Re: Rising Thyroglobulin/Normal Body scan

January 10, 2003

> Has anyone else had the experience of their thyroglobulin level

> rising but the body scan being normal?

> sarrob2002

Hi sarrob2002,

Yes, I'm having that experience now. My first scan was clean and

my Tg was 4. My endo said the Tg was too low to do anything

about, so we went for watch and wait. I posted to the group at

that time and learned several others were in the same boat. It

seems at low Tgs, the odds of RAI working are not as good.

My second scan (which was a month ago) was clean again and

my Tg was 5.6. At this point, the endo wants to do another RAI.

He says that in a bit more than half the people in this situation,

an RAI treatment dose will show something on the

post-treatment scan. Dr Ain (who sometimes posts here) says

the same thing.

If nothing shows up on the scan after the treatment, it'll mean RAI

no longer works on my thyca. Plan B will be surgery. If surgery is

not possible, then there's always external beam radiation. So

there are options here.

How high is your Tg?

Best wishes,

--Carmen in nyc

10/00 TT, pap thyca

11/00 RAI, 100 mCi

12/01 Tg 4, scan clean

12/02 Tg 5.4, scan clean

January 10, 2003

> > Has anyone else had the experience of their thyroglobulin

level

> > rising but the body scan being normal?

> > sarrob2002

>

> Hi sarrob2002,

> Yes, I'm having that experience now. My first scan was clean

and

> my Tg was 4. My endo said the Tg was too low to do anything

> about, so we went for watch and wait. I posted to the group at

> that time and learned several others were in the same boat. It

> seems at low Tgs, the odds of RAI working are not as good.

>

> My second scan (which was a month ago) was clean again

and

> my Tg was 5.6. At this point, the endo wants to do another RAI.

>

> He says that in a bit more than half the people in this situation,

> an RAI treatment dose will show something on the

> post-treatment scan. Dr Ain (who sometimes posts here) says

> the same thing.

>

> If nothing shows up on the scan after the treatment, it'll mean

RAI

> no longer works on my thyca. Plan B will be surgery. If surgery

is

> not possible, then there's always external beam radiation. So

> there are options here.

> How high is your Tg?

>

> Best wishes,

> --Carmen in nyc

> 10/00 TT, pap thyca

> 11/00 RAI, 100 mCi

> 12/01 Tg 4, scan clean

> 12/02 Tg 5.4, scan clean

January 10, 2003

> > Has anyone else had the experience of their thyroglobulin

level

> > rising but the body scan being normal?

> > sarrob2002

>

> Hi sarrob2002,

> Yes, I'm having that experience now. My first scan was clean

and

> my Tg was 4. My endo said the Tg was too low to do anything

> about, so we went for watch and wait. I posted to the group at

> that time and learned several others were in the same boat. It

> seems at low Tgs, the odds of RAI working are not as good.

>

> My second scan (which was a month ago) was clean again

and

> my Tg was 5.6. At this point, the endo wants to do another RAI.

>

> He says that in a bit more than half the people in this situation,

> an RAI treatment dose will show something on the

> post-treatment scan. Dr Ain (who sometimes posts here) says

> the same thing.

>

> If nothing shows up on the scan after the treatment, it'll mean

RAI

> no longer works on my thyca. Plan B will be surgery. If surgery

is

> not possible, then there's always external beam radiation. So

> there are options here.

> How high is your Tg?

>

> Best wishes,

> --Carmen in nyc

> 10/00 TT, pap thyca

> 11/00 RAI, 100 mCi

> 12/01 Tg 4, scan clean

> 12/02 Tg 5.4, scan clean

January 10, 2003

Hi Sarrob 2002,

Count me in also. TT with mets to 2 possibly 3 lymph nodes to right side of

neck this was April of '01, then 150 mci RAI. My first year hypo f/u was scan

negative and tg was 69. My endo sent me over 2 hours away to a thyroid cancer

specialist who found 2 mal. lymph nodes out of four that he biopsied. One on

each side of my neck. So in October I had a bilateral modified lymph node

dissection. I see the thyca specialist in 6 days for follow up testing. In

's archives are stored lots if info on this same subject. But I am not

computer literate to find them for you. where are you????? Has this

happened to you?

Take care,

Laurel

Rising Thyroglobulin/Normal Body scan

Has anyone else had the experience of their thyroglobulin level

rising but the body scan being normal?

sarrob2002

January 10, 2003