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Judith: Re: Vitamin D

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Hi ,

> Please tell us more about your vitamin D. How much and what kind?

Devaron (Colecaciferol 1,25-dihydroxyvitamin D) in a dose of 400 IU

daily.

> I find it perplexing that a doctor would order more than the amount

found in a supplement (calcium with vitamin D added) if a patien't's

> calcium level is normal. I do know that there are supplements of

1000iu of vitamin D.

I was dx mildly Vitamin-D deficient before and after surgery for

parathyroid adenoma (dx Primary HypERparathyroidism with osteoporosis

- pre-menopause). It was prescribed after surgery to correct the

deficiency and improve calcium absorption, along with Fosamax for the

osteoporosis. I don't take calcium supplements. I'm fairly careful

with my diet.

Vitamin-D deficiency is uncommon here btw it is not one of those

countries where we don't see the sun for months :-) and I don't feel I

know the story, whether it's temporary and related to the PHPT or

what.

> This

> wouldn't be helpful for a hypoparathyroidism patient, as we take the

> equivalent of 50,000 i.u. (or more under certain conditions) daily.

> If you are taking more than the recommended 400i.u. (the amount

> found in a multiplevitamin) your calcium and vitamin D levels

> should be monitored closely.

No I agree but the conditions are different.

I'd be happy to hear if you think there's something wrong here. As I

wrote earlier, I was told at the time that it was in any case

something that is being prescribed in thyca patients (to help protect

against bone loss) - but I haven't come across it on this list.

> Call me,

Will do when I'm next over there!

Judith (in Holland most of the time)

dx 1965 pap thyca T4-N1-M0

pt London, England 1965

dx2 1982 recurrence in lymph nodes (and in other thyroid lobe)

tt The Netherlands 1982

rai The Netherlands 1982

clean scan Sept 1982 and NED since then

dx3 Primary Hyperparathyroidism w/osteoporosis 2001

parathyroidectomy London, England 2001

T4 200 mcg per day since 1965

Devaron 400 UI and Fosamax since 2001

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