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Cedie Update!

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We just found out that they are going to try Cedie on 24 hr CPAP!!!

We are so excited! She has done 14 hr trials since last Thursday and

handled them well with good blood gases. So today they decided they

would let her stay on CPAP unless she starts working too hard

(breathing too fast). I really feel like she can do it this time.

She is going to prove her Pulmonologist wrong!

We are still draggig our heels on the whole lung and muscle biopsies

issue. The attending told us that if we could get her off the vent

and just on CPAP or trach collar, then we would get to go home

regardless of what the Pulmonolgist said. After 9 long months, we

just might be able to get her out of their and back to her home

where she can really soar!!!

Please pray with us that she does well and never has to return to

being vent dependent! These first 24 hrs are going to be so nerve

racking for all of us!

Will update you tomorrow :-)

Mock - mom to Dylan (5 yrs) and Cedie Lynn (9 mths old)

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