Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Hi . I am in the same boat as you which is amazing. I had been diagnosed with UD in the Spring of 2001 by an RE after a miscarriage, had a successful pregnancy and delivered in Sept of 2002, had a miscarriage in Sept 2003, and in Sept 2004 went to a different RE to get some help conceiving and she said I had definite complete septum with one cervix divided by the septum that goes into my vagina creating a partial septum there as well. So we scheduled surgery for resection due to my two miscarriages and I found out a week later I was pregnant. I was so scared but I'm now 15 1/2 weeks and all is well. So I was released back to my regular OB who says there's no way I have septate uterus because he sees two distinct cervixes. Lovely. I have read of 2 reported cases in the country of women with a septate uterus AND 2 cervixes. I will be seeing a perinatologist on the 20th and hopefully they'll be able to get me some accurate answers and they'll co-manage this pregnancy with my OB to prepare me for any complications. Oh, and this baby is on the opposite side of where my daughter was, so everything is new and different this time! =) Good luck! Let me know what you find out! UD or SU is anyone's guess =) > > Hi, everyone, my name is . I posted here a few weeks about how > I found out that I have a complete septated uterus. Today I went to > see 2nd RE whom I feel have more experiences and want to have the > surgery with. But after she looked at my MRI, she disagreed with 1st > RE and thought that I am more likely to be UD instead of SU. Two > doctors disagree with how to define the contour of the uterine fundus > (I don't know how to explain it well): black outline is relatively > flat so 1st RE thinks that is the contour so I should be SU; but > there is also gray outline which shows the concavity, so 2nd RE > thinks that is the contour so I should be UD. > My cervix is also divided. I don't know it is one cervix divided by a > septum or two single cervix, and I also have partial vagina septum. > 2nd RE told me that my case is complicated one in septum insection > surgery. Not like most ladies who have sub or partial uterine septum, > the doctor knows where to start cutting in Lap/Hys, in my case they > don't know where to start, so they will make a cross like " X " ...She > said in theory all the doctors know what to do, but technically the > surgery will be very tricky. 2nd RE questioned that 1st RE may not > have a lot surgery experiences and didn't think through about > details. > Basically, my 2nd RE said she thought I am UD, no surgery correction > needed for UD; even if I am SU, after weighing the technical risk of > my insection she thinks the best plan for me is to try to get > pregnant, see how it will go. I am 29, and have not tried to get > pregnant before. She said if I have recurrent miscarriage, she will > push me to do surgery, but now she wants to leave my uterus untouched > and wants me to do best to have a pregnancy. > I am so confused after the appointment. I even wonder maybe I am BU > now. I like 2nd RE and she sees more MA patients than 1st RE. But can > I handle my nerve in 10 months, 40 weeks pregnancy if I can go that > far? I want to ask anyone here know the successful septum resection > example with complete septated uterus and cervix? > > Thank you all for the support. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 >>>So I was released back to my regular OB who says > there's no way I have septate uterus because he sees two distinct > cervixes. Lovely. I have read of 2 reported cases in the country > of women with a septate uterus AND 2 cervixes. , Sorry for spacing out when I read one of your prior posts. I should have mentioned that although it is RARE, it IS possible to be SU bicollis (SU with 2 cervices)! We had 2 members. One of them, is still active on the MA Cafe board. I will let her know about your post. Her dr was vigilant in her diagnosis and she did have the resection surgery. Shortly afterward she found herself pg for the 3rd time and carried uneventfully and delivered a son via csection (I believe he was breech). But the interesting thing is that only one cervix dilated for the delivery - none of the drs knew what to expect. I imagine that your dr will have to be very observant and open minded to determine if you are also an SU bicollis. Some drs want to think that we all fit " neatly " into a category, but the truth is that there are a lot of " shades of gray " between the anomalies...we have a few SU bicollis, and many SU/BU combo platters - LOL. None of them fit into a category. Sara SU resected x2 dd 14 mos, #2 32w6d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 > > I have read of 2 reported cases in the country > of women with a septate uterus AND 2 cervixes. I will be seeing a > perinatologist on the 20th and hopefully they'll be able to get me > some accurate answers and they'll co-manage this pregnancy with my > OB to prepare me for any complications. Oh, and this baby is on the > opposite side of where my daughter was, so everything is new and > different this time! =) Good luck! Let me know what you find out! > > UD or SU is anyone's guess =) Hi , I have been reading this board for more than 2 years now and there have been maybe a dozen women (who I've noticed - I don't read as regularly as I used to) diagnosed with SU with 2 cervices (SU Bicollis). One that springs to mind is Golbeck who hangs out more on the MA-Cafe (the sister group to this main MA board)... you could go post over there and she can probably refer you to quite a few others and/or case studies. It's not all that rare, I think... Perhaps SU-bicollis is often misdiagnosed as UD, just like regular single-cervix SU is often misdiagnosed as BU. Good luck with this pregnancy! FWIW, I've had 2 succesful pregnancies in my SU (and yeah, it's SU, not BU, we've had 2 c- sections now that say so) SU unresected dd 6-13-03 ds 8-26-04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 > > I have read of 2 reported cases in the country > of women with a septate uterus AND 2 cervixes. I will be seeing a > perinatologist on the 20th and hopefully they'll be able to get me > some accurate answers and they'll co-manage this pregnancy with my > OB to prepare me for any complications. Oh, and this baby is on the > opposite side of where my daughter was, so everything is new and > different this time! =) Good luck! Let me know what you find out! > > UD or SU is anyone's guess =) Hi , I have been reading this board for more than 2 years now and there have been maybe a dozen women (who I've noticed - I don't read as regularly as I used to) diagnosed with SU with 2 cervices (SU Bicollis). One that springs to mind is Golbeck who hangs out more on the MA-Cafe (the sister group to this main MA board)... you could go post over there and she can probably refer you to quite a few others and/or case studies. It's not all that rare, I think... Perhaps SU-bicollis is often misdiagnosed as UD, just like regular single-cervix SU is often misdiagnosed as BU. Good luck with this pregnancy! FWIW, I've had 2 succesful pregnancies in my SU (and yeah, it's SU, not BU, we've had 2 c- sections now that say so) SU unresected dd 6-13-03 ds 8-26-04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 I have SU bicollis. Luckily, I am seeing a nationally ranked RE who realizes that not everyone is one anomaly or another. She said that she has had 2 pts with this dx and a colleague who has had 9! Its a possibility that many docs won't even acknowledge and its hard to dx. I was told a lot of different things first, like I just had SU, and then just UD and even BU. I definitely recommend seeing an RE when you get a chance, sometimes OB/Gyn docs aren't as experienced with this as they would like you to believe they are. Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2004 Report Share Posted December 11, 2004 Wow! Thanks for the good info. I've never heard of bicollis. May I ask why you had your septum resected twice? Did it grow back or something? > > >>>So I was released back to my regular OB who says > > there's no way I have septate uterus because he sees two distinct > > cervixes. Lovely. I have read of 2 reported cases in the country > > of women with a septate uterus AND 2 cervixes. > > > , > Sorry for spacing out when I read one of your prior posts. I should > have mentioned that although it is RARE, it IS possible to be SU > bicollis (SU with 2 cervices)! We had 2 members. One of them, > is still active on the MA Cafe board. I will let her know > about your post. Her dr was vigilant in her diagnosis and she did > have the resection surgery. Shortly afterward she found herself pg > for the 3rd time and carried uneventfully and delivered a son via > csection (I believe he was breech). But the interesting thing is > that only one cervix dilated for the delivery - none of the drs knew > what to expect. I imagine that your dr will have to be very observant > and open minded to determine if you are also an SU bicollis. Some > drs want to think that we all fit " neatly " into a category, but the > truth is that there are a lot of " shades of gray " between the > anomalies...we have a few SU bicollis, and many SU/BU combo platters - > LOL. None of them fit into a category. > > Sara > SU resected x2 > dd 14 mos, #2 32w6d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2004 Report Share Posted December 11, 2004 Wow! Thanks for the good info. I've never heard of bicollis. May I ask why you had your septum resected twice? Did it grow back or something? > > >>>So I was released back to my regular OB who says > > there's no way I have septate uterus because he sees two distinct > > cervixes. Lovely. I have read of 2 reported cases in the country > > of women with a septate uterus AND 2 cervixes. > > > , > Sorry for spacing out when I read one of your prior posts. I should > have mentioned that although it is RARE, it IS possible to be SU > bicollis (SU with 2 cervices)! We had 2 members. One of them, > is still active on the MA Cafe board. I will let her know > about your post. Her dr was vigilant in her diagnosis and she did > have the resection surgery. Shortly afterward she found herself pg > for the 3rd time and carried uneventfully and delivered a son via > csection (I believe he was breech). But the interesting thing is > that only one cervix dilated for the delivery - none of the drs knew > what to expect. I imagine that your dr will have to be very observant > and open minded to determine if you are also an SU bicollis. Some > drs want to think that we all fit " neatly " into a category, but the > truth is that there are a lot of " shades of gray " between the > anomalies...we have a few SU bicollis, and many SU/BU combo platters - > LOL. None of them fit into a category. > > Sara > SU resected x2 > dd 14 mos, #2 32w6d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Hi ! Thanks for the reply! My surgery went pretty well. My doctor had to stop the surgery early because my sodium level got too low. When I went in for my post-op he said he couldn't tell how much he was actually able to remove. Said he won't know until he removes the IUD because it kept messing with the ultrasound. I might have to have an HSG done to see what my uterus looks like now. I really hope everything is good! I don't want to have to have surgery again if I don't have to. We have been ttc for 3 years without any success. It would be nice to know that I could get pregant at all! I just hope that we can ttc again soon. My husband is going crazy! It has been 1 month since we could " do " anything and I think that he might go crazy before its all over. :-) Best of luck with everything for you! I know that your baby will grow healthy and strong and soon you will be kept awake at night by cries of a wonderful little child. :-) Sara, 26 SU bicollis bbjbryner wrote: It's so nice to know I'm not the only one. How did the resection go? I had one miscarriage, one perfect daughter, one miscarriage, and am now 15 weeks with hopefully another perfect kid! I am pretty sure my miscarriages were caused my implantation on the septum but there's no way to prove that because no one knew I had a septum at that point! =) Getting pregnant the first time took 18 months but after that I've been pregnant 4 times in 4 years. Not sure if the early problems had anything to do with my MA or not. > Hey there. I've been reading a couple of e-mails saying that there were only a few people here with SU bicollis. Well, I guess I could be added to that list! I wasn't told that terminology by my doctor until right before I went in for resection 2 weeks ago. I'd love to hear from others with the same condition about how they have progressed in the children department. > > Thanks! > > Sara, 26 > ttc 3 years > > > --------------------------------- > Do you Yahoo!? > Yahoo! Mail - You care about security. So do we. > > Quote Link to comment Share on other sites More sharing options...
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