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Dear Group, the below letter with questions is from someone from the SD

Digest who is considering AP. I thought perhaps the lupus/SDers might

also answer these questions for her so she has more responses of the

treatment than just me. Many thanks in advance. Love,

Thanks for your info. I am considering this although don't know for sure.

I am coming off steroids right now and on metho and doc is considering

Cytoxan. Not sure what I want to do. First things first and I want OFF

steroids. I hate them. I think a big portion of my problems right now stem

from steroids. I have a huge hump on my back of my neck and upper back

which makes it so it is hard to move. My chest and neck are tight as is my

upper arms and back. It is getting some what better in decreasing steroids.

I wondered about a few things.

First here are some questions

1. do you have lupus? SD? what?

2. What did you try before AP?

3. Did anything help?

4. What AP did you get with Sinnot? IV? Trouble with starting IV?

5. I had to have a central line in when I was in hospital before.

6. What diet and supplements are we talking? Don't tell me you take Zinc???

It says NOT to even on the bottle. I had problems too. Cannot take Vitamin

C either.

7. Did you do hospital with Sinnott? What is the hospital like?

8. How soon did you notice effects from AP, bad or good?

9. Skin thickening??? What happened how soon?

10. Did you get sick with AP?

11. Did you labs change with AP?

12. Did you have breathng troubles?

Thanks for your time.

in St. Louis

7.

Your query

>Hello, in St. Louis, Sharon (Campy) wrote to me saying you had

>questinons about Dr. Sinnott. I am so relieved to hear that you are

>ready to look into the antibiotic protocol. Many, many of the APers

>have MCTD - scleroderma and lupus and other things so this should not

>defer you from seeking the treatment. As a matter of fact, it should, in

>my own opinion, rush you on in looking for something to halt this deadly

>disease. I went to Dr. Sinnott for almost a year and a half. He is in

>a small, small town in Ida Grove, Iowa and is by far the most

>experienced of them around, having been trained personally by Dr. Brown,

>the founder of the Antibiotic Protocol (AP) himself. He is somewhat

>reticent, which means you must be the aggressor in asking questions as

>he is shy. If you go prepared with a long, long list of questions, he

>will take all the time in the world to answer them. It is just that

>unless you ask, he does not come forth with a lot of information. He is

>not very up to date on the supplements but you can get that information

>from the rest of us who are. He has been my own personal security

>blanket for a long time and I wholeheartedly recommend him. That having

>been said, I may be in the process of switching to a different doctor!

>My mother is elderly and not well and lives south. Each time I travel

>east from Montana, I feel that I am taking the money away from spending

>time with my mother who won't be around that much longer. I just

>returned from south doing a double whammy visit with my mother and also

>accompanying a friend of mine with sclerod erma to a new doctor I had

>heard about who is not as experienced in treating the lupus/scleroderma

>but does integrative medicine, meaning he combines the AP, diet and

>supplements. I found his diet to be very wanting. The diet for us at

>our support site at www.rheumatic.org is by far much better but I figure

>he will learn! But I have never seen such an aggressive, forthcoming

>and forthright doctor who is as knowledgeable about the supplements as

>he is. Right off the bat, he told me I must take colostrum - which I

>already have done so for 1 1/2 years - and other supplements which I was

>already taking. Then he added several more. In addition, I am also

>doing chelation and hydrogen peroxide ivs along with the clindamycin

>iv's. Were you to make an appointment with this doctor, Dr. DeWet in

>Tyler, TExas, it would mean you would probably have to go and stay for

>about 2 1/2 months to get a lot of this done. His testing is also more

>throrough in that he tests for paracites, metals, fungases, allergens

>etc. and this is all time consuming. Were I you, I probably would go to

>Sinnott and get started with him for a year and a half and then switch

>after I had hit the disease hard and gotten a foothold in the door.

>Like I said, this decision is not an easy one but my Mother is pushing

>me to come her way each time and that is a very important selling

>point. I might leave Sinnott for a while and spend that time with

>Mother until.... If you are serious about doing this, just email me

>your questions as I don't know the ones you want to or need to know. I

>will be more than happy to share with you anything that I can. But you

>also need to go buy that book I have mentioned before: SCLERODERMA; THE

>PROVEN TREATMENT THAT CAN CURE YOU (or something like that) by Henry

>Scammell and also THE NEW ARTHRITIS BREAKTHROUGH by Henry Scammell and

>Dr. McPhearson Brown. This latter book has a chapter dedicated

>to Dr. Sinnott in it. Both of this books are informative and will spur

>you on and explain that there does come a point of no return and that

>while you might buy more time, you might not can reach remission. These

>books are able to be ordered at and Noble if you don't have a

>bookstore with one in stock. Best of luck to you and I look forward to

>hearing from you. Love, Fain

>

>