Re: arrogance = ignorance? CHARGE awareness pins

[Guest guest]

I wish we lived closer together we could do alot together to

get awareness out there!!

Feel free to email me I would love to work with you on something

like this!!

Crystal and Eva (11 1/2 month charger)

>

> " I think we need to get more info out there about this!! "

>

> Crystal and Eva (11 1/2 month charger)

>

>

> Thanks Crystal for the great segue:

>

> I think we need to come up with a CHARGE awareness pin. Autism

has a ribbon made out of puzzle pieces. I think we could come up

with something at least that flashy. I was thinking maybe a ribbon

that is a little shorter on one side (to symbolize the asymmetry),

and maybe striped pink and blue (because boys and girls are affected

equally, and also to stand for the heart defects (pink) and choanal

atresia (blue) that affect so many CHARGE kids.

>

> What do you all think?

>

> (mom to Evan 8.5 mos)

>

>

>

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

and save big.

>

>

[Guest guest]

This idea has been toyed with for awhile - I think it's a great one - even

the CHARGE syndrome Foundation pins that they had at the last conference

mass produced would be great!

>

> " I think we need to get more info out there about this!! "

>

> Crystal and Eva (11 1/2 month charger)

>

>

> Thanks Crystal for the great segue:

>

> I think we need to come up with a CHARGE awareness pin. Autism has a

> ribbon made out of puzzle pieces. I think we could come up with something

> at least that flashy. I was thinking maybe a ribbon that is a little

> shorter on one side (to symbolize the asymmetry), and maybe striped pink and

> blue (because boys and girls are affected equally, and also to stand for the

> heart defects (pink) and choanal atresia (blue) that affect so many CHARGE

> kids.

>

> What do you all think?

>

> (mom to Evan 8.5 mos)

>

>

>

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC and save

> big.

>

>

[Guest guest]

This idea has been toyed with for awhile - I think it's a great one - even

the CHARGE syndrome Foundation pins that they had at the last conference

mass produced would be great!

>

> " I think we need to get more info out there about this!! "

>

> Crystal and Eva (11 1/2 month charger)

>

>

> Thanks Crystal for the great segue:

>

> I think we need to come up with a CHARGE awareness pin. Autism has a

> ribbon made out of puzzle pieces. I think we could come up with something

> at least that flashy. I was thinking maybe a ribbon that is a little

> shorter on one side (to symbolize the asymmetry), and maybe striped pink and

> blue (because boys and girls are affected equally, and also to stand for the

> heart defects (pink) and choanal atresia (blue) that affect so many CHARGE

> kids.

>

> What do you all think?

>

> (mom to Evan 8.5 mos)

>

>

>

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC and save

> big.

>

>

[Guest guest]

I like the idea of the ribbon specialy it being assymetrical. I though pink

was for breast cancer though. Well some colour combination would be good

though! Maby a darker shade of pink then the pail pink, what do you think? A

nice deep pink with indigo blue? (um im kinda thinking the cotton candy

colour or bubble gum icecream if you want an idea of the pink and blue im

thinking about) Those are good colours

Chantelle

[Guest guest]

I know the March of dimes has pink and blue. To bad so many colors

are uses already!!

Crystal and Eva (11 1/2 month charger)

>

> I like the idea of the ribbon specialy it being assymetrical. I

though pink

> was for breast cancer though. Well some colour combination would

be good

> though! Maby a darker shade of pink then the pail pink, what do

you think? A

> nice deep pink with indigo blue? (um im kinda thinking the cotton

candy

> colour or bubble gum icecream if you want an idea of the pink and

blue im

> thinking about) Those are good colours

>

>

> Chantelle

>

>

>

[Guest guest]

I know the March of dimes has pink and blue. To bad so many colors

are uses already!!

Crystal and Eva (11 1/2 month charger)

>

> I like the idea of the ribbon specialy it being assymetrical. I

though pink

> was for breast cancer though. Well some colour combination would

be good

> though! Maby a darker shade of pink then the pail pink, what do

you think? A

> nice deep pink with indigo blue? (um im kinda thinking the cotton

candy

> colour or bubble gum icecream if you want an idea of the pink and

blue im

> thinking about) Those are good colours

>

>

> Chantelle

>

>

>

[Guest guest]

I know the March of dimes has pink and blue. To bad so many colors

are uses already!!

Crystal and Eva (11 1/2 month charger)

>

> I like the idea of the ribbon specialy it being assymetrical. I

though pink

> was for breast cancer though. Well some colour combination would

be good

> though! Maby a darker shade of pink then the pail pink, what do

you think? A

> nice deep pink with indigo blue? (um im kinda thinking the cotton

candy

> colour or bubble gum icecream if you want an idea of the pink and

blue im

> thinking about) Those are good colours

>

>

> Chantelle

>

>

>

[Guest guest]

I was just looking on line and a purple ribbon is for childern with

disabilities and so is a sliver ribbon what if we put the 2

together??

What do you think??

Crystal and Eva (11 1/2 month old charger)

> >

> > I like the idea of the ribbon specialy it being assymetrical. I

> though pink

> > was for breast cancer though. Well some colour combination would

> be good

> > though! Maby a darker shade of pink then the pail pink, what do

> you think? A

> > nice deep pink with indigo blue? (um im kinda thinking the

cotton

> candy

> > colour or bubble gum icecream if you want an idea of the pink

and

> blue im

> > thinking about) Those are good colours

> >

> >

> > Chantelle

> >

> >

> >

[Guest guest]

I was just looking on line and a purple ribbon is for childern with

disabilities and so is a sliver ribbon what if we put the 2

together??

What do you think??

Crystal and Eva (11 1/2 month old charger)

> >

> > I like the idea of the ribbon specialy it being assymetrical. I

> though pink

> > was for breast cancer though. Well some colour combination would

> be good

> > though! Maby a darker shade of pink then the pail pink, what do

> you think? A

> > nice deep pink with indigo blue? (um im kinda thinking the

cotton

> candy

> > colour or bubble gum icecream if you want an idea of the pink

and

> blue im

> > thinking about) Those are good colours

> >

> >

> > Chantelle

> >

> >

> >

[Guest guest]

that sounds cool

>

> I was just looking on line and a purple ribbon is for childern with

> disabilities and so is a sliver ribbon what if we put the 2

> together??

>

> What do you think??

>

> Crystal and Eva (11 1/2 month old charger)

>

>

> > >

> > > I like the idea of the ribbon specialy it being assymetrical. I

> > though pink

> > > was for breast cancer though. Well some colour combination would

> > be good

> > > though! Maby a darker shade of pink then the pail pink, what do

> > you think? A

> > > nice deep pink with indigo blue? (um im kinda thinking the

> cotton

> > candy

> > > colour or bubble gum icecream if you want an idea of the pink

> and

> > blue im

> > > thinking about) Those are good colours

> > >

> > >

> > > Chantelle

> > >

> > >

> > >

[Guest guest]

that sounds cool

>

> I was just looking on line and a purple ribbon is for childern with

> disabilities and so is a sliver ribbon what if we put the 2

> together??

>

> What do you think??

>

> Crystal and Eva (11 1/2 month old charger)

>

>

> > >

> > > I like the idea of the ribbon specialy it being assymetrical. I

> > though pink

> > > was for breast cancer though. Well some colour combination would

> > be good

> > > though! Maby a darker shade of pink then the pail pink, what do

> > you think? A

> > > nice deep pink with indigo blue? (um im kinda thinking the

> cotton

> > candy

> > > colour or bubble gum icecream if you want an idea of the pink

> and

> > blue im

> > > thinking about) Those are good colours

> > >

> > >

> > > Chantelle

> > >

> > >

> > >

[Guest guest]

that sounds cool

>

> I was just looking on line and a purple ribbon is for childern with

> disabilities and so is a sliver ribbon what if we put the 2

> together??

>

> What do you think??

>

> Crystal and Eva (11 1/2 month old charger)

>

>

> > >

> > > I like the idea of the ribbon specialy it being assymetrical. I

> > though pink

> > > was for breast cancer though. Well some colour combination would

> > be good

> > > though! Maby a darker shade of pink then the pail pink, what do

> > you think? A

> > > nice deep pink with indigo blue? (um im kinda thinking the

> cotton

> > candy

> > > colour or bubble gum icecream if you want an idea of the pink

> and

> > blue im

> > > thinking about) Those are good colours

> > >

> > >

> > > Chantelle

> > >

> > >

> > >

[Guest guest]

OK guys, I like the idea of the pin and all but we have to be careful. The

CHARGE Foundation logo and things bought and sold with it's name on it has to

be passed before the board.

But now hold on, through the Board meeting we had great discussion and

planning by all about fundraising and awareness and how each and every parent

can do

this for their children, and all children everywhere. Dennis O'Toole is

getting plans and things together for just this. For those of you who don't

know

he is a parent of a daughter who has CHARGE, is the Foundation Board Secretary

and is the Chair of the Fundraising committee.

Please wait just a bit and when the time comes all of you will be needed to

do your part in raising awareness and fundraising at the same time. Love you

energy here everyone. That's why you are all the best!

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

OK guys, I like the idea of the pin and all but we have to be careful. The

CHARGE Foundation logo and things bought and sold with it's name on it has to

be passed before the board.

But now hold on, through the Board meeting we had great discussion and

planning by all about fundraising and awareness and how each and every parent

can do

this for their children, and all children everywhere. Dennis O'Toole is

getting plans and things together for just this. For those of you who don't

know

he is a parent of a daughter who has CHARGE, is the Foundation Board Secretary

and is the Chair of the Fundraising committee.

Please wait just a bit and when the time comes all of you will be needed to

do your part in raising awareness and fundraising at the same time. Love you

energy here everyone. That's why you are all the best!

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

OK guys, I like the idea of the pin and all but we have to be careful. The

CHARGE Foundation logo and things bought and sold with it's name on it has to

be passed before the board.

But now hold on, through the Board meeting we had great discussion and

planning by all about fundraising and awareness and how each and every parent

can do

this for their children, and all children everywhere. Dennis O'Toole is

getting plans and things together for just this. For those of you who don't

know

he is a parent of a daughter who has CHARGE, is the Foundation Board Secretary

and is the Chair of the Fundraising committee.

Please wait just a bit and when the time comes all of you will be needed to

do your part in raising awareness and fundraising at the same time. Love you

energy here everyone. That's why you are all the best!

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Bonnie,

I don't think anyone was going ahead with anything to use the CHARGE

Foundation board & logo - people were just tossing about ideas about what a

CHARGE ribbon might look like, etc. I suggested that I thought the pins

from the foundation would be great as is and I actually mentioned asked Kim

(thought she was on the board) if she knew of anyone on the board that might

be pursuing something like this, because I don't think many on the board

read the listserv that much.

>

> OK guys, I like the idea of the pin and all but we have to be

> careful. The

> CHARGE Foundation logo and things bought and sold with it's name on it has

> to

> be passed before the board.

>

> But now hold on, through the Board meeting we had great discussion and

> planning by all about fundraising and awareness and how each and every

> parent can do

> this for their children, and all children everywhere. Dennis O'Toole is

> getting plans and things together for just this. For those of you who

> don't know

> he is a parent of a daughter who has CHARGE, is the Foundation Board

> Secretary

> and is the Chair of the Fundraising committee.

>

> Please wait just a bit and when the time comes all of you will be needed

> to

> do your part in raising awareness and fundraising at the same time. Love

> you

> energy here everyone. That's why you are all the best!

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Bonnie,

I don't think anyone was going ahead with anything to use the CHARGE

Foundation board & logo - people were just tossing about ideas about what a

CHARGE ribbon might look like, etc. I suggested that I thought the pins

from the foundation would be great as is and I actually mentioned asked Kim

(thought she was on the board) if she knew of anyone on the board that might

be pursuing something like this, because I don't think many on the board

read the listserv that much.

>

> OK guys, I like the idea of the pin and all but we have to be

> careful. The

> CHARGE Foundation logo and things bought and sold with it's name on it has

> to

> be passed before the board.

>

> But now hold on, through the Board meeting we had great discussion and

> planning by all about fundraising and awareness and how each and every

> parent can do

> this for their children, and all children everywhere. Dennis O'Toole is

> getting plans and things together for just this. For those of you who

> don't know

> he is a parent of a daughter who has CHARGE, is the Foundation Board

> Secretary

> and is the Chair of the Fundraising committee.

>

> Please wait just a bit and when the time comes all of you will be needed

> to

> do your part in raising awareness and fundraising at the same time. Love

> you

> energy here everyone. That's why you are all the best!

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Hey why dont we just use the pins the charge foundation has? Besides i think

the ribbon is ok, but the pins are really great.

Chantelle

[Guest guest]

Hey why dont we just use the pins the charge foundation has? Besides i think

the ribbon is ok, but the pins are really great.

Chantelle

[Guest guest]

Hey why dont we just use the pins the charge foundation has? Besides i think

the ribbon is ok, but the pins are really great.

Chantelle

[Guest guest]

think bonnies the only baord member that reads heaps lol love u bonnie and

bonne when you read my latest post you will be very proud of me so read

please

>

> Bonnie,

> I don't think anyone was going ahead with anything to use the CHARGE

> Foundation board & logo - people were just tossing about ideas about what

> a

> CHARGE ribbon might look like, etc. I suggested that I thought the pins

> from the foundation would be great as is and I actually mentioned asked

> Kim

> (thought she was on the board) if she knew of anyone on the board that

> might

> be pursuing something like this, because I don't think many on the board

> read the listserv that much.

>

>

>

>

> >

> > OK guys, I like the idea of the pin and all but we have to be

> > careful. The

> > CHARGE Foundation logo and things bought and sold with it's name on it

> has

> > to

> > be passed before the board.

> >

> > But now hold on, through the Board meeting we had great discussion and

> > planning by all about fundraising and awareness and how each and every

> > parent can do

> > this for their children, and all children everywhere. Dennis O'Toole is

> > getting plans and things together for just this. For those of you who

> > don't know

> > he is a parent of a daughter who has CHARGE, is the Foundation Board

> > Secretary

> > and is the Chair of the Fundraising committee.

> >

> > Please wait just a bit and when the time comes all of you will be needed

> > to

> > do your part in raising awareness and fundraising at the same

> time. Love

> > you

> > energy here everyone. That's why you are all the best!

> >

> >

> > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

> >

> >

> >

[Guest guest]

think bonnies the only baord member that reads heaps lol love u bonnie and

bonne when you read my latest post you will be very proud of me so read

please

>

> Bonnie,

> I don't think anyone was going ahead with anything to use the CHARGE

> Foundation board & logo - people were just tossing about ideas about what

> a

> CHARGE ribbon might look like, etc. I suggested that I thought the pins

> from the foundation would be great as is and I actually mentioned asked

> Kim

> (thought she was on the board) if she knew of anyone on the board that

> might

> be pursuing something like this, because I don't think many on the board

> read the listserv that much.

>

>

>

>

> >

> > OK guys, I like the idea of the pin and all but we have to be

> > careful. The

> > CHARGE Foundation logo and things bought and sold with it's name on it

> has

> > to

> > be passed before the board.

> >

> > But now hold on, through the Board meeting we had great discussion and

> > planning by all about fundraising and awareness and how each and every

> > parent can do

> > this for their children, and all children everywhere. Dennis O'Toole is

> > getting plans and things together for just this. For those of you who

> > don't know

> > he is a parent of a daughter who has CHARGE, is the Foundation Board

> > Secretary

> > and is the Chair of the Fundraising committee.

> >

> > Please wait just a bit and when the time comes all of you will be needed

> > to

> > do your part in raising awareness and fundraising at the same

> time. Love

> > you

> > energy here everyone. That's why you are all the best!

> >

> >

> > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

> >

> >

> >

[Guest guest]

think bonnies the only baord member that reads heaps lol love u bonnie and

bonne when you read my latest post you will be very proud of me so read

please

>

> Bonnie,

> I don't think anyone was going ahead with anything to use the CHARGE

> Foundation board & logo - people were just tossing about ideas about what

> a

> CHARGE ribbon might look like, etc. I suggested that I thought the pins

> from the foundation would be great as is and I actually mentioned asked

> Kim

> (thought she was on the board) if she knew of anyone on the board that

> might

> be pursuing something like this, because I don't think many on the board

> read the listserv that much.

>

>

>

>

> >

> > OK guys, I like the idea of the pin and all but we have to be

> > careful. The

> > CHARGE Foundation logo and things bought and sold with it's name on it

> has

> > to

> > be passed before the board.

> >

> > But now hold on, through the Board meeting we had great discussion and

> > planning by all about fundraising and awareness and how each and every

> > parent can do

> > this for their children, and all children everywhere. Dennis O'Toole is

> > getting plans and things together for just this. For those of you who

> > don't know

> > he is a parent of a daughter who has CHARGE, is the Foundation Board

> > Secretary

> > and is the Chair of the Fundraising committee.

> >

> > Please wait just a bit and when the time comes all of you will be needed

> > to

> > do your part in raising awareness and fundraising at the same

> time. Love

> > you

> > energy here everyone. That's why you are all the best!

> >

> >

> > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

> >

> >

> >

[Guest guest]

,

I hope I didn't upset you (or anyone else). That certainly wasn't my

intention. Actually I was just so incredibly happy with the passion everyone

has

here. I know they were just looking at the ribbon but the board has really come

together and we have tons of plans going on. We just need to finalize them to

get things going. I was just saying hold tight, here come great things!

I'm sorry but I thought you knew that I am on the CHARGE Foundation Board. I

am also the chair of the Adult Services Committee. And I am on this list

almost every single day! -That's my OCD. Actually the truth is this list is my

lifeline. There are others on the board who read the list often such as

Marilyn, Susie, n and Meg.

What I was saying is that there are things happening that the board is

working on and with the spirit and energy of everyone involved here we could all

do

great things------ together!

You see, the board has the dream and the passion of bringing it to those who

matter the most that's the families and more importantly our children!

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

,

I hope I didn't upset you (or anyone else). That certainly wasn't my

intention. Actually I was just so incredibly happy with the passion everyone

has

here. I know they were just looking at the ribbon but the board has really come

together and we have tons of plans going on. We just need to finalize them to

get things going. I was just saying hold tight, here come great things!

I'm sorry but I thought you knew that I am on the CHARGE Foundation Board. I

am also the chair of the Adult Services Committee. And I am on this list

almost every single day! -That's my OCD. Actually the truth is this list is my

lifeline. There are others on the board who read the list often such as

Marilyn, Susie, n and Meg.

What I was saying is that there are things happening that the board is

working on and with the spirit and energy of everyone involved here we could all

do

great things------ together!

You see, the board has the dream and the passion of bringing it to those who

matter the most that's the families and more importantly our children!

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to