Re: Post-tenotomy cast came off...

[Guest guest]

Hello,

I would be concerned that the casts had slipped & how casual the doctor

is treating the current situation. My son just had tenotomies last

friday from Dr. Ponseti and he was very certain that the casts should

stay on for 2.5 weeks. Throughout the 5 casts that my son received

recently from Dr. Ponseti, we had no slipping at all. I am sorry to

hear the trouble that you are experiencing. Have you contacted Dr.

Ponseti to see if anyone else in your area can help?

the best of luck to you and your family!

-wendy

[Guest guest]

Hello,

I would be concerned that the casts had slipped & how casual the doctor

is treating the current situation. My son just had tenotomies last

friday from Dr. Ponseti and he was very certain that the casts should

stay on for 2.5 weeks. Throughout the 5 casts that my son received

recently from Dr. Ponseti, we had no slipping at all. I am sorry to

hear the trouble that you are experiencing. Have you contacted Dr.

Ponseti to see if anyone else in your area can help?

the best of luck to you and your family!

-wendy

[Guest guest]

Rosie,

What a terrible ordeal! I can't believe that this is being viewed as " no

big deal " . It is very important for the foot to be held in the corrected

position after the tenotomy is performed, am I wrong?! :-( How can a

cast up to the groin and set at a 90 degree angle be kicked off that

easily? Something doesn't seem right to me there. You were right (not

to mention simply logical) in the presumption that this SHOULD have been

dealt with in some matter of urgency, in my humble opinion.

Was a culture done of the infected-looking area? With our first

orthopedist, our son Gavin developed sores in the ankle area which within

one week with casts on developed into a nasty cellulitis with a staph

infection, which required strong antibiotics...very serious in such a

young infant. And I was strongly advised by the Dr.'s staff NOT to

remove his casts even though he was screaming his head off night and

day... I knew something was terribly wrong and took the initiative to

take the casts off that day. Not trying to alarm you in any way here,

but I assume that if your GP was at all suspicious, one would have been

done. Is the site oozing/open at all? If so, we found great success in

using Adaptic (petroleum based breathable gauze) under kling type gauze

to help speed the healing process and keep the area clean and protected.

Let me know if you need any more info if this is the case.

I hope the antibiotics that your son was prescribed will do the trick and

he won't have to suffer through this anymore than he already has. Best

of luck to you, it sounds like you are having to deal with a lot just to

get some answers!

I also hope someone else out there can help you more than I can with some

words of wisdom!

Regards,

and Gavin (bilateral 12-12-01)

On Tue, 25 Jun 2002 18:41:06 -0000 " throwinmusesuk "

writes:

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

> I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

> urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had said

>

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we have

>

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

> think?

>

> Rosie

>

>

>

[Guest guest]

Rosie,

What a terrible ordeal! I can't believe that this is being viewed as " no

big deal " . It is very important for the foot to be held in the corrected

position after the tenotomy is performed, am I wrong?! :-( How can a

cast up to the groin and set at a 90 degree angle be kicked off that

easily? Something doesn't seem right to me there. You were right (not

to mention simply logical) in the presumption that this SHOULD have been

dealt with in some matter of urgency, in my humble opinion.

Was a culture done of the infected-looking area? With our first

orthopedist, our son Gavin developed sores in the ankle area which within

one week with casts on developed into a nasty cellulitis with a staph

infection, which required strong antibiotics...very serious in such a

young infant. And I was strongly advised by the Dr.'s staff NOT to

remove his casts even though he was screaming his head off night and

day... I knew something was terribly wrong and took the initiative to

take the casts off that day. Not trying to alarm you in any way here,

but I assume that if your GP was at all suspicious, one would have been

done. Is the site oozing/open at all? If so, we found great success in

using Adaptic (petroleum based breathable gauze) under kling type gauze

to help speed the healing process and keep the area clean and protected.

Let me know if you need any more info if this is the case.

I hope the antibiotics that your son was prescribed will do the trick and

he won't have to suffer through this anymore than he already has. Best

of luck to you, it sounds like you are having to deal with a lot just to

get some answers!

I also hope someone else out there can help you more than I can with some

words of wisdom!

Regards,

and Gavin (bilateral 12-12-01)

On Tue, 25 Jun 2002 18:41:06 -0000 " throwinmusesuk "

writes:

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

> I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

> urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had said

>

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we have

>

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

> think?

>

> Rosie

>

>

>

[Guest guest]

Rosie,

What a terrible ordeal! I can't believe that this is being viewed as " no

big deal " . It is very important for the foot to be held in the corrected

position after the tenotomy is performed, am I wrong?! :-( How can a

cast up to the groin and set at a 90 degree angle be kicked off that

easily? Something doesn't seem right to me there. You were right (not

to mention simply logical) in the presumption that this SHOULD have been

dealt with in some matter of urgency, in my humble opinion.

Was a culture done of the infected-looking area? With our first

orthopedist, our son Gavin developed sores in the ankle area which within

one week with casts on developed into a nasty cellulitis with a staph

infection, which required strong antibiotics...very serious in such a

young infant. And I was strongly advised by the Dr.'s staff NOT to

remove his casts even though he was screaming his head off night and

day... I knew something was terribly wrong and took the initiative to

take the casts off that day. Not trying to alarm you in any way here,

but I assume that if your GP was at all suspicious, one would have been

done. Is the site oozing/open at all? If so, we found great success in

using Adaptic (petroleum based breathable gauze) under kling type gauze

to help speed the healing process and keep the area clean and protected.

Let me know if you need any more info if this is the case.

I hope the antibiotics that your son was prescribed will do the trick and

he won't have to suffer through this anymore than he already has. Best

of luck to you, it sounds like you are having to deal with a lot just to

get some answers!

I also hope someone else out there can help you more than I can with some

words of wisdom!

Regards,

and Gavin (bilateral 12-12-01)

On Tue, 25 Jun 2002 18:41:06 -0000 " throwinmusesuk "

writes:

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

> I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

> urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had said

>

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we have

>

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

> think?

>

> Rosie

>

>

>

[Guest guest]

I know you must be very frustrated!!! I would call Dr. Ponseti as

soon as possible!!!! I know that Iowa is a long way, but maybe Dr.

Ponseti can get you to someone else!!!! I strongly feel that Iowa is

worth to trip no matter where you live! Our son got infection in his

blisters (due to his shoes not fitting properly) he had to go on

antibiotics and back in casts for them to heal. Our prayers are with

you!!!

and Caleb 3-31-01

-- In nosurgery4clubfoot@y..., " throwinmusesuk " <miles.lawson@v...>

wrote:

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had

said

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we

have

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

think?

>

> Rosie

[Guest guest]

I know you must be very frustrated!!! I would call Dr. Ponseti as

soon as possible!!!! I know that Iowa is a long way, but maybe Dr.

Ponseti can get you to someone else!!!! I strongly feel that Iowa is

worth to trip no matter where you live! Our son got infection in his

blisters (due to his shoes not fitting properly) he had to go on

antibiotics and back in casts for them to heal. Our prayers are with

you!!!

and Caleb 3-31-01

-- In nosurgery4clubfoot@y..., " throwinmusesuk " <miles.lawson@v...>

wrote:

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had

said

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we

have

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

think?

>

> Rosie

[Guest guest]

Rosie,

I also wonder how properly done Ponseti method casts could slip let

alone come off. The casts should be to the groin with the knees bent

at 90 degrees and the foot externally rotated at 70 degrees. A photo

of the 5 typical Ponseti method casts can be seen at the Cotton

Family's web site at http://hometown.aol.com/vc11/week1.htm

I would also encourage you to e-mail Dr. Ponseti concerning this and

get his recommendation.

and (3-17-99)

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had

said

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we

have

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

think?

>

> Rosie

[Guest guest]

Rosie,

I also wonder how properly done Ponseti method casts could slip let

alone come off. The casts should be to the groin with the knees bent

at 90 degrees and the foot externally rotated at 70 degrees. A photo

of the 5 typical Ponseti method casts can be seen at the Cotton

Family's web site at http://hometown.aol.com/vc11/week1.htm

I would also encourage you to e-mail Dr. Ponseti concerning this and

get his recommendation.

and (3-17-99)

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had

said

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we

have

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

think?

>

> Rosie

[Guest guest]

Rosie-

I'm so sorry to hear about the problems that you're having. I cannot

understand why the casts would slip either. I would be very

concerned about Francis' tendon as the reason that the last cast

stays on for 3 weeks after the tenotomy is to allow it to heal. I

hope you're able to get help from a physician very soon!

Please keep us posted!

You're in our thoughts!

& (3-16-00)

> I'd like to know what other people think of this situation.

>

> Francis is being treated by a Ponseti method doctor in Sunderland,

> England - Mr de Kiewiet. We live in London, which is rather a long

> way away from Sunderland.

>

> Francis had his tenotomies the Friday before last. (I should add

> that out of the nine previous Ponseti casts, only two of the right

> leg casts had not slipped - something which Mr de Kiewiet has been

> quite casual about.)

>

> Anyway, last Wednesday night he kicked the cast off completely. I

> rang Mr de Kiewiet on Thursday morning, and he said that he would

> contact Mr Fergal Monsell at Great Ormond Street Hospital in London

> (he apparently knows the Ponseti technique but doesn't practise it,

I

> don't know why),

>

> I presumed that a replacement cast would be a matter of some

urgency,

> but we heard nothing on the Thursday, repeated phone calls on the

> Friday produced nothing, we eventually got hold of someone at Gt

> Ormond Street on Monday, only to be told that Mr de Kiewiet had

said

> it wasn't urgent and we weren't to take Francis in until Wednesday

> (ie tomorrow).

>

> We now have a little boy whose wound appears to be infected (we

have

> got antibiotics from our GP) and who screams in pain everytime that

> foot is touched. I am terribly worried. What do other people

think?

>

> Rosie