Re: When you're getting well...its really painful?

[Guest guest]

We love to hear each others' stories. It helps us to be more determined and not so alone with all our quirks. This stuff transcends across all models and makes, lol. Many yrs ago, I was treated as "bipolar", and it was a really long trip. I was hyperthyroid Hashimoto's then, but sometime after it titered out and crashed, I looked back and said "WHO was THAT???" That's just an inkling. I call it more of the yo-yo syndrome, when that part is highly involved.

Re: When you're getting well...its really painful?

I am glad that I am not alone in all my "wierd" thoughts about this condition. I would love to share my story someday....It is filled with many emotions and racing thoughts with highs and lows that I felt would never end... I thank GOD it is over for now and I pray for those that have not been diagnosed correctly. It has taken my professional life a step closer to my clients since I am a therapist but there were times when I felt like my clients were more stable than me. I can laugh some now but I shed more than one tear and anger outburst while going 3 years undiagnosed. Okay, enough for now. Take Care

Mark Cline

Fredericksburg, Va

[Guest guest]

I wonder how many people, especially women, are being treated for depression and bipolor disorders when the real problem is some auto-immune disease. And given my experience, I am starting to think that is probably a lot....

Cody

Re: When you're getting well...its really painful?

I am glad that I am not alone in all my "wierd" thoughts about this condition. I would love to share my story someday....It is filled with many emotions and racing thoughts with highs and lows that I felt would never end... I thank GOD it is over for now and I pray for those that have not been diagnosed correctly. It has taken my professional life a step closer to my clients since I am a therapist but there were times when I felt like my clients were more stable than me. I can laugh some now but I shed more than one tear and anger outburst while going 3 years undiagnosed. Okay, enough for now. Take Care

Mark Cline

Fredericksburg, Va

[Guest guest]

, I was diagnosed with hashimoto about 3 weeks ago ow and I am being treated for depression for the last 3 years, for heart problems for the last year and high blood pressure and insomnia all for the last year but I have been sitting here for the past week thinking to myself you know reading all the links on this site and thinking back I have been going through this for the last I would say maybe 5 years or so. In Dec 2003 I had a laparoscopy for endometriosis, then Feb 2004 had a hysterectomy , may 2004 for a hole poked in my bladder by the Doctor cause they could not get my uterus out.so I had my bladder repaired had to have a catherer for 5 weeks and I was so down and depressed and then in Sept labor day weekend my Fiance( at the time now my hubby ) were sitting at the bar of the rod and gun club we belong to and I had a mini stroke. I leaned over and asked him to please take me home I didn't feel good and I felt nothing on my right side I

was numb couldn't walk straight and I don't even drink alcohol. I went right to bed as he begged me to go to the ER and I kept saying no but he watched em all night and then the next morning got up and called the Doctor and they told him to get me to the ER if he had to tie me up and carry me in . I went reluctantly cause before the endometriosis I had hardly ever been sick except a cold every winter which we all expect. Then the Doctor comes in and looks at me and send me for a cat scan of my head. She reads the report and came in and told us I had a blood clot in my head they didn't know whether it was new or old bu it was there. They sent me to a heart specialist and I found out I have a 30% unobstructive blockage in my heart not bad enough to do anything about except monitor it. Then the hear Doc sent me for new xrays on my chest he saw something he didn't like and then for blood tests that is when they told me I was borderline thyroid never told me hyper

or hypo. Well then I started packing on the weight I gained 60 in a year and all they have bee telling me is it isn't bad enough to do anything about it. then 3 weeks ago I find out I have this Hashimoto thyroditis which I never heard of and now they keep telling me it isn't bad enough to do any treatment for it yet. While I sit here and am in constance pain in my joints and I want to can't sleep at night caus I have insomnia and I just sleep when ever I can which I guess is wrong cause then I am up half the night. I have no appitite and feel nauseous all the time feel the need to vomit all the time my skin is dry and have a headache almost 24/7. I feel like I am going to lose my mind , I am desperately trying to find a good Doctor before I do go plain crazy here. They have given me all this medication for everything even my cholesterol. When they could probably fix everything with just a treatment for my thyroid, I don't get it except for like Topper says they all have their heads

up their butts. They know nothing about the thyroid to save their souls.That song that Tim McGraw sings Live like you where Dying well that is how I feel everyday Like I am living like I am dying, cause deep inside that is just how I feel. my friends even know i am sick all the time they are always telling me I don't look right I am always pale I never want to go anywhere anymore in public cause I am afraid someone will ask questions, I am so tired of explaning it it is easier to stay home and hide. All I want in my life is I want me back , I use to be bubbly and fun and active now all that hurts to much. I have degenerative joint disease in my knees and spinal bifida occulta. I keep thiking and until someone does something to treat me I will feel like this and then it takes 6 to 8 weeks for it to start working wow then people want to know why I just want to die. The only reason I keep going is my Son and my mom and my Wonderful exceptional Husband,My

Rock. Tinalecody wrote: I wonder how many people, especially women, are being treated for depression and bipolor disorders when the real problem is some auto-immune disease. And given my experience, I am starting to think that is

probably a lot.... Cody Re: When you're getting well...its really painful? I am glad that I am not alone in all my "wierd" thoughts about this condition. I would love to share my story someday....It is filled with many emotions and racing thoughts with highs and lows that I felt would never end... I thank GOD it is over for now and I pray for those that have not been diagnosed correctly. It has taken my professional life a step closer to my clients since I am a therapist but there were times when I felt like my clients were more stable than me. I can laugh some now but I shed more than one tear and anger

outburst while going 3 years undiagnosed. Okay, enough for now. Take Care Mark Cline Fredericksburg, Va

Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

so true, so true. i was actually put on LITHIUM (man did that suck

lol). i had hashis and i was really bad off. i actually put myself

in a hospital for a few days as i thought i would hurt myself and

didnt trust my own thoughts. funny thing, thyroid came out and i was

all better. nobody ever made any association regarding my thyroid

condition, i was just bipolar and was thrown med after med after

med. i to this day cannot understand why these 'doctors' couldnt

have figured it all out. 10 years later, i think its safe to say i

am not bipolar and was mishandled during my ordeal. its sad, really.

>

> I wonder how many people, especially women, are being treated for

depression and bipolor disorders when the real problem is some auto-

immune disease. And given my experience, I am starting to think

that is probably a lot....

>

> Cody

> Re: When you're getting

well...its really painful?

>

>

> I am glad that I am not alone in all my " wierd " thoughts about

this condition. I would love to share my story someday....It is

filled with many emotions and racing thoughts with highs and lows

that I felt would never end... I thank GOD it is over for now and I

pray for those that have not been diagnosed correctly. It has taken

my professional life a step closer to my clients since I am a

therapist but there were times when I felt like my clients were more

stable than me. I can laugh some now but I shed more than one tear

and anger outburst while going 3 years undiagnosed. Okay, enough

for now. Take Care

>

> Mark Cline

> Fredericksburg, Va

>

>

>

>

[Guest guest]

so true, so true. i was actually put on LITHIUM (man did that suck

lol). i had hashis and i was really bad off. i actually put myself

in a hospital for a few days as i thought i would hurt myself and

didnt trust my own thoughts. funny thing, thyroid came out and i was

all better. nobody ever made any association regarding my thyroid

condition, i was just bipolar and was thrown med after med after

med. i to this day cannot understand why these 'doctors' couldnt

have figured it all out. 10 years later, i think its safe to say i

am not bipolar and was mishandled during my ordeal. its sad, really.

>

> I wonder how many people, especially women, are being treated for

depression and bipolor disorders when the real problem is some auto-

immune disease. And given my experience, I am starting to think

that is probably a lot....

>

> Cody

> Re: When you're getting

well...its really painful?

>

>

> I am glad that I am not alone in all my " wierd " thoughts about

this condition. I would love to share my story someday....It is

filled with many emotions and racing thoughts with highs and lows

that I felt would never end... I thank GOD it is over for now and I

pray for those that have not been diagnosed correctly. It has taken

my professional life a step closer to my clients since I am a

therapist but there were times when I felt like my clients were more

stable than me. I can laugh some now but I shed more than one tear

and anger outburst while going 3 years undiagnosed. Okay, enough

for now. Take Care

>

> Mark Cline

> Fredericksburg, Va

>

>

>

>

[Guest guest]

You need a different doc, .... It could very well me that that 'borderline' low hypo is just exactly what is dragging your body down...

If you are feeling so poorly without exertion.... how in the world can your body be doing any repairs or healing on the things that aren't working right... that's a LOT more effort and energy required to do that than it is to go to the store...

That's one of the reasons that all that repair and healing and growth stuff goes on in our sleep... so that the body can put all it's energy into that while not having to worry about you walking a flight of stairs to do the laundry.

Do we have a caricaturist in the group? We need a drawing of a doc with 'head up butt'!!

Topper ()

On Tue, 22 Nov 2005 18:51:18 -0800 (PST) Tina Hummel writes:

,

I was diagnosed with hashimoto about 3 weeks ago ow and I am being treated for depression for the last 3 years, for heart problems for the last year and high blood pressure and insomnia all for the last year but I have been sitting here for the past week thinking to myself you know reading all the links on this site and thinking back I have been going through this for the last I would say maybe 5 years or so. In Dec 2003 I had a laparoscopy for endometriosis, then Feb 2004 had a hysterectomy , may 2004 for a hole poked in my bladder by the Doctor cause they could not get my uterus out.so I had my bladder repaired had to have a catherer for 5 weeks and I was so down and depressed and then in Sept labor day weekend my Fiance( at the time now my hubby ) were sitting at the bar of the rod and gun club we belong to and I had a mini stroke. I leaned over and asked him to please take me home I didn't feel good and I felt nothing on my right side I was numb couldn't walk straight and I don't even drink alcohol. I went right to bed as he begged me to go to the ER and I kept saying no but he watched em all night and then the next morning got up and called the Doctor and they told him to get me to the ER if he had to tie me up and carry me in .

I went reluctantly cause before the endometriosis I had hardly ever been sick except a cold every winter which we all expect. Then the Doctor comes in and looks at me and send me for a cat scan of my head. She reads the report and came in and told us I had a blood clot in my head they didn't know whether it was new or old bu it was there. They sent me to a heart specialist and I found out I have a 30% unobstructive blockage in my heart not bad enough to do anything about except monitor it. Then the hear Doc sent me for new xrays on my chest he saw something he didn't like and then for blood tests that is when they told me I was borderline thyroid never told me hyper or hypo. Well then I started packing on the weight I gained 60 in a year and all they have bee telling me is it isn't bad enough to do anything about it. then 3 weeks ago I find out I have this Hashimoto thyroditis which I never heard of and now they keep telling me it isn't bad enough to do any treatment for it yet. While I sit here and am in constance pain in my joints and I want to can't sleep at night caus I have insomnia and I just sleep when ever I can which I guess is wrong cause then I am up half the night. I have no appitite and feel nauseous all the time feel the need to vomit all the time my skin is dry and have a headache almost 24/7. I feel like I am going to lose my mind , I am desperately trying to find a good Doctor before I do go plain crazy here. They have given me all this medication for everything even my cholesterol. When they could probably fix everything with just a treatment for my thyroid, I don't get it except for like Topper says they all have their heads up their butts. They know nothing about the thyroid to save their souls.That song that Tim McGraw sings Live like you where Dying well that is how I feel everyday Like I am living like I am dying, cause deep inside that is just how I feel. my friends even know i am sick all the time they are always telling me I don't look right I am always pale I never want to go anywhere anymore in public cause I am afraid someone will ask questions, I am so tired of explaning it it is easier to stay home and hide. All I want in my life is I want me back , I use to be bubbly and fun and active now all that hurts to much. I have degenerative joint disease in my knees and spinal bifida occulta. I keep thiking and until someone does something to treat me I will feel like this and then it takes 6 to 8 weeks for it to start working wow then people want to know why I just want to die.

The only reason I keep going is my Son and my mom and my Wonderful exceptional Husband,My Rock.

Tina

[Guest guest]

It's probably so many that it would make a good horror story.... well... that idea is actually incorporated into the book I'm writing.....

Topper ()

On Tue, 22 Nov 2005 16:56:50 -0800 "lecody" writes:

I wonder how many people, especially women, are being treated for depression and bipolor disorders when the real problem is some auto-immune disease. And given my experience, I am starting to think that is probably a lot....

Cody

[Guest guest]

, We have alot in common then cause at the present i am trying for ssi/ssd but I have a lawyer I haven't been able to work in 3 years either cause of my back and legs I can't stand for long periods of time and I know 8 hours would do me in for weeks and half of that for at least a week therefore finding a sedintary job is very difficult in my little town. Here people get jobs they stay forever or at least till they move the company out of the country. I Have a rehabilatation counselor and she is great and has been helping me a great deal , I have gone to college for a certification in Medical billing /coding and have bee trying to get a job in that field but now it is no sorry you have no experience. Everyone seems to need two years experience and well my question is always how do you get the experience if no one gives you the chance.It's like people with apartments for rent that say no children but do they remember they where children to

what did their parents do hide them all the time when company came? I think we live in a totally screwy world sometimes. People don't care about others just what they get out of things and that is sssoooo sad. People always look at my friends and I funny cause when we go somewhere together and we are going our own ways I always say I love you to them and they say it back cause I do I love all my friends and we hug alot cause you never know when or if you get to see them in the same condition you left them just like that Garth song "If Tomarrow Never Comes" I learned that the hard way my dad left for work one night and I never saw him coheriant again and my sister died in front of me and I could not help her nor did I know how to ( blood clot in her lung) I just hope they know that I still love them with all my heart. I now take that opportunity to say it all the time..I have been in a psych hospital to for a while. Had a very hard time dealing and coping with things for a

while. So here I am trying to get disability at 48 which I feel is unfair to me I still have alot I want to give to this world. But my bones and joints remind me everyday no you can't you can hardly move with out pain. I have a one bedroom apartment and it takes me a whole day to clean one room cause I have to sit to often. I just want the flexible old bubbly me back again. Tinalecody wrote: Tina, You and I have the same story except with me it was lungs and cysts of some kind in my back and thigh and arms. But I am pretty sure I have had the Hashimoto's since I was 24 if not younger and because of all the surgeries and Lung infection I had starting about 5 years ago, my body rebelled and shut down and the Hashimoto's kicked ass on my thyroid and I was pretty sure I had something so seriously wrong it would kill me or I would kill myself. I already know the docs I am seeing don't know much about Hashimoto's [like you got info from this list which is a life saver] so I will just have to be a bitch about what I want to do. It may take awhile cause I

am trying to get SSD/SSI, but because of the psych hospitalization, I now have an advocate works with SS to get their clients the benefits and especially the medical. Once I get that... I can change docs if I have to. I am pretty sure, I do not have any psych problems except what the hypothy and the meds they were trying was doing to me, but who am I do argue for now . I haven't been able to work for 3 years and I need to be able to concentrate on getting well. Re: When you're getting well...its really painful? I am glad that I am not alone in all my "wierd" thoughts about this condition. I would love to

share my story someday....It is filled with many emotions and racing thoughts with highs and lows that I felt would never end... I thank GOD it is over for now and I pray for those that have not been diagnosed correctly. It has taken my professional life a step closer to my clients since I am a therapist but there were times when I felt like my clients were more stable than me. I can laugh some now but I shed more than one tear and anger outburst while going 3 years undiagnosed. Okay, enough for now. Take Care Mark Cline Fredericksburg, Va Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0

I]9IKI099 U[ Yahoo! FareChase - Search multiple travel sites in one click.

Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Tina,

You and I have the same story except with me it was lungs and cysts of some kind in my back and thigh and arms. But I am pretty sure I have had the Hashimoto's since I was 24 if not younger and because of all the surgeries and Lung infection I had starting about 5 years ago, my body rebelled and shut down and the Hashimoto's kicked ass on my thyroid and I was pretty sure I had something so seriously wrong it would kill me or I would kill myself.

I already know the docs I am seeing don't know much about Hashimoto's [like you got info from this list which is a life saver] so I will just have to be a bitch about what I want to do. It may take awhile cause I am trying to get SSD/SSI, but because of the psych hospitalization, I now have an advocate works with SS to get their clients the benefits and especially the medical. Once I get that... I can change docs if I have to. I am pretty sure, I do not have any psych problems except what the hypothy and the meds they were trying was doing to me, but who am I do argue for now . I haven't been able to work for 3 years and I need to be able to concentrate on getting well.

Re: When you're getting well...its really painful?

I am glad that I am not alone in all my "wierd" thoughts about this condition. I would love to share my story someday....It is filled with many emotions and racing thoughts with highs and lows that I felt would never end... I thank GOD it is over for now and I pray for those that have not been diagnosed correctly. It has taken my professional life a step closer to my clients since I am a therapist but there were times when I felt like my clients were more stable than me. I can laugh some now but I shed more than one tear and anger outburst while going 3 years undiagnosed. Okay, enough for now. Take Care

Mark Cline

Fredericksburg, Va

Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

, It is so good to know there is other out there like us isn't it ? That we are not crazy despite the fact that my Doc's nurse told me it is not all in my head I am not fine. I know with out this support group I would be lost and just go on thinking maybe thay are right I am insane. All my Doc wants me to do is wait change my diet and stop smoking and exercise as much as possible LOL like that is going to happen i barely get anything done around the house cause of the aches and pains in my joints and he wants me to start walking 5 miles a day he has to be on crack. LOL I think sometimes we are just being used to build the addtions to their already to big houses. So they just string us along and until I found this group I went along with it. not anymore I am searching out a good honest caring Doc. Hey laura good luck to you and hope you feel better soon and hope you win you ssi/ssd case. Huggsss to you and it has been

nice meeting you email me or send me a message anytime I would love to chat somemore . I love you all in this group and HAPPY Thankgiving to all be careful if you are driving. Huggss to all Tinalecody wrote: Tina,

I am 52 so yea... we have lots in common. I hope to get well enough to work again, but right now I know I cannot do it... So I am caught between a huge rock and a very hard place. Thyroid problems aren't enough for disability and shouldn't be except that they are "undertreated" leaving its victim incapable of doing much of anything besides wishing they were dead...But I had to go committ myself or I would have ended it in a very final manner. Best thing I have done... it got me the advocate and the dx and some treatment even if it is being undertreated...and mistreated [with antidepressants] believe, right now that is better than no treatment at all... I also have COPD, HBP, and myoclonic and dystonic spasms. The dystonic spasms may be a complication of hypothyroid... for that matter the myoclonic spasms may be also... but right now I am also taking a muscle relaxant [bacolfen] so I don't know which med is

helping those. At least the spasms in my back have eased up... but so far the myoclonic ones are still the same... if not a little worse. Re: When you're getting well...its really painful? I am glad that I am not alone in all my "wierd" thoughts about this condition. I would love to share my story someday....It is filled with many emotions and racing thoughts with highs and lows that I felt would never end... I thank GOD it is over for now and I pray for those that have not been diagnosed correctly. It has taken my professional life a step closer to my clients since I am a therapist but there were times when I felt like my clients were more stable than me. I can laugh some now but I shed more than one tear and anger outburst while going

3 years undiagnosed. Okay, enough for now. Take Care Mark Cline Fredericksburg, Va Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[ Yahoo! FareChase - Search multiple travel sites in one click. Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[ Yahoo! FareChase - Search multiple travel sites in one click.

Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Tina,

I am 52 so yea... we have lots in common. I hope to get well enough to work again, but right now I know I cannot do it... So I am caught between a huge rock and a very hard place. Thyroid problems aren't enough for disability and shouldn't be except that they are "undertreated" leaving its victim incapable of doing much of anything besides wishing they were dead...But I had to go committ myself or I would have ended it in a very final manner. Best thing I have done... it got me the advocate and the dx and some treatment even if it is being undertreated...and mistreated [with antidepressants] believe, right now that is better than no treatment at all... I also have COPD, HBP, and myoclonic and dystonic spasms. The dystonic spasms may be a complication of hypothyroid... for that matter the myoclonic spasms may be also... but right now I am also taking a muscle relaxant [bacolfen] so I don't know which med is helping those. At least the spasms in my back have eased up... but so far the myoclonic ones are still the same... if not a little worse.

Re: When you're getting well...its really painful?

I am glad that I am not alone in all my "wierd" thoughts about this condition. I would love to share my story someday....It is filled with many emotions and racing thoughts with highs and lows that I felt would never end... I thank GOD it is over for now and I pray for those that have not been diagnosed correctly. It has taken my professional life a step closer to my clients since I am a therapist but there were times when I felt like my clients were more stable than me. I can laugh some now but I shed more than one tear and anger outburst while going 3 years undiagnosed. Okay, enough for now. Take Care

Mark Cline

Fredericksburg, Va

Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[

Yahoo! FareChase - Search multiple travel sites in one click.

Tina JJOIPPKOOUNUJOP'IUJK0--9UTINA MK-099-99\OP'[-0 I]9IKI099 U[

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Right on. I had the most horrible paranoid, suicidal, " somethings going to

get me " thoughts, plus horrible free floating anxiety for several YEARS (not

months or days, yrs). I was treated with so many different things, it's

unreal, and all of them were psych meds. I could eat anything I wanted and

weighed around 113-120 (beginning hyper phase of Hashi's, in my case) at

5'6 " tall, but at what price? I was emotionally bombed all the time, could

never work out or run enough to quell the anxiety, and, if I'm guessing

right, probably had very high cortisol at that time, from emotional

stressors and such. They called it---you guessed it---bipolar disorder.

Funny how that all seems like such a far away thing now, since my thyroid

failed around 12 or so yrs ago.

Re: When you're getting well...its

really painful?

> so true, so true. i was actually put on LITHIUM (man did that suck

> lol). i had hashis and i was really bad off. i actually put myself

> in a hospital for a few days as i thought i would hurt myself and

> didnt trust my own thoughts. funny thing, thyroid came out and i was

> all better. nobody ever made any association regarding my thyroid

> condition, i was just bipolar and was thrown med after med after

> med. i to this day cannot understand why these 'doctors' couldnt

> have figured it all out. 10 years later, i think its safe to say i

> am not bipolar and was mishandled during my ordeal. its sad, really.

[Guest guest]

Hi

I read the messages but haven't posted here before.

But reading this has given me some hope, something that is so lacking in me.

I had the most horrible paranoid, suicidal, "something's going toget me" thoughts, plus horrible free floating anxiety for several YEARS (notmonths or days, yrs). I was treated with so many different things, it'sunreal, and all of them were psych meds.

This could be so easily have been written by me, I going through it all again right now. I'm taking adrenal support and Armour.

I like have had allsorts of labels attached regarding my state of mental health for years. I've had bouts of depression before but this one is beating the others, never have I felt so desperate and I most certainly haven't had thoughts of suicide like I'm having now. The one and only thing that is stopping me is my son and my partner, I wouldn't want to leave them with feelings of guilt or the stigma it would bring. So everything is pinned on the Armour and bringing some life back

I've had loads of tests over the years all came borderline so I was told OK nothing wrong with you thyroid. For years because I was naive I accepted this. Now, with guidance from a very well known doctor on the subject of thyroid and adrenal fatigue I'm self medicating.

My GP who has now reached the stage where she just patronises me, can see the symptoms but will not treat without the blood results saying what she thinks they should.

I have a fluid retention and have had since 1988 after hysterectomy (PCOS) and have be prescribed diuretic upto 2003 even though I have allsorts of Hypo symptoms. In 2001 a consultant diagnosed something wrong with my lymph glands and said I should continue with them, but my GP said she was no longer prepared to continue you giving them to me. Since then everything has got so much worse. To the extent that I haven't had a good day since 27th April this year, which is when I had a wisdom tooth removed, since then to now I have become all most a recluse because I feel so ill and I have put on so much weight and have so much pain.

My GP now actually has the affront to comment when I see her whether my face looks extra puffed up or not, and still she chooses to ignore the obvious.

So fingers crossed I following in the footsteps of the many here that have taken control themselves and won or at least are on the winning side

thanks for listening

GT

Re: Re: When you're getting well...its really painful?

Right on. I had the most horrible paranoid, suicidal, "somethings going toget me" thoughts, plus horrible free floating anxiety for several YEARS (notmonths or days, yrs). I was treated with so many different things, it'sunreal, and all of them were psych meds. I could eat anything I wanted andweighed around 113-120 (beginning hyper phase of Hashi's, in my case) at5'6" tall, but at what price? I was emotionally bombed all the time, couldnever work out or run enough to quell the anxiety, and, if I'm guessingright, probably had very high cortisol at that time, from emotionalstressors and such. They called it---you guessed it---bipolar disorder.Funny how that all seems like such a far away thing now, since my thyroidfailed around 12 or so yrs ago.

[Guest guest]

Hi

I read the messages but haven't posted here before.

But reading this has given me some hope, something that is so lacking in me.

I had the most horrible paranoid, suicidal, "something's going toget me" thoughts, plus horrible free floating anxiety for several YEARS (notmonths or days, yrs). I was treated with so many different things, it'sunreal, and all of them were psych meds.

This could be so easily have been written by me, I going through it all again right now. I'm taking adrenal support and Armour.

I like have had allsorts of labels attached regarding my state of mental health for years. I've had bouts of depression before but this one is beating the others, never have I felt so desperate and I most certainly haven't had thoughts of suicide like I'm having now. The one and only thing that is stopping me is my son and my partner, I wouldn't want to leave them with feelings of guilt or the stigma it would bring. So everything is pinned on the Armour and bringing some life back

I've had loads of tests over the years all came borderline so I was told OK nothing wrong with you thyroid. For years because I was naive I accepted this. Now, with guidance from a very well known doctor on the subject of thyroid and adrenal fatigue I'm self medicating.

My GP who has now reached the stage where she just patronises me, can see the symptoms but will not treat without the blood results saying what she thinks they should.

I have a fluid retention and have had since 1988 after hysterectomy (PCOS) and have be prescribed diuretic upto 2003 even though I have allsorts of Hypo symptoms. In 2001 a consultant diagnosed something wrong with my lymph glands and said I should continue with them, but my GP said she was no longer prepared to continue you giving them to me. Since then everything has got so much worse. To the extent that I haven't had a good day since 27th April this year, which is when I had a wisdom tooth removed, since then to now I have become all most a recluse because I feel so ill and I have put on so much weight and have so much pain.

My GP now actually has the affront to comment when I see her whether my face looks extra puffed up or not, and still she chooses to ignore the obvious.

So fingers crossed I following in the footsteps of the many here that have taken control themselves and won or at least are on the winning side

thanks for listening

GT

Re: Re: When you're getting well...its really painful?

Right on. I had the most horrible paranoid, suicidal, "somethings going toget me" thoughts, plus horrible free floating anxiety for several YEARS (notmonths or days, yrs). I was treated with so many different things, it'sunreal, and all of them were psych meds. I could eat anything I wanted andweighed around 113-120 (beginning hyper phase of Hashi's, in my case) at5'6" tall, but at what price? I was emotionally bombed all the time, couldnever work out or run enough to quell the anxiety, and, if I'm guessingright, probably had very high cortisol at that time, from emotionalstressors and such. They called it---you guessed it---bipolar disorder.Funny how that all seems like such a far away thing now, since my thyroidfailed around 12 or so yrs ago.

[Guest guest]

Sorry not to have gotten down this far in the messages, I'm way behind. Anyway, you just stick with that doctor who is advising you on this, and stick with us too. I certainly haven't been perfect with my own self medication, and I wouldn't advise just anyone to do it, unless they are very willing to learn what it's all about. I have made several mistakes while self treating, so I'm not going to say that it's been smooth sailing in that respect either, but I do know that I feel better most of the time, at least better than I did when I wasn't self medicating. I don't get my blood levels done by HealthCheck often enough these days, due to lack of funds mostly, but noone knows our bodies better than we do, so it might not be any different if I was seeing a doctor. After all, they have to experiment around with us while THEY are adjusting our meds, as well as we do, and probably, in some cases, for the same lengths of time as they have to.

I have been there, when it comes to the state of melancholia, where you are in a black pit and don't even know what's going on there. One thing you have that I didn't have all those yrs ago is this group, a loving family, and the knowledge that, NO, I'm really not crazy, it's this condition. I didn't even have that, plus I had a very abusive spouse who really didn't give a care how I was feeling, as long as I did what HE needed me to do. It probably very much contributed to the onset of the illness, yrs of emotional stressors and disappointments in my personal relationships and such. I believe that these are always major contributors to thyroid disease, even if the time bomb is already sitting in there, waiting to go off.

As I said before, I really think that I probably had very HIGH levels of cortisol at that time, because I couldn't be still, it was like something was always haunting me and driving me, and I had to run for miles just to quell a small amt of that anxiety. If it hadn't been for my VERY high physical activity (which I can't do now), they would have found me sitting in a corner all rolled up.

I believe that your thyroid treatment is where the key is, plus your own determination, and all the wonderful people on these groups to stand with you, and we ARE standing with you, as someone has stood with all of us. Thank God for the Groups because I truly believe that they are a seed from Him. I pray for you.

(((Hugs)))

Re: Re: When you're getting well...its really painful?

Hi

I read the messages but haven't posted here before.

But reading this has given me some hope, something that is so lacking in me.

I had the most horrible paranoid, suicidal, "something's going toget me" thoughts, plus horrible free floating anxiety for several YEARS (notmonths or days, yrs). I was treated with so many different things, it'sunreal, and all of them were psych meds.

This could be so easily have been written by me, I going through it all again right now. I'm taking adrenal support and Armour.

I like have had allsorts of labels attached regarding my state of mental health for years. I've had bouts of depression before but this one is beating the others, never have I felt so desperate and I most certainly haven't had thoughts of suicide like I'm having now. The one and only thing that is stopping me is my son and my partner, I wouldn't want to leave them with feelings of guilt or the stigma it would bring. So everything is pinned on the Armour and bringing some life back

I've had loads of tests over the years all came borderline so I was told OK nothing wrong with you thyroid. For years because I was naive I accepted this. Now, with guidance from a very well known doctor on the subject of thyroid and adrenal fatigue I'm self medicating.

My GP who has now reached the stage where she just patronises me, can see the symptoms but will not treat without the blood results saying what she thinks they should.

I have a fluid retention and have had since 1988 after hysterectomy (PCOS) and have be prescribed diuretic upto 2003 even though I have allsorts of Hypo symptoms. In 2001 a consultant diagnosed something wrong with my lymph glands and said I should continue with them, but my GP said she was no longer prepared to continue you giving them to me. Since then everything has got so much worse. To the extent that I haven't had a good day since 27th April this year, which is when I had a wisdom tooth removed, since then to now I have become all most a recluse because I feel so ill and I have put on so much weight and have so much pain.

My GP now actually has the affront to comment when I see her whether my face looks extra puffed up or not, and still she chooses to ignore the obvious.

So fingers crossed I following in the footsteps of the many here that have taken control themselves and won or at least are on the winning side

thanks for listening

GT