Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome Jackie! You will find this group very informative and the most wonderful web friends possible! Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome Jackie! You will find this group very informative and the most wonderful web friends possible! Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome, Jackie! Aren't 4-year-olds fun??? (We have two of them!) LOL Jane > I have been lurking and decided to formally introduce myself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome, Jackie! Aren't 4-year-olds fun??? (We have two of them!) LOL Jane > I have been lurking and decided to formally introduce myself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome, Jackie! Aren't 4-year-olds fun??? (We have two of them!) LOL Jane > I have been lurking and decided to formally introduce myself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome to Jackie from Texas, From from Alberta,Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome to Jackie from Texas, From from Alberta,Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome to Jackie from Texas, From from Alberta,Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 .. Birthday: December 24 Welcome, Christmas Baby! You're gonna love it here. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 HI Jackie and welcome. Lots of critters on your farm. Love critters and kids too. norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 welcome jackie! I c you are another water fan. I drink a lot of water to, but I love my diet a & w. In a message dated 3/30/01 12:17:59 PM Eastern Standard Time, jpenn@... writes: << Hello, I have been lurking and decided to formally introduce myself. 1. First Name: Jackie 2. Nick Name: 3. Age: 39 >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 welcome jackie! I c you are another water fan. I drink a lot of water to, but I love my diet a & w. In a message dated 3/30/01 12:17:59 PM Eastern Standard Time, jpenn@... writes: << Hello, I have been lurking and decided to formally introduce myself. 1. First Name: Jackie 2. Nick Name: 3. Age: 39 >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 welcome jackie! I c you are another water fan. I drink a lot of water to, but I love my diet a & w. In a message dated 3/30/01 12:17:59 PM Eastern Standard Time, jpenn@... writes: << Hello, I have been lurking and decided to formally introduce myself. 1. First Name: Jackie 2. Nick Name: 3. Age: 39 >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 > Also, I've had wierd facial muscle spasms lately, and am wondering if > it's related, as I don't know what else it could be -- one in my left > eye, and more recently around my mouth. Any ideas? Just wanted to comment on this one real quick, I also experienced the same thing for about a month after my RAI (156mCi). Wasn't real severe, but was annoying. I see its been longer than that since your RAI, so you may want to check with your doc. and see if there is anything he can suggest or do. - 5-02 FNA 6-02 Core Biopsy Dx pap cancer 7-10-02 TT 7-29-02 RAI 156 mCi Current .175 Synthroid - TSH last check 0.64 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 > Also, I've had wierd facial muscle spasms lately, and am wondering if > it's related, as I don't know what else it could be -- one in my left > eye, and more recently around my mouth. Any ideas? Just wanted to comment on this one real quick, I also experienced the same thing for about a month after my RAI (156mCi). Wasn't real severe, but was annoying. I see its been longer than that since your RAI, so you may want to check with your doc. and see if there is anything he can suggest or do. - 5-02 FNA 6-02 Core Biopsy Dx pap cancer 7-10-02 TT 7-29-02 RAI 156 mCi Current .175 Synthroid - TSH last check 0.64 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 > Hello, everyone -- Hi, Myra (did I guess right?) - and welcome to the group none of us really wanted to join :-) > This is the first time I've been on this site -- which I think is > indicative of the fact that I've basically been ignoring all of this > since it happened. I'm 27, diagnosed with pap. carc. in May 2002, > had TT June 18th, RAI in July 2002, ended one job right before > surgery and moved & started another -- very stressful, very long > hours -- in Aug. 2002. I have barely had time to breathe, let alone > comprehend all of this. I researched everything at the beginning, > but am feeling like I've let my awareness of my condition slide. > Still feeling terrible & still pudgy despite more than 4 months on > meds. Up to .175's (Synthroid) & my TSH is still a 10. I can > barely get through the day, and don't have energy for most the thing > non-work related things I love to do, which is just depressing, as > I'm sure you all know! Well, no wonder - with a TSH of 10, you've been VERY hypo for over 4 months!!! Your target TSH to suppress your thyca is 0.1, which is a long way from 10. There are a number of reasons that the Synthroid may not be working - interactions with other meds/food, if it gets too hot... Here is some info on how to take and store your T4 - see if this helps: 11763 Levothyroxine (T4) - HOW TO TAKE IT, HOW TO STORE IT (recommendations from Dr. Ain) http://groups.yahoo.com/group/Thyca/message/11763 You may need a higher dose, as well. The doctor should be testing you TSH levels every 6-8 weeks till you're suppressed. How much RAI did you get? Did you follow a LID (low iodine diet)? What is your TG level? > A few other things I'm wondering about: have lots of you had to have > more than one course of RAI? I wouldn't say lots - some do > When do the docs consider a second course? If your TG is elevated, or scans show signs of tissue. > I seem to remember my old doc saying 6-9 months after the > first, if your TSH is still high. They should do a scan, one way or another, in about 6-12 months to see if you have any remaining tissue. Having a high TSH means that you are not getting enough T4. Perhaps you're confusing TSH with TG levels? > And how do they determine whether > it's necessary? I assume they give you the small, what I > call " diagnostic " dose of RAI first again, and see what shows up? You've got it!! > Also, I've had wierd facial muscle spasms lately, and am wondering > if it's related, as I don't know what else it could be -- one in my > left eye, and more recently around my mouth. Any ideas? This sounds suspiciously like calcium deficiency - did you have damage to your parathyroids in surgery? I'd have the doctor check your calcium levels Here's a list of various hypo symptoms: http://groups.yahoo.com/group/Thyca/message/11671 > I'm going to attend the THYCA Chicago meeting this month, and hope > to get some doc recommendations there, if not here. I want someone > who is actually interested in the disease, and is willing to be a > lmost a primary care-type doc, since this is the only thing I really > need medical attention for! I would recommend that this is NOT what you want. In most cases, a pc doctor will NOT have the expertise you need - you should be followed by an endo who is familiar with thyca. I'm sure someone here or at the meeting can give you recommendations. > Thanks for listening That's what they pay us the big bucks for :-) Cheers, Alisa Currently Hypo :-) off meds for scan 12/16/02: on LID day 6 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > > MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 > Hello, everyone -- Hi, Myra (did I guess right?) - and welcome to the group none of us really wanted to join :-) > This is the first time I've been on this site -- which I think is > indicative of the fact that I've basically been ignoring all of this > since it happened. I'm 27, diagnosed with pap. carc. in May 2002, > had TT June 18th, RAI in July 2002, ended one job right before > surgery and moved & started another -- very stressful, very long > hours -- in Aug. 2002. I have barely had time to breathe, let alone > comprehend all of this. I researched everything at the beginning, > but am feeling like I've let my awareness of my condition slide. > Still feeling terrible & still pudgy despite more than 4 months on > meds. Up to .175's (Synthroid) & my TSH is still a 10. I can > barely get through the day, and don't have energy for most the thing > non-work related things I love to do, which is just depressing, as > I'm sure you all know! Well, no wonder - with a TSH of 10, you've been VERY hypo for over 4 months!!! Your target TSH to suppress your thyca is 0.1, which is a long way from 10. There are a number of reasons that the Synthroid may not be working - interactions with other meds/food, if it gets too hot... Here is some info on how to take and store your T4 - see if this helps: 11763 Levothyroxine (T4) - HOW TO TAKE IT, HOW TO STORE IT (recommendations from Dr. Ain) http://groups.yahoo.com/group/Thyca/message/11763 You may need a higher dose, as well. The doctor should be testing you TSH levels every 6-8 weeks till you're suppressed. How much RAI did you get? Did you follow a LID (low iodine diet)? What is your TG level? > A few other things I'm wondering about: have lots of you had to have > more than one course of RAI? I wouldn't say lots - some do > When do the docs consider a second course? If your TG is elevated, or scans show signs of tissue. > I seem to remember my old doc saying 6-9 months after the > first, if your TSH is still high. They should do a scan, one way or another, in about 6-12 months to see if you have any remaining tissue. Having a high TSH means that you are not getting enough T4. Perhaps you're confusing TSH with TG levels? > And how do they determine whether > it's necessary? I assume they give you the small, what I > call " diagnostic " dose of RAI first again, and see what shows up? You've got it!! > Also, I've had wierd facial muscle spasms lately, and am wondering > if it's related, as I don't know what else it could be -- one in my > left eye, and more recently around my mouth. Any ideas? This sounds suspiciously like calcium deficiency - did you have damage to your parathyroids in surgery? I'd have the doctor check your calcium levels Here's a list of various hypo symptoms: http://groups.yahoo.com/group/Thyca/message/11671 > I'm going to attend the THYCA Chicago meeting this month, and hope > to get some doc recommendations there, if not here. I want someone > who is actually interested in the disease, and is willing to be a > lmost a primary care-type doc, since this is the only thing I really > need medical attention for! I would recommend that this is NOT what you want. In most cases, a pc doctor will NOT have the expertise you need - you should be followed by an endo who is familiar with thyca. I'm sure someone here or at the meeting can give you recommendations. > Thanks for listening That's what they pay us the big bucks for :-) Cheers, Alisa Currently Hypo :-) off meds for scan 12/16/02: on LID day 6 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > > MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 Hi, I have some questions I guess, I have had pain on my right breast, and the Physican Assistant, felt and said I had optic changes on both of them, but said if it was cancer it would not be painful right now, so not to worry, but I can't wrapp my mind around it, and wonder if I should be worried, she wants me to have no caffine, and no chocolate, and if there is no change then she will do a mammogram, but honestly im a bit scared breast cancer runs in my family, I have had cervical cancer already, and a hyster at 25, im 30 now, so any information would be a great help please.. Bree/scared patient.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Thank you for your help, I talked to my doctor and they are scheduleing me a appointment right now, and thank you for the information, I am still a bit scared, but have been praying with my family about it and my church is also praying, so what more can I do but put it in his hands right? I will let you know more when I know, and thanks again Bree > > Hi Bree and welcome to the group. Although most tumors are not painful there are ladies in the group that have found theirs due to having pain. Caffeine CAN cause problems. I would not wait more than a few weeks at most. I would also insist on talking to your doctor and not the assistant especially seeing that you had members in your family that have had breast cancer and also since you have had cervical cancer. If need be get a second opinion. I will keep you in my prayers. > Seeing that there is a family history of breast cancer you should definitely have a mammogram. Our daughters dr started her at age 30 because of my diagnosis. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > > Check out my breast cancer ornaments at: > http://www.geocities.com/chucky5741/bcornament.html > also check out my other ornaments and lots of nice gifts at: > http://www.cancerclub.com > New > > > Hi, I have some questions I guess, I have had pain on my right breast, > and the Physican Assistant, felt and said I had optic changes on both > of them, but said if it was cancer it would not be painful right now, > so not to worry, but I can't wrapp my mind around it, and wonder if I > should be worried, she wants me to have no caffine, and no chocolate, > and if there is no change then she will do a mammogram, but honestly > im a bit scared breast cancer runs in my family, I have had cervical > cancer already, and a hyster at 25, im 30 now, so any information > would be a great help please.. > > Bree/scared patient.. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Thank you for your help, I talked to my doctor and they are scheduleing me a appointment right now, and thank you for the information, I am still a bit scared, but have been praying with my family about it and my church is also praying, so what more can I do but put it in his hands right? I will let you know more when I know, and thanks again Bree > > Hi Bree and welcome to the group. Although most tumors are not painful there are ladies in the group that have found theirs due to having pain. Caffeine CAN cause problems. I would not wait more than a few weeks at most. I would also insist on talking to your doctor and not the assistant especially seeing that you had members in your family that have had breast cancer and also since you have had cervical cancer. If need be get a second opinion. I will keep you in my prayers. > Seeing that there is a family history of breast cancer you should definitely have a mammogram. Our daughters dr started her at age 30 because of my diagnosis. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > > Check out my breast cancer ornaments at: > http://www.geocities.com/chucky5741/bcornament.html > also check out my other ornaments and lots of nice gifts at: > http://www.cancerclub.com > New > > > Hi, I have some questions I guess, I have had pain on my right breast, > and the Physican Assistant, felt and said I had optic changes on both > of them, but said if it was cancer it would not be painful right now, > so not to worry, but I can't wrapp my mind around it, and wonder if I > should be worried, she wants me to have no caffine, and no chocolate, > and if there is no change then she will do a mammogram, but honestly > im a bit scared breast cancer runs in my family, I have had cervical > cancer already, and a hyster at 25, im 30 now, so any information > would be a great help please.. > > Bree/scared patient.. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Thank you for your help, I talked to my doctor and they are scheduleing me a appointment right now, and thank you for the information, I am still a bit scared, but have been praying with my family about it and my church is also praying, so what more can I do but put it in his hands right? I will let you know more when I know, and thanks again Bree > > Hi Bree and welcome to the group. Although most tumors are not painful there are ladies in the group that have found theirs due to having pain. Caffeine CAN cause problems. I would not wait more than a few weeks at most. I would also insist on talking to your doctor and not the assistant especially seeing that you had members in your family that have had breast cancer and also since you have had cervical cancer. If need be get a second opinion. I will keep you in my prayers. > Seeing that there is a family history of breast cancer you should definitely have a mammogram. Our daughters dr started her at age 30 because of my diagnosis. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > > Check out my breast cancer ornaments at: > http://www.geocities.com/chucky5741/bcornament.html > also check out my other ornaments and lots of nice gifts at: > http://www.cancerclub.com > New > > > Hi, I have some questions I guess, I have had pain on my right breast, > and the Physican Assistant, felt and said I had optic changes on both > of them, but said if it was cancer it would not be painful right now, > so not to worry, but I can't wrapp my mind around it, and wonder if I > should be worried, she wants me to have no caffine, and no chocolate, > and if there is no change then she will do a mammogram, but honestly > im a bit scared breast cancer runs in my family, I have had cervical > cancer already, and a hyster at 25, im 30 now, so any information > would be a great help please.. > > Bree/scared patient.. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Bree its normal to be scared. Its fear of the unknown. Hang in there. We are all here for you. You continue to be in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com New> > > Hi, I have some questions I guess, I have had pain on my right breast, > and the Physican Assistant, felt and said I had optic changes on both > of them, but said if it was cancer it would not be painful right now, > so not to worry, but I can't wrapp my mind around it, and wonder if I > should be worried, she wants me to have no caffine, and no chocolate, > and if there is no change then she will do a mammogram, but honestly > im a bit scared breast cancer runs in my family, I have had cervical > cancer already, and a hyster at 25, im 30 now, so any information > would be a great help please..> > Bree/scared patient..> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Hi Bree, Please INSIST on a mammogram! And let us know - it's probably nothing - but why take even the smallest chance? Ann www.cjhats.com Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Hi Bree, Please INSIST on a mammogram! And let us know - it's probably nothing - but why take even the smallest chance? Ann www.cjhats.com Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Hi Bree, Please INSIST on a mammogram! And let us know - it's probably nothing - but why take even the smallest chance? Ann www.cjhats.com Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
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