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Re: update week 2/ new ratio. new bloodwork today

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> > Hello everyone,,,

> >

> > week 1, started out fine, but by the third day of the diet at 4:1

> > ratio, all heck broke loose,,,, the seizure control was great but

all

> > is did was sleep and have explosive diapers,,,,

> > so we have now gone to 3:1.....will do new blood work on monday

> > morning to see if there is an improvement, all last week her

blood

> > gases were a mess,,,ketosis?

> >

> > the other day the Dr had me give her an additional 8 ounces of

water

> > thru her feeding tube, this brought on one seizure after the

other,,,

> >

> > yesterday, she perked up alittle bit, the diaper situation looked

> > alittle better this morning,,,,only one wet diaper the entire day

> > yesterday so I am hoping day two of the new formula will set in

and

> > we will be going up hill from here!

> >

> > hugs from a balmy Maine!

> > Penny

> >

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

last resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-

unsubscribe

> >

> >

> >

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> >>

> >>>Hello everyone,,,

> >>>

> >>>week 1, started out fine, but by the third day of the diet at

4:1

> >>>ratio, all heck broke loose,,,, the seizure control was great

but

> >>

> > all

> >

> >>>is did was sleep and have explosive diapers,,,,

> >>>so we have now gone to 3:1.....will do new blood work on monday

> >>>morning to see if there is an improvement, all last week her

> >>

> > blood

> >

> >>>gases were a mess,,,ketosis?

> >>>

> >>>the other day the Dr had me give her an additional 8 ounces of

> >>

> > water

> >

> >>>thru her feeding tube, this brought on one seizure after the

> >>

> > other,,,

> >

> >>>yesterday, she perked up alittle bit, the diaper situation

looked

> >>>alittle better this morning,,,,only one wet diaper the entire

day

> >>>yesterday so I am hoping day two of the new formula will set in

> >>

> > and

> >

> >>>we will be going up hill from here!

> >>>

> >>>hugs from a balmy Maine!

> >>>Penny

> >>>

> >>>

> >>>

> >>>

> >>> " The Ketogenic Diet....a realistic treatment option, NOT just

a

> >>

> > last resort! "

> >

> >>> List is for parent to parent support only.

> >>> It is important to get medical advice from a

> >>

> > professional keto team!

> >

> >>> Subscribe: ketogenic-subscribe

> >>> Unsubscribe: ketogenic-

> >>

> > unsubscribe

> >

> >>>

Link to comment
Share on other sites

> >>

> >>>Hello everyone,,,

> >>>

> >>>week 1, started out fine, but by the third day of the diet at

4:1

> >>>ratio, all heck broke loose,,,, the seizure control was great

but

> >>

> > all

> >

> >>>is did was sleep and have explosive diapers,,,,

> >>>so we have now gone to 3:1.....will do new blood work on monday

> >>>morning to see if there is an improvement, all last week her

> >>

> > blood

> >

> >>>gases were a mess,,,ketosis?

> >>>

> >>>the other day the Dr had me give her an additional 8 ounces of

> >>

> > water

> >

> >>>thru her feeding tube, this brought on one seizure after the

> >>

> > other,,,

> >

> >>>yesterday, she perked up alittle bit, the diaper situation

looked

> >>>alittle better this morning,,,,only one wet diaper the entire

day

> >>>yesterday so I am hoping day two of the new formula will set in

> >>

> > and

> >

> >>>we will be going up hill from here!

> >>>

> >>>hugs from a balmy Maine!

> >>>Penny

> >>>

> >>>

> >>>

> >>>

> >>> " The Ketogenic Diet....a realistic treatment option, NOT just

a

> >>

> > last resort! "

> >

> >>> List is for parent to parent support only.

> >>> It is important to get medical advice from a

> >>

> > professional keto team!

> >

> >>> Subscribe: ketogenic-subscribe

> >>> Unsubscribe: ketogenic-

> >>

> > unsubscribe

> >

> >>>

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