Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Hi Jill Sometimes there is lots of truth to the old wives tales. The ENT said she would get about 20% of her hearing back. Not sure if that is in dB's or not but it would be nice. I'm not sure if she has scar tissue or not. She has had a sinus infection since Oct. and when I'd take her to the pediatrician that is when we would discover fluid on her ears. But she has always been placed on antibiotics for the sinus problem because the fluid was clear. No fever or ear pain up to this point. This to my knowledge is the first infection associated with pain and fever. She has never cried or ran a temp with the fluid... This is the longest it has ever lasted with no hearing. It is a week today. NOrmally she is mild/mod loss and hears me okay but even with her aids she can't hear me now. I am taking everybodys advice and leaving the aids out so hopefully she will get over this much faster.... Thanks a > My son would get an ear infection with every tooth that came in. I know that > most consider that an old-wive's-tale, but for our Ian it was true. Usually we > did not discover it until it was quite severe because the kid has an > incredible tolerance for pain. From what I remember, he was put on antibiotics for > them and our pediatricians are NOT quick to medicate. > > But I am now looking at the ear infection from the distance of time. When Ian > had his surgery the only thing the ENT could do was remove some scar tissue > that had been caused by some of the nastier ear infections. After the surgery, > after the packing came out and he'd healed -- his hearing improved by 10-15 > dbs. The ENT said it wasn't any of his doing, that removing the scar tissue > should not have helped at all. But it did. So, now I wonder if I should have been > more aggressive about treating those infections, to stop that physical damage > before it happened. One of the many things I wonder about, one of the many > " what ifs " that plague us as parents. > > Jill > mom to Ian (13, HOH, Godlenhar) and (9) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 No, Ezekiel never lost more hearing due to an infection, but he did lose it temporarily. Having just been through a similar thing myself - not an infection, but having a lot of " stuff " in the ear due to an accident I had, I can tell you if there is stuff in there, fluid or dirt or whatever, sound is very muffled! I've also read that diet/allergies can have a big effect on children with recurrent ear infections. Milk products is a big problem, apparently. Since my son grew out of his ear infections pretty early on, I never tried eliminating milk from his diet, but it might be worth a try for those who are dealing with this now. It can't hurt, and might help. I always like to try and deal with the cause of the problem rather than just treating it after the fact, if possible. Kirsten Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Lately I have had a lot of problems with ear wax and every now and then for a few days my hearing will go up and down. I recently had a stuffy nose and it was fine until it started draining into my throat (gross I know) and at that point I lost some of my hearing and it has stayed gone with the occasional popping for 3 days and the stuff is almost gone. Anything that can obstruct the ear whether it be mucus, wax or fluid can cause hearing loss but once it is gone it usually returns to normal. However frequent ear infections can actually damage the ear causing perminant hearing loss. By the way my hearing still is down, but I'm sure it will return to normal soon. ear infections No, Ezekiel never lost more hearing due to an infection, but he did lose it temporarily. Having just been through a similar thing myself - not an infection, but having a lot of " stuff " in the ear due to an accident I had, I can tell you if there is stuff in there, fluid or dirt or whatever, sound is very muffled! I've also read that diet/allergies can have a big effect on children with recurrent ear infections. Milk products is a big problem, apparently. Since my son grew out of his ear infections pretty early on, I never tried eliminating milk from his diet, but it might be worth a try for those who are dealing with this now. It can't hurt, and might help. I always like to try and deal with the cause of the problem rather than just treating it after the fact, if possible. Kirsten All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Lately I have had a lot of problems with ear wax and every now and then for a few days my hearing will go up and down. I recently had a stuffy nose and it was fine until it started draining into my throat (gross I know) and at that point I lost some of my hearing and it has stayed gone with the occasional popping for 3 days and the stuff is almost gone. Anything that can obstruct the ear whether it be mucus, wax or fluid can cause hearing loss but once it is gone it usually returns to normal. However frequent ear infections can actually damage the ear causing perminant hearing loss. By the way my hearing still is down, but I'm sure it will return to normal soon. ear infections No, Ezekiel never lost more hearing due to an infection, but he did lose it temporarily. Having just been through a similar thing myself - not an infection, but having a lot of " stuff " in the ear due to an accident I had, I can tell you if there is stuff in there, fluid or dirt or whatever, sound is very muffled! I've also read that diet/allergies can have a big effect on children with recurrent ear infections. Milk products is a big problem, apparently. Since my son grew out of his ear infections pretty early on, I never tried eliminating milk from his diet, but it might be worth a try for those who are dealing with this now. It can't hurt, and might help. I always like to try and deal with the cause of the problem rather than just treating it after the fact, if possible. Kirsten All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Lately I have had a lot of problems with ear wax and every now and then for a few days my hearing will go up and down. I recently had a stuffy nose and it was fine until it started draining into my throat (gross I know) and at that point I lost some of my hearing and it has stayed gone with the occasional popping for 3 days and the stuff is almost gone. Anything that can obstruct the ear whether it be mucus, wax or fluid can cause hearing loss but once it is gone it usually returns to normal. However frequent ear infections can actually damage the ear causing perminant hearing loss. By the way my hearing still is down, but I'm sure it will return to normal soon. ear infections No, Ezekiel never lost more hearing due to an infection, but he did lose it temporarily. Having just been through a similar thing myself - not an infection, but having a lot of " stuff " in the ear due to an accident I had, I can tell you if there is stuff in there, fluid or dirt or whatever, sound is very muffled! I've also read that diet/allergies can have a big effect on children with recurrent ear infections. Milk products is a big problem, apparently. Since my son grew out of his ear infections pretty early on, I never tried eliminating milk from his diet, but it might be worth a try for those who are dealing with this now. It can't hurt, and might help. I always like to try and deal with the cause of the problem rather than just treating it after the fact, if possible. Kirsten All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 > I'm thinking that even if the American Academy of Pediatrics recommends > not using antibiotics right away for otitis media in most children, they > (pediatricians and ENTs) will give antibiotics to kids with pre-existing > hearing loss since they are at much higher risk for problems. I am not a nurse, but I do want to share what I learned from a knowledgeable ENT. He said that the longitudinal study that this recommendation is based on did not specifically address hearing impaired children, but if you waded through the very lengthy report (which most pediatricians don't have time to) that it did say that HI kids are a special case and that they should be treated. The ENT said that even uninfected fluid and negative pressure, which most ENT's and pediatricians ignore, can add significant conductive losses to the existing hearing loss. I have seen a wall poster in one ENT's office on Otitis Media that showed a 30 dB conductive loss due to fluid alone. That may be acceptable for a normally hearing child, but when you put that on top of a hearing impaired child it is not acceptable and may even make it impossible for them to hear. (Note this conductive loss was 30 dB at low frequencies and 20 dB at highs) I used this argument to pursue effective treatment for all middle ear problems. I wish I was a doctor or a nurse and could give actual references, but I can't. Terri , Mother of Kathy, CII BTE Jan '02, progressive loss, previous HA user. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 > I'm thinking that even if the American Academy of Pediatrics recommends > not using antibiotics right away for otitis media in most children, they > (pediatricians and ENTs) will give antibiotics to kids with pre-existing > hearing loss since they are at much higher risk for problems. I am not a nurse, but I do want to share what I learned from a knowledgeable ENT. He said that the longitudinal study that this recommendation is based on did not specifically address hearing impaired children, but if you waded through the very lengthy report (which most pediatricians don't have time to) that it did say that HI kids are a special case and that they should be treated. The ENT said that even uninfected fluid and negative pressure, which most ENT's and pediatricians ignore, can add significant conductive losses to the existing hearing loss. I have seen a wall poster in one ENT's office on Otitis Media that showed a 30 dB conductive loss due to fluid alone. That may be acceptable for a normally hearing child, but when you put that on top of a hearing impaired child it is not acceptable and may even make it impossible for them to hear. (Note this conductive loss was 30 dB at low frequencies and 20 dB at highs) I used this argument to pursue effective treatment for all middle ear problems. I wish I was a doctor or a nurse and could give actual references, but I can't. Terri , Mother of Kathy, CII BTE Jan '02, progressive loss, previous HA user. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 I'm wondering here, if anyone knows which antibiotics to stay away from? I mean I know some antibiotics can actually cause hearing loss. So while I have heard that untreated ear infections can cause loss so can some antibiotics. I don't personally feel comfortable not treating ear infections but I want to know if anyone can tell me which antibiotics are the ones that are more likely to cause hearing loss? Re: ear infections > I am not a nurse, but I do want to share what I learned from a knowledgeable > ENT. I heard the same thing recently on TV - I'm thinking it was on Good Morning America. -Kay All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 I'm wondering here, if anyone knows which antibiotics to stay away from? I mean I know some antibiotics can actually cause hearing loss. So while I have heard that untreated ear infections can cause loss so can some antibiotics. I don't personally feel comfortable not treating ear infections but I want to know if anyone can tell me which antibiotics are the ones that are more likely to cause hearing loss? Re: ear infections > I am not a nurse, but I do want to share what I learned from a knowledgeable > ENT. I heard the same thing recently on TV - I'm thinking it was on Good Morning America. -Kay All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Here are a few URLs about ototoxic meds: http://www.tchain.com/otoneurology/disorders/bilat/ototoxins.html http://www.vestibular.org/ototox.html When I fill out medical forms for Hadley, I put " ototoxic meds " under allergies. It at least prompts the doctors and nurses to ask questions. Kerry Re: ear infections > I am not a nurse, but I do want to share what I learned from a knowledgeable > ENT. I heard the same thing recently on TV - I'm thinking it was on Good Morning America. -Kay All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Here are a few URLs about ototoxic meds: http://www.tchain.com/otoneurology/disorders/bilat/ototoxins.html http://www.vestibular.org/ototox.html When I fill out medical forms for Hadley, I put " ototoxic meds " under allergies. It at least prompts the doctors and nurses to ask questions. Kerry Re: ear infections > I am not a nurse, but I do want to share what I learned from a knowledgeable > ENT. I heard the same thing recently on TV - I'm thinking it was on Good Morning America. -Kay All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Dear , I know that Gentamycin and vancomycin are two otto toxic antibiotics. Both of these are IV antibiotics. Sierra needed these to fight infection after her CVR/FOA 2 years ago and also this summer when she had meningitis. The are only used when other drugs won't help. I think that most that end with mycin are damaging to hearing. I hope this helps. Natasha~Mommy to~ (8/25/97) & *Sierra (11/28/00) *Multiple Craniosynostosis, Crouzon's Syndrome, Asthma, Trach, Tracheamalacia, Subglottic Stenosis, Chonal Stenosis, FTT, GERD, G-tube & Nissan, Profound hearing loss. Sierra's story: www.cappskids.org/CAPPSCranioKidSierra.htm Re: ear infections > I am not a nurse, but I do want to share what I learned from a knowledgeable > ENT. I heard the same thing recently on TV - I'm thinking it was on Good Morning America. -Kay All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Dear , I know that Gentamycin and vancomycin are two otto toxic antibiotics. Both of these are IV antibiotics. Sierra needed these to fight infection after her CVR/FOA 2 years ago and also this summer when she had meningitis. The are only used when other drugs won't help. I think that most that end with mycin are damaging to hearing. I hope this helps. Natasha~Mommy to~ (8/25/97) & *Sierra (11/28/00) *Multiple Craniosynostosis, Crouzon's Syndrome, Asthma, Trach, Tracheamalacia, Subglottic Stenosis, Chonal Stenosis, FTT, GERD, G-tube & Nissan, Profound hearing loss. Sierra's story: www.cappskids.org/CAPPSCranioKidSierra.htm Re: ear infections > I am not a nurse, but I do want to share what I learned from a knowledgeable > ENT. I heard the same thing recently on TV - I'm thinking it was on Good Morning America. -Kay All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 My had gent as part of a standard fever protocol when she was 3 weeks old. It was given before her culture results were known so it was just given in case it was needed. If I'd have known then to have her hearing tested just in case...well we may be in the same place but we may been here sooner. I've been told that she would have had to had high blood levels in order for the drug to have caused hearing loss. Her blood levels were fine, BUT no one can definitely tell me that the drug DID NOT cause her loss. Betsy > >Reply-To: Listen-Up >To: <Listen-Up > >Subject: Re: Re: ear infections >Date: Sat, 13 Mar 2004 22:03:28 -0500 > >Dear , >I know that Gentamycin and vancomycin are two otto toxic antibiotics. Both >of these are IV antibiotics. Sierra needed these to fight infection after >her CVR/FOA 2 years ago and also this summer when she had meningitis. The >are only used when other drugs won't help. I think that most that end with >mycin are damaging to hearing. I hope this helps. >Natasha~Mommy to~ > (8/25/97) & *Sierra (11/28/00) >*Multiple Craniosynostosis, Crouzon's Syndrome, >Asthma, Trach, Tracheamalacia, Subglottic Stenosis, >Chonal Stenosis, FTT, GERD, G-tube & Nissan, >Profound hearing loss. Sierra's story: >www.cappskids.org/CAPPSCranioKidSierra.htm > Re: ear infections > > > > I am not a nurse, but I do want to share what I learned from a > knowledgeable > > ENT. > > I heard the same thing recently on TV - I'm thinking it was on Good >Morning > America. > > -Kay > > > > > All messages posted to this list are private and confidential. Each >post is the intellectual property of the author and therefore subject to >copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 My had gent as part of a standard fever protocol when she was 3 weeks old. It was given before her culture results were known so it was just given in case it was needed. If I'd have known then to have her hearing tested just in case...well we may be in the same place but we may been here sooner. I've been told that she would have had to had high blood levels in order for the drug to have caused hearing loss. Her blood levels were fine, BUT no one can definitely tell me that the drug DID NOT cause her loss. Betsy > >Reply-To: Listen-Up >To: <Listen-Up > >Subject: Re: Re: ear infections >Date: Sat, 13 Mar 2004 22:03:28 -0500 > >Dear , >I know that Gentamycin and vancomycin are two otto toxic antibiotics. Both >of these are IV antibiotics. Sierra needed these to fight infection after >her CVR/FOA 2 years ago and also this summer when she had meningitis. The >are only used when other drugs won't help. I think that most that end with >mycin are damaging to hearing. I hope this helps. >Natasha~Mommy to~ > (8/25/97) & *Sierra (11/28/00) >*Multiple Craniosynostosis, Crouzon's Syndrome, >Asthma, Trach, Tracheamalacia, Subglottic Stenosis, >Chonal Stenosis, FTT, GERD, G-tube & Nissan, >Profound hearing loss. Sierra's story: >www.cappskids.org/CAPPSCranioKidSierra.htm > Re: ear infections > > > > I am not a nurse, but I do want to share what I learned from a > knowledgeable > > ENT. > > I heard the same thing recently on TV - I'm thinking it was on Good >Morning > America. > > -Kay > > > > > All messages posted to this list are private and confidential. Each >post is the intellectual property of the author and therefore subject to >copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
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