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Re: new here-BU @ 31 weeks (to Lori)

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Hi Lori -

Congrats on making it to 31 weeks. You are in the home-stretch now!

My name is Jen and I'm also BU and had no problems at all in my pregnancy until

I got to 34 weeks. My daughter was also on my right side so I can completely

relate to feeling lopsided! My labor & delivery were very frightening but my

daughter

Emma Rose is perfectly healthy and almost 2 now. Time flies but the memory of my

birth

experience is still fresh in my mind.

I bled, I think the placenta tore, uterus contracted and she came within a few

hours. I was

lucky to be home and minutes from my hospital and NICU. I had a vaginal birth

with no

drugs (no time, it wasn't by choice) but a retained placenta. So that had to be

removed

surgically after my daughter was born and she was sent to the NICU. After

examination

though they found nothing wrong with the placenta, it was just deep inside me

due to the

shape of the uterus.

I know that sounds scary but we are a success story and I'm actually considering

being

an AMBASSADOR FAMILY (spokesperson) for the March Of DImes in 2005. Emma was

born

weighing 3 lbs/11 oz and spent just ten days in the NICU. She didn't need

breathing

assistance and was only in an incubator for 5 days/ 5 days open crib. I was

nursing her the

next day. She was discharged weighing 3 lbs/13 oz and reached all her milestones

(crawling, walking, talking) as if she were born on her birthday without having

to adjust

her age.

Looking back I should have insisted on being seen more often in those last few

weeks of

my preg.but I wasn't really treated as high-risk. There was just a note in my

chart " MA -

either SU or BU " and I think if I get pregnant again I will insist on more

ultrasounds, a peri

consult and really taking it easy.

My advice would be to take advantage of all that extra care, have them check for

IUGR and do frequent cervix checks. Also, if you feel contractions or have any

bleeding,

even slight, don't be afraid to speak up.

If you have any additional questions just let me know!

Jen D

35

BU

1 dd Emma Rose 12/29/02

>

> Hi there! I was lucky enough to have my BU diagnosed well before I

> even tried to get pregnant. 10 years ago when they first discovered

> it, they really discouraged me from trying to have children at all.

> I am now 34YO and have been seeing a wonderful specialist. He put

> me on modified bedrest from the beginning of the pg, which has

> worked really well so far... I have had few complications, and am at

> 31 weeks now. It has been very scary though, and we have had a ton

> of ultrasounds. I know that we have a very high risk of pre-term

> labor, and was curious to know what other people with BU have

> experienced. My uterus in on the extreme end of this anomaly... the

> dip in the middle of my uterus extends all of the way down the

> middle and actually protrudes into my cervix (almost like having two

> 1/2 size uterus'). The baby (a boy :-) is in the right horn. I am

> actually getting to be quite lop-sided at this point in my pg. and

> it is really noticeable when I am laying down flat. Any stories

> about pre-term labor and what to expect would sure be appreciated.

> It is really hard to relate to my pg. friends who don't face any

> complications. Thanks!

> Lori

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Hi Jen,

Thanks so much for your response to my post. I actually felt very encouraged

after reading your note, and read it to my husband as well. Because of the

severity of the " dip " in my uterus, my specialist has said that I need to have a

c-section. I am fine with that, and am just amazed to have made it this far! I

am curious Jen, and feel free not to answer if this is too personal, did you

decide not to have anymore children? We have it pretty set in our minds that we

won't try again if this little one arrives safe and sound. I am not complaining

b/c I realize how lucky I am to have made it this far, but it has been a really

LONG haul being on modified bedrest for 8 months. I know it sounds easy, but I

am usually such an active person and I had to take a medical leave from my job.

We have also had our share of " scares " throughout this journey which have turned

out fine, but have added to the stress. It has felt like I've been on an

emotional roller coaster- especially as the baby gets closer and closer to

becoming a reality, because I can't imagine how I would handle it if things

didn't work out now (we don't really usually even go there- too upsetting). Re:

having another baby, I don't know how I would stay on bedrest and look after

another little one, either. Plus I feel that with my age creeping up on me, and

all of the complications of BU, we just don't know if trying again would be the

right choice for us. We really feel that we would be so blessed just to have

one happy, healthy baby.

I'm going for a detailed ultrasound on the 15th to check the growth of the baby

and to make sure that he is developing well within his percentile range. I have

had around 20 scans so far in this pg., and they have checked my cervix at every

single one. We had a few scares earlier on when I went to a less competent

hospital and they misread the length of my cervix (it is hard to read b/c my

" dip " protrudes right into the top of my cervix, making it look like there are

two cervixes from certain angles). They were ready to do a cerclage and

everything, and when I had my cervix checked at BC Women's hospital, they found

that it was completely fine.

Did you have any symptoms prior to going into labor? The hospital that I'm

going to give birth in is around 1/2 hour away, so I'm nervous about getting

there (and the winter weather is making me even more nervous). We don't

normally get a lot of snow, but it has snowed twice already this year (not alot,

but enough), and the road between here and the hospital can be a treacherous

one. I'm also curious to know if you had any pain in your vaginal region toward

the end (sorry if TMI). I find that I get a really uncomfortable kind of

cramping feeling " down there, " particularly when I walk around. I asked my

specialist about it last week, and he said something about nerve endings and all

of the pressure on that region. He said my cervix looks fine, so not to worry,

but it does seem to be getting worse-- more frequent and even when I'm sitting.

Going to the bathroom doesn't seem to make a difference. Maybe it's just part

of pregnancy, but it's all new to me.

Thanks again for your response! I would love to hear from you again. Lori

Re: new here-BU @ 31 weeks (to Lori)

Hi Lori -

Congrats on making it to 31 weeks. You are in the home-stretch now!

My name is Jen and I'm also BU and had no problems at all in my pregnancy

until

I got to 34 weeks. My daughter was also on my right side so I can completely

relate to feeling lopsided! My labor & delivery were very frightening but my

daughter

Emma Rose is perfectly healthy and almost 2 now. Time flies but the memory of

my birth

experience is still fresh in my mind.

I bled, I think the placenta tore, uterus contracted and she came within a few

hours. I was

lucky to be home and minutes from my hospital and NICU. I had a vaginal birth

with no

drugs (no time, it wasn't by choice) but a retained placenta. So that had to

be removed

surgically after my daughter was born and she was sent to the NICU. After

examination

though they found nothing wrong with the placenta, it was just deep inside me

due to the

shape of the uterus.

I know that sounds scary but we are a success story and I'm actually

considering being

an AMBASSADOR FAMILY (spokesperson) for the March Of DImes in 2005. Emma was

born

weighing 3 lbs/11 oz and spent just ten days in the NICU. She didn't need

breathing

assistance and was only in an incubator for 5 days/ 5 days open crib. I was

nursing her the

next day. She was discharged weighing 3 lbs/13 oz and reached all her

milestones

(crawling, walking, talking) as if she were born on her birthday without

having to adjust

her age.

Looking back I should have insisted on being seen more often in those last few

weeks of

my preg.but I wasn't really treated as high-risk. There was just a note in my

chart " MA -

either SU or BU " and I think if I get pregnant again I will insist on more

ultrasounds, a peri

consult and really taking it easy.

My advice would be to take advantage of all that extra care, have them check

for

IUGR and do frequent cervix checks. Also, if you feel contractions or have any

bleeding,

even slight, don't be afraid to speak up.

If you have any additional questions just let me know!

Jen D

35

BU

1 dd Emma Rose 12/29/02

>

> Hi there! I was lucky enough to have my BU diagnosed well before I

> even tried to get pregnant. 10 years ago when they first discovered

> it, they really discouraged me from trying to have children at all.

> I am now 34YO and have been seeing a wonderful specialist. He put

> me on modified bedrest from the beginning of the pg, which has

> worked really well so far... I have had few complications, and am at

> 31 weeks now. It has been very scary though, and we have had a ton

> of ultrasounds. I know that we have a very high risk of pre-term

> labor, and was curious to know what other people with BU have

> experienced. My uterus in on the extreme end of this anomaly... the

> dip in the middle of my uterus extends all of the way down the

> middle and actually protrudes into my cervix (almost like having two

> 1/2 size uterus'). The baby (a boy :-) is in the right horn. I am

> actually getting to be quite lop-sided at this point in my pg. and

> it is really noticeable when I am laying down flat. Any stories

> about pre-term labor and what to expect would sure be appreciated.

> It is really hard to relate to my pg. friends who don't face any

> complications. Thanks!

> Lori

Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/

Share files:

http://groups.yahoo.com/group/MullerianAnomalies/files/

The Congenital Uterine Anomalies Home Page:

http://www.wegrokit.com/uterineanomalies/

es/

The Congenital Uterine Anomalies Home Page:

http://www.wegrokit.com/uterineanomalies/

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Hi Lori -

I am glad that you felt better after reading my post.

I think that many women have had c-sections with MAs due to the position of the

baby.

I just passed an article onto a friend that said " C-sections in 2003 were at a

rate of 27% of

all live births, the highest # ever in the U.S. " She wants to have a VBAC but

isn't sure what

the doc's policy is.

Anyway, I would be grateful that you've received so much extra care, I

didn't realize that you were on modified bed-rest for 8 months. I know that must

have

been challenging but its so important for women who are high risk to be seen

more often.

I also think that in a first pregnancy you really need assurance that what you

are feeling is

OK. There are so many aches & pains that its sometimes tough to

distinguish it. I certainly didn't know I was in labor when I bled at 34 weeks

but I was.

Without the heart beat monitor & cervical check at the hospital I might not have

known

and my baby came so fast after that. My water broke there and Emma arrived 3

hours

later.

I can't really say if the pain you are feeling is normal. Do you feel like

perhaps the baby is

moving further down the birth canal? Discomfort unfortunately is normal near

the end. I

had that round ligament pain that felt like pulled muscles but that was about

it. So I had

no real pre-term labor symptoms except the bleeding that I was in labor at 34

weeks. It

had been almost 2 weeks since I had been to the OB due to the Christmas holiday

and my

appt. was 2 days after I delivered her. I think if I was seen weekly they might

have caught

it but who knows, I can't change the past.

But my advice would be to really call or go in if you think its labor pains or

if there is any

bleeding. The fact that your cervix is closed is good but don't be afraid to

call if anything

changes. I'm sure you'll find out lots more at your detailed ultrasound next

week.

The only bit of info that I left out was that this year (June 2004) I had a

lap/hyst surgery in

Cincinnati (where we live now) to determine my " true shape " . I had MRIs and U/s

scans but

a NY doc (my reproductive endocrinologist) thought I was SU and I was in his

care when I

was pregnant and delivered in Syracuse so that's the label I got (SU). So even

an

experienced

RE in NY thought I was SU although I'm BU which we discovered in the lap/hyst.

My current

doc said that the retained placenta was a big clue that I was likely BU. The

procedure went

well, they did nothing to correct it since research shows its best to leave a BU

alone and I

was back to my old self in 3 days. So I believe that for those unsure of their

true shape,

the lap/hyst is really the gold standard & best procedure to really know your MA

& correct

it if necessary.

Onto your question about other children....well I'm not sure. We also aren't

getting

any younger and feel quite blessed to have Emma who is really healthy. We have a

web site

we created when she was born and I'll enclose the link

http://www.mindspring.com/~brennand/emma/

We'll update it again after she turns 2 .

My current OB (who has 4 kids) knows that I'm an information junkie about MAs

now and

he reminded me that BU women often have positive outcomes. He believes that I

have a

good chance of going further than 34 weeks if I get pg. again and with close

monitoring

I'd probably do well. He also said that we now have Emma as an example of what

happened, we see she's healthy and we know what to look for.

I " ll keep you posted.

Emma's up from a nap so I must go but feel free to write me more

here or to my email.

Bye for now.

Hang in there!!!!

Jen Donnellan

35

BU

1 dd Emma 12/29/02

> >

> > Hi there! I was lucky enough to have my BU diagnosed well before I

> > even tried to get pregnant. 10 years ago when they first discovered

> > it, they really discouraged me from trying to have children at all.

> > I am now 34YO and have been seeing a wonderful specialist. He put

> > me on modified bedrest from the beginning of the pg, which has

> > worked really well so far... I have had few complications, and am at

> > 31 weeks now. It has been very scary though, and we have had a ton

> > of ultrasounds. I know that we have a very high risk of pre-term

> > labor, and was curious to know what other people with BU have

> > experienced. My uterus in on the extreme end of this anomaly... the

> > dip in the middle of my uterus extends all of the way down the

> > middle and actually protrudes into my cervix (almost like having two

> > 1/2 size uterus'). The baby (a boy :-) is in the right horn. I am

> > actually getting to be quite lop-sided at this point in my pg. and

> > it is really noticeable when I am laying down flat. Any stories

> > about pre-term labor and what to expect would sure be appreciated.

> > It is really hard to relate to my pg. friends who don't face any

> > complications. Thanks!

> > Lori

>

>

>

>

>

> Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/

>

> Share files:

> http://groups.yahoo.com/group/MullerianAnomalies/files/

>

> The Congenital Uterine Anomalies Home Page:

> http://www.wegrokit.com/uterineanomalies/

>

>

>

> es/

>

> The Congenital Uterine Anomalies Home Page:

> http://www.wegrokit.com/uterineanomalies/

>

>

>

>

>

>

>

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