Introduction

[Guest guest]

~

~The problem is this: we have no health insurance because my

~husband is self-employed. Paying for the MRI would be doable, but

~what if I do find such a malformation, and cannot afford surgery?

Take it one step at a time. You need an accurate diagnosis before surgery,

and per my nsg he could *not* do decompression without the MRI pics. What

if you have a tumor or syrinx? Your nsg will need to know these factors

before digging into you.

~I suppose my question for you folks is this: do my symptoms seem

~to indicate that I should pursue this? Or would I just be throwing

~money away to have an MRI?

Having an MRI because of suspected Chiari is no waste of money when other

things have been ruled out. Think of what *could* happen down the road!

And as far as the hospitals go, I have a very unpopular point of view with

the docs.. I suppose it's the French Canadian coming out in me... but you

cannot squeeze blood from a stone. And going into bankruptcy is worth your

health. Better to have it on you for 7 years, then be sick and disabled the

rest of your life.

Take care .

Cheryl Sousa

[Guest guest]

~

~The problem is this: we have no health insurance because my

~husband is self-employed. Paying for the MRI would be doable, but

~what if I do find such a malformation, and cannot afford surgery?

Take it one step at a time. You need an accurate diagnosis before surgery,

and per my nsg he could *not* do decompression without the MRI pics. What

if you have a tumor or syrinx? Your nsg will need to know these factors

before digging into you.

~I suppose my question for you folks is this: do my symptoms seem

~to indicate that I should pursue this? Or would I just be throwing

~money away to have an MRI?

Having an MRI because of suspected Chiari is no waste of money when other

things have been ruled out. Think of what *could* happen down the road!

And as far as the hospitals go, I have a very unpopular point of view with

the docs.. I suppose it's the French Canadian coming out in me... but you

cannot squeeze blood from a stone. And going into bankruptcy is worth your

health. Better to have it on you for 7 years, then be sick and disabled the

rest of your life.

Take care .

Cheryl Sousa

[Guest guest]

Have you seen a developemental pediatrician? Usually the autism specialist

are at children's hospital. My daughter is hyperlexic also and I believe if

we had waited until now (she's 41 months) that I would have the same problem.

We got her dx at 2 years 4 months. Best of luck to you and we'll help out

however we can with ideas and support.

wendy

[Guest guest]

Have you seen a developemental pediatrician? Usually the autism specialist

are at children's hospital. My daughter is hyperlexic also and I believe if

we had waited until now (she's 41 months) that I would have the same problem.

We got her dx at 2 years 4 months. Best of luck to you and we'll help out

however we can with ideas and support.

wendy

[Guest guest]

Hello, Everyone, I'm new. My name is . I am 26, married, living

in the Atlanta area. My son, n is two and a half, and I am expecting a

baby girl February 5th. I've been lurking for a few weeks to get a feel for

things.

About my son, n ... at around 18 months he was referred for

speech/hearing evaluation. Hearing appeared normal, speech however was

profoundly delayed. He was dx with " severe expressive/receptive speech

delay. " I asked about autism then, but the speech pathologist gave me the

" wait and see. " Three months later I took n to some specialists in

Nashville (the Camaratas, if anyone knows them, husband/wife team

affilliated with Vanderbilt University). They thought n would be fine

with speech therapy and would begin talking in the next 6-9 months.

So we began speech therapy ... then our insurance cut us off, so I applied

for early intervention through the state. However this evaluation decided

that we did not qualify for services - - much to my disappointment. I think

they were distracted by some of n's advanced skills (letters/numbers

.... hyperlexia?). So I'm shopping around for a new (more affordable) ST

(old one was $200/hr!).

As you can see, n does not have an autism diagnosis. And for the last

year or so, I have been active on a list for late talking children.

However, it has been clear to me for some time that n doesn't quite fit

in there. He is different from other children. He has behavioral issues

that I can't even begin to address. I don't know if he is autistic or not,

but his profound language delay presents very much like autism. And I find

myself relating very well to the stories I am reading here. I found this

list out of desperation a week or two before Christmas. At the time n

was going through one of his very agressive/violent phases (thrashing,

biting, scratching, hair pulling) and I was in a very dark place. This list

has made me feel less alone.

I am amazed daily by the tales of courage and heroism I find here - - told

with pathos, humor, and above all, honesty. I am grateful to have found

you.

Thanks for listening,

(n 30 months)

[Guest guest]

Hello, Everyone, I'm new. My name is . I am 26, married, living

in the Atlanta area. My son, n is two and a half, and I am expecting a

baby girl February 5th. I've been lurking for a few weeks to get a feel for

things.

About my son, n ... at around 18 months he was referred for

speech/hearing evaluation. Hearing appeared normal, speech however was

profoundly delayed. He was dx with " severe expressive/receptive speech

delay. " I asked about autism then, but the speech pathologist gave me the

" wait and see. " Three months later I took n to some specialists in

Nashville (the Camaratas, if anyone knows them, husband/wife team

affilliated with Vanderbilt University). They thought n would be fine

with speech therapy and would begin talking in the next 6-9 months.

So we began speech therapy ... then our insurance cut us off, so I applied

for early intervention through the state. However this evaluation decided

that we did not qualify for services - - much to my disappointment. I think

they were distracted by some of n's advanced skills (letters/numbers

.... hyperlexia?). So I'm shopping around for a new (more affordable) ST

(old one was $200/hr!).

As you can see, n does not have an autism diagnosis. And for the last

year or so, I have been active on a list for late talking children.

However, it has been clear to me for some time that n doesn't quite fit

in there. He is different from other children. He has behavioral issues

that I can't even begin to address. I don't know if he is autistic or not,

but his profound language delay presents very much like autism. And I find

myself relating very well to the stories I am reading here. I found this

list out of desperation a week or two before Christmas. At the time n

was going through one of his very agressive/violent phases (thrashing,

biting, scratching, hair pulling) and I was in a very dark place. This list

has made me feel less alone.

I am amazed daily by the tales of courage and heroism I find here - - told

with pathos, humor, and above all, honesty. I am grateful to have found

you.

Thanks for listening,

(n 30 months)

[Guest guest]

Welcome !

Sorry you're having such a hard time with n. The one thing I'd suggest

is if it's been a year since he was tested/evaluated, you could ask them to

retest him and provide them with a list of the things that concern you about

his behavior.

Glad to hear we help you not to feel so alone!

Sue

[Guest guest]

--- In parenting_autism , " Loht " So I'm

shopping around for a new (more affordable) ST

> (old one was $200/hr!).

>

,

If you live near any universities check to see if they have a speech

pathology program. When was younger, I took her to a local

univerisity. She would work with one of the students with a teacher

observing from the other side of a 2 way mirror. I was allowed to

watch the sessions as well and she made tremendous progress with the

students. When we first started the rates where very cheap but they

went up when the university started accepting insurance. >:[

However, they were still a lot cheaper than any of the private speech

pathologists I could find.

Tina

[Guest guest]

--- In parenting_autism , " Loht " So I'm

shopping around for a new (more affordable) ST

> (old one was $200/hr!).

>

,

If you live near any universities check to see if they have a speech

pathology program. When was younger, I took her to a local

univerisity. She would work with one of the students with a teacher

observing from the other side of a 2 way mirror. I was allowed to

watch the sessions as well and she made tremendous progress with the

students. When we first started the rates where very cheap but they

went up when the university started accepting insurance. >:[

However, they were still a lot cheaper than any of the private speech

pathologists I could find.

Tina

[Guest guest]

Hello . Congrats on the the new baby coming soon. I'm glad

you found us. I am feeling rather pushed and overwhelmed myself

lately, trying to stir too many boiling pots at the same time, but it

does sound like you may have found where you need to be. I do

love this group though. They truly help me keep my sanity and

persepctive. I can tell you that the toddler/preschool years are

usually difficult for ASD children but it does usually improve.

Slowly, but progress is progress and I'll take it!

[Guest guest]

Hello . Congrats on the the new baby coming soon. I'm glad

you found us. I am feeling rather pushed and overwhelmed myself

lately, trying to stir too many boiling pots at the same time, but it

does sound like you may have found where you need to be. I do

love this group though. They truly help me keep my sanity and

persepctive. I can tell you that the toddler/preschool years are

usually difficult for ASD children but it does usually improve.

Slowly, but progress is progress and I'll take it!

[Guest guest]

Hello . Congrats on the the new baby coming soon. I'm glad

you found us. I am feeling rather pushed and overwhelmed myself

lately, trying to stir too many boiling pots at the same time, but it

does sound like you may have found where you need to be. I do

love this group though. They truly help me keep my sanity and

persepctive. I can tell you that the toddler/preschool years are

usually difficult for ASD children but it does usually improve.

Slowly, but progress is progress and I'll take it!

[Guest guest]

welcome elizabeth and julian!

my name is michelle, my husband paul and i live in northern ontario with our two

boys sebastian (11) and rowan (6). rowan was diagnosed with ASD in february of

1999.

michelle mg

Re: introduction

Hello, Everyone, I'm new. My name is . I am 26, married, living

in the Atlanta area. My son, n is two and a half, and I am expecting a

baby girl February 5th. I've been lurking for a few weeks to get a feel for

things.

About my son, n ... at around 18 months he was referred for

speech/hearing evaluation. Hearing appeared normal, speech however was

profoundly delayed. He was dx with " severe expressive/receptive speech

delay. " I asked about autism then, but the speech pathologist gave me the

" wait and see. " Three months later I took n to some specialists in

Nashville (the Camaratas, if anyone knows them, husband/wife team

affilliated with Vanderbilt University). They thought n would be fine

with speech therapy and would begin talking in the next 6-9 months.

So we began speech therapy ... then our insurance cut us off, so I applied

for early intervention through the state. However this evaluation decided

that we did not qualify for services - - much to my disappointment. I think

they were distracted by some of n's advanced skills (letters/numbers

... hyperlexia?). So I'm shopping around for a new (more affordable) ST

(old one was $200/hr!).

As you can see, n does not have an autism diagnosis. And for the last

year or so, I have been active on a list for late talking children.

However, it has been clear to me for some time that n doesn't quite fit

in there. He is different from other children. He has behavioral issues

that I can't even begin to address. I don't know if he is autistic or not,

but his profound language delay presents very much like autism. And I find

myself relating very well to the stories I am reading here. I found this

list out of desperation a week or two before Christmas. At the time n

was going through one of his very agressive/violent phases (thrashing,

biting, scratching, hair pulling) and I was in a very dark place. This list

has made me feel less alone.

I am amazed daily by the tales of courage and heroism I find here - - told

with pathos, humor, and above all, honesty. I am grateful to have found

you.

Thanks for listening,

(n 30 months)

[Guest guest]

welcome elizabeth and julian!

my name is michelle, my husband paul and i live in northern ontario with our two

boys sebastian (11) and rowan (6). rowan was diagnosed with ASD in february of

1999.

michelle mg

Re: introduction

Hello, Everyone, I'm new. My name is . I am 26, married, living

in the Atlanta area. My son, n is two and a half, and I am expecting a

baby girl February 5th. I've been lurking for a few weeks to get a feel for

things.

About my son, n ... at around 18 months he was referred for

speech/hearing evaluation. Hearing appeared normal, speech however was

profoundly delayed. He was dx with " severe expressive/receptive speech

delay. " I asked about autism then, but the speech pathologist gave me the

" wait and see. " Three months later I took n to some specialists in

Nashville (the Camaratas, if anyone knows them, husband/wife team

affilliated with Vanderbilt University). They thought n would be fine

with speech therapy and would begin talking in the next 6-9 months.

So we began speech therapy ... then our insurance cut us off, so I applied

for early intervention through the state. However this evaluation decided

that we did not qualify for services - - much to my disappointment. I think

they were distracted by some of n's advanced skills (letters/numbers

... hyperlexia?). So I'm shopping around for a new (more affordable) ST

(old one was $200/hr!).

As you can see, n does not have an autism diagnosis. And for the last

year or so, I have been active on a list for late talking children.

However, it has been clear to me for some time that n doesn't quite fit

in there. He is different from other children. He has behavioral issues

that I can't even begin to address. I don't know if he is autistic or not,

but his profound language delay presents very much like autism. And I find

myself relating very well to the stories I am reading here. I found this

list out of desperation a week or two before Christmas. At the time n

was going through one of his very agressive/violent phases (thrashing,

biting, scratching, hair pulling) and I was in a very dark place. This list

has made me feel less alone.

I am amazed daily by the tales of courage and heroism I find here - - told

with pathos, humor, and above all, honesty. I am grateful to have found

you.

Thanks for listening,

(n 30 months)

[Guest guest]

welcome elizabeth and julian!

my name is michelle, my husband paul and i live in northern ontario with our two

boys sebastian (11) and rowan (6). rowan was diagnosed with ASD in february of

1999.

michelle mg

Re: introduction

Hello, Everyone, I'm new. My name is . I am 26, married, living

in the Atlanta area. My son, n is two and a half, and I am expecting a

baby girl February 5th. I've been lurking for a few weeks to get a feel for

things.

About my son, n ... at around 18 months he was referred for

speech/hearing evaluation. Hearing appeared normal, speech however was

profoundly delayed. He was dx with " severe expressive/receptive speech

delay. " I asked about autism then, but the speech pathologist gave me the

" wait and see. " Three months later I took n to some specialists in

Nashville (the Camaratas, if anyone knows them, husband/wife team

affilliated with Vanderbilt University). They thought n would be fine

with speech therapy and would begin talking in the next 6-9 months.

So we began speech therapy ... then our insurance cut us off, so I applied

for early intervention through the state. However this evaluation decided

that we did not qualify for services - - much to my disappointment. I think

they were distracted by some of n's advanced skills (letters/numbers

... hyperlexia?). So I'm shopping around for a new (more affordable) ST

(old one was $200/hr!).

As you can see, n does not have an autism diagnosis. And for the last

year or so, I have been active on a list for late talking children.

However, it has been clear to me for some time that n doesn't quite fit

in there. He is different from other children. He has behavioral issues

that I can't even begin to address. I don't know if he is autistic or not,

but his profound language delay presents very much like autism. And I find

myself relating very well to the stories I am reading here. I found this

list out of desperation a week or two before Christmas. At the time n

was going through one of his very agressive/violent phases (thrashing,

biting, scratching, hair pulling) and I was in a very dark place. This list

has made me feel less alone.

I am amazed daily by the tales of courage and heroism I find here - - told

with pathos, humor, and above all, honesty. I am grateful to have found

you.

Thanks for listening,

(n 30 months)

[Guest guest]

>>>>>>>>>>>

I was in a very dark place. This list has made me feel

less alone.

>>>>>>>>>>>>>>>>>>>>

That's how I felt when I found PA.

Welcome to the list, .

Tuna

=====

You can learn many things from children.

How much patience you have, for instance.

- lin P.

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

>>>>>>>>>>>

I was in a very dark place. This list has made me feel

less alone.

>>>>>>>>>>>>>>>>>>>>

That's how I felt when I found PA.

Welcome to the list, .

Tuna

=====

You can learn many things from children.

How much patience you have, for instance.

- lin P.

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

>>>>>>>>>>>

I was in a very dark place. This list has made me feel

less alone.

>>>>>>>>>>>>>>>>>>>>

That's how I felt when I found PA.

Welcome to the list, .

Tuna

=====

You can learn many things from children.

How much patience you have, for instance.

- lin P.

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Hello, Everyone, I'm new. My name is . I am 26, married, living

> in the Atlanta area.

Hi ,

I'm Sissi. I live in Leesburg, Georgia, just outside of Albany.

> So we began speech therapy ... then our insurance cut us off, so I applied

> for early intervention through the state.

Georgia is a Deeming Waiver state.

If you get a diagnosis on the autism spectrum, you can apply for SSI, if you

don't qualify, you can apply for the Beckett or Deeming Waiver. You

have to apply for SSI and be turned down in order to qualify for the Deeming

waiver. If you have private insurance it picks up the tab for your

deductable, if you don't have insurance, it pays 100% this includes

prescription meds too.

Also check into your local Parent to Parent office to find out who

administers the state's Autism Family Funding. Here in Albany it's the local

Easter Seals office. They will pay for respite care or purchase equipment

materials, diapers, etc -- whatever you choose to spend it on.

The budget is kind of tight this year, but we finally got an audio card

reader for Boone through them.

The three assessments boone has had all considered hyperlexia to be

consistent with autism. Where was your son evaluated?

Maybe you can get someone to refer you to the Marcus Institute or to Boone's

doctor -- Dr. Rubin. According to my pediatrician, he is the autism

" God. " he has a complete staff for evaluation.

We really like him a lot.

Hope this was some help,

Sissi Garvey

Kids' Page

http://www.isoa.net/~nitetrax/original.htm

Boone's Art Page

http://www.isoa.net/~nitetrax/bart.htm

Dillon's Music Page

http://www.geocities.com/flaremusic

Please read and if you agree, sign petition:

www.geocities.com/stopleland

" If it doesn't spin, it's broke. "

Boone Garvey (not a direct quote -- more like an attitude)

[Guest guest]

In a message dated 11/16/2005 9:43:19 AM Pacific Standard Time,

dnawalker1@... writes:

Splenda is for both cooking and for instant use

I LOVE Splenda. I use 2-3 pkgs in a standard MUG of coffee to equal the

taste of 1/2 to 1 pkg of Equal or Sweet'n'low.

_ " RASCAL " - Your friendly neighborhood Process Server_

(http://www.ranchoattorneyservice.com/)

Michele Dawn, RPS 117 & CA PI 24790

Rancho Attorney Service of California &

RASCAL's Research & Location Services

28465 Old Town Front St, Suite 318

Temecula, CA 92590

(951) 693-0165 or fax

CAPPS GAPPS NAPPS NAIS CAJP

Successfully coordinating services worldwide since 1977!

[Guest guest]

In a message dated 11/16/2005 9:43:19 AM Pacific Standard Time,

dnawalker1@... writes:

Splenda is for both cooking and for instant use

I LOVE Splenda. I use 2-3 pkgs in a standard MUG of coffee to equal the

taste of 1/2 to 1 pkg of Equal or Sweet'n'low.

_ " RASCAL " - Your friendly neighborhood Process Server_

(http://www.ranchoattorneyservice.com/)

Michele Dawn, RPS 117 & CA PI 24790

Rancho Attorney Service of California &

RASCAL's Research & Location Services

28465 Old Town Front St, Suite 318

Temecula, CA 92590

(951) 693-0165 or fax

CAPPS GAPPS NAPPS NAIS CAJP

Successfully coordinating services worldwide since 1977!

[Guest guest]

Thank you . I have been getting rid of about all the white food and

reading labels and getting rid of a lot of stuff I have. I do still have

some white flour and sugar, but I have bought wheat flour and Stevia to

replace. Does anyone use the Stevia on this list? I have a friend who has

had diabetes for several years and she has told me that I cannot use Stevia,

Agave, or Splenda, only the chemical sweeteners. From what I have

understood, Stevia is an herb and does not raise blood sugar. The Agave is

a low glycemic index fructose. I would prefer them to the Sweet and Low and

Aspartame.

I have noticed many people talking about beans. I cannot eat them or will

end up sick for at least 2 days. I have seen nuts listed under legumes.

Are most of them okay to eat?

Darlene

[Guest guest]

Thank you . I have been getting rid of about all the white food and

reading labels and getting rid of a lot of stuff I have. I do still have

some white flour and sugar, but I have bought wheat flour and Stevia to

replace. Does anyone use the Stevia on this list? I have a friend who has

had diabetes for several years and she has told me that I cannot use Stevia,

Agave, or Splenda, only the chemical sweeteners. From what I have

understood, Stevia is an herb and does not raise blood sugar. The Agave is

a low glycemic index fructose. I would prefer them to the Sweet and Low and

Aspartame.

I have noticed many people talking about beans. I cannot eat them or will

end up sick for at least 2 days. I have seen nuts listed under legumes.

Are most of them okay to eat?

Darlene

[Guest guest]

Splenda and Stevia are great for blood sugar! I know several people who use

Stevia. I use Splenda religiously and have NEVER had my blood sugar increase

because of it. Do NOT buy the other stuff. Fructose is still sugar by any other

name. It will drive up your blood sugars.

Nuts are better for your blood sugar than beans and they pack a great

nutritional punch :-)

April in GA

----- Original Message -----

From: D HURLEY

Thank you . I have been getting rid of about all the white food and

reading labels and getting rid of a lot of stuff I have. I do still have

some white flour and sugar, but I have bought wheat flour and Stevia to

replace. Does anyone use the Stevia on this list? I have a friend who has

had diabetes for several years and she has told me that I cannot use Stevia,

Agave, or Splenda, only the chemical sweeteners. From what I have

understood, Stevia is an herb and does not raise blood sugar. The Agave is

a low glycemic index fructose. I would prefer them to the Sweet and Low and

Aspartame.

I have noticed many people talking about beans. I cannot eat them or will

end up sick for at least 2 days. I have seen nuts listed under legumes.

Are most of them okay to eat?

Darlene

[Guest guest]

Splenda and Stevia are great for blood sugar! I know several people who use

Stevia. I use Splenda religiously and have NEVER had my blood sugar increase

because of it. Do NOT buy the other stuff. Fructose is still sugar by any other

name. It will drive up your blood sugars.

Nuts are better for your blood sugar than beans and they pack a great

nutritional punch :-)

April in GA

----- Original Message -----

From: D HURLEY

Thank you . I have been getting rid of about all the white food and

reading labels and getting rid of a lot of stuff I have. I do still have

some white flour and sugar, but I have bought wheat flour and Stevia to

replace. Does anyone use the Stevia on this list? I have a friend who has

had diabetes for several years and she has told me that I cannot use Stevia,

Agave, or Splenda, only the chemical sweeteners. From what I have

understood, Stevia is an herb and does not raise blood sugar. The Agave is

a low glycemic index fructose. I would prefer them to the Sweet and Low and

Aspartame.

I have noticed many people talking about beans. I cannot eat them or will

end up sick for at least 2 days. I have seen nuts listed under legumes.

Are most of them okay to eat?

Darlene