Question about Phenobarbitol and Keto Diet

[Guest guest]

Logan started on Phenobarb on Jan 12th as a " temporary med " until

things calmed dowm. (dose is 30mg AM and 45 mg HS) He has very little

energy and is very tired all the time. Does anyone have experience

with this med and the diet? weaning info? or anything would help me.

Thanks so much.

Laurie Mom to Logan 2

[Guest guest]

Dear Laurie,

I can only speak about my experiences with Phenobarb, during my childhood,

though in the context of no being on the diet.

I was introduced to it around the age 6yrs and by age 8yrs I was taking 60mg 3

times daily, along with Tegretol and Epinutin. From what you've explained in

your email I would say it's the Phenobarb that's causing any fatigue, even lack

of concentration too, so my parents were always reminded about, from my

school.

In the UK patient's are rarely put on Phenobarb, except in extreme need, due

to the addictive properties it can have. When I came off Phenobarb it was

replaced by Epilim (Sodium Valproate) and have had no ill effects over the past

23 years.

I hope the find a more suitable med for Logan and soon,

Best wishes,

Phil

Question about Phenobarbital and Keto Diet

Logan started on Phenobarb on Jan 12th as a " temporary med " until

things calmed dowm. (dose is 30mg AM and 45 mg HS) He has very little

energy and is very tired all the time. Does anyone have experience

with this med and the diet? weaning info? or anything would help me.

Thanks so much.

Laurie Mom to Logan 2

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[Guest guest]

Its generally reduced immediatley upon starting the diet cuz its so easy

to go toxic on it on the diet. I would say reduce the pheno or reduce

the ratio a little

peteymedic1 wrote:

> Logan started on Phenobarb on Jan 12th as a " temporary med " until

> things calmed dowm. (dose is 30mg AM and 45 mg HS) He has very little

> energy and is very tired all the time. Does anyone have experience

> with this med and the diet? weaning info? or anything would help me.

> Thanks so much.

> Laurie Mom to Logan 2

>

[Guest guest]

We just started the diet on January 7. Our daughter was taking

75mg of Phenobarbital at bed time. It was immediately reduced

by half while in the hospital. She is now taking 32.4mg at bed

time. We were told that reducing it by half that her bodyworuldn't

even notice the redution. The only time we had problems

(behavioral) were when he was on too high of a dose. She has

been on it since she was 10.5 months old. We did not start

seeong developmental delays unyil she was 2.3 years old and

have tried to get her off of this med since then. She is now 4.3

months old.

Good Luck.

>

> > Logan started on Phenobarb on Jan 12th as a " temporary

med " until

> > things calmed dowm. (dose is 30mg AM and 45 mg HS) He

has very little

> > energy and is very tired all the time. Does anyone have

experience

> > with this med and the diet? weaning info? or anything would

help me.

> > Thanks so much.

> > Laurie Mom to Logan 2

> >

>

>

>

[Guest guest]

We just started the diet on January 7. Our daughter was taking

75mg of Phenobarbital at bed time. It was immediately reduced

by half while in the hospital. She is now taking 32.4mg at bed

time. We were told that reducing it by half that her bodyworuldn't

even notice the redution. The only time we had problems

(behavioral) were when he was on too high of a dose. She has

been on it since she was 10.5 months old. We did not start

seeong developmental delays unyil she was 2.3 years old and

have tried to get her off of this med since then. She is now 4.3

months old.

Good Luck.

>

> > Logan started on Phenobarb on Jan 12th as a " temporary

med " until

> > things calmed dowm. (dose is 30mg AM and 45 mg HS) He

has very little

> > energy and is very tired all the time. Does anyone have

experience

> > with this med and the diet? weaning info? or anything would

help me.

> > Thanks so much.

> > Laurie Mom to Logan 2

> >

>

>

>