Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 My name is Angel and I have a week old baby boy named Kai whose left foot is clubbed. I also have a 16 month old daughter named Arica that has metatarsis aductus in both feet and a right foot that was badly turned but mostly flexible (so our family physician refused to refer her!!) As for Arica, we decided at home to do some stretches with her and her ankle is mostly corrected, tho her toes still drop a bit, and she is very pigeon-toed from the MA but she walks, runs, climbs and makes a general 16 month old nusiance of herself LOL As for Kai, his first appt is with Dr Mosca at Children's Hospital in Seattle on Jan 17th. It will be interesting to be driving over the mountains this time of year (we live in central Washington) ... hopefully we will not get any huge snowstorms on a travel day! Kai's foot, from what I can see, and what the numerous doctors here (an OB, a family physician, a ped and an ortho) have said, should not require surgery. There is some speculation that in this case the condition may be genetic since I have 2 children with similar problems. I was advised by the ortho here to see if Dr Mosca can evaluate Arica's feet also - if nothing else then to be certain that her right foot is not in fact mildly clubbed and in need of treatment. We have 2 older children also - my step-daughter , who is 7 and has a speach and learning delay, and my daughter Caitlen, who is 5 and is a language genius that we can barely keep up with. Right now I am a bit overwhelmed at what *seems* like a forever- treatment. Kai's birth was also extremely traumatic, so at the same time I am trying to deal with that. And for my topper, Arica goes on the 14th for allergy testing where they may well tell me she has life threatening allergies and make me learn how to administer rescue shots! (She appears to be allergic to peanuts and shellfish, as well as milk). It seems someone looked at us and found us to be parents capable of dealing with anything and everything! Perhaps I will count it as a compliment! Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Welcome Angel, you will find the people here to be very helpful and loving. My daughter Isabella was born in Oct. with bilateral clubbed feet and i am very greatful to of found this board and the people on it. They have been a tremendous help and rock for me to lean on. I never heard of clubbed foot and so when i found out at 16 weeks pregnant that she may have it, i immediately went looking on the net to find out everything i could on it, and it also led me here. I truely believe in the Ponsetti method and i tell everyone about it. I feel most clubbed feet babies don't need surgery. I feel surgery should be the last resort, i have read all about children having surgery for clubbed feet and even talked to some first hand and they have tremendous problems later in life. I know of a few people who had clubbed feet when they were born and had surgery and are having problems with their feet to this day. I went on Dr.Ponsetti's website and emailed him, he gave me a doctor who practices the ponsetti method that lived near me. Well her office is 2 1/2 hours away but it was so worth the drive. Isabella started castings at 6 days old, Dr.Ponsetti said to get her in right away because they like to start asap. Isabella had a total of 5 casts changed weekly except the 5th cast it was worn 2 weeks after they did a tentonomy. That is the only cutting they did and it was a pin size hole in the back of each ankle to realease the achillis tendon, the 5th cast was put on and was worn for 2 weeks. Then she got her Denis Brown Bar and has been wearing it ever since. Her feet are straight now and have been for awhile. The bar is used so it they don't relapse. She will have to wear it until she is 2-3 years old but it is worth it not having to deal with surgery. Sorry so long, Welcome to the board and i hope you find everyone very helpful here. Take care. (Isabella born 10-12-02 bilateral clubbed feet, over 1 month in DBB) > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Welcome Angel, you will find the people here to be very helpful and loving. My daughter Isabella was born in Oct. with bilateral clubbed feet and i am very greatful to of found this board and the people on it. They have been a tremendous help and rock for me to lean on. I never heard of clubbed foot and so when i found out at 16 weeks pregnant that she may have it, i immediately went looking on the net to find out everything i could on it, and it also led me here. I truely believe in the Ponsetti method and i tell everyone about it. I feel most clubbed feet babies don't need surgery. I feel surgery should be the last resort, i have read all about children having surgery for clubbed feet and even talked to some first hand and they have tremendous problems later in life. I know of a few people who had clubbed feet when they were born and had surgery and are having problems with their feet to this day. I went on Dr.Ponsetti's website and emailed him, he gave me a doctor who practices the ponsetti method that lived near me. Well her office is 2 1/2 hours away but it was so worth the drive. Isabella started castings at 6 days old, Dr.Ponsetti said to get her in right away because they like to start asap. Isabella had a total of 5 casts changed weekly except the 5th cast it was worn 2 weeks after they did a tentonomy. That is the only cutting they did and it was a pin size hole in the back of each ankle to realease the achillis tendon, the 5th cast was put on and was worn for 2 weeks. Then she got her Denis Brown Bar and has been wearing it ever since. Her feet are straight now and have been for awhile. The bar is used so it they don't relapse. She will have to wear it until she is 2-3 years old but it is worth it not having to deal with surgery. Sorry so long, Welcome to the board and i hope you find everyone very helpful here. Take care. (Isabella born 10-12-02 bilateral clubbed feet, over 1 month in DBB) > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Welcome Angel, you will find the people here to be very helpful and loving. My daughter Isabella was born in Oct. with bilateral clubbed feet and i am very greatful to of found this board and the people on it. They have been a tremendous help and rock for me to lean on. I never heard of clubbed foot and so when i found out at 16 weeks pregnant that she may have it, i immediately went looking on the net to find out everything i could on it, and it also led me here. I truely believe in the Ponsetti method and i tell everyone about it. I feel most clubbed feet babies don't need surgery. I feel surgery should be the last resort, i have read all about children having surgery for clubbed feet and even talked to some first hand and they have tremendous problems later in life. I know of a few people who had clubbed feet when they were born and had surgery and are having problems with their feet to this day. I went on Dr.Ponsetti's website and emailed him, he gave me a doctor who practices the ponsetti method that lived near me. Well her office is 2 1/2 hours away but it was so worth the drive. Isabella started castings at 6 days old, Dr.Ponsetti said to get her in right away because they like to start asap. Isabella had a total of 5 casts changed weekly except the 5th cast it was worn 2 weeks after they did a tentonomy. That is the only cutting they did and it was a pin size hole in the back of each ankle to realease the achillis tendon, the 5th cast was put on and was worn for 2 weeks. Then she got her Denis Brown Bar and has been wearing it ever since. Her feet are straight now and have been for awhile. The bar is used so it they don't relapse. She will have to wear it until she is 2-3 years old but it is worth it not having to deal with surgery. Sorry so long, Welcome to the board and i hope you find everyone very helpful here. Take care. (Isabella born 10-12-02 bilateral clubbed feet, over 1 month in DBB) > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Angel, First of all, Congratuations on Kai's birth! And welcome to our group. We're glad you are here. The first knowledge of clubfoot, right after delivery, and especially a difficult one, can add up to an emotional, difficult time.. So I hope you are hanging in there. I want to reassure you that with good treatment, Kai should do just fine.. and although it might seem like a lot to deal with now, it really isn't that bad. With the Ponseti method, all he should need are 5 to 7 casts. By the time he is 2 months old, he will be in the brace, which consists of baby shoes attached to a bar. At that point, you won't have frequent doctor visits.. everything will be just like with any other child.. He'll just have a bar between his feet. In a short time, he'll be down to wearing it only during sleep, and it'll just be part of his routine. Follow up appointments are necessary to check out his progress as he goes, but they might only be 1 every 8 months of so. You are very fortunate to have access to a Ponseti method doctor, Dr. Mosca. That will make it so much better for you, in starting with someone skilled in the method right from the start. Traveling to see him will be difficult, I know.. but believe me it will be worth it! I think it also sounds like an excellent idea to have Dr. Mosca evaluate your 1 year old at the same time. At her young age, casting might still be very effective. You'll get through this .. just take each week at a time. And ask the parents here if we can help you with any questions or if you just need a shoulder to lean on. Take care.. I know how busy you are! (I have a 7 year old and 5 year old, too.. plus my 2 1/2 year old clubfoot child ... and you even have a fourth! Hang in there.. take the offers of help that you get from family and friends. Enjoy your sweet baby boy! Don't let the clubfoot worry you so much that you don't treasure these early days. It WILL be corrected.. Best wishes, and > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Angel, First of all, Congratuations on Kai's birth! And welcome to our group. We're glad you are here. The first knowledge of clubfoot, right after delivery, and especially a difficult one, can add up to an emotional, difficult time.. So I hope you are hanging in there. I want to reassure you that with good treatment, Kai should do just fine.. and although it might seem like a lot to deal with now, it really isn't that bad. With the Ponseti method, all he should need are 5 to 7 casts. By the time he is 2 months old, he will be in the brace, which consists of baby shoes attached to a bar. At that point, you won't have frequent doctor visits.. everything will be just like with any other child.. He'll just have a bar between his feet. In a short time, he'll be down to wearing it only during sleep, and it'll just be part of his routine. Follow up appointments are necessary to check out his progress as he goes, but they might only be 1 every 8 months of so. You are very fortunate to have access to a Ponseti method doctor, Dr. Mosca. That will make it so much better for you, in starting with someone skilled in the method right from the start. Traveling to see him will be difficult, I know.. but believe me it will be worth it! I think it also sounds like an excellent idea to have Dr. Mosca evaluate your 1 year old at the same time. At her young age, casting might still be very effective. You'll get through this .. just take each week at a time. And ask the parents here if we can help you with any questions or if you just need a shoulder to lean on. Take care.. I know how busy you are! (I have a 7 year old and 5 year old, too.. plus my 2 1/2 year old clubfoot child ... and you even have a fourth! Hang in there.. take the offers of help that you get from family and friends. Enjoy your sweet baby boy! Don't let the clubfoot worry you so much that you don't treasure these early days. It WILL be corrected.. Best wishes, and > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Angel, First of all, Congratuations on Kai's birth! And welcome to our group. We're glad you are here. The first knowledge of clubfoot, right after delivery, and especially a difficult one, can add up to an emotional, difficult time.. So I hope you are hanging in there. I want to reassure you that with good treatment, Kai should do just fine.. and although it might seem like a lot to deal with now, it really isn't that bad. With the Ponseti method, all he should need are 5 to 7 casts. By the time he is 2 months old, he will be in the brace, which consists of baby shoes attached to a bar. At that point, you won't have frequent doctor visits.. everything will be just like with any other child.. He'll just have a bar between his feet. In a short time, he'll be down to wearing it only during sleep, and it'll just be part of his routine. Follow up appointments are necessary to check out his progress as he goes, but they might only be 1 every 8 months of so. You are very fortunate to have access to a Ponseti method doctor, Dr. Mosca. That will make it so much better for you, in starting with someone skilled in the method right from the start. Traveling to see him will be difficult, I know.. but believe me it will be worth it! I think it also sounds like an excellent idea to have Dr. Mosca evaluate your 1 year old at the same time. At her young age, casting might still be very effective. You'll get through this .. just take each week at a time. And ask the parents here if we can help you with any questions or if you just need a shoulder to lean on. Take care.. I know how busy you are! (I have a 7 year old and 5 year old, too.. plus my 2 1/2 year old clubfoot child ... and you even have a fourth! Hang in there.. take the offers of help that you get from family and friends. Enjoy your sweet baby boy! Don't let the clubfoot worry you so much that you don't treasure these early days. It WILL be corrected.. Best wishes, and > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Angel, I'm glad you decided to post here. You'll get lots of support from all of these wonderful families. I'm not sure if any of the children here are being treated by Dr. Mosca, but I have heard good things about him. Hopefully your experience with him will be positive and he has an excellent bedside manner. I'm hoping that he'll be able to give you some positive feedback about Arica's foot too. If you have any questions about what he says (or doesn't say), please post them! Travel safely. I'm looking forward to your updates! & (from the Jan 03 EC) > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Angel, I'm glad you decided to post here. You'll get lots of support from all of these wonderful families. I'm not sure if any of the children here are being treated by Dr. Mosca, but I have heard good things about him. Hopefully your experience with him will be positive and he has an excellent bedside manner. I'm hoping that he'll be able to give you some positive feedback about Arica's foot too. If you have any questions about what he says (or doesn't say), please post them! Travel safely. I'm looking forward to your updates! & (from the Jan 03 EC) > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Angel, I'm glad you decided to post here. You'll get lots of support from all of these wonderful families. I'm not sure if any of the children here are being treated by Dr. Mosca, but I have heard good things about him. Hopefully your experience with him will be positive and he has an excellent bedside manner. I'm hoping that he'll be able to give you some positive feedback about Arica's foot too. If you have any questions about what he says (or doesn't say), please post them! Travel safely. I'm looking forward to your updates! & (from the Jan 03 EC) > My name is Angel and I have a week old baby boy named Kai whose left > foot is clubbed. I also have a 16 month old daughter named Arica > that has metatarsis aductus in both feet and a right foot that was > badly turned but mostly flexible (so our family physician refused to > refer her!!) As for Arica, we decided at home to do some stretches > with her and her ankle is mostly corrected, tho her toes still drop a > bit, and she is very pigeon-toed from the MA but she walks, runs, > climbs and makes a general 16 month old nusiance of herself LOL > > As for Kai, his first appt is with Dr Mosca at Children's Hospital in > Seattle on Jan 17th. It will be interesting to be driving over the > mountains this time of year (we live in central Washington) ... > hopefully we will not get any huge snowstorms on a travel day! Kai's > foot, from what I can see, and what the numerous doctors here (an OB, > a family physician, a ped and an ortho) have said, should not require > surgery. > > There is some speculation that in this case the condition may be > genetic since I have 2 children with similar problems. I was advised > by the ortho here to see if Dr Mosca can evaluate Arica's feet also - > if nothing else then to be certain that her right foot is not in fact > mildly clubbed and in need of treatment. > > We have 2 older children also - my step-daughter , who is 7 > and has a speach and learning delay, and my daughter Caitlen, who is > 5 and is a language genius that we can barely keep up with. > > Right now I am a bit overwhelmed at what *seems* like a forever- > treatment. Kai's birth was also extremely traumatic, so at the same > time I am trying to deal with that. And for my topper, Arica goes on > the 14th for allergy testing where they may well tell me she has life > threatening allergies and make me learn how to administer rescue > shots! (She appears to be allergic to peanuts and shellfish, as well > as milk). > > It seems someone looked at us and found us to be parents capable of > dealing with anything and everything! Perhaps I will count it as a > compliment! > > Angel & the crew Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Angel, I just wanted to welcome you to the group and tell you that with a well trained doctor in the Ponseti method that your son will be just fine! He will walk, run and play just like any other child and no one will probably ever be able to tell he had clubfoot when it is all said and done. I often forget what it was like those first days, weeks, months after my youngest daughter was born with bilateral clubfoot was like and how worried, scared and anxious I felt every day about it all. I worried mostly about her future and what it was going to take to get there for her and for us. At the time she was born there was not a lot out there that we could find about clubfoot. Dr. Ponseti had just come out of retirement (which we did'nt know yet) and we were headed down the road of " traditional treatment " here in Michigan for . Ultimately, surgery. We were told that there was no other treatment here in U.S. for clubfoot. We were'nt being lied to, it's just that the Ponseti method was not being used even as much as it is today in the U.S (only by a handful of doctors at the time) and our origional doctor only corrected with surgery. It was a tough first three months down that road, but once we found Dr. Ponseti and started his method in Iowa, I can't begin to express the relief, confidence and utter happiness we felt even during the treatment itself. had 6 casts total and a tenotomy on each foot. The treatment took less time than the total just casting stage of our previous treatment and with every cast change we witnessed a huge improvement to her feet. After the third set of casts we thought her feet looked perfectly normal, we could'nt believe it. I remember one of the things that we worried about a lot was the duration of the total treatment, especially the shoe stage. I worried that she was going to be in them so long and that it was going to make her childhood " different " from what my oldest daughter experienced during baby and toddlerhood. I just have to tell you honestly that the shoes are no big deal at all! She wore them all the time for three months (she was a bit older than many of the babies here on the group starting out because we started later in the method) and she still did wonderfully. After the first three months we went down to 14-16 hours a day, which was bedtime and nap time for (she was a very good sleeper!), so basically when she was awake, she was'nt wearing the shoes and it was just a normal situation. After 14-16 hours of wear for awhile she went to 12 hours, which is just for bedtime. We have been there ever since and the only difference between and my oldest at this stage of life is that we put shoes on for bedtime. I know right now it seems overwhelming and you do have a lot of things coming at you all it once it seems, but just try to take one day at a time and know that your son will be just fine. It's wonderful also that you are able to see a well trained Ponseti doctor, it will make all the difference in the world not only for your son, but you will have the piece of mind knowing you are doing everything for the best possible outcome. It's also good that your doctor will check your daughters foot. My oldest daughter (I have two children) was born with metatarsus adductus in both feet also. She did'nt recieve any medical treatment for it and grew out of it by about age 4, she is almost 6 now. We did have her seen by a very good orthopaedic surgeon though and evaluated and that really helped our piece of mind. One thing I have learned through it all is that knowlege is everything! Let us know if there are any questions or anything we can do for you! Holly and (mod. severe bilateral clubfoot, born: Feb. 11,2000) Hello, introducing myself >My name is Angel and I have a week old baby boy named Kai whose left >foot is clubbed. I also have a 16 month old daughter named Arica >that has metatarsis aductus in both feet and a right foot that was >badly turned but mostly flexible (so our family physician refused to >refer her!!) As for Arica, we decided at home to do some stretches >with her and her ankle is mostly corrected, tho her toes still drop a >bit, and she is very pigeon-toed from the MA but she walks, runs, >climbs and makes a general 16 month old nusiance of herself LOL > >As for Kai, his first appt is with Dr Mosca at Children's Hospital in >Seattle on Jan 17th. It will be interesting to be driving over the >mountains this time of year (we live in central Washington) ... >hopefully we will not get any huge snowstorms on a travel day! Kai's >foot, from what I can see, and what the numerous doctors here (an OB, >a family physician, a ped and an ortho) have said, should not require >surgery. > >There is some speculation that in this case the condition may be >genetic since I have 2 children with similar problems. I was advised >by the ortho here to see if Dr Mosca can evaluate Arica's feet also - >if nothing else then to be certain that her right foot is not in fact >mildly clubbed and in need of treatment. > >We have 2 older children also - my step-daughter , who is 7 >and has a speach and learning delay, and my daughter Caitlen, who is >5 and is a language genius that we can barely keep up with. > >Right now I am a bit overwhelmed at what *seems* like a forever- >treatment. Kai's birth was also extremely traumatic, so at the same >time I am trying to deal with that. And for my topper, Arica goes on >the 14th for allergy testing where they may well tell me she has life >threatening allergies and make me learn how to administer rescue >shots! (She appears to be allergic to peanuts and shellfish, as well >as milk). > >It seems someone looked at us and found us to be parents capable of >dealing with anything and everything! Perhaps I will count it as a >compliment! > >Angel & the crew > > > Quote Link to comment Share on other sites More sharing options...
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