Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Good day, I am new in this group and I am from South Africa. My best friend,you can call her my sister had a beautifull baby girl on the 4th of January. Minutes after she was born they discovered she had a breathing problem,only to find out she had obstruction in the nose and needed an operation,my friend was devastated,how could something so right turn into something so wrong? 3 weeks later Cherise was still not doing well,she had infection on her lungs,only to find out after the third operation she had incomplete tissue development between the stomach and the lungs,whereafter she got a trache and a tube to the stomach,it is so painfull to see this,she looks so healthy from the outside,then the doctors realised she could have CHARGE.In South Africa the doctors dont know much about this,as this was our first time as well,weve heard of anything like this.Her eyes was tested and there is no problems. Every time my friend went to see Cherise something else was wrong:there also seemed to have been a problem with the heart:the one artery did not close properly,but the doctors at this stage thinks it is minor.Yesterday the reconed she has a growth problem as her weight is tghe same as a new born.It is like these doctors in South Africa gave up hope on this precious little gift from God.I took CHARGE and started searching the web,there is not much,but luckily I found this site and is so pleased that we are not alone.All my friend wants at this stage is for her baby to get better so she can take her home and nurse her there. Can somebody please give us advice and information we are desperate. Thank you kindly. Quote Link to comment Share on other sites More sharing options...
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