Re: Kathy D.-back after a LONG time

[Guest guest]

Hi Kathy,

I don't have any information for you, but I just wanted to extend a

huge hug towards you. I will be sending thoughts of healing and

sealing in your direction and hope that you receive some good news on

Monday. It is so unfair that you have had two previous losses, only

to have to deal with the possiblity of losing this little one. I

truly hope that you heal and that you come back to tell us that there

is enough amniotic fluid in there for your little girl to survive.

I was just sickened by the lack of care you were given by having the

amniocentisis even though you have ABS. If, indeed, it is not

recommended, I hope that you pursue a medical malpractice suit since

you weren't warned of the increased risk beforehand.

There's a website with information for women who have had premature

rupture of the membranes, or PROM that has a lot of stories and

advice for how to best sustain a pregnancy after rupture of the

membranes. Their link is: http://www.kanalen.org/prom/ and they do

have some good information. I also found a website about ABS that

may give you some more information, but I couldn't find any

literature about a link between ABS and septum resection surgery:

http://www.amnioticbandsyndrome.com/

I hope you're able to get some rest over the next few days. I'm so

sorry about all of the news you've gotten.

Jasmine, 27

SU, resected 7/29/04

1 m/c, 17wks, 2/12/04

1 m/c, 4w4d, 11/7/04

[Guest guest]

Kathy

I have been thinking about you lately and wondered how things were

going for you. I am glad to hear that you found out what was wrong

with your uterus and that it was not a t. However, I was saddened

to hear about the issues you are having in your current pg. I will

pray that things do work out. I feel so bad that you have to go

through all this. It sounds like the dr should have known not to do

the amnio with the other band issue involved.

I am so sorry that you have to go through this. Let us know what

happens. Words can not express how I wish you did not have to go

through this.

Kathleen

t-shape

ds 2.2001

angel 1.2004

35 weeks pg

>

> Wow! It has been a while. It's Kathy D. I originally joined

this group as a t-shaped uterus.

> I was misdiagnosed by four top doctors in the Boston area. But

one doctor, Dr. ph

> Hill, had doubts, did a hysteroscopy, and found that I had a

septum. The septum was

> removed (along with 2 polyps) last spring. Less than 6 months

later, I became pregnant

> through our altogether 8th IUI. Today I am 16w2d. You would

think I'd be out of the

> woods. Such is not the case. The Monday after Christmas, at our

ultrasound, we were

> thrilled to find out it was a girl, but not so thrilled to find

out that I have Amniotic Band

> Syndrome. Our little angel has her right hand caught in fibrous

amniotic bands in the

> interior of the amniotic sac. The band around her hand has been

constricting, and

> although her thumb seems to be there, her four fingers seem to be

small and fused like a

> little mitten. We're not even sure at this point if the finger

bones exist. I cried so hard

> over the loss of her right hand. I started thinking about all the

things she wouldn't be able

> to do, like play the piano or type her papers in college. But

then the doctor came back in

> and let us know that in addition to the ABS, our little girl's

kidneys were dilated, which is a

> marker for Down's Syndrome. An amniocentesis was highly

recommended. We had the

> amnio done immediately on Tuesday. Nobody told me that an amnio

wasn't

> recommended for women with ABS. Tuesday night I had massive

cramping and bleeding.

> I went back into the hospital on Wednesday morning. My amniotic

fluid was low and the

> two walls of the amniotic sac were separated, which they were NOT

on Tuesday before the

> amnio. But my membrane didn't appear to have ruptured. I was

told to call if I had a gush

> of fluid. Sure enough, as I was standing up at home to give my

parents a hug, there was a

> huge gush of fluid. Back to the hospital we went. Apparently, I

had ruptured my

> membrane. Breaking water at 16 weeks can only result in

miscarriage, and this would be

> my third. But there's nothing they can do for me now. I'm on

bedrest until another

> ultrasound on Monday. If by some miracle, the leak seals over and

my amniotic fluid

> begins to fill up again, our baby will most likely be born with a

ton of problems in addition

> to the deformed right hand. I have cried for four days straight

now. It's possible I'm all

> cried out. Can anyone tell me- is Amniotic Band Syndrome more

common in women who

> have had uterine surgery? Does anyone have any words of

encouragement or stories?

> Thanks!

> -Kathy D., 29

> SU 16w2d w/ABS

[Guest guest]

Kathy

I have been thinking about you lately and wondered how things were

going for you. I am glad to hear that you found out what was wrong

with your uterus and that it was not a t. However, I was saddened

to hear about the issues you are having in your current pg. I will

pray that things do work out. I feel so bad that you have to go

through all this. It sounds like the dr should have known not to do

the amnio with the other band issue involved.

I am so sorry that you have to go through this. Let us know what

happens. Words can not express how I wish you did not have to go

through this.

Kathleen

t-shape

ds 2.2001

angel 1.2004

35 weeks pg

>

> Wow! It has been a while. It's Kathy D. I originally joined

this group as a t-shaped uterus.

> I was misdiagnosed by four top doctors in the Boston area. But

one doctor, Dr. ph

> Hill, had doubts, did a hysteroscopy, and found that I had a

septum. The septum was

> removed (along with 2 polyps) last spring. Less than 6 months

later, I became pregnant

> through our altogether 8th IUI. Today I am 16w2d. You would

think I'd be out of the

> woods. Such is not the case. The Monday after Christmas, at our

ultrasound, we were

> thrilled to find out it was a girl, but not so thrilled to find

out that I have Amniotic Band

> Syndrome. Our little angel has her right hand caught in fibrous

amniotic bands in the

> interior of the amniotic sac. The band around her hand has been

constricting, and

> although her thumb seems to be there, her four fingers seem to be

small and fused like a

> little mitten. We're not even sure at this point if the finger

bones exist. I cried so hard

> over the loss of her right hand. I started thinking about all the

things she wouldn't be able

> to do, like play the piano or type her papers in college. But

then the doctor came back in

> and let us know that in addition to the ABS, our little girl's

kidneys were dilated, which is a

> marker for Down's Syndrome. An amniocentesis was highly

recommended. We had the

> amnio done immediately on Tuesday. Nobody told me that an amnio

wasn't

> recommended for women with ABS. Tuesday night I had massive

cramping and bleeding.

> I went back into the hospital on Wednesday morning. My amniotic

fluid was low and the

> two walls of the amniotic sac were separated, which they were NOT

on Tuesday before the

> amnio. But my membrane didn't appear to have ruptured. I was

told to call if I had a gush

> of fluid. Sure enough, as I was standing up at home to give my

parents a hug, there was a

> huge gush of fluid. Back to the hospital we went. Apparently, I

had ruptured my

> membrane. Breaking water at 16 weeks can only result in

miscarriage, and this would be

> my third. But there's nothing they can do for me now. I'm on

bedrest until another

> ultrasound on Monday. If by some miracle, the leak seals over and

my amniotic fluid

> begins to fill up again, our baby will most likely be born with a

ton of problems in addition

> to the deformed right hand. I have cried for four days straight

now. It's possible I'm all

> cried out. Can anyone tell me- is Amniotic Band Syndrome more

common in women who

> have had uterine surgery? Does anyone have any words of

encouragement or stories?

> Thanks!

> -Kathy D., 29

> SU 16w2d w/ABS

[Guest guest]

Kathy

I have been thinking about you lately and wondered how things were

going for you. I am glad to hear that you found out what was wrong

with your uterus and that it was not a t. However, I was saddened

to hear about the issues you are having in your current pg. I will

pray that things do work out. I feel so bad that you have to go

through all this. It sounds like the dr should have known not to do

the amnio with the other band issue involved.

I am so sorry that you have to go through this. Let us know what

happens. Words can not express how I wish you did not have to go

through this.

Kathleen

t-shape

ds 2.2001

angel 1.2004

35 weeks pg

>

> Wow! It has been a while. It's Kathy D. I originally joined

this group as a t-shaped uterus.

> I was misdiagnosed by four top doctors in the Boston area. But

one doctor, Dr. ph

> Hill, had doubts, did a hysteroscopy, and found that I had a

septum. The septum was

> removed (along with 2 polyps) last spring. Less than 6 months

later, I became pregnant

> through our altogether 8th IUI. Today I am 16w2d. You would

think I'd be out of the

> woods. Such is not the case. The Monday after Christmas, at our

ultrasound, we were

> thrilled to find out it was a girl, but not so thrilled to find

out that I have Amniotic Band

> Syndrome. Our little angel has her right hand caught in fibrous

amniotic bands in the

> interior of the amniotic sac. The band around her hand has been

constricting, and

> although her thumb seems to be there, her four fingers seem to be

small and fused like a

> little mitten. We're not even sure at this point if the finger

bones exist. I cried so hard

> over the loss of her right hand. I started thinking about all the

things she wouldn't be able

> to do, like play the piano or type her papers in college. But

then the doctor came back in

> and let us know that in addition to the ABS, our little girl's

kidneys were dilated, which is a

> marker for Down's Syndrome. An amniocentesis was highly

recommended. We had the

> amnio done immediately on Tuesday. Nobody told me that an amnio

wasn't

> recommended for women with ABS. Tuesday night I had massive

cramping and bleeding.

> I went back into the hospital on Wednesday morning. My amniotic

fluid was low and the

> two walls of the amniotic sac were separated, which they were NOT

on Tuesday before the

> amnio. But my membrane didn't appear to have ruptured. I was

told to call if I had a gush

> of fluid. Sure enough, as I was standing up at home to give my

parents a hug, there was a

> huge gush of fluid. Back to the hospital we went. Apparently, I

had ruptured my

> membrane. Breaking water at 16 weeks can only result in

miscarriage, and this would be

> my third. But there's nothing they can do for me now. I'm on

bedrest until another

> ultrasound on Monday. If by some miracle, the leak seals over and

my amniotic fluid

> begins to fill up again, our baby will most likely be born with a

ton of problems in addition

> to the deformed right hand. I have cried for four days straight

now. It's possible I'm all

> cried out. Can anyone tell me- is Amniotic Band Syndrome more

common in women who

> have had uterine surgery? Does anyone have any words of

encouragement or stories?

> Thanks!

> -Kathy D., 29

> SU 16w2d w/ABS