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,

although the results are probably a bit alarming, it must help to have a

proper and accurate diagnosis to help you explain your fatigue, etc. and to help

you get what you need to remedy the situation.

Thanks for sharing!

Nieder wrote:

Hello everyone,

Been meaning to let people know what happened with my sleep study. Just been

super busy with midterms!

I had the test two weeks ago. The doctor was kind enough to bring the

machine over to my apartment. Had to have this belt like thing around my

waist, things monitoring my breathing through my nostrils and a clip on my

finger to monitory my oxygen levels.

I got the results last week and it is definitely sleep apnea. I stop

breathing an average of 12 times per hour at an average of 60 seconds at a

time. This is certainly why I'm always so tired, low energy, and bad

concentration. We are just waiting for a formal report from a resporologist

and then going to apply to the gov. for funding for a CPAP machine. I am

quite looking forward to trying it and hopefully having a good night sleep

for a change!!!

So thats the results. Im just glad I know what I am dealing with now!

Nieder

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca or email

info@... .

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

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,

although the results are probably a bit alarming, it must help to have a

proper and accurate diagnosis to help you explain your fatigue, etc. and to help

you get what you need to remedy the situation.

Thanks for sharing!

Nieder wrote:

Hello everyone,

Been meaning to let people know what happened with my sleep study. Just been

super busy with midterms!

I had the test two weeks ago. The doctor was kind enough to bring the

machine over to my apartment. Had to have this belt like thing around my

waist, things monitoring my breathing through my nostrils and a clip on my

finger to monitory my oxygen levels.

I got the results last week and it is definitely sleep apnea. I stop

breathing an average of 12 times per hour at an average of 60 seconds at a

time. This is certainly why I'm always so tired, low energy, and bad

concentration. We are just waiting for a formal report from a resporologist

and then going to apply to the gov. for funding for a CPAP machine. I am

quite looking forward to trying it and hopefully having a good night sleep

for a change!!!

So thats the results. Im just glad I know what I am dealing with now!

Nieder

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca or email

info@... .

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

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i might need cpap again to hugs to you ellen

>

> ,

> although the results are probably a bit alarming, it must help to have a

> proper and accurate diagnosis to help you explain your fatigue, etc. and to

> help you get what you need to remedy the situation.

> Thanks for sharing!

>

>

> Nieder wrote:

> Hello everyone,

>

> Been meaning to let people know what happened with my sleep study. Just

> been

> super busy with midterms!

>

> I had the test two weeks ago. The doctor was kind enough to bring the

> machine over to my apartment. Had to have this belt like thing around my

> waist, things monitoring my breathing through my nostrils and a clip on my

> finger to monitory my oxygen levels.

>

> I got the results last week and it is definitely sleep apnea. I stop

> breathing an average of 12 times per hour at an average of 60 seconds at a

> time. This is certainly why I'm always so tired, low energy, and bad

> concentration. We are just waiting for a formal report from a

> resporologist

> and then going to apply to the gov. for funding for a CPAP machine. I am

> quite looking forward to trying it and hopefully having a good night sleep

> for a change!!!

>

> So thats the results. Im just glad I know what I am dealing with now!

>

> Nieder

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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im sure if my doc put everything together would find that i have

sleep apnea and need a sleep study. However she is notorious for

dragging her heals. *sigh*. My councellor is going to call her today

to get the odsp thing and tell her i need some perscriptions and not

to wait for the psyc eval. My councellor susspects i may have bi-

poler wich makes sence to me. Some times i can be hyper like im high

over the moon and i can be depressed like i hate the world.

I have to restart the odsp thing again, but this time my concellor

is going with me for ALL appointments and we are going to use the

old forms that my doc filled out.

At least this time... i have ALL the stuff odsp needs and all i need

is the doctor's forms. Also the pluss side is I have a temporary

drug card so i can get my medications. So its gonna be Alesse,

heartburn stuff, some sort of antidepressent, actonel for bone

density and who knows what elce.

Anyways. I appologise for yesterday. I was depressed again. Im

somewhat hyper today. I lack the energy though.

Chantelle

>

> Hello everyone,

>

> Been meaning to let people know what happened with my sleep study.

Just been

> super busy with midterms!

>

> I had the test two weeks ago. The doctor was kind enough to bring

the

> machine over to my apartment. Had to have this belt like thing

around my

> waist, things monitoring my breathing through my nostrils and a

clip on my

> finger to monitory my oxygen levels.

>

> I got the results last week and it is definitely sleep apnea. I

stop

> breathing an average of 12 times per hour at an average of 60

seconds at a

> time. This is certainly why I'm always so tired, low energy, and

bad

> concentration. We are just waiting for a formal report from a

resporologist

> and then going to apply to the gov. for funding for a CPAP

machine. I am

> quite looking forward to trying it and hopefully having a good

night sleep

> for a change!!!

>

> So thats the results. Im just glad I know what I am dealing with

now!

>

> Nieder

>

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im sure if my doc put everything together would find that i have

sleep apnea and need a sleep study. However she is notorious for

dragging her heals. *sigh*. My councellor is going to call her today

to get the odsp thing and tell her i need some perscriptions and not

to wait for the psyc eval. My councellor susspects i may have bi-

poler wich makes sence to me. Some times i can be hyper like im high

over the moon and i can be depressed like i hate the world.

I have to restart the odsp thing again, but this time my concellor

is going with me for ALL appointments and we are going to use the

old forms that my doc filled out.

At least this time... i have ALL the stuff odsp needs and all i need

is the doctor's forms. Also the pluss side is I have a temporary

drug card so i can get my medications. So its gonna be Alesse,

heartburn stuff, some sort of antidepressent, actonel for bone

density and who knows what elce.

Anyways. I appologise for yesterday. I was depressed again. Im

somewhat hyper today. I lack the energy though.

Chantelle

>

> Hello everyone,

>

> Been meaning to let people know what happened with my sleep study.

Just been

> super busy with midterms!

>

> I had the test two weeks ago. The doctor was kind enough to bring

the

> machine over to my apartment. Had to have this belt like thing

around my

> waist, things monitoring my breathing through my nostrils and a

clip on my

> finger to monitory my oxygen levels.

>

> I got the results last week and it is definitely sleep apnea. I

stop

> breathing an average of 12 times per hour at an average of 60

seconds at a

> time. This is certainly why I'm always so tired, low energy, and

bad

> concentration. We are just waiting for a formal report from a

resporologist

> and then going to apply to the gov. for funding for a CPAP

machine. I am

> quite looking forward to trying it and hopefully having a good

night sleep

> for a change!!!

>

> So thats the results. Im just glad I know what I am dealing with

now!

>

> Nieder

>

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im kinda lackign in engergy but then that could be coz my nose is bloced oh

well

>

> im sure if my doc put everything together would find that i have

> sleep apnea and need a sleep study. However she is notorious for

> dragging her heals. *sigh*. My councellor is going to call her today

> to get the odsp thing and tell her i need some perscriptions and not

> to wait for the psyc eval. My councellor susspects i may have bi-

> poler wich makes sence to me. Some times i can be hyper like im high

> over the moon and i can be depressed like i hate the world.

>

> I have to restart the odsp thing again, but this time my concellor

> is going with me for ALL appointments and we are going to use the

> old forms that my doc filled out.

>

> At least this time... i have ALL the stuff odsp needs and all i need

> is the doctor's forms. Also the pluss side is I have a temporary

> drug card so i can get my medications. So its gonna be Alesse,

> heartburn stuff, some sort of antidepressent, actonel for bone

> density and who knows what elce.

>

> Anyways. I appologise for yesterday. I was depressed again. Im

> somewhat hyper today. I lack the energy though.

>

> Chantelle

>

>

>

>

> >

> > Hello everyone,

> >

> > Been meaning to let people know what happened with my sleep study.

> Just been

> > super busy with midterms!

> >

> > I had the test two weeks ago. The doctor was kind enough to bring

> the

> > machine over to my apartment. Had to have this belt like thing

> around my

> > waist, things monitoring my breathing through my nostrils and a

> clip on my

> > finger to monitory my oxygen levels.

> >

> > I got the results last week and it is definitely sleep apnea. I

> stop

> > breathing an average of 12 times per hour at an average of 60

> seconds at a

> > time. This is certainly why I'm always so tired, low energy, and

> bad

> > concentration. We are just waiting for a formal report from a

> resporologist

> > and then going to apply to the gov. for funding for a CPAP

> machine. I am

> > quite looking forward to trying it and hopefully having a good

> night sleep

> > for a change!!!

> >

> > So thats the results. Im just glad I know what I am dealing with

> now!

> >

> > Nieder

> >

>

>

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Share on other sites

im kinda lackign in engergy but then that could be coz my nose is bloced oh

well

>

> im sure if my doc put everything together would find that i have

> sleep apnea and need a sleep study. However she is notorious for

> dragging her heals. *sigh*. My councellor is going to call her today

> to get the odsp thing and tell her i need some perscriptions and not

> to wait for the psyc eval. My councellor susspects i may have bi-

> poler wich makes sence to me. Some times i can be hyper like im high

> over the moon and i can be depressed like i hate the world.

>

> I have to restart the odsp thing again, but this time my concellor

> is going with me for ALL appointments and we are going to use the

> old forms that my doc filled out.

>

> At least this time... i have ALL the stuff odsp needs and all i need

> is the doctor's forms. Also the pluss side is I have a temporary

> drug card so i can get my medications. So its gonna be Alesse,

> heartburn stuff, some sort of antidepressent, actonel for bone

> density and who knows what elce.

>

> Anyways. I appologise for yesterday. I was depressed again. Im

> somewhat hyper today. I lack the energy though.

>

> Chantelle

>

>

>

>

> >

> > Hello everyone,

> >

> > Been meaning to let people know what happened with my sleep study.

> Just been

> > super busy with midterms!

> >

> > I had the test two weeks ago. The doctor was kind enough to bring

> the

> > machine over to my apartment. Had to have this belt like thing

> around my

> > waist, things monitoring my breathing through my nostrils and a

> clip on my

> > finger to monitory my oxygen levels.

> >

> > I got the results last week and it is definitely sleep apnea. I

> stop

> > breathing an average of 12 times per hour at an average of 60

> seconds at a

> > time. This is certainly why I'm always so tired, low energy, and

> bad

> > concentration. We are just waiting for a formal report from a

> resporologist

> > and then going to apply to the gov. for funding for a CPAP

> machine. I am

> > quite looking forward to trying it and hopefully having a good

> night sleep

> > for a change!!!

> >

> > So thats the results. Im just glad I know what I am dealing with

> now!

> >

> > Nieder

> >

>

>

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Share on other sites

Chantelle,

If you do have bipolar, antidepressants without a mood stabilizer can

trigger the mania - they need to pay close attention.

Kim

> im sure if my doc put everything together would find that i have

> sleep apnea and need a sleep study. However she is notorious for

> dragging her heals. *sigh*. My councellor is going to call her today

> to get the odsp thing and tell her i need some perscriptions and not

> to wait for the psyc eval. My councellor susspects i may have bi-

> poler wich makes sence to me. Some times i can be hyper like im high

> over the moon and i can be depressed like i hate the world.

>

> I have to restart the odsp thing again, but this time my concellor

> is going with me for ALL appointments and we are going to use the

> old forms that my doc filled out.

>

> At least this time... i have ALL the stuff odsp needs and all i need

> is the doctor's forms. Also the pluss side is I have a temporary

> drug card so i can get my medications. So its gonna be Alesse,

> heartburn stuff, some sort of antidepressent, actonel for bone

> density and who knows what elce.

>

> Anyways. I appologise for yesterday. I was depressed again. Im

> somewhat hyper today. I lack the energy though.

>

> Chantelle

>

>

>

>

>>

>> Hello everyone,

>>

>> Been meaning to let people know what happened with my sleep study.

> Just been

>> super busy with midterms!

>>

>> I had the test two weeks ago. The doctor was kind enough to bring

> the

>> machine over to my apartment. Had to have this belt like thing

> around my

>> waist, things monitoring my breathing through my nostrils and a

> clip on my

>> finger to monitory my oxygen levels.

>>

>> I got the results last week and it is definitely sleep apnea. I

> stop

>> breathing an average of 12 times per hour at an average of 60

> seconds at a

>> time. This is certainly why I'm always so tired, low energy, and

> bad

>> concentration. We are just waiting for a formal report from a

> resporologist

>> and then going to apply to the gov. for funding for a CPAP

> machine. I am

>> quite looking forward to trying it and hopefully having a good

> night sleep

>> for a change!!!

>>

>> So thats the results. Im just glad I know what I am dealing with

> now!

>>

>> Nieder

>>

>

>

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or email

> info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Share on other sites

Chantelle,

If you do have bipolar, antidepressants without a mood stabilizer can

trigger the mania - they need to pay close attention.

Kim

> im sure if my doc put everything together would find that i have

> sleep apnea and need a sleep study. However she is notorious for

> dragging her heals. *sigh*. My councellor is going to call her today

> to get the odsp thing and tell her i need some perscriptions and not

> to wait for the psyc eval. My councellor susspects i may have bi-

> poler wich makes sence to me. Some times i can be hyper like im high

> over the moon and i can be depressed like i hate the world.

>

> I have to restart the odsp thing again, but this time my concellor

> is going with me for ALL appointments and we are going to use the

> old forms that my doc filled out.

>

> At least this time... i have ALL the stuff odsp needs and all i need

> is the doctor's forms. Also the pluss side is I have a temporary

> drug card so i can get my medications. So its gonna be Alesse,

> heartburn stuff, some sort of antidepressent, actonel for bone

> density and who knows what elce.

>

> Anyways. I appologise for yesterday. I was depressed again. Im

> somewhat hyper today. I lack the energy though.

>

> Chantelle

>

>

>

>

>>

>> Hello everyone,

>>

>> Been meaning to let people know what happened with my sleep study.

> Just been

>> super busy with midterms!

>>

>> I had the test two weeks ago. The doctor was kind enough to bring

> the

>> machine over to my apartment. Had to have this belt like thing

> around my

>> waist, things monitoring my breathing through my nostrils and a

> clip on my

>> finger to monitory my oxygen levels.

>>

>> I got the results last week and it is definitely sleep apnea. I

> stop

>> breathing an average of 12 times per hour at an average of 60

> seconds at a

>> time. This is certainly why I'm always so tired, low energy, and

> bad

>> concentration. We are just waiting for a formal report from a

> resporologist

>> and then going to apply to the gov. for funding for a CPAP

> machine. I am

>> quite looking forward to trying it and hopefully having a good

> night sleep

>> for a change!!!

>>

>> So thats the results. Im just glad I know what I am dealing with

> now!

>>

>> Nieder

>>

>

>

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or email

> info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Share on other sites

Yes, this is a good thing to know! No fun, but something you can do

something about and feel better! Kim

> Hello everyone,

>

> Been meaning to let people know what happened with my sleep study. Just been

> super busy with midterms!

>

> I had the test two weeks ago. The doctor was kind enough to bring the

> machine over to my apartment. Had to have this belt like thing around my

> waist, things monitoring my breathing through my nostrils and a clip on my

> finger to monitory my oxygen levels.

>

> I got the results last week and it is definitely sleep apnea. I stop

> breathing an average of 12 times per hour at an average of 60 seconds at a

> time. This is certainly why I'm always so tired, low energy, and bad

> concentration. We are just waiting for a formal report from a resporologist

> and then going to apply to the gov. for funding for a CPAP machine. I am

> quite looking forward to trying it and hopefully having a good night sleep

> for a change!!!

>

> So thats the results. Im just glad I know what I am dealing with now!

>

> Nieder

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or email

> info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

Link to comment
Share on other sites

Yes, this is a good thing to know! No fun, but something you can do

something about and feel better! Kim

> Hello everyone,

>

> Been meaning to let people know what happened with my sleep study. Just been

> super busy with midterms!

>

> I had the test two weeks ago. The doctor was kind enough to bring the

> machine over to my apartment. Had to have this belt like thing around my

> waist, things monitoring my breathing through my nostrils and a clip on my

> finger to monitory my oxygen levels.

>

> I got the results last week and it is definitely sleep apnea. I stop

> breathing an average of 12 times per hour at an average of 60 seconds at a

> time. This is certainly why I'm always so tired, low energy, and bad

> concentration. We are just waiting for a formal report from a resporologist

> and then going to apply to the gov. for funding for a CPAP machine. I am

> quite looking forward to trying it and hopefully having a good night sleep

> for a change!!!

>

> So thats the results. Im just glad I know what I am dealing with now!

>

> Nieder

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or email

> info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

Link to comment
Share on other sites

Yes, this is a good thing to know! No fun, but something you can do

something about and feel better! Kim

> Hello everyone,

>

> Been meaning to let people know what happened with my sleep study. Just been

> super busy with midterms!

>

> I had the test two weeks ago. The doctor was kind enough to bring the

> machine over to my apartment. Had to have this belt like thing around my

> waist, things monitoring my breathing through my nostrils and a clip on my

> finger to monitory my oxygen levels.

>

> I got the results last week and it is definitely sleep apnea. I stop

> breathing an average of 12 times per hour at an average of 60 seconds at a

> time. This is certainly why I'm always so tired, low energy, and bad

> concentration. We are just waiting for a formal report from a resporologist

> and then going to apply to the gov. for funding for a CPAP machine. I am

> quite looking forward to trying it and hopefully having a good night sleep

> for a change!!!

>

> So thats the results. Im just glad I know what I am dealing with now!

>

> Nieder

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or email

> info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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