Re: Amelie off vent this morning

[Guest guest]

Glad to hear she is doing better. What a fighter she is!!!!

Murray

[Guest guest]

Glad to hear she is doing better. What a fighter she is!!!!

Murray

[Guest guest]

Glad to hear she is doing better. What a fighter she is!!!!

Murray

[Guest guest]

Thanks for the update Les - glad to hear she is off the vent. Let us know

how the big meeting goes.

Hugs & love,

--

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

[Guest guest]

Thanks for the update Les - glad to hear she is off the vent. Let us know

how the big meeting goes.

Hugs & love,

--

Weir

kawfolks@...

http://ca.geocities.com/weirfamilyrogers

[Guest guest]

Lesley-

Finally some decent news! I hope the critter gets home soon and stays there

long enough for you to all have some relaxation and enjoyment of each other!

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley,

Good news! Here's hoping more good news is in store. Yea for the big

meeting as well. It is often when the minds come together that understanding is

the

result. May you find more positives.

What are Amelie's numbers? (Sugar)

Bonnie, Mom to Kris 23, Patty CHARGE 21, and wife to

[Guest guest]

Lesley,

Good news! Here's hoping more good news is in store. Yea for the big

meeting as well. It is often when the minds come together that understanding is

the

result. May you find more positives.

What are Amelie's numbers? (Sugar)

Bonnie, Mom to Kris 23, Patty CHARGE 21, and wife to

[Guest guest]

yay love u xxxxxxxxxx

>

> Lesley-

> Finally some decent news! I hope the critter gets home soon and stays

> there

> long enough for you to all have some relaxation and enjoyment of each

> other!

>

>

> Michele W

> mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

yay love u xxxxxxxxxx

>

> Lesley-

> Finally some decent news! I hope the critter gets home soon and stays

> there

> long enough for you to all have some relaxation and enjoyment of each

> other!

>

>

> Michele W

> mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

yay love u xxxxxxxxxx

>

> Lesley-

> Finally some decent news! I hope the critter gets home soon and stays

> there

> long enough for you to all have some relaxation and enjoyment of each

> other!

>

>

> Michele W

> mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Hi Bonnie

>

> What are Amelie's numbers? (Sugar)

Her highest was 19.7 and she is mainly low 3.2 she has a strange

sweaty cold clammie complexion, and can not be off herf= feed for

more than two hours, she has supplements sodium mostly but her

potassium and magnesium mess about frequently, we finally saw an

endocrinologist last week who asked for her morning cortisol and

asked for one of the bloods to be repeated,does this mean anything ??

cheers Les x

>

>

> Bonnie, Mom to Kris 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Hi Bonnie

>

> What are Amelie's numbers? (Sugar)

Her highest was 19.7 and she is mainly low 3.2 she has a strange

sweaty cold clammie complexion, and can not be off herf= feed for

more than two hours, she has supplements sodium mostly but her

potassium and magnesium mess about frequently, we finally saw an

endocrinologist last week who asked for her morning cortisol and

asked for one of the bloods to be repeated,does this mean anything ??

cheers Les x

>

>

> Bonnie, Mom to Kris 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Hug to you all and I hope she can come home soon, I am glad she is

doing better.

Crystal and Eva (11 month charger)

>

> Hi all

>

> Well she is doing better than the attempt last Saturday, she has a

> little strider but she is coping well, they are keeping her in ICU

for

> the next 24 hours in case, but she looks much better, also the

> endocrinology have now got involved because her blood sugars have

been

> all over the show, she does normally have low sugars, so the are

doing

> lots of blood tests to see if anything is going on.

>

> Fingers crossed, she may be home next week, also they are

arranging a

> big meeting after easter to discuss where we go from here,

especially

> as we backed out of the disassociation, so regarding surgery for

the

> reflux.

>

> bye for now les x

>