bother. I am really frustrated but at

least one part is over and that is we have the recomendation from the doctor

that he needs an FM and a HI class.

[Guest guest]

,

I'm glad that you have a doctor that is willing to help out. Now that he is

writing for to be in a class with typically developing children, do you

know where he will go? Will it be at the same school? How soon can you get him

moved to the new class. Are you going to have to do an new IEP first? I hope

the school will help things move smoothly and they won't drag their feet about

the changes. Let us know what happens. Take care and God Bless.

Natasha~Mommy to~

(8/25/97) & *Sierra (11/28/00)

*Multiple Craniosynostosis, Crouzon's Syndrome,

Asthma, Trach, Tracheamalacia, Subglottic Stenosis,

Chonal Stenosis, FTT, GERD, G-tube & Nissan,

Profound hearing loss. Sierra's story:

www.cappskids.org/CAPPSCranioKidSierra.htm

ENT appt

Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with total

communication but otherwise normally developing children. In other words if it

is HI class or not it doesn't really matter as long as the only issue the

children have is speech and language and they use total communication. I

thought fair enough that is kind of what I was thinking too. He is going to

write up his recomendations. He wasn't a whole lot of help as far as testing or

aids goes and he didn't say anything about being able to see him in his office

to get the FM for personal use. He defered us to audiology as far as the

hearing aid goes. We see them April 7, but we have already seen those audi's

and one insisted he was fine and that the ABR didn't matter and the other told

us if they amplified the high frequencies the low frequencies would be over

amplified. So obviously she doesn't work with programable hearing aids or

thought it was useless and didn't want to bother. I am really frustrated but at

least one part is over and that is we have the recomendation from the doctor

that he needs an FM and a HI class.

[Guest guest]

Your audiologist is correct about the fact that amplifying the high will

overamplify the low. Even with programmables. Programmables don't segment

the sound as discretely as you think they can. They don't work like the

equalizers that we have on our stereo system where you can tune each

frequency independently...Further, to amplify these high frequencies to make

them audible is close to impossible. My husband has a sound generator for

those frequencies. He could hear none of them whereas I could...they're

about the sound of a dog whistle. A person doesn't need hearing above 4,000

hz to hear speech well. So, if you keep repeating the fact that you need to

focus on anything above 4,000 hz, you're going to turn your audiologist off

as he knows there's nothing he can do and that it's not a problem. What did

the ABR show again?

ENT appt

>

>

> Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with

total communication but otherwise normally developing children. In other

words if it is HI class or not it doesn't really matter as long as the only

issue the children have is speech and language and they use total

communication. I thought fair enough that is kind of what I was thinking

too. He is going to write up his recomendations. He wasn't a whole lot of

help as far as testing or aids goes and he didn't say anything about being

able to see him in his office to get the FM for personal use. He defered us

to audiology as far as the hearing aid goes. We see them April 7, but we

have already seen those audi's and one insisted he was fine and that the ABR

didn't matter and the other told us if they amplified the high frequencies

the low frequencies would be over amplified. So obviously she doesn't work

with programable hearing aids or thought it was useless and didn't want to

bother. I am really frustrated but at least one part is over and that is we

have the recomendation from the doctor that he needs an FM and a HI class.

>

>

>

[Guest guest]

Your audiologist is correct about the fact that amplifying the high will

overamplify the low. Even with programmables. Programmables don't segment

the sound as discretely as you think they can. They don't work like the

equalizers that we have on our stereo system where you can tune each

frequency independently...Further, to amplify these high frequencies to make

them audible is close to impossible. My husband has a sound generator for

those frequencies. He could hear none of them whereas I could...they're

about the sound of a dog whistle. A person doesn't need hearing above 4,000

hz to hear speech well. So, if you keep repeating the fact that you need to

focus on anything above 4,000 hz, you're going to turn your audiologist off

as he knows there's nothing he can do and that it's not a problem. What did

the ABR show again?

ENT appt

>

>

> Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with

total communication but otherwise normally developing children. In other

words if it is HI class or not it doesn't really matter as long as the only

issue the children have is speech and language and they use total

communication. I thought fair enough that is kind of what I was thinking

too. He is going to write up his recomendations. He wasn't a whole lot of

help as far as testing or aids goes and he didn't say anything about being

able to see him in his office to get the FM for personal use. He defered us

to audiology as far as the hearing aid goes. We see them April 7, but we

have already seen those audi's and one insisted he was fine and that the ABR

didn't matter and the other told us if they amplified the high frequencies

the low frequencies would be over amplified. So obviously she doesn't work

with programable hearing aids or thought it was useless and didn't want to

bother. I am really frustrated but at least one part is over and that is we

have the recomendation from the doctor that he needs an FM and a HI class.

>

>

>

[Guest guest]

Your audiologist is correct about the fact that amplifying the high will

overamplify the low. Even with programmables. Programmables don't segment

the sound as discretely as you think they can. They don't work like the

equalizers that we have on our stereo system where you can tune each

frequency independently...Further, to amplify these high frequencies to make

them audible is close to impossible. My husband has a sound generator for

those frequencies. He could hear none of them whereas I could...they're

about the sound of a dog whistle. A person doesn't need hearing above 4,000

hz to hear speech well. So, if you keep repeating the fact that you need to

focus on anything above 4,000 hz, you're going to turn your audiologist off

as he knows there's nothing he can do and that it's not a problem. What did

the ABR show again?

ENT appt

>

>

> Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with

total communication but otherwise normally developing children. In other

words if it is HI class or not it doesn't really matter as long as the only

issue the children have is speech and language and they use total

communication. I thought fair enough that is kind of what I was thinking

too. He is going to write up his recomendations. He wasn't a whole lot of

help as far as testing or aids goes and he didn't say anything about being

able to see him in his office to get the FM for personal use. He defered us

to audiology as far as the hearing aid goes. We see them April 7, but we

have already seen those audi's and one insisted he was fine and that the ABR

didn't matter and the other told us if they amplified the high frequencies

the low frequencies would be over amplified. So obviously she doesn't work

with programable hearing aids or thought it was useless and didn't want to

bother. I am really frustrated but at least one part is over and that is we

have the recomendation from the doctor that he needs an FM and a HI class.

>

>

>

[Guest guest]

Natasha,

I have planned for a while now that we have the eval from the OT saying he is in

the 42% (it might have been 46% not sure but it was over 40%) for his age group,

I am going to call the school liason (sp?) and talk to him again and we are

going to plan a time when we can do an IEP meeting. We are probably not going

to be successful in switching classes this year unless this class or another one

does summer school which would be ideal for , he really needs to get used to

a routine. Anyway we are going to wait until we get the note from the doctor

then call an IEP meeting. I am hoping that a note from the Dr. will over ride

what their audi says (she is hard headed and stubborn) and they will provide us

with the necessary services. If not I am going to make them give a darn good

reason for not. I also am going to make sure that we don't sign the IEP until

they agree to this. No more saying sign and then talk to the audi about the FM

system. Every time I ask about it they tell me to talk to their audi. Anyone

else have experience with this? What I don't understand is that they use FM's

for children who have CAPD and autism, and other issues where attention to the

teacher is difficult. So why does the audi get to have the final word? Even so

why don't they have the audi at the meeting? I will talk to the school liason

about this before our appointment.

ENT appt

Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with total

communication but otherwise normally developing children. In other words if it

is HI class or not it doesn't really matter as long as the only issue the

children have is speech and language and they use total communication. I

thought fair enough that is kind of what I was thinking too. He is going to

write up his recomendations. He wasn't a whole lot of help as far as testing or

aids goes and he didn't say anything about being able to see him in his office

to get the FM for personal use. He defered us to audiology as far as the

hearing aid goes. We see them April 7, but we have already seen those audi's

and one insisted he was fine and that the ABR didn't matter and the other told

us if they amplified the high frequencies the low frequencies would be over

amplified. So obviously she doesn't work with programable hearing aids or

thought it was useless and didn't want to bother. I am really frustrated but at

least one part is over and that is we have the recomendation from the doctor

that he needs an FM and a HI class.

[Guest guest]

Natasha,

I have planned for a while now that we have the eval from the OT saying he is in

the 42% (it might have been 46% not sure but it was over 40%) for his age group,

I am going to call the school liason (sp?) and talk to him again and we are

going to plan a time when we can do an IEP meeting. We are probably not going

to be successful in switching classes this year unless this class or another one

does summer school which would be ideal for , he really needs to get used to

a routine. Anyway we are going to wait until we get the note from the doctor

then call an IEP meeting. I am hoping that a note from the Dr. will over ride

what their audi says (she is hard headed and stubborn) and they will provide us

with the necessary services. If not I am going to make them give a darn good

reason for not. I also am going to make sure that we don't sign the IEP until

they agree to this. No more saying sign and then talk to the audi about the FM

system. Every time I ask about it they tell me to talk to their audi. Anyone

else have experience with this? What I don't understand is that they use FM's

for children who have CAPD and autism, and other issues where attention to the

teacher is difficult. So why does the audi get to have the final word? Even so

why don't they have the audi at the meeting? I will talk to the school liason

about this before our appointment.

ENT appt

Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with total

communication but otherwise normally developing children. In other words if it

is HI class or not it doesn't really matter as long as the only issue the

children have is speech and language and they use total communication. I

thought fair enough that is kind of what I was thinking too. He is going to

write up his recomendations. He wasn't a whole lot of help as far as testing or

aids goes and he didn't say anything about being able to see him in his office

to get the FM for personal use. He defered us to audiology as far as the

hearing aid goes. We see them April 7, but we have already seen those audi's

and one insisted he was fine and that the ABR didn't matter and the other told

us if they amplified the high frequencies the low frequencies would be over

amplified. So obviously she doesn't work with programable hearing aids or

thought it was useless and didn't want to bother. I am really frustrated but at

least one part is over and that is we have the recomendation from the doctor

that he needs an FM and a HI class.

[Guest guest]

Natasha,

I have planned for a while now that we have the eval from the OT saying he is in

the 42% (it might have been 46% not sure but it was over 40%) for his age group,

I am going to call the school liason (sp?) and talk to him again and we are

going to plan a time when we can do an IEP meeting. We are probably not going

to be successful in switching classes this year unless this class or another one

does summer school which would be ideal for , he really needs to get used to

a routine. Anyway we are going to wait until we get the note from the doctor

then call an IEP meeting. I am hoping that a note from the Dr. will over ride

what their audi says (she is hard headed and stubborn) and they will provide us

with the necessary services. If not I am going to make them give a darn good

reason for not. I also am going to make sure that we don't sign the IEP until

they agree to this. No more saying sign and then talk to the audi about the FM

system. Every time I ask about it they tell me to talk to their audi. Anyone

else have experience with this? What I don't understand is that they use FM's

for children who have CAPD and autism, and other issues where attention to the

teacher is difficult. So why does the audi get to have the final word? Even so

why don't they have the audi at the meeting? I will talk to the school liason

about this before our appointment.

ENT appt

Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with total

communication but otherwise normally developing children. In other words if it

is HI class or not it doesn't really matter as long as the only issue the

children have is speech and language and they use total communication. I

thought fair enough that is kind of what I was thinking too. He is going to

write up his recomendations. He wasn't a whole lot of help as far as testing or

aids goes and he didn't say anything about being able to see him in his office

to get the FM for personal use. He defered us to audiology as far as the

hearing aid goes. We see them April 7, but we have already seen those audi's

and one insisted he was fine and that the ABR didn't matter and the other told

us if they amplified the high frequencies the low frequencies would be over

amplified. So obviously she doesn't work with programable hearing aids or

thought it was useless and didn't want to bother. I am really frustrated but at

least one part is over and that is we have the recomendation from the doctor

that he needs an FM and a HI class.

[Guest guest]

Ok but first of all one of his ears is at 25 dB in the low frequencies the other

is at 20 dB and the high frequencies are at 30 on both sides, so if they

programed them to amplify only the high frequencies it wouldn't be a bad thing

to amiplify the low just a tad bit. Not to mention there are many children who

only have a high frequency loss and they have programable aids even if it does

amplify the low frequencies. I have mentioned numerous times as well that the

only reason I want a higher frequency ABR is because I want to identify a loss

if it is there, not for the purpouse of aids or anything but so that the school

will give him services and take him off this boarderline range where he is at.

If you looked at for one second you would see this child needs some help.

I don't care how mild his loss is, he is trying to hear things by putting his

ear to the sound, so if you tell me he doesn't need aids and that if I keep

persueing them for him the audiologist is going to get sick of me you might be

right with the second part, but take one look at my son and you will know what I

mean. Further more I don't appreciate you continually telling me to give up on

testing they do test up to 8000 HZ it just isn't as common. Also in your other

post which I didn't respond to because I thought it was somewhat rude for

discounting my concerns which I already talked to with people here, who told me

that they have had testing up to 8000 HZ which is where I got the idea. You

insisted that they test at 500, 1000, 2000 and 4000 HZ. Well that's fine but

has only ever been tested at 2000 and 4000 HZ, so that is another reason

why I want them to do it over a range of all speech frequencies. I do realize

most children with a hearing loss over 4000 HZ do well there are children who

have hearing loss at 6000 and 8000 who have significant problems. You can't

take a few children and assume that everyone is going to do as well. I don't

know why has such severe symptoms what I do know is he acts like a Deaf

child and should be treated as such. I am simply trying to identify if there is

a more severe loss somewhere that could explain his actions so that the school

will accept him as a Deaf child. That is all I am trying to do. That is my

main goal. Getting him aids is a secondary goal but he has shown that he would

prefer amplified sound by his actions and I won't settle for they won't do it

because they will over amplify the low.

ENT appt

>

>

> Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with

total communication but otherwise normally developing children. In other

words if it is HI class or not it doesn't really matter as long as the only

issue the children have is speech and language and they use total

communication. I thought fair enough that is kind of what I was thinking

too. He is going to write up his recomendations. He wasn't a whole lot of

help as far as testing or aids goes and he didn't say anything about being

able to see him in his office to get the FM for personal use. He defered us

to audiology as far as the hearing aid goes. We see them April 7, but we

have already seen those audi's and one insisted he was fine and that the ABR

didn't matter and the other told us if they amplified the high frequencies

the low frequencies would be over amplified. So obviously she doesn't work

with programable hearing aids or thought it was useless and didn't want to

bother. I am really frustrated but at least one part is over and that is we

have the recomendation from the doctor that he needs an FM and a HI class.

>

>

>

[Guest guest]

Ok but first of all one of his ears is at 25 dB in the low frequencies the other

is at 20 dB and the high frequencies are at 30 on both sides, so if they

programed them to amplify only the high frequencies it wouldn't be a bad thing

to amiplify the low just a tad bit. Not to mention there are many children who

only have a high frequency loss and they have programable aids even if it does

amplify the low frequencies. I have mentioned numerous times as well that the

only reason I want a higher frequency ABR is because I want to identify a loss

if it is there, not for the purpouse of aids or anything but so that the school

will give him services and take him off this boarderline range where he is at.

If you looked at for one second you would see this child needs some help.

I don't care how mild his loss is, he is trying to hear things by putting his

ear to the sound, so if you tell me he doesn't need aids and that if I keep

persueing them for him the audiologist is going to get sick of me you might be

right with the second part, but take one look at my son and you will know what I

mean. Further more I don't appreciate you continually telling me to give up on

testing they do test up to 8000 HZ it just isn't as common. Also in your other

post which I didn't respond to because I thought it was somewhat rude for

discounting my concerns which I already talked to with people here, who told me

that they have had testing up to 8000 HZ which is where I got the idea. You

insisted that they test at 500, 1000, 2000 and 4000 HZ. Well that's fine but

has only ever been tested at 2000 and 4000 HZ, so that is another reason

why I want them to do it over a range of all speech frequencies. I do realize

most children with a hearing loss over 4000 HZ do well there are children who

have hearing loss at 6000 and 8000 who have significant problems. You can't

take a few children and assume that everyone is going to do as well. I don't

know why has such severe symptoms what I do know is he acts like a Deaf

child and should be treated as such. I am simply trying to identify if there is

a more severe loss somewhere that could explain his actions so that the school

will accept him as a Deaf child. That is all I am trying to do. That is my

main goal. Getting him aids is a secondary goal but he has shown that he would

prefer amplified sound by his actions and I won't settle for they won't do it

because they will over amplify the low.

ENT appt

>

>

> Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with

total communication but otherwise normally developing children. In other

words if it is HI class or not it doesn't really matter as long as the only

issue the children have is speech and language and they use total

communication. I thought fair enough that is kind of what I was thinking

too. He is going to write up his recomendations. He wasn't a whole lot of

help as far as testing or aids goes and he didn't say anything about being

able to see him in his office to get the FM for personal use. He defered us

to audiology as far as the hearing aid goes. We see them April 7, but we

have already seen those audi's and one insisted he was fine and that the ABR

didn't matter and the other told us if they amplified the high frequencies

the low frequencies would be over amplified. So obviously she doesn't work

with programable hearing aids or thought it was useless and didn't want to

bother. I am really frustrated but at least one part is over and that is we

have the recomendation from the doctor that he needs an FM and a HI class.

>

>

>

[Guest guest]

Ok but first of all one of his ears is at 25 dB in the low frequencies the other

is at 20 dB and the high frequencies are at 30 on both sides, so if they

programed them to amplify only the high frequencies it wouldn't be a bad thing

to amiplify the low just a tad bit. Not to mention there are many children who

only have a high frequency loss and they have programable aids even if it does

amplify the low frequencies. I have mentioned numerous times as well that the

only reason I want a higher frequency ABR is because I want to identify a loss

if it is there, not for the purpouse of aids or anything but so that the school

will give him services and take him off this boarderline range where he is at.

If you looked at for one second you would see this child needs some help.

I don't care how mild his loss is, he is trying to hear things by putting his

ear to the sound, so if you tell me he doesn't need aids and that if I keep

persueing them for him the audiologist is going to get sick of me you might be

right with the second part, but take one look at my son and you will know what I

mean. Further more I don't appreciate you continually telling me to give up on

testing they do test up to 8000 HZ it just isn't as common. Also in your other

post which I didn't respond to because I thought it was somewhat rude for

discounting my concerns which I already talked to with people here, who told me

that they have had testing up to 8000 HZ which is where I got the idea. You

insisted that they test at 500, 1000, 2000 and 4000 HZ. Well that's fine but

has only ever been tested at 2000 and 4000 HZ, so that is another reason

why I want them to do it over a range of all speech frequencies. I do realize

most children with a hearing loss over 4000 HZ do well there are children who

have hearing loss at 6000 and 8000 who have significant problems. You can't

take a few children and assume that everyone is going to do as well. I don't

know why has such severe symptoms what I do know is he acts like a Deaf

child and should be treated as such. I am simply trying to identify if there is

a more severe loss somewhere that could explain his actions so that the school

will accept him as a Deaf child. That is all I am trying to do. That is my

main goal. Getting him aids is a secondary goal but he has shown that he would

prefer amplified sound by his actions and I won't settle for they won't do it

because they will over amplify the low.

ENT appt

>

>

> Ok we saw the ENT. He basically agreed that should have a auditory

trainer or FM in the classroom and that he should be in a classroom with

total communication but otherwise normally developing children. In other

words if it is HI class or not it doesn't really matter as long as the only

issue the children have is speech and language and they use total

communication. I thought fair enough that is kind of what I was thinking

too. He is going to write up his recomendations. He wasn't a whole lot of

help as far as testing or aids goes and he didn't say anything about being

able to see him in his office to get the FM for personal use. He defered us

to audiology as far as the hearing aid goes. We see them April 7, but we

have already seen those audi's and one insisted he was fine and that the ABR

didn't matter and the other told us if they amplified the high frequencies

the low frequencies would be over amplified. So obviously she doesn't work

with programable hearing aids or thought it was useless and didn't want to

bother. I am really frustrated but at least one part is over and that is we

have the recomendation from the doctor that he needs an FM and a HI class.

>

>

>

[Guest guest]

I'm sorry if you were offended. That was not my intent. I wouldn't take

the time to post just to hurt someone. I care, but if I am to help you, you

need to see the reality of your situation and how you are going to be

perceived if you go down a certain path. You SHOULD pursue testing. There

is obviously something MAJOR wrong. However, right now, you're flailing

around so desperate to get help, that you're not prioritizing what you need

to focus on which was what I was trying to do. I'm trying to help give you

advice and help direct you down the right path to get help. I agree that

there is something wrong. But you're going off on a tangent that will

result in your real concerns being discounted. Been there, done that. NO

ONE looks at testing in the 6,000 to 8,000 hz range as having an impact for

educational purposes. On the scale of important facts to know, it is a 1.

They will use this as another reason to label you as irrational in a team

meeting if you go off trying to get them to consider this as a significant

educational impact because the audiology profession discounts it. Is this

right...no. However, that's the reality and if you are going to get what

you want, you have to appear knowledgeable and reasonable. While the

information may be beneficial, it will not help you gain anything because

nothing can be done about it and it truly doesn't make a significant

difference in functional ability. You have a lot to focus on and to get

your audie to focus on...the last of which should be the high frequency loss

at 6,000 and 8,000 hz. That is not causing your son to act the way you

describe.

Secondly, I have a 30-40 db loss in the mid frequencies and I can assure you

that it in NO WAY makes it so hard for me to hear the way that you describe

your 's problems. It only gives me a little bit of trouble in

background noise with similar sounding consonants. That tells me that there

is something more than the normal to mild hearing loss you describe. That

is why I think the audiologist keeps pointing to auditory processing

disorder..CAPD/auditory neuropathy. That defines a hearing profile where

the child should be able to hear but can't. It's a very different ball game

and amplification can compound the problem. That is why I asked what the

ABR said as I forgot the details. If his ABR is normal, then he has

functional hearing, but isn't able to process it. Before you amplify, you

need to understand the profile of the loss. My son was able to be amplified

with high frequency loss only when he lost enough low frequency hearing so

that it wouldn't damage that frequency...that started at around 40 db in the

lows. We spent years, even trying to hire engineers to custom make a

hearing aid that would segregate the frequencies properly and allow our son

to hear, so we understand your desperation. However, has what is

considered normal in the lows to very mild loss. An audiologist will not

jeopardize loss of residual hearing by overamplifying lows that will damage

hearing. It is both unethical and malpractice. That is why you are

encountering resistance. You want it because you are hoping it will fix the

problem. Wanting it does not make it feasible. It has to be based upon the

audiogram.

What you need to focus on is finding out exactly what 's hearing loss is

and whether he can use his residual hearing. What does the otoacoustic

emmisions test tell you? What does the ABR tell you. A good audiologist

can test him in a sound field so you won't need an ABR. Force your

audiologist to explain the information that he has and what it tells him

about your son. Force him to explain why your son can't hear if he has

" normal " hearing. If he mentions a processing disorder, ask how to proceed

from there to determine its impact and find out what can be done to

remediate it. Find out if you need to see specialists...etc.

Right now, your priority should be to find out what is going on with his

hearing. Focusing on a hearing aid, fm, placement, therapy, is secondary.

His hearing status will determine what he will need. Without that, you're

running down paths that may get you nowhere instead of trudging along to the

finish line in an organized fashion. Kind of like the tortoise and hare

syndrome. If he has auditory neuropathy, h/a's most likely won't help. If

he has fluctuating hearing loss, you may need multiple hearing assessments.

If your audiologist is blowing you off, you need a new audiologist.

You should come away from your next audiology appt with an answer, or at

least a strategy to get an answer. I'd hold off until you get an answer to

discuss services. Once you have the documented need, then you can get your

son supports to help him succeed. Have you had any neuropsych, educational

assessments to determine his level of functioning? There are children with

language processing problems who can't even understand the concept of

language. They can't learn sign, because they can't comprehend what it is

for. This requires a much higher level of intervention than a child who has

only hearing loss.

There's a saying, " Don't shoot the messenger. " I know you may not like some

or even alot of what I've said, but it is not meant in a malicious way, but

trying to get you to understand what you need to do. I know those feelings

of panic and frustration which is why I understand them in you. I've also

got 10 years on you of dealing with the system and audiology and learning to

accept what can and can not be done. Most importantly, I've learned alot

better on how to prioritize my battles and that accurate information is the

key to getting appropriate supports and I'm trying to share that knowledge

with you. Right now, you don't have the information you need. I'm not sure

if it's the audiologist of if is so complicated. If it's the

audiologist, that can be easily remedied though you may have to fork over a

few hundred dollars. In the scheme of life, a few hundred is nothing. If

is complicated, then it means that you'll have to wait a little longer

to get answers. That's okay, as long as testing is in process and you see

results forthcoming. What I would not allow is to have the audiologist send

you home with an " I don't know " or he's fine. Trust your instinct. You DO

know best that there's a problem. And, once you know what the problem is, I

have confidence that you'll research and figure out what will help him.

But, at this point, you're seeking remedies before you know what you're

really trying to fix.

I have a person who has become my friend who came to me five years ago for

help with her, then two year old, daughter who was diagnosed as autistic.

She was informed that her daughter had normal hearing, etc, but refused to

believe it. After running through four audiologists, numerous psychologists,

ENTs and doctors, it was finally determined that her child has fluctuating

hearing loss and resultant auditory processing disorder. Made all of the

difference in the world. They work very hard to keep the allergies and

sinusitis under control to optimize hearing. They have been able to adapt

the private school accomodations because they know she has weak auditory

skills and they've been able to focus on appropriate speech therapy and

accomodations like an fm system for the classroom. They even have a hearing

aid for down hearing times. Had the mother not been adamant that her

daughter was not autistic, she'd be in an autism program, lost to the world

because she couldn't hear. This mother and I have advocated for 3 other

children in similar positions and, after encouragement from us, the parents

were able to isolate a fluctuating loss that contributed majorly to their

children's problems. Once they addressed this, their children began acting

normally...it wasn't autism, but hearing loss. Some situations are more

complicated than others. Luckily, has you to help figure this out

because I know you wont' stop.

ENT appt

> >

> >

> > Ok we saw the ENT. He basically agreed that should have a

auditory

> trainer or FM in the classroom and that he should be in a classroom with

> total communication but otherwise normally developing children. In

other

> words if it is HI class or not it doesn't really matter as long as the

only

> issue the children have is speech and language and they use total

> communication. I thought fair enough that is kind of what I was

thinking

> too. He is going to write up his recomendations. He wasn't a whole lot

of

> help as far as testing or aids goes and he didn't say anything about

being

> able to see him in his office to get the FM for personal use. He

defered us

> to audiology as far as the hearing aid goes. We see them April 7, but

we

> have already seen those audi's and one insisted he was fine and that the

ABR

> didn't matter and the other told us if they amplified the high

frequencies

> the low frequencies would be over amplified. So obviously she doesn't

work

> with programable hearing aids or thought it was useless and didn't want

to

> bother. I am really frustrated but at least one part is over and that

is we

> have the recomendation from the doctor that he needs an FM and a HI

class.

> >

> >

> >

[Guest guest]

I'm sorry if you were offended. That was not my intent. I wouldn't take

the time to post just to hurt someone. I care, but if I am to help you, you

need to see the reality of your situation and how you are going to be

perceived if you go down a certain path. You SHOULD pursue testing. There

is obviously something MAJOR wrong. However, right now, you're flailing

around so desperate to get help, that you're not prioritizing what you need

to focus on which was what I was trying to do. I'm trying to help give you

advice and help direct you down the right path to get help. I agree that

there is something wrong. But you're going off on a tangent that will

result in your real concerns being discounted. Been there, done that. NO

ONE looks at testing in the 6,000 to 8,000 hz range as having an impact for

educational purposes. On the scale of important facts to know, it is a 1.

They will use this as another reason to label you as irrational in a team

meeting if you go off trying to get them to consider this as a significant

educational impact because the audiology profession discounts it. Is this

right...no. However, that's the reality and if you are going to get what

you want, you have to appear knowledgeable and reasonable. While the

information may be beneficial, it will not help you gain anything because

nothing can be done about it and it truly doesn't make a significant

difference in functional ability. You have a lot to focus on and to get

your audie to focus on...the last of which should be the high frequency loss

at 6,000 and 8,000 hz. That is not causing your son to act the way you

describe.

Secondly, I have a 30-40 db loss in the mid frequencies and I can assure you

that it in NO WAY makes it so hard for me to hear the way that you describe

your 's problems. It only gives me a little bit of trouble in

background noise with similar sounding consonants. That tells me that there

is something more than the normal to mild hearing loss you describe. That

is why I think the audiologist keeps pointing to auditory processing

disorder..CAPD/auditory neuropathy. That defines a hearing profile where

the child should be able to hear but can't. It's a very different ball game

and amplification can compound the problem. That is why I asked what the

ABR said as I forgot the details. If his ABR is normal, then he has

functional hearing, but isn't able to process it. Before you amplify, you

need to understand the profile of the loss. My son was able to be amplified

with high frequency loss only when he lost enough low frequency hearing so

that it wouldn't damage that frequency...that started at around 40 db in the

lows. We spent years, even trying to hire engineers to custom make a

hearing aid that would segregate the frequencies properly and allow our son

to hear, so we understand your desperation. However, has what is

considered normal in the lows to very mild loss. An audiologist will not

jeopardize loss of residual hearing by overamplifying lows that will damage

hearing. It is both unethical and malpractice. That is why you are

encountering resistance. You want it because you are hoping it will fix the

problem. Wanting it does not make it feasible. It has to be based upon the

audiogram.

What you need to focus on is finding out exactly what 's hearing loss is

and whether he can use his residual hearing. What does the otoacoustic

emmisions test tell you? What does the ABR tell you. A good audiologist

can test him in a sound field so you won't need an ABR. Force your

audiologist to explain the information that he has and what it tells him

about your son. Force him to explain why your son can't hear if he has

" normal " hearing. If he mentions a processing disorder, ask how to proceed

from there to determine its impact and find out what can be done to

remediate it. Find out if you need to see specialists...etc.

Right now, your priority should be to find out what is going on with his

hearing. Focusing on a hearing aid, fm, placement, therapy, is secondary.

His hearing status will determine what he will need. Without that, you're

running down paths that may get you nowhere instead of trudging along to the

finish line in an organized fashion. Kind of like the tortoise and hare

syndrome. If he has auditory neuropathy, h/a's most likely won't help. If

he has fluctuating hearing loss, you may need multiple hearing assessments.

If your audiologist is blowing you off, you need a new audiologist.

You should come away from your next audiology appt with an answer, or at

least a strategy to get an answer. I'd hold off until you get an answer to

discuss services. Once you have the documented need, then you can get your

son supports to help him succeed. Have you had any neuropsych, educational

assessments to determine his level of functioning? There are children with

language processing problems who can't even understand the concept of

language. They can't learn sign, because they can't comprehend what it is

for. This requires a much higher level of intervention than a child who has

only hearing loss.

There's a saying, " Don't shoot the messenger. " I know you may not like some

or even alot of what I've said, but it is not meant in a malicious way, but

trying to get you to understand what you need to do. I know those feelings

of panic and frustration which is why I understand them in you. I've also

got 10 years on you of dealing with the system and audiology and learning to

accept what can and can not be done. Most importantly, I've learned alot

better on how to prioritize my battles and that accurate information is the

key to getting appropriate supports and I'm trying to share that knowledge

with you. Right now, you don't have the information you need. I'm not sure

if it's the audiologist of if is so complicated. If it's the

audiologist, that can be easily remedied though you may have to fork over a

few hundred dollars. In the scheme of life, a few hundred is nothing. If

is complicated, then it means that you'll have to wait a little longer

to get answers. That's okay, as long as testing is in process and you see

results forthcoming. What I would not allow is to have the audiologist send

you home with an " I don't know " or he's fine. Trust your instinct. You DO

know best that there's a problem. And, once you know what the problem is, I

have confidence that you'll research and figure out what will help him.

But, at this point, you're seeking remedies before you know what you're

really trying to fix.

I have a person who has become my friend who came to me five years ago for

help with her, then two year old, daughter who was diagnosed as autistic.

She was informed that her daughter had normal hearing, etc, but refused to

believe it. After running through four audiologists, numerous psychologists,

ENTs and doctors, it was finally determined that her child has fluctuating

hearing loss and resultant auditory processing disorder. Made all of the

difference in the world. They work very hard to keep the allergies and

sinusitis under control to optimize hearing. They have been able to adapt

the private school accomodations because they know she has weak auditory

skills and they've been able to focus on appropriate speech therapy and

accomodations like an fm system for the classroom. They even have a hearing

aid for down hearing times. Had the mother not been adamant that her

daughter was not autistic, she'd be in an autism program, lost to the world

because she couldn't hear. This mother and I have advocated for 3 other

children in similar positions and, after encouragement from us, the parents

were able to isolate a fluctuating loss that contributed majorly to their

children's problems. Once they addressed this, their children began acting

normally...it wasn't autism, but hearing loss. Some situations are more

complicated than others. Luckily, has you to help figure this out

because I know you wont' stop.

ENT appt

> >

> >

> > Ok we saw the ENT. He basically agreed that should have a

auditory

> trainer or FM in the classroom and that he should be in a classroom with

> total communication but otherwise normally developing children. In

other

> words if it is HI class or not it doesn't really matter as long as the

only

> issue the children have is speech and language and they use total

> communication. I thought fair enough that is kind of what I was

thinking

> too. He is going to write up his recomendations. He wasn't a whole lot

of

> help as far as testing or aids goes and he didn't say anything about

being

> able to see him in his office to get the FM for personal use. He

defered us

> to audiology as far as the hearing aid goes. We see them April 7, but

we

> have already seen those audi's and one insisted he was fine and that the

ABR

> didn't matter and the other told us if they amplified the high

frequencies

> the low frequencies would be over amplified. So obviously she doesn't

work

> with programable hearing aids or thought it was useless and didn't want

to

> bother. I am really frustrated but at least one part is over and that

is we

> have the recomendation from the doctor that he needs an FM and a HI

class.

> >

> >

> >

[Guest guest]

I'm sorry if you were offended. That was not my intent. I wouldn't take

the time to post just to hurt someone. I care, but if I am to help you, you

need to see the reality of your situation and how you are going to be

perceived if you go down a certain path. You SHOULD pursue testing. There

is obviously something MAJOR wrong. However, right now, you're flailing

around so desperate to get help, that you're not prioritizing what you need

to focus on which was what I was trying to do. I'm trying to help give you

advice and help direct you down the right path to get help. I agree that

there is something wrong. But you're going off on a tangent that will

result in your real concerns being discounted. Been there, done that. NO

ONE looks at testing in the 6,000 to 8,000 hz range as having an impact for

educational purposes. On the scale of important facts to know, it is a 1.

They will use this as another reason to label you as irrational in a team

meeting if you go off trying to get them to consider this as a significant

educational impact because the audiology profession discounts it. Is this

right...no. However, that's the reality and if you are going to get what

you want, you have to appear knowledgeable and reasonable. While the

information may be beneficial, it will not help you gain anything because

nothing can be done about it and it truly doesn't make a significant

difference in functional ability. You have a lot to focus on and to get

your audie to focus on...the last of which should be the high frequency loss

at 6,000 and 8,000 hz. That is not causing your son to act the way you

describe.

Secondly, I have a 30-40 db loss in the mid frequencies and I can assure you

that it in NO WAY makes it so hard for me to hear the way that you describe

your 's problems. It only gives me a little bit of trouble in

background noise with similar sounding consonants. That tells me that there

is something more than the normal to mild hearing loss you describe. That

is why I think the audiologist keeps pointing to auditory processing

disorder..CAPD/auditory neuropathy. That defines a hearing profile where

the child should be able to hear but can't. It's a very different ball game

and amplification can compound the problem. That is why I asked what the

ABR said as I forgot the details. If his ABR is normal, then he has

functional hearing, but isn't able to process it. Before you amplify, you

need to understand the profile of the loss. My son was able to be amplified

with high frequency loss only when he lost enough low frequency hearing so

that it wouldn't damage that frequency...that started at around 40 db in the

lows. We spent years, even trying to hire engineers to custom make a

hearing aid that would segregate the frequencies properly and allow our son

to hear, so we understand your desperation. However, has what is

considered normal in the lows to very mild loss. An audiologist will not

jeopardize loss of residual hearing by overamplifying lows that will damage

hearing. It is both unethical and malpractice. That is why you are

encountering resistance. You want it because you are hoping it will fix the

problem. Wanting it does not make it feasible. It has to be based upon the

audiogram.

What you need to focus on is finding out exactly what 's hearing loss is

and whether he can use his residual hearing. What does the otoacoustic

emmisions test tell you? What does the ABR tell you. A good audiologist

can test him in a sound field so you won't need an ABR. Force your

audiologist to explain the information that he has and what it tells him

about your son. Force him to explain why your son can't hear if he has

" normal " hearing. If he mentions a processing disorder, ask how to proceed

from there to determine its impact and find out what can be done to

remediate it. Find out if you need to see specialists...etc.

Right now, your priority should be to find out what is going on with his

hearing. Focusing on a hearing aid, fm, placement, therapy, is secondary.

His hearing status will determine what he will need. Without that, you're

running down paths that may get you nowhere instead of trudging along to the

finish line in an organized fashion. Kind of like the tortoise and hare

syndrome. If he has auditory neuropathy, h/a's most likely won't help. If

he has fluctuating hearing loss, you may need multiple hearing assessments.

If your audiologist is blowing you off, you need a new audiologist.

You should come away from your next audiology appt with an answer, or at

least a strategy to get an answer. I'd hold off until you get an answer to

discuss services. Once you have the documented need, then you can get your

son supports to help him succeed. Have you had any neuropsych, educational

assessments to determine his level of functioning? There are children with

language processing problems who can't even understand the concept of

language. They can't learn sign, because they can't comprehend what it is

for. This requires a much higher level of intervention than a child who has

only hearing loss.

There's a saying, " Don't shoot the messenger. " I know you may not like some

or even alot of what I've said, but it is not meant in a malicious way, but

trying to get you to understand what you need to do. I know those feelings

of panic and frustration which is why I understand them in you. I've also

got 10 years on you of dealing with the system and audiology and learning to

accept what can and can not be done. Most importantly, I've learned alot

better on how to prioritize my battles and that accurate information is the

key to getting appropriate supports and I'm trying to share that knowledge

with you. Right now, you don't have the information you need. I'm not sure

if it's the audiologist of if is so complicated. If it's the

audiologist, that can be easily remedied though you may have to fork over a

few hundred dollars. In the scheme of life, a few hundred is nothing. If

is complicated, then it means that you'll have to wait a little longer

to get answers. That's okay, as long as testing is in process and you see

results forthcoming. What I would not allow is to have the audiologist send

you home with an " I don't know " or he's fine. Trust your instinct. You DO

know best that there's a problem. And, once you know what the problem is, I

have confidence that you'll research and figure out what will help him.

But, at this point, you're seeking remedies before you know what you're

really trying to fix.

I have a person who has become my friend who came to me five years ago for

help with her, then two year old, daughter who was diagnosed as autistic.

She was informed that her daughter had normal hearing, etc, but refused to

believe it. After running through four audiologists, numerous psychologists,

ENTs and doctors, it was finally determined that her child has fluctuating

hearing loss and resultant auditory processing disorder. Made all of the

difference in the world. They work very hard to keep the allergies and

sinusitis under control to optimize hearing. They have been able to adapt

the private school accomodations because they know she has weak auditory

skills and they've been able to focus on appropriate speech therapy and

accomodations like an fm system for the classroom. They even have a hearing

aid for down hearing times. Had the mother not been adamant that her

daughter was not autistic, she'd be in an autism program, lost to the world

because she couldn't hear. This mother and I have advocated for 3 other

children in similar positions and, after encouragement from us, the parents

were able to isolate a fluctuating loss that contributed majorly to their

children's problems. Once they addressed this, their children began acting

normally...it wasn't autism, but hearing loss. Some situations are more

complicated than others. Luckily, has you to help figure this out

because I know you wont' stop.

ENT appt

> >

> >

> > Ok we saw the ENT. He basically agreed that should have a

auditory

> trainer or FM in the classroom and that he should be in a classroom with

> total communication but otherwise normally developing children. In

other

> words if it is HI class or not it doesn't really matter as long as the

only

> issue the children have is speech and language and they use total

> communication. I thought fair enough that is kind of what I was

thinking

> too. He is going to write up his recomendations. He wasn't a whole lot

of

> help as far as testing or aids goes and he didn't say anything about

being

> able to see him in his office to get the FM for personal use. He

defered us

> to audiology as far as the hearing aid goes. We see them April 7, but

we

> have already seen those audi's and one insisted he was fine and that the

ABR

> didn't matter and the other told us if they amplified the high

frequencies

> the low frequencies would be over amplified. So obviously she doesn't

work

> with programable hearing aids or thought it was useless and didn't want

to

> bother. I am really frustrated but at least one part is over and that

is we

> have the recomendation from the doctor that he needs an FM and a HI

class.

> >

> >

> >

[Guest guest]

I understand you are trying to help and I appreciate that.

I would like to point out that I do know what I am doing and while I could use

help with the understanding that " most " audiologists will not pay attention to

frequencies over 4000 HZ range and that aiding can cause over amplification in

the low frequencies, I am getting my information from those few who have very

mild losses at 15 dB and do have hearing aids. is at 20 and 25 dB in the

low and 30 in the high if they set the aid low enough it shouldn't overamplify.

They could set it at 20 for all frequencies and that would give him at least

some benefit.

I would also ask you if you have a 30-40 dB loss did you get that later in life

or pre-verbally? It does make a bigger difference before children learn

language. I understand that doesn't explain his severity of symptoms which is

why I insist that he be tested more. He does not have CAPD and he has been said

not to have AN as well. He may have a central loss which is different than CAPD

but that would not explain why he is responding only to vowel sounds which is

something that a child with a central loss wouldn't do but is something a child

with a high frequency loss would do. My other point is that in the ABR

does have severely delayed latencies and this is typical of AN but he has been

said by numerous doctors not to have AN. The delayed latencies could be the

reason for his severe symptoms even with such a mild loss, that is my point.

I guess what I take offense to is your assuming that I don't know what I am

talking about, particularly where testing is concerned. I do however realize

you are trying to help, but until you know the whole story it's hard to give

advice on what I should do because perhaps we have been there done that. And

despite what it may look like as frantic as I sound on here I don't run around

like a chicken with my head cut off irrationally going in and insisting they

service regardless of their opinions, I come here to vent which is why I

sound irrational here.

As far as the audiogram goes, we have been to audi after audi and they have all

done soundfield and the ear spacific audiograms. His OAE on one side is not

present in the high frequency which is why I want further testing because that

supports a high frequency loss but it would tend to be more severe than what

they are seeing. On the other side it is there but just barely, which again

supports a problem but would in that case show that it isn't as severe on that

other side. He has had mixed results from his reflex testing.

I would like to say as far as ABR's go no matter how good an audiologist is an

audiogram does not always pick up on hearing loss. Losses such as AN often

don't show up on audiogram and can cause very severe problems. So any

audiologist who ignores a child's behavior because the tests shows he is fine is

not a very thorough audi in deed. 's loss doesn't show up on audiogram but

it does show on ABR. I understand that this degree of loss is too mild to cause

his severity of symptoms as I have said over and over, but my point is the delay

in his latencies could cause such distortion to actually make his degree of loss

much much more severe, but this is what they are failing to recognize. They are

ignoring the fact that he has delayed latencies. I know that aids would

probably amplify the distortion, however in 's case he is trying to hear

things louder by turning the volume up on things and I want to help him. I know

of many kids who use an FM system who have no loss and perfect hearing, but yet

they use this system, and the reason the school audi told me she can't provide

one is because even the ones made for kids with CAPD do provide amplification.

So she doesn't want to do that. Now there are kids everywhere who use them with

no loss and it amplifies just a little bit so obviously not enough to cause

damage. I would assume if there are children all over with hearing aids to

amplify a 15 dB loss they could amplify 20, 25 and 30 dB loss that has. So

saying they won't amplify until 40 dB is not true. Some won't but many will. I

will of course keep in mind that if they did overamplify they could cause damage

and before doing anything I would get all the information, I would make the audi

sit with me and explain the risks and all, but first I need an audi to at least

consider it or explain in detail why they can't. I am very calm usually and

rational when talking to the school people and this is also why I am having a

school liason come with me to also explain why we need help and so I don't have

to get all flustered trying to explain it myself. I want to sit back and let

others do the talking. I am very rational and I do look into things a great

deal before I leap, I guess that is why I was offended because you assumed

without knowing the whole story that I didn't know what I was doing and that I

was flailing around trying to get help. That is not what I do at all. I do

appreciate your trying to help, please just don't assume I don't know what I'm

doing.

ENT appt

> >

> >

> > Ok we saw the ENT. He basically agreed that should have a

auditory

> trainer or FM in the classroom and that he should be in a classroom with

> total communication but otherwise normally developing children. In

other

> words if it is HI class or not it doesn't really matter as long as the

only

> issue the children have is speech and language and they use total

> communication. I thought fair enough that is kind of what I was

thinking

> too. He is going to write up his recomendations. He wasn't a whole lot

of

> help as far as testing or aids goes and he didn't say anything about

being

> able to see him in his office to get the FM for personal use. He

defered us

> to audiology as far as the hearing aid goes. We see them April 7, but

we

> have already seen those audi's and one insisted he was fine and that the

ABR

> didn't matter and the other told us if they amplified the high

frequencies

> the low frequencies would be over amplified. So obviously she doesn't

work

> with programable hearing aids or thought it was useless and didn't want

to

> bother. I am really frustrated but at least one part is over and that

is we

> have the recomendation from the doctor that he needs an FM and a HI

class.

> >

> >

> >

[Guest guest]

I understand you are trying to help and I appreciate that.

I would like to point out that I do know what I am doing and while I could use

help with the understanding that " most " audiologists will not pay attention to

frequencies over 4000 HZ range and that aiding can cause over amplification in

the low frequencies, I am getting my information from those few who have very

mild losses at 15 dB and do have hearing aids. is at 20 and 25 dB in the

low and 30 in the high if they set the aid low enough it shouldn't overamplify.

They could set it at 20 for all frequencies and that would give him at least

some benefit.

I would also ask you if you have a 30-40 dB loss did you get that later in life

or pre-verbally? It does make a bigger difference before children learn

language. I understand that doesn't explain his severity of symptoms which is

why I insist that he be tested more. He does not have CAPD and he has been said

not to have AN as well. He may have a central loss which is different than CAPD

but that would not explain why he is responding only to vowel sounds which is

something that a child with a central loss wouldn't do but is something a child

with a high frequency loss would do. My other point is that in the ABR

does have severely delayed latencies and this is typical of AN but he has been

said by numerous doctors not to have AN. The delayed latencies could be the

reason for his severe symptoms even with such a mild loss, that is my point.

I guess what I take offense to is your assuming that I don't know what I am

talking about, particularly where testing is concerned. I do however realize

you are trying to help, but until you know the whole story it's hard to give

advice on what I should do because perhaps we have been there done that. And

despite what it may look like as frantic as I sound on here I don't run around

like a chicken with my head cut off irrationally going in and insisting they

service regardless of their opinions, I come here to vent which is why I

sound irrational here.

As far as the audiogram goes, we have been to audi after audi and they have all

done soundfield and the ear spacific audiograms. His OAE on one side is not

present in the high frequency which is why I want further testing because that

supports a high frequency loss but it would tend to be more severe than what

they are seeing. On the other side it is there but just barely, which again

supports a problem but would in that case show that it isn't as severe on that

other side. He has had mixed results from his reflex testing.

I would like to say as far as ABR's go no matter how good an audiologist is an

audiogram does not always pick up on hearing loss. Losses such as AN often

don't show up on audiogram and can cause very severe problems. So any

audiologist who ignores a child's behavior because the tests shows he is fine is

not a very thorough audi in deed. 's loss doesn't show up on audiogram but

it does show on ABR. I understand that this degree of loss is too mild to cause

his severity of symptoms as I have said over and over, but my point is the delay

in his latencies could cause such distortion to actually make his degree of loss

much much more severe, but this is what they are failing to recognize. They are

ignoring the fact that he has delayed latencies. I know that aids would

probably amplify the distortion, however in 's case he is trying to hear

things louder by turning the volume up on things and I want to help him. I know

of many kids who use an FM system who have no loss and perfect hearing, but yet

they use this system, and the reason the school audi told me she can't provide

one is because even the ones made for kids with CAPD do provide amplification.

So she doesn't want to do that. Now there are kids everywhere who use them with

no loss and it amplifies just a little bit so obviously not enough to cause

damage. I would assume if there are children all over with hearing aids to

amplify a 15 dB loss they could amplify 20, 25 and 30 dB loss that has. So

saying they won't amplify until 40 dB is not true. Some won't but many will. I

will of course keep in mind that if they did overamplify they could cause damage

and before doing anything I would get all the information, I would make the audi

sit with me and explain the risks and all, but first I need an audi to at least

consider it or explain in detail why they can't. I am very calm usually and

rational when talking to the school people and this is also why I am having a

school liason come with me to also explain why we need help and so I don't have

to get all flustered trying to explain it myself. I want to sit back and let

others do the talking. I am very rational and I do look into things a great

deal before I leap, I guess that is why I was offended because you assumed

without knowing the whole story that I didn't know what I was doing and that I

was flailing around trying to get help. That is not what I do at all. I do

appreciate your trying to help, please just don't assume I don't know what I'm

doing.

ENT appt

> >

> >

> > Ok we saw the ENT. He basically agreed that should have a

auditory

> trainer or FM in the classroom and that he should be in a classroom with

> total communication but otherwise normally developing children. In

other

> words if it is HI class or not it doesn't really matter as long as the

only

> issue the children have is speech and language and they use total

> communication. I thought fair enough that is kind of what I was

thinking

> too. He is going to write up his recomendations. He wasn't a whole lot

of

> help as far as testing or aids goes and he didn't say anything about

being

> able to see him in his office to get the FM for personal use. He

defered us

> to audiology as far as the hearing aid goes. We see them April 7, but

we

> have already seen those audi's and one insisted he was fine and that the

ABR

> didn't matter and the other told us if they amplified the high

frequencies

> the low frequencies would be over amplified. So obviously she doesn't

work

> with programable hearing aids or thought it was useless and didn't want

to

> bother. I am really frustrated but at least one part is over and that

is we

> have the recomendation from the doctor that he needs an FM and a HI

class.

> >

> >

> >

[Guest guest]

I understand you are trying to help and I appreciate that.

I would like to point out that I do know what I am doing and while I could use

help with the understanding that " most " audiologists will not pay attention to

frequencies over 4000 HZ range and that aiding can cause over amplification in

the low frequencies, I am getting my information from those few who have very

mild losses at 15 dB and do have hearing aids. is at 20 and 25 dB in the

low and 30 in the high if they set the aid low enough it shouldn't overamplify.

They could set it at 20 for all frequencies and that would give him at least

some benefit.

I would also ask you if you have a 30-40 dB loss did you get that later in life

or pre-verbally? It does make a bigger difference before children learn

language. I understand that doesn't explain his severity of symptoms which is

why I insist that he be tested more. He does not have CAPD and he has been said

not to have AN as well. He may have a central loss which is different than CAPD

but that would not explain why he is responding only to vowel sounds which is

something that a child with a central loss wouldn't do but is something a child

with a high frequency loss would do. My other point is that in the ABR

does have severely delayed latencies and this is typical of AN but he has been

said by numerous doctors not to have AN. The delayed latencies could be the

reason for his severe symptoms even with such a mild loss, that is my point.

I guess what I take offense to is your assuming that I don't know what I am

talking about, particularly where testing is concerned. I do however realize

you are trying to help, but until you know the whole story it's hard to give

advice on what I should do because perhaps we have been there done that. And

despite what it may look like as frantic as I sound on here I don't run around

like a chicken with my head cut off irrationally going in and insisting they

service regardless of their opinions, I come here to vent which is why I

sound irrational here.

As far as the audiogram goes, we have been to audi after audi and they have all

done soundfield and the ear spacific audiograms. His OAE on one side is not

present in the high frequency which is why I want further testing because that

supports a high frequency loss but it would tend to be more severe than what

they are seeing. On the other side it is there but just barely, which again

supports a problem but would in that case show that it isn't as severe on that

other side. He has had mixed results from his reflex testing.

I would like to say as far as ABR's go no matter how good an audiologist is an

audiogram does not always pick up on hearing loss. Losses such as AN often

don't show up on audiogram and can cause very severe problems. So any

audiologist who ignores a child's behavior because the tests shows he is fine is

not a very thorough audi in deed. 's loss doesn't show up on audiogram but

it does show on ABR. I understand that this degree of loss is too mild to cause

his severity of symptoms as I have said over and over, but my point is the delay

in his latencies could cause such distortion to actually make his degree of loss

much much more severe, but this is what they are failing to recognize. They are

ignoring the fact that he has delayed latencies. I know that aids would

probably amplify the distortion, however in 's case he is trying to hear

things louder by turning the volume up on things and I want to help him. I know

of many kids who use an FM system who have no loss and perfect hearing, but yet

they use this system, and the reason the school audi told me she can't provide

one is because even the ones made for kids with CAPD do provide amplification.

So she doesn't want to do that. Now there are kids everywhere who use them with

no loss and it amplifies just a little bit so obviously not enough to cause

damage. I would assume if there are children all over with hearing aids to

amplify a 15 dB loss they could amplify 20, 25 and 30 dB loss that has. So

saying they won't amplify until 40 dB is not true. Some won't but many will. I

will of course keep in mind that if they did overamplify they could cause damage

and before doing anything I would get all the information, I would make the audi

sit with me and explain the risks and all, but first I need an audi to at least

consider it or explain in detail why they can't. I am very calm usually and

rational when talking to the school people and this is also why I am having a

school liason come with me to also explain why we need help and so I don't have

to get all flustered trying to explain it myself. I want to sit back and let

others do the talking. I am very rational and I do look into things a great

deal before I leap, I guess that is why I was offended because you assumed

without knowing the whole story that I didn't know what I was doing and that I

was flailing around trying to get help. That is not what I do at all. I do

appreciate your trying to help, please just don't assume I don't know what I'm

doing.

ENT appt

> >

> >

> > Ok we saw the ENT. He basically agreed that should have a

auditory

> trainer or FM in the classroom and that he should be in a classroom with

> total communication but otherwise normally developing children. In

other

> words if it is HI class or not it doesn't really matter as long as the

only

> issue the children have is speech and language and they use total

> communication. I thought fair enough that is kind of what I was

thinking

> too. He is going to write up his recomendations. He wasn't a whole lot

of

> help as far as testing or aids goes and he didn't say anything about

being

> able to see him in his office to get the FM for personal use. He

defered us

> to audiology as far as the hearing aid goes. We see them April 7, but

we

> have already seen those audi's and one insisted he was fine and that the

ABR

> didn't matter and the other told us if they amplified the high

frequencies

> the low frequencies would be over amplified. So obviously she doesn't

work

> with programable hearing aids or thought it was useless and didn't want

to

> bother. I am really frustrated but at least one part is over and that

is we

> have the recomendation from the doctor that he needs an FM and a HI

class.

> >

> >

> >