Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi , > hi all. i'm hoping someone will know wht to do here. i've searched > for help on the web but haven't found the answers. > my son and i have been on SCD since the end of august, so about 3 > mos. i know people often flare up (my son is on scd for autism, and > i for U/C) at 3 mos and i returned to the intro diet. nothing is > getting better and i don't know when to start adding purreed veggies > or bananas. I feel like i need more food than i'm getting but still > have cramps and D and bleeding. > does anyone know what to do? thanks! Are you taking any meds for UC? Any supplements? Acidophilus or yogurt? Were you using any of this and stopped preSCD or during the first three months? Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi , > hi all. i'm hoping someone will know wht to do here. i've searched > for help on the web but haven't found the answers. > my son and i have been on SCD since the end of august, so about 3 > mos. i know people often flare up (my son is on scd for autism, and > i for U/C) at 3 mos and i returned to the intro diet. nothing is > getting better and i don't know when to start adding purreed veggies > or bananas. I feel like i need more food than i'm getting but still > have cramps and D and bleeding. > does anyone know what to do? thanks! Are you taking any meds for UC? Any supplements? Acidophilus or yogurt? Were you using any of this and stopped preSCD or during the first three months? Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi , > hi all. i'm hoping someone will know wht to do here. i've searched > for help on the web but haven't found the answers. > my son and i have been on SCD since the end of august, so about 3 > mos. i know people often flare up (my son is on scd for autism, and > i for U/C) at 3 mos and i returned to the intro diet. nothing is > getting better and i don't know when to start adding purreed veggies > or bananas. I feel like i need more food than i'm getting but still > have cramps and D and bleeding. > does anyone know what to do? thanks! Are you taking any meds for UC? Any supplements? Acidophilus or yogurt? Were you using any of this and stopped preSCD or during the first three months? Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi again , Also, what were you eating before the flare, any chance of illegals any other relevant info? Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos > my son and i have been on SCD since the end of august, so about 3 > mos. i know people often flare up (my son is on scd for autism, and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 My son is on SCD for UC and we went through the 3 month flare. It took a while to get it under control, but here's what we did... 1st we tried GSE (grapefruit seed extract but triple recommended dose - under advise of alternative practitioner) for 10 days, then I got rid of ALL illegals (his meds were not legal) and his GI doctor doubled his sulfasalazine (he was taking 1000mg a day, now 2000mg a day) and I switched probiotics. He is now having solid bm's and only 1 a day - if he skips a day, he might have 2 the next day. We did the intro several times during that period of flaring but it didn't help - we did not have to go on the intro to get him symptom free. He's still got a tinge of blood in stools, but he is improving daily, no blood or mucous and they are formed. You have to get the inflammation under control - that is the key. The GSE will help kill off the stubborn bacteria that are hanging on for dear life. Really we have been there I know what you are going through. Don't give up on SCD - we did for a brief while (not chaging diet but trying illegal supplements and such) and I regretted it. You will get through this! Also, don't be afraid to go back to the GI doc for help - I was afraid he'd put us back on prednisone, but he didn't and the meds helped get this under control for us. Best wishes for you! Robbie stubborn flare up hi all. i'm hoping someone will know wht to do here. i've searched for help on the web but haven't found the answers. my son and i have been on SCD since the end of august, so about 3 mos. i know people often flare up (my son is on scd for autism, and i for U/C) at 3 mos and i returned to the intro diet. nothing is getting better and i don't know when to start adding purreed veggies or bananas. I feel like i need more food than i'm getting but still have cramps and D and bleeding. does anyone know what to do? thanks! starving hungry, sarah For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 My son is on SCD for UC and we went through the 3 month flare. It took a while to get it under control, but here's what we did... 1st we tried GSE (grapefruit seed extract but triple recommended dose - under advise of alternative practitioner) for 10 days, then I got rid of ALL illegals (his meds were not legal) and his GI doctor doubled his sulfasalazine (he was taking 1000mg a day, now 2000mg a day) and I switched probiotics. He is now having solid bm's and only 1 a day - if he skips a day, he might have 2 the next day. We did the intro several times during that period of flaring but it didn't help - we did not have to go on the intro to get him symptom free. He's still got a tinge of blood in stools, but he is improving daily, no blood or mucous and they are formed. You have to get the inflammation under control - that is the key. The GSE will help kill off the stubborn bacteria that are hanging on for dear life. Really we have been there I know what you are going through. Don't give up on SCD - we did for a brief while (not chaging diet but trying illegal supplements and such) and I regretted it. You will get through this! Also, don't be afraid to go back to the GI doc for help - I was afraid he'd put us back on prednisone, but he didn't and the meds helped get this under control for us. Best wishes for you! Robbie stubborn flare up hi all. i'm hoping someone will know wht to do here. i've searched for help on the web but haven't found the answers. my son and i have been on SCD since the end of august, so about 3 mos. i know people often flare up (my son is on scd for autism, and i for U/C) at 3 mos and i returned to the intro diet. nothing is getting better and i don't know when to start adding purreed veggies or bananas. I feel like i need more food than i'm getting but still have cramps and D and bleeding. does anyone know what to do? thanks! starving hungry, sarah For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 My son is on SCD for UC and we went through the 3 month flare. It took a while to get it under control, but here's what we did... 1st we tried GSE (grapefruit seed extract but triple recommended dose - under advise of alternative practitioner) for 10 days, then I got rid of ALL illegals (his meds were not legal) and his GI doctor doubled his sulfasalazine (he was taking 1000mg a day, now 2000mg a day) and I switched probiotics. He is now having solid bm's and only 1 a day - if he skips a day, he might have 2 the next day. We did the intro several times during that period of flaring but it didn't help - we did not have to go on the intro to get him symptom free. He's still got a tinge of blood in stools, but he is improving daily, no blood or mucous and they are formed. You have to get the inflammation under control - that is the key. The GSE will help kill off the stubborn bacteria that are hanging on for dear life. Really we have been there I know what you are going through. Don't give up on SCD - we did for a brief while (not chaging diet but trying illegal supplements and such) and I regretted it. You will get through this! Also, don't be afraid to go back to the GI doc for help - I was afraid he'd put us back on prednisone, but he didn't and the meds helped get this under control for us. Best wishes for you! Robbie stubborn flare up hi all. i'm hoping someone will know wht to do here. i've searched for help on the web but haven't found the answers. my son and i have been on SCD since the end of august, so about 3 mos. i know people often flare up (my son is on scd for autism, and i for U/C) at 3 mos and i returned to the intro diet. nothing is getting better and i don't know when to start adding purreed veggies or bananas. I feel like i need more food than i'm getting but still have cramps and D and bleeding. does anyone know what to do? thanks! starving hungry, sarah For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 thanks for responding! what have i been eating? nothing new...muffins, carrots, bit of peanut butter, tons of cheese, meats, yoghurt, green beans, homemade jello... i did start drinking chamomil tea because the baby i'm nursing was gassy but it had never bothered me before. no gassy veggies like broccoli... in BTVC it says that flares come after a big stress or respiratory infection ( both of which i've had in the last two mos) i think. i'm just struggling to figure out what to eat now... maybe i'll try avacados. i really want to feel full. any suggestions greatly appreciated (thanks to those who have suggested!). feed me! sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 thanks for responding! what have i been eating? nothing new...muffins, carrots, bit of peanut butter, tons of cheese, meats, yoghurt, green beans, homemade jello... i did start drinking chamomil tea because the baby i'm nursing was gassy but it had never bothered me before. no gassy veggies like broccoli... in BTVC it says that flares come after a big stress or respiratory infection ( both of which i've had in the last two mos) i think. i'm just struggling to figure out what to eat now... maybe i'll try avacados. i really want to feel full. any suggestions greatly appreciated (thanks to those who have suggested!). feed me! sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 thanks for responding! what have i been eating? nothing new...muffins, carrots, bit of peanut butter, tons of cheese, meats, yoghurt, green beans, homemade jello... i did start drinking chamomil tea because the baby i'm nursing was gassy but it had never bothered me before. no gassy veggies like broccoli... in BTVC it says that flares come after a big stress or respiratory infection ( both of which i've had in the last two mos) i think. i'm just struggling to figure out what to eat now... maybe i'll try avacados. i really want to feel full. any suggestions greatly appreciated (thanks to those who have suggested!). feed me! sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Robbie, I am so happy to hear that he is doing much better!! Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos > My son is on SCD for UC and we went through the 3 month flare. It took a while to get it under control, but here's what we did... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Robbie, I am so happy to hear that he is doing much better!! Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos > My son is on SCD for UC and we went through the 3 month flare. It took a while to get it under control, but here's what we did... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Robbie, I am so happy to hear that he is doing much better!! Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos > My son is on SCD for UC and we went through the 3 month flare. It took a while to get it under control, but here's what we did... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Hi , > thanks for responding! what have i been eating? nothing > new...muffins, carrots, bit of peanut butter, tons of cheese, meats, > yoghurt, green beans, homemade jello... i did start drinking chamomil > tea because the baby i'm nursing was gassy but it had never bothered > me before. > no gassy veggies like broccoli... Until you get your flare under control you might want to go back to the intro diet for a couple of days and then gradually readd foods if you respond. The culprits that may be causing trouble are muffins, pnut butter, chamomile tea and lastly the yogurt - some don't tolerate it during a flare. If this doesn't work you might want to try meds or GSE , which some have found helpful). To help feel full just eat larger portions of the intro diet foods http://www.breakingtheviciouscycle.info/beginners_guide/the_intro_die t2.htm here are some ideas from the kids list to help change it up to prevent boredom http://pecanbread.com/foodprep.html#intro Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos in BTVC it says that flares come > after a big stress or respiratory infection ( both of which i've had > in the last two mos) i think. i'm just struggling to figure out what > to eat now... maybe i'll try avacados. i really want to feel full. > any suggestions greatly appreciated (thanks to those who have > suggested!). > feed me! > sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Hi , > thanks for responding! what have i been eating? nothing > new...muffins, carrots, bit of peanut butter, tons of cheese, meats, > yoghurt, green beans, homemade jello... i did start drinking chamomil > tea because the baby i'm nursing was gassy but it had never bothered > me before. > no gassy veggies like broccoli... Until you get your flare under control you might want to go back to the intro diet for a couple of days and then gradually readd foods if you respond. The culprits that may be causing trouble are muffins, pnut butter, chamomile tea and lastly the yogurt - some don't tolerate it during a flare. If this doesn't work you might want to try meds or GSE , which some have found helpful). To help feel full just eat larger portions of the intro diet foods http://www.breakingtheviciouscycle.info/beginners_guide/the_intro_die t2.htm here are some ideas from the kids list to help change it up to prevent boredom http://pecanbread.com/foodprep.html#intro Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos in BTVC it says that flares come > after a big stress or respiratory infection ( both of which i've had > in the last two mos) i think. i'm just struggling to figure out what > to eat now... maybe i'll try avacados. i really want to feel full. > any suggestions greatly appreciated (thanks to those who have > suggested!). > feed me! > sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Hi , > thanks for responding! what have i been eating? nothing > new...muffins, carrots, bit of peanut butter, tons of cheese, meats, > yoghurt, green beans, homemade jello... i did start drinking chamomil > tea because the baby i'm nursing was gassy but it had never bothered > me before. > no gassy veggies like broccoli... Until you get your flare under control you might want to go back to the intro diet for a couple of days and then gradually readd foods if you respond. The culprits that may be causing trouble are muffins, pnut butter, chamomile tea and lastly the yogurt - some don't tolerate it during a flare. If this doesn't work you might want to try meds or GSE , which some have found helpful). To help feel full just eat larger portions of the intro diet foods http://www.breakingtheviciouscycle.info/beginners_guide/the_intro_die t2.htm here are some ideas from the kids list to help change it up to prevent boredom http://pecanbread.com/foodprep.html#intro Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos in BTVC it says that flares come > after a big stress or respiratory infection ( both of which i've had > in the last two mos) i think. i'm just struggling to figure out what > to eat now... maybe i'll try avacados. i really want to feel full. > any suggestions greatly appreciated (thanks to those who have > suggested!). > feed me! > sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 > > Hi , > >> Until you get your flare under control you might want to go back to > the intro diet for a couple of days and then gradually readd foods > if you respond. The culprits that may be causing trouble are > muffins, pnut butter, chamomile tea and lastly the yogurt - some > don't tolerate it during a flare. > > Thank you Sheila. I started the intro diet two weeks ago and have only added 1/4 of a mashed banana. I'm trying L-Glutamine (just bought it today), It says it's legal. We can't afford meds (though if desperate we will). Is cheddar cheese okay? I really like it plus I need more calories. Have lost 12 lbs in two and a half weeks. Ordinarily I'd be thrilled... sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 > > Hi , > >> Until you get your flare under control you might want to go back to > the intro diet for a couple of days and then gradually readd foods > if you respond. The culprits that may be causing trouble are > muffins, pnut butter, chamomile tea and lastly the yogurt - some > don't tolerate it during a flare. > > Thank you Sheila. I started the intro diet two weeks ago and have only added 1/4 of a mashed banana. I'm trying L-Glutamine (just bought it today), It says it's legal. We can't afford meds (though if desperate we will). Is cheddar cheese okay? I really like it plus I need more calories. Have lost 12 lbs in two and a half weeks. Ordinarily I'd be thrilled... sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 > > Hi , > >> Until you get your flare under control you might want to go back to > the intro diet for a couple of days and then gradually readd foods > if you respond. The culprits that may be causing trouble are > muffins, pnut butter, chamomile tea and lastly the yogurt - some > don't tolerate it during a flare. > > Thank you Sheila. I started the intro diet two weeks ago and have only added 1/4 of a mashed banana. I'm trying L-Glutamine (just bought it today), It says it's legal. We can't afford meds (though if desperate we will). Is cheddar cheese okay? I really like it plus I need more calories. Have lost 12 lbs in two and a half weeks. Ordinarily I'd be thrilled... sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Hi , > I started the intro diet two weeks ago and have > only added 1/4 of a mashed banana. Any change since you added the banana. > I'm trying L-Glutamine (just bought it today), It says it's legal. We > can't afford meds (though if desperate we will). Is cheddar cheese > okay? If it doesn't make things worse then yes. Cheddar Cheese has always been one of my " safe " foods during flare- ups and actually seems to help things settle down Depending on the frequency of your bm's and the amount of blood present you may consider looking at getting some meds. The chamomile may have set things off here's a saved file from the adult SCD list, " Chamomile itself is a natural relaxant. So even though it has not flavourings or anything, by way of its makeup it is not legal. It really is used as a natural drug to relax muscles etc but can also be very harsh on the gut. I know it makes me run to the loo. just the ones in the book are legal. " Next time legal peppermint tea may be better to help with the gassiness. Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Hi , > I started the intro diet two weeks ago and have > only added 1/4 of a mashed banana. Any change since you added the banana. > I'm trying L-Glutamine (just bought it today), It says it's legal. We > can't afford meds (though if desperate we will). Is cheddar cheese > okay? If it doesn't make things worse then yes. Cheddar Cheese has always been one of my " safe " foods during flare- ups and actually seems to help things settle down Depending on the frequency of your bm's and the amount of blood present you may consider looking at getting some meds. The chamomile may have set things off here's a saved file from the adult SCD list, " Chamomile itself is a natural relaxant. So even though it has not flavourings or anything, by way of its makeup it is not legal. It really is used as a natural drug to relax muscles etc but can also be very harsh on the gut. I know it makes me run to the loo. just the ones in the book are legal. " Next time legal peppermint tea may be better to help with the gassiness. Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Hi , > I started the intro diet two weeks ago and have > only added 1/4 of a mashed banana. Any change since you added the banana. > I'm trying L-Glutamine (just bought it today), It says it's legal. We > can't afford meds (though if desperate we will). Is cheddar cheese > okay? If it doesn't make things worse then yes. Cheddar Cheese has always been one of my " safe " foods during flare- ups and actually seems to help things settle down Depending on the frequency of your bm's and the amount of blood present you may consider looking at getting some meds. The chamomile may have set things off here's a saved file from the adult SCD list, " Chamomile itself is a natural relaxant. So even though it has not flavourings or anything, by way of its makeup it is not legal. It really is used as a natural drug to relax muscles etc but can also be very harsh on the gut. I know it makes me run to the loo. just the ones in the book are legal. " Next time legal peppermint tea may be better to help with the gassiness. Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 > >> > Any change since you added the banana. >YES. Change! Banana=GAS. So much for that idea > Depending on the frequency of your bm's and the amount of blood > present you may consider looking at getting some meds. >Where I live ther are almost no doctors. I'll have to go to the ER... very tempted today. I can not be out of bed for more than five mins. Too bad because my husband's diagnosis for AS will be reported tomorrow and I wanted to go and ask questions. thanks. no chamomile. like peppermint better anyway. It is so hard to know what to do. On one hand I've got only one body and don't want to ruin it with unnecessary drugs but on the other hand maybe I need them (not to mention that desperation does take it's toll). It's hard to keep believing in SCD but I really feel like it's right. sarah > Sheila 46 mos SCD, 20 yrs UC > mom of SCD 31 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Hi , Some people flare up while being on the diet (the infamous three month flare) . Sometimes the diet alone can get them stabilized, but for some they need some meds to get over the hump and then the diet helps with the rest. Sheila 46 mos SCD, 20 yrs UC mom of SCD 31 mos > > Depending on the frequency of your bm's and the amount of blood > > present you may consider looking at getting some meds. > >Where I live ther are almost no doctors. I'll have to go to the > ER... very tempted today. I can not be out of bed for more than five > mins. Too bad because my husband's diagnosis for AS will be reported > tomorrow and I wanted to go and ask questions. > thanks. no chamomile. like peppermint better anyway. > It is so hard to know what to do. On one hand I've got only one body Quote Link to comment Share on other sites More sharing options...
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