Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 P- I remember you from ages ago. Welcome back! Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 P- I remember you from ages ago. Welcome back! Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Hello , I am Crystal mom of 3 and my youngest Eva (10 months) is my little charger. I live in Illinois and we use Childerns hospital in Wisconsin and they are great!! Also welcome back to the main land...lol. My brother is in Virginia in the Navy. Are you in Norfolk? I am thinking about going up there in Aug to see him with my sister and to see her friend who is also in the Navy. I hope you get your son into the clinic and they can help him eat more. Hugs, Crystal and Eva (10 month charger) > > Hi all! > This is from Hawaii. I am sorry I have not been around > much lately, but it's nice to be back here and see some > familiar " faces " ! > > We are now living in sburg, Virginia. My husband is a Drill > Sergeant stationed here at Fort Lee. The kids are loving the cold > weather (although it is supposed to get up into the 70s today) and > got to see snow for the first time. It is nice to be closer to my > husband's family so my children get to spend more time with them. I > am enjoying myself here and I can't wait to travel around a little > bit! > > , our CHaRGEr, is 9 years old, going on 10 next month. He is > in a fully self-contained classroom where he gets speech, OT and > vision/O & M services. He loves his new school, new friends and most > of all his new bus and driver! He is slowly making gains, now > developmentally at about a 3 year old level. Healthwise, he has been > seizure free for quite awhile and his main issue right now is > eating, or lack thereof. He only eats 5 foods total, mainly because > of sensory issues. I have heard about the feeding clinic at Richmond > Children's Hospital and I would LOVE to get him in there. I read on > their website that they treated a child with CHARGE...is that > someone here?? I would LOVE to hear about your experience there. It > is heartbreaking to see him eating the same thing over and over and > I am at a loss as to how to fix this. > > Anyway, I am glad to be back here! If there is anyone in the area, I > would love to hear from you (I would love to hear from anyone!). > Hope everyone is doing well!! > > Pagan > Wife to Rich > Mom to Marina 12, 9 (CHaRGE, cerebral palsy, epilepsy), > Tabitha 6 and Christian 3 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 , It's so wonderful to hear from you again - you must be missing Hawaii! I'm so pleased to hear that (Buddha!) loves his new school and the transition went well. Let us know how the feeding clinic goes with him; I'm sure they'll be many interested parents. Weir Visit the Weir family online: http://ca.geocities.com/weirfamilyrogers Home: lisaweir@... Work: lisa.weir@... Phone: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi ! It's good to be back here! I do miss Hawaii, but Virginia is beautiful and things are way more affordable here than they are back home! I will keep everyone posted once I finally get him into the program (hopefully our military healthcare will approve it!!). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi ! It's good to be back here! I do miss Hawaii, but Virginia is beautiful and things are way more affordable here than they are back home! I will keep everyone posted once I finally get him into the program (hopefully our military healthcare will approve it!!). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi ! It's good to be back here! I do miss Hawaii, but Virginia is beautiful and things are way more affordable here than they are back home! I will keep everyone posted once I finally get him into the program (hopefully our military healthcare will approve it!!). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi Crystal! I am actually in central Virginia, just south of Richmond. I drove down to the Norfolk area to the Navy's beautiful shopping mall of a hospital (Portsmouth Naval Hospital). It kind of makes me wish my husband was in the Navy so that I could be close to a great hospital like that. If you get a chance to visit him, I'm sure you'll have a blast down there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi Ellen! Thanks for the welcomes!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi Ellen! Thanks for the welcomes!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi Ellen! Thanks for the welcomes!! Quote Link to comment Share on other sites More sharing options...
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