Phil's Update

[Guest guest]

Narice,

You and Phil are a good example of what faith and determination will

do. I am so happy to hear the good news and appoligize it took me

so long to respond. My computer was shutting me down about the time

of your post. Keep on posting girl!!!! I love your sense of humor.

Best Wishes

Joyce

> Well, here we are on round 5 of the 5FU, Leucovorin, and

Oxilaplatin chemo.

> So far the side effects have remained minimal. Flu like aches and

chills the

> day of the Oxaliplatin. Dry hands from the 5 Fu (use Aquafor it is

made

> special to help treat that and radiation problems and is sold in

most stores).

> Occasionally he has a bout of nausea.

> All manageable with mostly over the counter treatments or mild

prescriptions.

>

> We had a wonderful relaxing Valentine's Day dinner etc. The Dr.

told us Phil

> GAINED 5 lbs. and we are looking at a 1-2 month chemo break around

Easter!!

> YAHOOO!!!!!!!!

> Other drugs may be added to the chemo after that. so far so good.

>

> Thanks again for all your prayers. God certainly hears and acts on

them!

> God Bless you all!

> Much Love,

> Phil, Narice Dan & Timmy May

>

>

>

[Guest guest]

Narice:

I think of you and Phil often and am hoping for the best. I was so

pleased to hear that things sound like they are going well for Phil.

It is a difficult road to travel, but you really seem to have a good

attitude about everything, even though there are times of worry. I

remember that the times when I got most upset were before those

tests; there was so much anxiety. Afterwards, when there were good

results, I was exhausted from all of the needless worry and wished I

didn't waste those good days worrying, but it is so hard not to.

You also seem to be doing a great job at giving your children the

support and love they need to handle everything. It is hard to live

with hope when there is always the worry about what might be, but it

certainly sounds like you are making plans and enjoying the " now " .

burg should be just beautiful in April. What a nice place to

go for R & R!

I send all my best to all of you.

Hugs and blue skies,

Amie

[Guest guest]

Narice:

I think of you and Phil often and am hoping for the best. I was so

pleased to hear that things sound like they are going well for Phil.

It is a difficult road to travel, but you really seem to have a good

attitude about everything, even though there are times of worry. I

remember that the times when I got most upset were before those

tests; there was so much anxiety. Afterwards, when there were good

results, I was exhausted from all of the needless worry and wished I

didn't waste those good days worrying, but it is so hard not to.

You also seem to be doing a great job at giving your children the

support and love they need to handle everything. It is hard to live

with hope when there is always the worry about what might be, but it

certainly sounds like you are making plans and enjoying the " now " .

burg should be just beautiful in April. What a nice place to

go for R & R!

I send all my best to all of you.

Hugs and blue skies,

Amie

[Guest guest]

Thanks to all of you for your support. Don't worry too much I'm O.K. for the

most part. Things are so much better for us than some of you and for that I am

so grateful.

Off to church where I pray for all of you.

Thanks again!

Narice

[Guest guest]

Thanks to all of you for your support. Don't worry too much I'm O.K. for the

most part. Things are so much better for us than some of you and for that I am

so grateful.

Off to church where I pray for all of you.

Thanks again!

Narice

[Guest guest]

Thanks to all of you for your support. Don't worry too much I'm O.K. for the

most part. Things are so much better for us than some of you and for that I am

so grateful.

Off to church where I pray for all of you.

Thanks again!

Narice

[Guest guest]

Dear Narice,

I'm so glad to hear Phil is doing well with his new chemo. It

sounds identical to my sister's (dx stage IV 11/02). She has made

such a huge turn around with it. She also has liver mets, something

in the pancreas, and mets to the lung, but with this chemo, after 3

treatments, all tumors have shrunk dramatically. We took a trip to

Southern Utah, about 4 hours away last weekend - and it was like

having my old friend back. I'm just counting each day of " wellness "

(of course she is much thinner and weaker than she used to be) as a

great blessing. Thanks for your encouragement.

Stacey

> Hello all,

> We had a wonderful trip to burg even took in a night in

Frostburg, MD

> I had been to college. My son, Dan drove part of the way giving

his dad a

> much welcomed break.

> We took in the Governor's Palace, several of the small shops,

Shield's

> Tavern, the courthouse, and some speeches by men reacting as

Henry and

> Jefferson. We got a good deal on our room at White Lion Inn

only $40/night

> and they bumped us up from the typical double room to an

efficiency since it is

> still off season!! We also went to Busch Gardens. While the boys

and Phil

> loved the roller coasters. Phil stayed with the tamer ones no

loops or gravity

> defying dangling any more. overall though we thought the park to

be too

> commercial. Give us Hershey Kennywood, Idlewild, or Riverside

Parks!! More for all of

> us.

>

> The new chemo is so far going well. They give Phil a small pump

with more 5FU

> pumped over 46 hours. It is a bit cumbersome at first but not

nearly as bad

> as we had imagined.

>

> I did go through Phil's chart and the CT report. Liver still has

multiple

> mets the largest being a 9cm one on the right lobe. There also

seems to be

> something going on with the pancreas which I guess is some kind of

met but the

> reports are unclear about this.

>

> That's the news for now. I have mixed emotions. Happy that all

appears to be

> well but a bit concerned about all the numbers.

> I guess we never really stop worrying, but I wish I could.

>

> As always thanks for the prayers

> Love and God's blessings

>

> Narice

> caregiver to Phil

> diagnosed June 19, 2003

> Stage 4 with multiple liver mets

>

> July 2003- Severe swelling, Some Jaundice PCP tells us NOT to

>                     seek treatment.

> We begin treatment with Dr. Jan Rothman

>                        at Regional Cancer Center Erie, PA

>                        5FU, Leucovorin, Oxilaplatin

> August 2003- Phil's weight drops from 165 to 135

>

> September 2003- Phil goes off diuretic (oops)

>                                   In late September he has CT

showing

> significant

>                                    reduction of tumor. ;-)

> December 2003- Tumor stable side effects so far are minimal some

flu

>                                like symptoms with the Oxilaplatin,

dry

> chapped hands

>                                 and occasional nausea

> March 2004- Weight gain of 20 lbs (fluctuates between 155-160)

>                         Tumor still stable, (13cm in colon

multiple liver

> mets. Largest being 9 cm

> April 2004 1 month chemo break YIPEEE!!!!!

> April 21,2004-   Phil starts on new chemo 5 FU, Leucovorin,

Oxaliplatin

>                             AND Avastin via 46 hr pump. Weight

160.

>

> God's blessings to all on this journey!

>

>

>

[Guest guest]

Dear Narice,

I'm so glad to hear Phil is doing well with his new chemo. It

sounds identical to my sister's (dx stage IV 11/02). She has made

such a huge turn around with it. She also has liver mets, something

in the pancreas, and mets to the lung, but with this chemo, after 3

treatments, all tumors have shrunk dramatically. We took a trip to

Southern Utah, about 4 hours away last weekend - and it was like

having my old friend back. I'm just counting each day of " wellness "

(of course she is much thinner and weaker than she used to be) as a

great blessing. Thanks for your encouragement.

Stacey

> Hello all,

> We had a wonderful trip to burg even took in a night in

Frostburg, MD

> I had been to college. My son, Dan drove part of the way giving

his dad a

> much welcomed break.

> We took in the Governor's Palace, several of the small shops,

Shield's

> Tavern, the courthouse, and some speeches by men reacting as

Henry and

> Jefferson. We got a good deal on our room at White Lion Inn

only $40/night

> and they bumped us up from the typical double room to an

efficiency since it is

> still off season!! We also went to Busch Gardens. While the boys

and Phil

> loved the roller coasters. Phil stayed with the tamer ones no

loops or gravity

> defying dangling any more. overall though we thought the park to

be too

> commercial. Give us Hershey Kennywood, Idlewild, or Riverside

Parks!! More for all of

> us.

>

> The new chemo is so far going well. They give Phil a small pump

with more 5FU

> pumped over 46 hours. It is a bit cumbersome at first but not

nearly as bad

> as we had imagined.

>

> I did go through Phil's chart and the CT report. Liver still has

multiple

> mets the largest being a 9cm one on the right lobe. There also

seems to be

> something going on with the pancreas which I guess is some kind of

met but the

> reports are unclear about this.

>

> That's the news for now. I have mixed emotions. Happy that all

appears to be

> well but a bit concerned about all the numbers.

> I guess we never really stop worrying, but I wish I could.

>

> As always thanks for the prayers

> Love and God's blessings

>

> Narice

> caregiver to Phil

> diagnosed June 19, 2003

> Stage 4 with multiple liver mets

>

> July 2003- Severe swelling, Some Jaundice PCP tells us NOT to

>                     seek treatment.

> We begin treatment with Dr. Jan Rothman

>                        at Regional Cancer Center Erie, PA

>                        5FU, Leucovorin, Oxilaplatin

> August 2003- Phil's weight drops from 165 to 135

>

> September 2003- Phil goes off diuretic (oops)

>                                   In late September he has CT

showing

> significant

>                                    reduction of tumor. ;-)

> December 2003- Tumor stable side effects so far are minimal some

flu

>                                like symptoms with the Oxilaplatin,

dry

> chapped hands

>                                 and occasional nausea

> March 2004- Weight gain of 20 lbs (fluctuates between 155-160)

>                         Tumor still stable, (13cm in colon

multiple liver

> mets. Largest being 9 cm

> April 2004 1 month chemo break YIPEEE!!!!!

> April 21,2004-   Phil starts on new chemo 5 FU, Leucovorin,

Oxaliplatin

>                             AND Avastin via 46 hr pump. Weight

160.

>

> God's blessings to all on this journey!

>

>

>

[Guest guest]

Dear Narice,

I'm so glad to hear Phil is doing well with his new chemo. It

sounds identical to my sister's (dx stage IV 11/02). She has made

such a huge turn around with it. She also has liver mets, something

in the pancreas, and mets to the lung, but with this chemo, after 3

treatments, all tumors have shrunk dramatically. We took a trip to

Southern Utah, about 4 hours away last weekend - and it was like

having my old friend back. I'm just counting each day of " wellness "

(of course she is much thinner and weaker than she used to be) as a

great blessing. Thanks for your encouragement.

Stacey

> Hello all,

> We had a wonderful trip to burg even took in a night in

Frostburg, MD

> I had been to college. My son, Dan drove part of the way giving

his dad a

> much welcomed break.

> We took in the Governor's Palace, several of the small shops,

Shield's

> Tavern, the courthouse, and some speeches by men reacting as

Henry and

> Jefferson. We got a good deal on our room at White Lion Inn

only $40/night

> and they bumped us up from the typical double room to an

efficiency since it is

> still off season!! We also went to Busch Gardens. While the boys

and Phil

> loved the roller coasters. Phil stayed with the tamer ones no

loops or gravity

> defying dangling any more. overall though we thought the park to

be too

> commercial. Give us Hershey Kennywood, Idlewild, or Riverside

Parks!! More for all of

> us.

>

> The new chemo is so far going well. They give Phil a small pump

with more 5FU

> pumped over 46 hours. It is a bit cumbersome at first but not

nearly as bad

> as we had imagined.

>

> I did go through Phil's chart and the CT report. Liver still has

multiple

> mets the largest being a 9cm one on the right lobe. There also

seems to be

> something going on with the pancreas which I guess is some kind of

met but the

> reports are unclear about this.

>

> That's the news for now. I have mixed emotions. Happy that all

appears to be

> well but a bit concerned about all the numbers.

> I guess we never really stop worrying, but I wish I could.

>

> As always thanks for the prayers

> Love and God's blessings

>

> Narice

> caregiver to Phil

> diagnosed June 19, 2003

> Stage 4 with multiple liver mets

>

> July 2003- Severe swelling, Some Jaundice PCP tells us NOT to

>                     seek treatment.

> We begin treatment with Dr. Jan Rothman

>                        at Regional Cancer Center Erie, PA

>                        5FU, Leucovorin, Oxilaplatin

> August 2003- Phil's weight drops from 165 to 135

>

> September 2003- Phil goes off diuretic (oops)

>                                   In late September he has CT

showing

> significant

>                                    reduction of tumor. ;-)

> December 2003- Tumor stable side effects so far are minimal some

flu

>                                like symptoms with the Oxilaplatin,

dry

> chapped hands

>                                 and occasional nausea

> March 2004- Weight gain of 20 lbs (fluctuates between 155-160)

>                         Tumor still stable, (13cm in colon

multiple liver

> mets. Largest being 9 cm

> April 2004 1 month chemo break YIPEEE!!!!!

> April 21,2004-   Phil starts on new chemo 5 FU, Leucovorin,

Oxaliplatin

>                             AND Avastin via 46 hr pump. Weight

160.

>

> God's blessings to all on this journey!

>

>

>

[Guest guest]

Narice and Stacey,

I am so happy to hear that Phil is doing well and that your

sister is feeling better. Sounds like you both had a great deal of

fun. May you all have many, many more good days ahead.

Best wishes,

Kris

[Guest guest]

Narice and Stacey,

I am so happy to hear that Phil is doing well and that your

sister is feeling better. Sounds like you both had a great deal of

fun. May you all have many, many more good days ahead.

Best wishes,

Kris

[Guest guest]

Stacey: Wow what a turnaround for your sister,and what a great

attitude,keeping

count of the days of wellness. Nick has liver mets,something in the

pancreas,two spots in the lung(s?) and is on a one week respite from the Xeloda(

two

weeks on/one week off)going for third series. Visited his oncologist today. Had

CBC, seemed ok

B/P steady, did a panel results in for Monday. Lost another 2 pounds,has some

shaking of hands and some neuropathy particularly in feet,and I worry about

driving.

He paces himself,did eat for the last three days,and since we use

companzine(?) spelling instead of Zofron or Azumet(cost) and a suppository

sometimes his

nausea

returns. Going to try megace to increase appetite. Force fluids and in this

off week try

a little juice. We find smaller ,more frequent bites stay down. He does pace

himself

and we are lucky all our kids live within a 30 mile range-ditto grandkids,it

makes

things easier. We live in Florida and have great weather(mostly) which is

another

blessing. We have learned a lot from this site,share with friends,and made

many

new ones. I don't know where else you can laugh and cry and smile and get

hope

all at one time. Great to have such good news,makes us all feel better. Hugs

and

prayers Nick & Jane

[Guest guest]

Stacey: Wow what a turnaround for your sister,and what a great

attitude,keeping

count of the days of wellness. Nick has liver mets,something in the

pancreas,two spots in the lung(s?) and is on a one week respite from the Xeloda(

two

weeks on/one week off)going for third series. Visited his oncologist today. Had

CBC, seemed ok

B/P steady, did a panel results in for Monday. Lost another 2 pounds,has some

shaking of hands and some neuropathy particularly in feet,and I worry about

driving.

He paces himself,did eat for the last three days,and since we use

companzine(?) spelling instead of Zofron or Azumet(cost) and a suppository

sometimes his

nausea

returns. Going to try megace to increase appetite. Force fluids and in this

off week try

a little juice. We find smaller ,more frequent bites stay down. He does pace

himself

and we are lucky all our kids live within a 30 mile range-ditto grandkids,it

makes

things easier. We live in Florida and have great weather(mostly) which is

another

blessing. We have learned a lot from this site,share with friends,and made

many

new ones. I don't know where else you can laugh and cry and smile and get

hope

all at one time. Great to have such good news,makes us all feel better. Hugs

and

prayers Nick & Jane

[Guest guest]

Stacey: Wow what a turnaround for your sister,and what a great

attitude,keeping

count of the days of wellness. Nick has liver mets,something in the

pancreas,two spots in the lung(s?) and is on a one week respite from the Xeloda(

two

weeks on/one week off)going for third series. Visited his oncologist today. Had

CBC, seemed ok

B/P steady, did a panel results in for Monday. Lost another 2 pounds,has some

shaking of hands and some neuropathy particularly in feet,and I worry about

driving.

He paces himself,did eat for the last three days,and since we use

companzine(?) spelling instead of Zofron or Azumet(cost) and a suppository

sometimes his

nausea

returns. Going to try megace to increase appetite. Force fluids and in this

off week try

a little juice. We find smaller ,more frequent bites stay down. He does pace

himself

and we are lucky all our kids live within a 30 mile range-ditto grandkids,it

makes

things easier. We live in Florida and have great weather(mostly) which is

another

blessing. We have learned a lot from this site,share with friends,and made

many

new ones. I don't know where else you can laugh and cry and smile and get

hope

all at one time. Great to have such good news,makes us all feel better. Hugs

and

prayers Nick & Jane

[Guest guest]

Thanks for the perspective. Yes, it is a bump.

I am just really feeling insecure right now and I will be leaving for a week

on my own at my parents soon so I guess I just want everything nailed down.

I am not too good at being out of control. In my faith life we say we should

Let go and let God but I admit I often take this one back and dwell on it.

Human of course but not productive.

I am so very glad Phil is doing well but honestly I still wish there was a

way to wave a magic wand and make it go away altogether.

Add to the mix the " normal " of menopause, high blood pressure and my clinical

depression and I am on a constant up and down.

Work has been rough lately since I am covering more in the classroom for

people's vacations.(I am in daycare) I am facing the hard reality that I am not

really effective in the classroom right now. It is yet another caregiving role

when at times it is all I can do to care for myself and my family.

O.K. enough venting but I guess sometimes writing it down helps.

Thanks

Narice

[Guest guest]

Of course, I will keep you in my thoughts and prayers. It takes much

strength to abide the ups and downs, and God will provide that

strength.

Sharon

> Hello Everyone,

>

> Unfortunately there is not too much to report as Phil was unable to

have

> chemo again due to low platelets

> 78,000

>

> So he'll have chemo next week instead.

> We also got the results of the PT scan which really showed no

change in the

> tumor. Since this is the first PT I guess they are comparing it to

the April,

> CT scan. I am disappointed there does not seem to be any progress

but also

> happy to know there is no more spread.

>

> As for me I'm trying to hang in there. ly not really into

talking about

> all of it right now. Feel like it is all I think and talk about

anyway. What I

> really want is to feel NORMAL but only God knows when that will be

so as they

> say I'm faking it until I make it since the alternative stinks!

>

> You know it is great to see Phil feeling so well but every time the

test

> results come back I am reminded that the disease still looms in the

background

> regardless of how everything looks on the outside. Who knows maybe

the CT scan

> will show more progress?

>

> In your prayers remember all of us and ask God to renew my hope. I

DO know

> without a doubt that He is all that keeps me going through this.

>

> As always we thank everyone for there love prayers and support.

>

>

>

>

>

[Guest guest]

Narice,

I understand what you mean, it is a real blow when they have been

feeling okay and then the test results don't measure up.Be sure that

you & Phil are in my prayers.On the up note,remember that 'no

change'means the tumors are being controlled for the time being which

is a measure of success.I know, you would like to see shrinkage but

sometimes we have to just be happy things are stable.Much easier said

than done!!!! You hang in there,and take some time for yourself,you

deserve it!

Hugs & Prayers,

H.

S/O " Hubby " ,52/diagnosed inoperable stage IV cc 7/31/03

6/1/04 started 4th-line chemo of folfox 4

> Hello Everyone,

>

> Unfortunately there is not too much to report as Phil was unable to

have

> chemo again due to low platelets

> 78,000

>

> So he'll have chemo next week instead.

> We also got the results of the PT scan which really showed no

change in the

> tumor. Since this is the first PT I guess they are comparing it to

the April,

> CT scan. I am disappointed there does not seem to be any progress

but also

> happy to know there is no more spread.

>

> As for me I'm trying to hang in there. ly not really into

talking about

> all of it right now. Feel like it is all I think and talk about

anyway. What I

> really want is to feel NORMAL but only God knows when that will be

so as they

> say I'm faking it until I make it since the alternative stinks!

>

> You know it is great to see Phil feeling so well but every time the

test

> results come back I am reminded that the disease still looms in the

background

> regardless of how everything looks on the outside. Who knows maybe

the CT scan

> will show more progress?

>

> In your prayers remember all of us and ask God to renew my hope. I

DO know

> without a doubt that He is all that keeps me going through this.

>

> As always we thank everyone for there love prayers and support.

>

>

>

>

>

[Guest guest]

Narice,

I understand what you mean, it is a real blow when they have been

feeling okay and then the test results don't measure up.Be sure that

you & Phil are in my prayers.On the up note,remember that 'no

change'means the tumors are being controlled for the time being which

is a measure of success.I know, you would like to see shrinkage but

sometimes we have to just be happy things are stable.Much easier said

than done!!!! You hang in there,and take some time for yourself,you

deserve it!

Hugs & Prayers,

H.

S/O " Hubby " ,52/diagnosed inoperable stage IV cc 7/31/03

6/1/04 started 4th-line chemo of folfox 4

> Hello Everyone,

>

> Unfortunately there is not too much to report as Phil was unable to

have

> chemo again due to low platelets

> 78,000

>

> So he'll have chemo next week instead.

> We also got the results of the PT scan which really showed no

change in the

> tumor. Since this is the first PT I guess they are comparing it to

the April,

> CT scan. I am disappointed there does not seem to be any progress

but also

> happy to know there is no more spread.

>

> As for me I'm trying to hang in there. ly not really into

talking about

> all of it right now. Feel like it is all I think and talk about

anyway. What I

> really want is to feel NORMAL but only God knows when that will be

so as they

> say I'm faking it until I make it since the alternative stinks!

>

> You know it is great to see Phil feeling so well but every time the

test

> results come back I am reminded that the disease still looms in the

background

> regardless of how everything looks on the outside. Who knows maybe

the CT scan

> will show more progress?

>

> In your prayers remember all of us and ask God to renew my hope. I

DO know

> without a doubt that He is all that keeps me going through this.

>

> As always we thank everyone for there love prayers and support.

>

>

>

>

>

[Guest guest]

Narice,

I understand what you mean, it is a real blow when they have been

feeling okay and then the test results don't measure up.Be sure that

you & Phil are in my prayers.On the up note,remember that 'no

change'means the tumors are being controlled for the time being which

is a measure of success.I know, you would like to see shrinkage but

sometimes we have to just be happy things are stable.Much easier said

than done!!!! You hang in there,and take some time for yourself,you

deserve it!

Hugs & Prayers,

H.

S/O " Hubby " ,52/diagnosed inoperable stage IV cc 7/31/03

6/1/04 started 4th-line chemo of folfox 4

> Hello Everyone,

>

> Unfortunately there is not too much to report as Phil was unable to

have

> chemo again due to low platelets

> 78,000

>

> So he'll have chemo next week instead.

> We also got the results of the PT scan which really showed no

change in the

> tumor. Since this is the first PT I guess they are comparing it to

the April,

> CT scan. I am disappointed there does not seem to be any progress

but also

> happy to know there is no more spread.

>

> As for me I'm trying to hang in there. ly not really into

talking about

> all of it right now. Feel like it is all I think and talk about

anyway. What I

> really want is to feel NORMAL but only God knows when that will be

so as they

> say I'm faking it until I make it since the alternative stinks!

>

> You know it is great to see Phil feeling so well but every time the

test

> results come back I am reminded that the disease still looms in the

background

> regardless of how everything looks on the outside. Who knows maybe

the CT scan

> will show more progress?

>

> In your prayers remember all of us and ask God to renew my hope. I

DO know

> without a doubt that He is all that keeps me going through this.

>

> As always we thank everyone for there love prayers and support.

>

>

>

>

>

[Guest guest]

Narice: You are always so willing to shelter others woes,and carry an extra

load.

Yes..put your hand in His,let Him lift your spirit,renew your faith and and

Grace will

lead you. Watching the pagentry and protocols in the final tributes to

Regans

life,I was struck by two things. His deep faith,his absolute belief that

there is good in every man and what is right will always eventually triumph and

there is purpose and

worth in each and every man. I think people realized he adhered to the

values he

espoused and dignity and honor meant more than mere words. You always say the

right thing at the right time,you have lifted spirits,made people believe and

kept

people going. Now..heed your own advice..step back...rest a minute or two

every hour

God is with us 24/7..365 days a year.. We sometimes forget. He wants to

share the burden,He wants us to put our hands in his and let him ease our pain.

Amazing

Grace was played many many times last week,I never get tired,whether it is a

sol,

a choral or an ensemble. " And Grace will set me free " <<<<<<<<HUGS>>>>>>>>

and prayers Love Nick & jane

[Guest guest]

Narice: You are always so willing to shelter others woes,and carry an extra

load.

Yes..put your hand in His,let Him lift your spirit,renew your faith and and

Grace will

lead you. Watching the pagentry and protocols in the final tributes to

Regans

life,I was struck by two things. His deep faith,his absolute belief that

there is good in every man and what is right will always eventually triumph and

there is purpose and

worth in each and every man. I think people realized he adhered to the

values he

espoused and dignity and honor meant more than mere words. You always say the

right thing at the right time,you have lifted spirits,made people believe and

kept

people going. Now..heed your own advice..step back...rest a minute or two

every hour

God is with us 24/7..365 days a year.. We sometimes forget. He wants to

share the burden,He wants us to put our hands in his and let him ease our pain.

Amazing

Grace was played many many times last week,I never get tired,whether it is a

sol,

a choral or an ensemble. " And Grace will set me free " <<<<<<<<HUGS>>>>>>>>

and prayers Love Nick & jane

[Guest guest]

Hi

Phil had a CT scan Tuesday and chemo on Wednesday.

We will find out the results Monday.

His blood counts are back up and I think we may wind up having chemo 1 week on 2

weeks off as that seems to give him time to bounce back. Please pray that there

is some progress seen on the CT. I do no there has been no new growth and for

that we are thankful.

I am currently taking some R & R at my parents house in Mass. with Danny and our

many friends in Erie keeping an eye on Phil. I'll return sunday night than off

to Dr. Rothman with Phil Monday.

It has been a relaxing time and it is good to GET AWAY from cancer for awhile.

The boys are well glad to be out of school. Danny may have a job cleaning

carpets and goes for his license FINALLY. Tim is basking in thoe long summer

days with nothing but free time. Ahh to be 12 again!!

I will have a more complete update for you when I get back from the DR Monday

As always thank you for your love prayers and support!

Narice Phil Danny & Timmy May

[Guest guest]

Hi: Hope your brief vacation was like Chicken Soup for the Soul. No new

growth

is good,counts up is better,so lets hope the rainbow shines on your house and

the pot of gold is a positive update for Phil. Know just how you feel. We had

a month of downswings,no energy,lots of pain,nausea and not able to complete

the two weeks

on one week off schedule. Nick is dehydrated,low in spirts and the kids have

tried

everything under to sun to lift his spirits. He started a new regimine on

Thursday.

Goes in for blood work Tues,the real culpit is constant pain. Guess we have a

half

a zillion angels praying for us. Better then meds. We either had a visit or a

phone

call from all the kids and grandkids and they made him laugh. So like you,I

take it

on a day to day,visit to visit and now and then I slip off and cry and feel

better. This

board has been a salvation,so many people worse off, and never giving up

hope,so

I took a month off from work and now I feel stronger and I forgot to do what

I always

tell other to do. Put your hand in His,He will walk with you and His Grace

will see you through. So if you guys can walk that mile,we can to,just knowing

that others have

the same problems,hopes and fears somehow makes it a lot easier. Gung ho and

awy we go. Hugs and Prayers from Nick & Jane

[Guest guest]

Hi: Hope your brief vacation was like Chicken Soup for the Soul. No new

growth

is good,counts up is better,so lets hope the rainbow shines on your house and

the pot of gold is a positive update for Phil. Know just how you feel. We had

a month of downswings,no energy,lots of pain,nausea and not able to complete

the two weeks

on one week off schedule. Nick is dehydrated,low in spirts and the kids have

tried

everything under to sun to lift his spirits. He started a new regimine on

Thursday.

Goes in for blood work Tues,the real culpit is constant pain. Guess we have a

half

a zillion angels praying for us. Better then meds. We either had a visit or a

phone

call from all the kids and grandkids and they made him laugh. So like you,I

take it

on a day to day,visit to visit and now and then I slip off and cry and feel

better. This

board has been a salvation,so many people worse off, and never giving up

hope,so

I took a month off from work and now I feel stronger and I forgot to do what

I always

tell other to do. Put your hand in His,He will walk with you and His Grace

will see you through. So if you guys can walk that mile,we can to,just knowing

that others have

the same problems,hopes and fears somehow makes it a lot easier. Gung ho and

awy we go. Hugs and Prayers from Nick & Jane