Jump to content
RemedySpot.com

Part 2: Effect of family birth after my daughter's dramatic birth

Rate this topic


Guest guest

Recommended Posts

Guest guest

Thanks everyone for sharing what you experienced in relation to other

babies being born by friends and family. It really has been helpful

for me to understand my feelings. I do feel compelled to share what

happened last night in relation to the birth of this same sweet little

baby, Mia.

I went to the hospital to take the new parents dinner. Mia, the new

baby has been put in the NICU for monitoring because her breathing is

a bit fast. So, everyone is very worried that something could be

wrong. Well, the grandmother of Mia, the dad's mother (not my family

member) got up and came to me as I'm holding this bag of food and

said, " You know why Kristy is so upset don't you? It's because of

Carmen. " and I felt such a sadness that Carmen was Kristy's first

thought--that perhaps her condition exaggerated the concern, and I

said, " Oh, well you know, Carmen's situation is very rare, and I'm

sure things will be fine " or something like that and then the

grandmother said, " Well, Kristy worried about it her entire

pregnancy. " Well, the tears started pouring down my face before I

knew what hit me. I just said I had to go and I left sobbing. I got

in the car and felt so sad that the thought surrounding Mia's possible

issue might be that she could be like my little Carmen--like Carmen is

such a dreaded thought to have. Intellectually I understand their

feelings, but as Carmen's mom: I LOVE my little girl, and see her as

an angel and a gift--a sweet strong soul with VALUE in the world, and

it just devastated me that she would be thought of in this way.

I would never tell my cousin that this happened, and I don't believe

this woman meant to hurt my feelings, but I think she was just

ignorant as to how her comments would feel to " Carmen's mom " . It felt

so personal. I came home and hugged my girl, and she initiated

practicing her walking again (so determined!) and I said, " Carmen, I

am lucky to have you and I am so blessed. Thank you for being in my

life, my little brave angel!!! " And I cried and cried some more!

Thanks to all of you--without this list I would feel so alone. You

understand that while we can be sad for our kids that they've had to

endure what they have, we LOVE them and would never want them out of

our worlds. Thank you, thank you!

B, proud and fortunate mom to Zachary 4.5 years and Carmen 20

months (CHARGE)

>

> Dear -

>

> I have had this happen to me several times since 's birth -

each time

> unexpected, each time more intense than the last. For me, I see it as

> unprocessed grief - grief that I didn't allow myself time for

because it is

> how I managed to deal with things that needed taking care of at the

time -

> or grief that I had accepted certain qualifications to my CHARGE

son's life,

> and then to have them surpassed beyond my wildest dreams. Or dreams that

> came true that I never knew I had not allowed myself to dare

dream... and

> the grief that goes with that.

>

> Bless and love your heart for all it does to make this time whole....to

> accept what is and to make good of it, no matter what.

>

> love and hugs-

>

> yuka

>

>

> Effect of family birth after my daughter's

dramatic birth

>

>

> > Not sure if other's have experienced this, but the other night, I got

> > a call that my cousin was in labor with her baby. She has asked me to

> > be the Godparent for her little girl, and I had all along planned to

> > be at the hospital for the birth (my family is large, and we all sit

> > vigil while someone is having a new family member!) At any rate, I

> > was on my way to the hospital (alone) and all of a sudden just started

> > crying such a deep emotional cry--I honestly was surprised at myself.

> > I think I must have been grieving the happy birth process that I

> > didn't have with Carmen, who was born so tiny, not breathing, and gray

> > in color. I don't think I've really ever cried out since her birth,

> > as I'm very action oriented and have been so focused on all of her

> > needs. The reaction I had to my cousin's birth process really hit me

> > hard--it was like I finally realized how sad I was that I didn't have

> > a joyous moment for my daughter when she arrived. I think it provided

> > some closure, really. Anyone else have this happen?

> >

> > B. mom to Zachary 4.5 years and Carmen 20 months (CHARGE)

>

Link to comment
Share on other sites

Guest guest

You know, Aubrie is my only girl and there is some sadness in thinking of

some mother-daughter things we may never share -- like if she can't have

children of her own. But there are huge pluses. She will never be a catty,

b****y girl. It's just not in her nature. There are lots of silver linings

to having her just the way she is. So I delight in them and ignore the

other stuff. There's really not that much that we're " missing " -- we do all

the same things we'd do otherwise -- we just may do them differently. So

maybe you could reply with a silver lining of your own and the fact that you

have all the love and relationship of any mother-daughter -- even more

intense.

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

Link to comment
Share on other sites

Guest guest

You know, Aubrie is my only girl and there is some sadness in thinking of

some mother-daughter things we may never share -- like if she can't have

children of her own. But there are huge pluses. She will never be a catty,

b****y girl. It's just not in her nature. There are lots of silver linings

to having her just the way she is. So I delight in them and ignore the

other stuff. There's really not that much that we're " missing " -- we do all

the same things we'd do otherwise -- we just may do them differently. So

maybe you could reply with a silver lining of your own and the fact that you

have all the love and relationship of any mother-daughter -- even more

intense.

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

Link to comment
Share on other sites

Guest guest

Sometimes people just don't " get it " . It's hard sometimes, but I just try

and remember that they just really have no way to really ever understand

what we've been through or how unbelievably amazing our children are. I

kind of feel sorry for them in a way - they may never know the love or

enlightenment we have experienced by having these wonderful kids in our

lives.

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

Link to comment
Share on other sites

Guest guest

Sometimes people just don't " get it " . It's hard sometimes, but I just try

and remember that they just really have no way to really ever understand

what we've been through or how unbelievably amazing our children are. I

kind of feel sorry for them in a way - they may never know the love or

enlightenment we have experienced by having these wonderful kids in our

lives.

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

Link to comment
Share on other sites

Guest guest

Sometimes people just don't " get it " . It's hard sometimes, but I just try

and remember that they just really have no way to really ever understand

what we've been through or how unbelievably amazing our children are. I

kind of feel sorry for them in a way - they may never know the love or

enlightenment we have experienced by having these wonderful kids in our

lives.

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

Link to comment
Share on other sites

Guest guest

Oh last week i had to bite my toung. two coworkers were talking and one said

oh dont bother making a baby blanket for that lady cause the baby has

downs. The co worker told me her friend was thinking of having an abortion

cause she found out she was pregnant with a downs syndrome child. Its been

upsetting me most of the week cause i thought that was so horrible. I dont

know what was worse, how my one co worker made it seem like having a special

needs kid was the worst thing in the world or the fact that the lady was

considering having an abortion.

However i think i can understand. I have fantisized about killing myself

many times. Who wants to have a person around with many dissabilities. My

behavioural stuff makes me so hatefull maby its better off if i was dead. My

medical stuff is so complicated and overwealming that even the doctor dosnt

even know what to do with me. I dont think many people would miss me if i

was gone. I know my mom wouldnt care. All the times ive heard her say that

god punished her. That it wasnt fair that she got me when there are crack

addicts that have perfectly normal kids.

Its fine if deep down you have those feelings. I think everyone does, just

please dont say to your kid you wish they were never born. Please dont blaim

anyone for their dissabilities. Its not moms fault you got charge, its not

dads fault you got charge. God (wichever you belive in) did not cause your

charge. Its just the chomosomes not behaving like nice little chomosomes

should.. We chargers internalize everything.

I still find it hard to trust people. Specialy since I get attached to

someone who is helping me weather emotionaly or just being a friend and they

suddenly dissapear out of my life without so much as a goodbye. Or I get

medical people or councellers who just pass me off to the next professional.

I know my sa counceller is only a 14 week session. I dont know how short or

long term the psyc stuff at the hospital will be. I just feel so

complicated.

I dont think its wrong to wish we would pass away painlessly. I think thats

like wishing our pain would go away. I dunno i just feel mixed up atm.

Chantelle

Link to comment
Share on other sites

Guest guest

Oh last week i had to bite my toung. two coworkers were talking and one said

oh dont bother making a baby blanket for that lady cause the baby has

downs. The co worker told me her friend was thinking of having an abortion

cause she found out she was pregnant with a downs syndrome child. Its been

upsetting me most of the week cause i thought that was so horrible. I dont

know what was worse, how my one co worker made it seem like having a special

needs kid was the worst thing in the world or the fact that the lady was

considering having an abortion.

However i think i can understand. I have fantisized about killing myself

many times. Who wants to have a person around with many dissabilities. My

behavioural stuff makes me so hatefull maby its better off if i was dead. My

medical stuff is so complicated and overwealming that even the doctor dosnt

even know what to do with me. I dont think many people would miss me if i

was gone. I know my mom wouldnt care. All the times ive heard her say that

god punished her. That it wasnt fair that she got me when there are crack

addicts that have perfectly normal kids.

Its fine if deep down you have those feelings. I think everyone does, just

please dont say to your kid you wish they were never born. Please dont blaim

anyone for their dissabilities. Its not moms fault you got charge, its not

dads fault you got charge. God (wichever you belive in) did not cause your

charge. Its just the chomosomes not behaving like nice little chomosomes

should.. We chargers internalize everything.

I still find it hard to trust people. Specialy since I get attached to

someone who is helping me weather emotionaly or just being a friend and they

suddenly dissapear out of my life without so much as a goodbye. Or I get

medical people or councellers who just pass me off to the next professional.

I know my sa counceller is only a 14 week session. I dont know how short or

long term the psyc stuff at the hospital will be. I just feel so

complicated.

I dont think its wrong to wish we would pass away painlessly. I think thats

like wishing our pain would go away. I dunno i just feel mixed up atm.

Chantelle

Link to comment
Share on other sites

Guest guest

Oh last week i had to bite my toung. two coworkers were talking and one said

oh dont bother making a baby blanket for that lady cause the baby has

downs. The co worker told me her friend was thinking of having an abortion

cause she found out she was pregnant with a downs syndrome child. Its been

upsetting me most of the week cause i thought that was so horrible. I dont

know what was worse, how my one co worker made it seem like having a special

needs kid was the worst thing in the world or the fact that the lady was

considering having an abortion.

However i think i can understand. I have fantisized about killing myself

many times. Who wants to have a person around with many dissabilities. My

behavioural stuff makes me so hatefull maby its better off if i was dead. My

medical stuff is so complicated and overwealming that even the doctor dosnt

even know what to do with me. I dont think many people would miss me if i

was gone. I know my mom wouldnt care. All the times ive heard her say that

god punished her. That it wasnt fair that she got me when there are crack

addicts that have perfectly normal kids.

Its fine if deep down you have those feelings. I think everyone does, just

please dont say to your kid you wish they were never born. Please dont blaim

anyone for their dissabilities. Its not moms fault you got charge, its not

dads fault you got charge. God (wichever you belive in) did not cause your

charge. Its just the chomosomes not behaving like nice little chomosomes

should.. We chargers internalize everything.

I still find it hard to trust people. Specialy since I get attached to

someone who is helping me weather emotionaly or just being a friend and they

suddenly dissapear out of my life without so much as a goodbye. Or I get

medical people or councellers who just pass me off to the next professional.

I know my sa counceller is only a 14 week session. I dont know how short or

long term the psyc stuff at the hospital will be. I just feel so

complicated.

I dont think its wrong to wish we would pass away painlessly. I think thats

like wishing our pain would go away. I dunno i just feel mixed up atm.

Chantelle

Link to comment
Share on other sites

Guest guest

Your absolutley right! I often just think to myself " these people

just don't get the true meaning of life,.... it's to love one

another....with or without dissabilities. It's the little things

that are important " . Its funny but ever since I had Alissa, my

relationships with friends and family has dramatically changed with

both family and friends. People are worried about not getting there

hair done or the garbage guy not picking up all there garbage.... who

cares !!! Enjoy each day with your families cause life is too

short!

>

> Sometimes people just don't " get it " . It's hard sometimes, but I

just try

> and remember that they just really have no way to really ever

understand

> what we've been through or how unbelievably amazing our children

are. I

> kind of feel sorry for them in a way - they may never know the love

or

> enlightenment we have experienced by having these wonderful kids in

our

> lives.

>

>

>

>

> Weir

> kawfolks@...

> http://ca.geocities.com/weirfamily@...

>

>

>

Link to comment
Share on other sites

Guest guest

you could ask ur cousin if she really thought taht coz if she did its a

realy bad thing all families have worries love u

>

> Your absolutley right! I often just think to myself " these people

> just don't get the true meaning of life,.... it's to love one

> another....with or without dissabilities. It's the little things

> that are important " . Its funny but ever since I had Alissa, my

> relationships with friends and family has dramatically changed with

> both family and friends. People are worried about not getting there

> hair done or the garbage guy not picking up all there garbage.... who

> cares !!! Enjoy each day with your families cause life is too

> short!

> >

> > Sometimes people just don't " get it " . It's hard sometimes, but I

> just try

> > and remember that they just really have no way to really ever

> understand

> > what we've been through or how unbelievably amazing our children

> are. I

> > kind of feel sorry for them in a way - they may never know the love

> or

> > enlightenment we have experienced by having these wonderful kids in

> our

> > lives.

> >

> >

> >

> >

> > Weir

> > kawfolks@...

> > http://ca.geocities.com/weirfamily@...

> >

> >

> >

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...