Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 IN HOME SUPPORT SERVICES, i discovered this after dad went back to work and there aren't any nursing services available, and honestly i'm thrilled i get to take care of jo-jo . he is so complicated couldn't have it any other way. if anyone would like to know more, it's thru health and human services .i was a bit miffed w/ CVRC, I researched and pursued it alone, i am now my son's employee, and he pays me to 'perform tasks'. pretty good. things were starting to fall apart i just couldn't do it all myself, jo-jo has 2 sisters, so time to hire help. apply. the worst that could happen is a denial ,most of mine was done over the phone, it helps to get your dr. involved, an lvn came to meet joseph and talk specifically -minute wise- about jojos care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 What is IHSS???? Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 What state do you live in? Different states have different programs, rules, etc. Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 What state do you live in? Different states have different programs, rules, etc. Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 cool godo for charge land lol > > IN HOME SUPPORT SERVICES, i discovered this after dad went back to work > and > there aren't any nursing services available, and honestly i'm thrilled i > get > to take care of jo-jo . he is so complicated couldn't have it any other > way. > if anyone would like to know more, it's thru health and human services .i > was > a bit miffed w/ CVRC, I researched and pursued it alone, i am now my > son's > employee, and he pays me to 'perform tasks'. pretty good. things were > starting > to fall apart i just couldn't do it all myself, jo-jo has 2 sisters, so > time > to hire help. apply. the worst that could happen is a denial ,most of > mine > was done over the phone, it helps to get your dr. involved, an lvn came > to meet > joseph and talk specifically -minute wise- about jojos care. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 cool godo for charge land lol > > IN HOME SUPPORT SERVICES, i discovered this after dad went back to work > and > there aren't any nursing services available, and honestly i'm thrilled i > get > to take care of jo-jo . he is so complicated couldn't have it any other > way. > if anyone would like to know more, it's thru health and human services .i > was > a bit miffed w/ CVRC, I researched and pursued it alone, i am now my > son's > employee, and he pays me to 'perform tasks'. pretty good. things were > starting > to fall apart i just couldn't do it all myself, jo-jo has 2 sisters, so > time > to hire help. apply. the worst that could happen is a denial ,most of > mine > was done over the phone, it helps to get your dr. involved, an lvn came > to meet > joseph and talk specifically -minute wise- about jojos care. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 cool godo for charge land lol > > IN HOME SUPPORT SERVICES, i discovered this after dad went back to work > and > there aren't any nursing services available, and honestly i'm thrilled i > get > to take care of jo-jo . he is so complicated couldn't have it any other > way. > if anyone would like to know more, it's thru health and human services .i > was > a bit miffed w/ CVRC, I researched and pursued it alone, i am now my > son's > employee, and he pays me to 'perform tasks'. pretty good. things were > starting > to fall apart i just couldn't do it all myself, jo-jo has 2 sisters, so > time > to hire help. apply. the worst that could happen is a denial ,most of > mine > was done over the phone, it helps to get your dr. involved, an lvn came > to meet > joseph and talk specifically -minute wise- about jojos care. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 i live in california, i hope every state has something similar, it has saved me.Gwendelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 i live in california, i hope every state has something similar, it has saved me.Gwendelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 Check and see if you qualify for SSDI Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 I was just able to get IHSS and be paid as the provider (they wouldn't allow me to be the provider up until this month). We are not eligable for SSI, so I'm not sure if it effects this. I do know we are elligable for more things because is Institutionally Deemed (meaning he would be in an institution if we didn't care for him), but from what I have read, being instutionally deemed takes the share of cost out of the picture. Not sure if that helps. joedelynchloejo@... wrote: IN HOME SUPPORT SERVICES, i discovered this after dad went back to work and there aren't any nursing services available, and honestly i'm thrilled i get to take care of jo-jo . he is so complicated couldn't have it any other way. if anyone would like to know more, it's thru health and human services .i was a bit miffed w/ CVRC, I researched and pursued it alone, i am now my son's employee, and he pays me to 'perform tasks'. pretty good. things were starting to fall apart i just couldn't do it all myself, jo-jo has 2 sisters, so time to hire help. apply. the worst that could happen is a denial ,most of mine was done over the phone, it helps to get your dr. involved, an lvn came to meet joseph and talk specifically -minute wise- about jojos care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 I was just able to get IHSS and be paid as the provider (they wouldn't allow me to be the provider up until this month). We are not eligable for SSI, so I'm not sure if it effects this. I do know we are elligable for more things because is Institutionally Deemed (meaning he would be in an institution if we didn't care for him), but from what I have read, being instutionally deemed takes the share of cost out of the picture. Not sure if that helps. joedelynchloejo@... wrote: IN HOME SUPPORT SERVICES, i discovered this after dad went back to work and there aren't any nursing services available, and honestly i'm thrilled i get to take care of jo-jo . he is so complicated couldn't have it any other way. if anyone would like to know more, it's thru health and human services .i was a bit miffed w/ CVRC, I researched and pursued it alone, i am now my son's employee, and he pays me to 'perform tasks'. pretty good. things were starting to fall apart i just couldn't do it all myself, jo-jo has 2 sisters, so time to hire help. apply. the worst that could happen is a denial ,most of mine was done over the phone, it helps to get your dr. involved, an lvn came to meet joseph and talk specifically -minute wise- about jojos care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 I was just able to get IHSS and be paid as the provider (they wouldn't allow me to be the provider up until this month). We are not eligable for SSI, so I'm not sure if it effects this. I do know we are elligable for more things because is Institutionally Deemed (meaning he would be in an institution if we didn't care for him), but from what I have read, being instutionally deemed takes the share of cost out of the picture. Not sure if that helps. joedelynchloejo@... wrote: IN HOME SUPPORT SERVICES, i discovered this after dad went back to work and there aren't any nursing services available, and honestly i'm thrilled i get to take care of jo-jo . he is so complicated couldn't have it any other way. if anyone would like to know more, it's thru health and human services .i was a bit miffed w/ CVRC, I researched and pursued it alone, i am now my son's employee, and he pays me to 'perform tasks'. pretty good. things were starting to fall apart i just couldn't do it all myself, jo-jo has 2 sisters, so time to hire help. apply. the worst that could happen is a denial ,most of mine was done over the phone, it helps to get your dr. involved, an lvn came to meet joseph and talk specifically -minute wise- about jojos care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 What is the difference between SSI and SSDI? > > Check and see if you qualify for SSDI > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Do you also receive SSI or SSDI? > > i live in california, i hope every state has something similar, it has saved > me.Gwendelyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Do you also receive SSI or SSDI? > > i live in california, i hope every state has something similar, it has saved > me.Gwendelyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 SSI is Supplemental Security Income -- like you get after retirement. I thought it was " Social " Security Income until I looked it up online. SSDI is Social (or supplemental?) Security Disability Income -- that you can get if you are disabled but not retirement age. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Right now I don't really know how it works except there are also differences in medical coverage. SSI is a welfare type of coverage and SSDI isn't. I just attended a session at the Perkins school where this was one of the discussions. No one ever told me about SSDI and I am looking more into it. I think it might have to do with the future ability to earn income, but I just don't know that much. I am checking it out more. They are both under Social Security but that is about it. They are two different animals. Social Security Disability Income=SSDI Social Security Income=SSI Patty gets SSI which is ridiculously low. But with that she is eligible for Medicaid. I think if you have SSDI then you are eligible for Medicare. Once again though, looking into it when I have time. Anyone? Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Right now I don't really know how it works except there are also differences in medical coverage. SSI is a welfare type of coverage and SSDI isn't. I just attended a session at the Perkins school where this was one of the discussions. No one ever told me about SSDI and I am looking more into it. I think it might have to do with the future ability to earn income, but I just don't know that much. I am checking it out more. They are both under Social Security but that is about it. They are two different animals. Social Security Disability Income=SSDI Social Security Income=SSI Patty gets SSI which is ridiculously low. But with that she is eligible for Medicaid. I think if you have SSDI then you are eligible for Medicare. Once again though, looking into it when I have time. Anyone? Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Right now I don't really know how it works except there are also differences in medical coverage. SSI is a welfare type of coverage and SSDI isn't. I just attended a session at the Perkins school where this was one of the discussions. No one ever told me about SSDI and I am looking more into it. I think it might have to do with the future ability to earn income, but I just don't know that much. I am checking it out more. They are both under Social Security but that is about it. They are two different animals. Social Security Disability Income=SSDI Social Security Income=SSI Patty gets SSI which is ridiculously low. But with that she is eligible for Medicaid. I think if you have SSDI then you are eligible for Medicare. Once again though, looking into it when I have time. Anyone? Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Bonnie- I am guessing that what Patty gets is actually SSDI. There isn't any reason she'd qualify for SSI. I forgot about the automatic qualifier for Medicaid -- I think that must be true in all states - again, a federal thing. SSDI is based on income of the parents when the child is the one with disabilities. So many kids don't qualify based on income when they do have the qualifying disabilities. Once a person is 18, then their own income is considered and most do qualify -- if their disabilities interfere with employment. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Re: Re: SSI & IHSS Right now I don't really know how it works except there are also differences in medical coverage. SSI is a welfare type of coverage and SSDI isn't. I just attended a session at the Perkins school where this was one of the discussions. No one ever told me about SSDI and I am looking more into it. I think it might have to do with the future ability to earn income, but I just don't know that much. I am checking it out more. They are both under Social Security but that is about it. They are two different animals. Social Security Disability Income=SSDI Social Security Income=SSI Patty gets SSI which is ridiculously low. But with that she is eligible for Medicaid. I think if you have SSDI then you are eligible for Medicare. Once again though, looking into it when I have time. Anyone? Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Bonnie, As I understand it from my days as a transition planning specialist, most students who are deafblind get SSI. The few that got SSDI got it because they had a parent who was either on disability and unable to continue working or the parent was deceased. SSDI is based on a worker's contribution to FICA (I think). The reference below has some good detail. Betsy Social Security disability benefits consist of monthly payments and/or Medicare benefits which provide compensation to those who are disabled from performing substantial gainful work of any kind. Social Security benefits can be obtained through two programs; (1) Social Security Disability Insurance (SSDI) or (2) Supplemental Security Income (SSI). Both SSDI and SSI have the same medical requirements, to be discussed below. However, SSDI requires a certain amount of credit earned for prior work, whereas SSI is based solely on financial need, regardless of prior work. http://www.disabilityadvocates.net/ssi-basics.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Thanks for the many responses. We tried to get SSI, but were turned down because we made too money and owned a house. Is this typical? Is there a loop hole for people in our situation. I can't go back to work (no nursing to care for ) and am looking for any kind of financial assistance I can get. We just got IHSS to start paying me, but we are only getting 69 hours a month. I would like to know what people are getting assistance with in California (Federal or State) and what qualifications must be met. Josh is 6 years old, he is deaf, but not blind, but is Trach dependent, G-tube dependent, is a fragile ambulator, is physically and developmentally delayed and is epileptic among other things that probably wouldn't make a difference in this situation. I would love some input, thanks in advance for your time. Bernie, Mom of 6 cHARGE, Amber 9 and Wife of betsy.mcginnity@... wrote: Bonnie, As I understand it from my days as a transition planning specialist, most students who are deafblind get SSI. The few that got SSDI got it because they had a parent who was either on disability and unable to continue working or the parent was deceased. SSDI is based on a worker's contribution to FICA (I think). The reference below has some good detail. Betsy Social Security disability benefits consist of monthly payments and/or Medicare benefits which provide compensation to those who are disabled from performing substantial gainful work of any kind. Social Security benefits can be obtained through two programs; (1) Social Security Disability Insurance (SSDI) or (2) Supplemental Security Income (SSI). Both SSDI and SSI have the same medical requirements, to be discussed below. However, SSDI requires a certain amount of credit earned for prior work, whereas SSI is based solely on financial need, regardless of prior work. http://www.disabilityadvocates.net/ssi-basics.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Thanks for the many responses. We tried to get SSI, but were turned down because we made too money and owned a house. Is this typical? Is there a loop hole for people in our situation. I can't go back to work (no nursing to care for ) and am looking for any kind of financial assistance I can get. We just got IHSS to start paying me, but we are only getting 69 hours a month. I would like to know what people are getting assistance with in California (Federal or State) and what qualifications must be met. Josh is 6 years old, he is deaf, but not blind, but is Trach dependent, G-tube dependent, is a fragile ambulator, is physically and developmentally delayed and is epileptic among other things that probably wouldn't make a difference in this situation. I would love some input, thanks in advance for your time. Bernie, Mom of 6 cHARGE, Amber 9 and Wife of betsy.mcginnity@... wrote: Bonnie, As I understand it from my days as a transition planning specialist, most students who are deafblind get SSI. The few that got SSDI got it because they had a parent who was either on disability and unable to continue working or the parent was deceased. SSDI is based on a worker's contribution to FICA (I think). The reference below has some good detail. Betsy Social Security disability benefits consist of monthly payments and/or Medicare benefits which provide compensation to those who are disabled from performing substantial gainful work of any kind. Social Security benefits can be obtained through two programs; (1) Social Security Disability Insurance (SSDI) or (2) Supplemental Security Income (SSI). Both SSDI and SSI have the same medical requirements, to be discussed below. However, SSDI requires a certain amount of credit earned for prior work, whereas SSI is based solely on financial need, regardless of prior work. http://www.disabilityadvocates.net/ssi-basics.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 the forms are intimidating but not impossible,get your workers name, don't be shy to call back,attorneys only add politics and fees!!! Quote Link to comment Share on other sites More sharing options...
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