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RE: 200 seizures a day

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When I say Mike used to have 150-200 seizures a day I mean - tonic/clonic,

complex partial, absence, myoclonic, and drop attacks combined. The latter two

are what he had the most of, especially after the diet squashed the complex

partials and sent the tonic/clonics into the night :) (Mike only had them when

sleeping before they were also gone completely!)

Jenn

200 seizures a day

I keep reading that people were haveing 150 - 200 seizure a

day...what type of seizures are you talking about.....including the

postictal period, ther is not enough hours in the day for my

daughter to have that many tonic clonics.....are you talikng abut

myclonic???

Please help me understand....

people ask me how many seizures we have a day...am I to count the

myclonic too?

Thanks

Dina (Sydney - 2 1/2 years, starts keto next month, myclonic, tonic-

clonic, drop and absent, 13 unsuccessful meds.)

Cincinnati OH

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When Broc was having this many a day the majority were head drops that were

probably not noticeable by the majority of people because they are so quick.

Mike

_____

From: homebirthmomma

Sent: Sunday, February 29, 2004 8:16 PM

To: ketogenic

Subject: 200 seizures a day

I keep reading that people were haveing 150 - 200 seizure a

day...what type of seizures are you talking about.....including the

postictal period, ther is not enough hours in the day for my

daughter to have that many tonic clonics.....are you talikng abut

myclonic???

Please help me understand....

people ask me how many seizures we have a day...am I to count the

myclonic too?

Thanks

Dina (Sydney - 2 1/2 years, starts keto next month, myclonic, tonic-

clonic, drop and absent, 13 unsuccessful meds.)

Cincinnati OH

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

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_____

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Dina,

Yes, you count all the types of seizures that Sidney is having. The

post ictal period after a GTC doesn't count as a seizure. But, if

Sidney had another type of seizure while still PI, that seizure

counts. Our daughter often had about 6-8 myoclonics right together

(cluster) then went into a GTC. She would sleep for about an hour

and when she woke up, but still not fully recovered, she would have

more myoclonics. So, that would be something like 10-15 seizures in

a two hour period. Generalized seizures other than tonic or clonic

usually have a short PI period, if any. After a series of absence

seizures, our daughter seemed post ictal for about a minute (which

seems like forever). She also had full body drops (atonic) and

ataxic seizures. Keeping track of them was often quite challenging.

Cammie

> I keep reading that people were haveing 150 - 200 seizure a

> day...what type of seizures are you talking about.....including the

> postictal period, ther is not enough hours in the day for my

> daughter to have that many tonic clonics.....are you talikng abut

> myclonic???

>

> Please help me understand....

> people ask me how many seizures we have a day...am I to count the

> myclonic too?

>

> Thanks

> Dina (Sydney - 2 1/2 years, starts keto next month, myclonic, tonic-

> clonic, drop and absent, 13 unsuccessful meds.)

> Cincinnati OH

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Dina,

Yes, you count all the types of seizures that Sidney is having. The

post ictal period after a GTC doesn't count as a seizure. But, if

Sidney had another type of seizure while still PI, that seizure

counts. Our daughter often had about 6-8 myoclonics right together

(cluster) then went into a GTC. She would sleep for about an hour

and when she woke up, but still not fully recovered, she would have

more myoclonics. So, that would be something like 10-15 seizures in

a two hour period. Generalized seizures other than tonic or clonic

usually have a short PI period, if any. After a series of absence

seizures, our daughter seemed post ictal for about a minute (which

seems like forever). She also had full body drops (atonic) and

ataxic seizures. Keeping track of them was often quite challenging.

Cammie

> I keep reading that people were haveing 150 - 200 seizure a

> day...what type of seizures are you talking about.....including the

> postictal period, ther is not enough hours in the day for my

> daughter to have that many tonic clonics.....are you talikng abut

> myclonic???

>

> Please help me understand....

> people ask me how many seizures we have a day...am I to count the

> myclonic too?

>

> Thanks

> Dina (Sydney - 2 1/2 years, starts keto next month, myclonic, tonic-

> clonic, drop and absent, 13 unsuccessful meds.)

> Cincinnati OH

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Guest guest

Dina,

Yes, you count all the types of seizures that Sidney is having. The

post ictal period after a GTC doesn't count as a seizure. But, if

Sidney had another type of seizure while still PI, that seizure

counts. Our daughter often had about 6-8 myoclonics right together

(cluster) then went into a GTC. She would sleep for about an hour

and when she woke up, but still not fully recovered, she would have

more myoclonics. So, that would be something like 10-15 seizures in

a two hour period. Generalized seizures other than tonic or clonic

usually have a short PI period, if any. After a series of absence

seizures, our daughter seemed post ictal for about a minute (which

seems like forever). She also had full body drops (atonic) and

ataxic seizures. Keeping track of them was often quite challenging.

Cammie

> I keep reading that people were haveing 150 - 200 seizure a

> day...what type of seizures are you talking about.....including the

> postictal period, ther is not enough hours in the day for my

> daughter to have that many tonic clonics.....are you talikng abut

> myclonic???

>

> Please help me understand....

> people ask me how many seizures we have a day...am I to count the

> myclonic too?

>

> Thanks

> Dina (Sydney - 2 1/2 years, starts keto next month, myclonic, tonic-

> clonic, drop and absent, 13 unsuccessful meds.)

> Cincinnati OH

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