Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 > > Hello everyone,,, > > > > week 1, started out fine, but by the third day of the diet at 4:1 > > ratio, all heck broke loose,,,, the seizure control was great but all > > is did was sleep and have explosive diapers,,,, > > so we have now gone to 3:1.....will do new blood work on monday > > morning to see if there is an improvement, all last week her blood > > gases were a mess,,,ketosis? > > > > the other day the Dr had me give her an additional 8 ounces of water > > thru her feeding tube, this brought on one seizure after the other,,, > > > > yesterday, she perked up alittle bit, the diaper situation looked > > alittle better this morning,,,,only one wet diaper the entire day > > yesterday so I am hoping day two of the new formula will set in and > > we will be going up hill from here! > > > > hugs from a balmy Maine! > > Penny > > > > > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a professional keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic- unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 > >> > >>>Hello everyone,,, > >>> > >>>week 1, started out fine, but by the third day of the diet at 4:1 > >>>ratio, all heck broke loose,,,, the seizure control was great but > >> > > all > > > >>>is did was sleep and have explosive diapers,,,, > >>>so we have now gone to 3:1.....will do new blood work on monday > >>>morning to see if there is an improvement, all last week her > >> > > blood > > > >>>gases were a mess,,,ketosis? > >>> > >>>the other day the Dr had me give her an additional 8 ounces of > >> > > water > > > >>>thru her feeding tube, this brought on one seizure after the > >> > > other,,, > > > >>>yesterday, she perked up alittle bit, the diaper situation looked > >>>alittle better this morning,,,,only one wet diaper the entire day > >>>yesterday so I am hoping day two of the new formula will set in > >> > > and > > > >>>we will be going up hill from here! > >>> > >>>hugs from a balmy Maine! > >>>Penny > >>> > >>> > >>> > >>> > >>> " The Ketogenic Diet....a realistic treatment option, NOT just a > >> > > last resort! " > > > >>> List is for parent to parent support only. > >>> It is important to get medical advice from a > >> > > professional keto team! > > > >>> Subscribe: ketogenic-subscribe > >>> Unsubscribe: ketogenic- > >> > > unsubscribe > > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 > >> > >>>Hello everyone,,, > >>> > >>>week 1, started out fine, but by the third day of the diet at 4:1 > >>>ratio, all heck broke loose,,,, the seizure control was great but > >> > > all > > > >>>is did was sleep and have explosive diapers,,,, > >>>so we have now gone to 3:1.....will do new blood work on monday > >>>morning to see if there is an improvement, all last week her > >> > > blood > > > >>>gases were a mess,,,ketosis? > >>> > >>>the other day the Dr had me give her an additional 8 ounces of > >> > > water > > > >>>thru her feeding tube, this brought on one seizure after the > >> > > other,,, > > > >>>yesterday, she perked up alittle bit, the diaper situation looked > >>>alittle better this morning,,,,only one wet diaper the entire day > >>>yesterday so I am hoping day two of the new formula will set in > >> > > and > > > >>>we will be going up hill from here! > >>> > >>>hugs from a balmy Maine! > >>>Penny > >>> > >>> > >>> > >>> > >>> " The Ketogenic Diet....a realistic treatment option, NOT just a > >> > > last resort! " > > > >>> List is for parent to parent support only. > >>> It is important to get medical advice from a > >> > > professional keto team! > > > >>> Subscribe: ketogenic-subscribe > >>> Unsubscribe: ketogenic- > >> > > unsubscribe > > > >>> Quote Link to comment Share on other sites More sharing options...
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