Re: hair loss 3 months after RAI? Ideas please

[Guest guest]

hair loss 3 months after RAI? Ideas please

I have read about Hypo hairloss but has anyone any info on hairloss 3

months after RAI? My hair has always been the bane of my existence -

very fine, very THIN - I have to use pony tail holders for children

as they are the only ones that fit (wrapped 2 or 3 times around the

paltry gathering of hair). Now (starting last week) it is really

falling out - a few weeks of this and I fear I will be bald. Is it

possibly hypo related? synthroid related? or can it only be

Although drug induced hair loss (alopecia) is a possibility, it is rare with

thyroid chemoablative (RAI) or replacement therapies (Synthroid, etc.). The

type of hair loss you are experiencing is an important physical finding in

determining the cause. If you are noting a sudden, diffuse, rather than patchy

scalp only hair loss approximatly 4 months after TT and perhaps ?6 months after

diagnosis, a condition called Telogen Effluvium (TE) might be the culprit. This

is the same thing that frequently occurs approximatly 6 months after childbirth

YMMV (in women), severe physical (cancer, high fever, etc.) or emotional stress

and is often of a precipitous and dramatic nature. Regrowth to pre TE levels is

the case in the overwhelming number of cases. Taking care to avoid traction

(pulling on the fragile hair roots) while this several month process of regrowth

is occurring is important. So, things like scrungies and tightly wrapped buns,

held in place with pins, etc. are probably not advisable. basically TE wants

to be left alone-use a conditioner after shampooing (around 2X/week is the goal)

to minimize tangling and therefore traction. Proper diagnosis and treatment

are, of course, essential. There are many other causes of hair loss and you may

even have a combination of different causes. At any rate, if your PHYSICIAN is

not comfortable with the differential diagnosis of hair loss, you might ask to

see a dermatologist-especially one who has special interest alopecia (hair

loss).

Thank you very much

Fury

08/12 - TT

09/24 - RAI

10/03/02 - started .150 Synthroid;

Joan

Weston, FL

[Guest guest]

Hi,

I'm having the same problems as you but it is a constant thing not

during hypo. I normally have very thin hair so I worry alot about

losing all my hair. After taking a shower about 3 or 4 time there is

hair stuck in the drain. It has gotten better since I was last Hypo

but still have hair lose. That is all I can tell you. buhbye

Age 21

11/00 TT

1/01 RAI

10/01 Rad. Neck Disection

7/02 RAI

-Theresa

[Guest guest]

Hi,

I'm having the same problems as you but it is a constant thing not

during hypo. I normally have very thin hair so I worry alot about

losing all my hair. After taking a shower about 3 or 4 time there is

hair stuck in the drain. It has gotten better since I was last Hypo

but still have hair lose. That is all I can tell you. buhbye

Age 21

11/00 TT

1/01 RAI

10/01 Rad. Neck Disection

7/02 RAI

-Theresa

[Guest guest]

-Hi, I have been loosing my hair too since RAI which was in Nov. The

last couple of weeks handfuls have come out. Fortunatley, I have a

lot of hair for fine hair. I was wondering if this was related to

RAI, I thought this was a common thing till I read your question and

I don't see ENDO til Feb. I am on Synthroid .1mg

Patti, Spokane

Pap Can

8/20 TT

11/18 RAI

-- In Thyca , " jdaxthelm <jdaxthelm@y...> "

<jdaxthelm@y...> wrote:

> I have read about Hypo hairloss but has anyone any info on hairloss

3

> months after RAI? My hair has always been the bane of my

existence -

> very fine, very THIN - I have to use pony tail holders for

children

> as they are the only ones that fit (wrapped 2 or 3 times around the

> paltry gathering of hair). Now (starting last week) it is really

> falling out - a few weeks of this and I fear I will be bald. Is it

> possibly hypo related? synthroid related? or can it only be

> something else - like stress?

>

> 08/12 - TT

> 09/24 - RAI

> 10/03/02 – started .150 Synthroid;

>

> I am trying out a new endo who I get to see at the endo of this

> month - it took 3 months for the appt - so i have little hope of

> getting in to see an endo in the near future (do not want to see my

> old one until after I see the new one...)- any ideas?

>

> Thanks in advance for your responses

> Joan

> Weston, FL

[Guest guest]

-Hi, I have been loosing my hair too since RAI which was in Nov. The

last couple of weeks handfuls have come out. Fortunatley, I have a

lot of hair for fine hair. I was wondering if this was related to

RAI, I thought this was a common thing till I read your question and

I don't see ENDO til Feb. I am on Synthroid .1mg

Patti, Spokane

Pap Can

8/20 TT

11/18 RAI

-- In Thyca , " jdaxthelm <jdaxthelm@y...> "

<jdaxthelm@y...> wrote:

> I have read about Hypo hairloss but has anyone any info on hairloss

3

> months after RAI? My hair has always been the bane of my

existence -

> very fine, very THIN - I have to use pony tail holders for

children

> as they are the only ones that fit (wrapped 2 or 3 times around the

> paltry gathering of hair). Now (starting last week) it is really

> falling out - a few weeks of this and I fear I will be bald. Is it

> possibly hypo related? synthroid related? or can it only be

> something else - like stress?

>

> 08/12 - TT

> 09/24 - RAI

> 10/03/02 – started .150 Synthroid;

>

> I am trying out a new endo who I get to see at the endo of this

> month - it took 3 months for the appt - so i have little hope of

> getting in to see an endo in the near future (do not want to see my

> old one until after I see the new one...)- any ideas?

>

> Thanks in advance for your responses

> Joan

> Weston, FL

[Guest guest]

-Hi, I have been loosing my hair too since RAI which was in Nov. The

last couple of weeks handfuls have come out. Fortunatley, I have a

lot of hair for fine hair. I was wondering if this was related to

RAI, I thought this was a common thing till I read your question and

I don't see ENDO til Feb. I am on Synthroid .1mg

Patti, Spokane

Pap Can

8/20 TT

11/18 RAI

-- In Thyca , " jdaxthelm <jdaxthelm@y...> "

<jdaxthelm@y...> wrote:

> I have read about Hypo hairloss but has anyone any info on hairloss

3

> months after RAI? My hair has always been the bane of my

existence -

> very fine, very THIN - I have to use pony tail holders for

children

> as they are the only ones that fit (wrapped 2 or 3 times around the

> paltry gathering of hair). Now (starting last week) it is really

> falling out - a few weeks of this and I fear I will be bald. Is it

> possibly hypo related? synthroid related? or can it only be

> something else - like stress?

>

> 08/12 - TT

> 09/24 - RAI

> 10/03/02 – started .150 Synthroid;

>

> I am trying out a new endo who I get to see at the endo of this

> month - it took 3 months for the appt - so i have little hope of

> getting in to see an endo in the near future (do not want to see my

> old one until after I see the new one...)- any ideas?

>

> Thanks in advance for your responses

> Joan

> Weston, FL

[Guest guest]

This might not have anything to do with anything, but just to put my 2 cents

worth in... I was hyper (3x too much cytomel) then immediately hypo for a

scan between Aug and the end of Oct.

For the first time, I didn't lose hair on my hair, but I did lose the

exterior 1/3 of my eyebrows and the interior 1/3 of my eyelashes. (weird, I

know!) I am still currently going through what I lovingly call hormonally

challenged hair, which is constant changes in my hair color, texture and

fullness that I go through for MONTHS after being back on meds.

On the up side, I have found that in the past, a common thread is that I

keep losing all my gray hair until about 4 months back on meds (then it

returns to normal).

To me it's all in the outlook... I have learned to enjoy the suspense and

amazement of " what I am going to look like this week " when I look in the

mirror. I have had both my mother and roommate accuse me of dying my hair to

get rid of my gray <laughing> like I would BOTHER.... but it's fun to

suddenly look so much younger after months of looking so much older being

hypo!

Keep looking for those silver lining where ever you can find them!!

--

Myke

6/99 Lumpectomy -neck - Pap CA - thyroglossal duct carcinoma?

7/99 TT no CA in thyroid

11/99 RAI - no scan

2/00 Lumpectomy -chest, benign

4/00 Clean scan

10/02 Dirty scan

11/02 MRI -lymph nodes look clean, larynx looks bad -but no solid mass to

biopsy -starting the " wait and see " game

12/02 taking a cancer & doctor vacation

> on 1/2/03 4:22 AM, jdaxthelm at jdaxthelm@...

> wrote:

>

> I have read about Hypo hairloss but has anyone any info on hairloss 3

> months after RAI? My hair has always been the bane of my existence -

> very fine, very THIN - I have to use pony tail holders for children

> as they are the only ones that fit (wrapped 2 or 3 times around the

> paltry gathering of hair). Now (starting last week) it is really

> falling out - a few weeks of this and I fear I will be bald. Is it

> possibly hypo related? synthroid related? or can it only be

> something else - like stress?

>

> 08/12 - TT

> 09/24 - RAI

> 10/03/02 – started .150 Synthroid;

>

> I am trying out a new endo who I get to see at the endo of this

> month - it took 3 months for the appt - so i have little hope of

> getting in to see an endo in the near future (do not want to see my

> old one until after I see the new one...)- any ideas?

>

> Thanks in advance for your responses

> Joan

> Weston, FL

[Guest guest]

This might not have anything to do with anything, but just to put my 2 cents

worth in... I was hyper (3x too much cytomel) then immediately hypo for a

scan between Aug and the end of Oct.

For the first time, I didn't lose hair on my hair, but I did lose the

exterior 1/3 of my eyebrows and the interior 1/3 of my eyelashes. (weird, I

know!) I am still currently going through what I lovingly call hormonally

challenged hair, which is constant changes in my hair color, texture and

fullness that I go through for MONTHS after being back on meds.

On the up side, I have found that in the past, a common thread is that I

keep losing all my gray hair until about 4 months back on meds (then it

returns to normal).

To me it's all in the outlook... I have learned to enjoy the suspense and

amazement of " what I am going to look like this week " when I look in the

mirror. I have had both my mother and roommate accuse me of dying my hair to

get rid of my gray <laughing> like I would BOTHER.... but it's fun to

suddenly look so much younger after months of looking so much older being

hypo!

Keep looking for those silver lining where ever you can find them!!

--

Myke

6/99 Lumpectomy -neck - Pap CA - thyroglossal duct carcinoma?

7/99 TT no CA in thyroid

11/99 RAI - no scan

2/00 Lumpectomy -chest, benign

4/00 Clean scan

10/02 Dirty scan

11/02 MRI -lymph nodes look clean, larynx looks bad -but no solid mass to

biopsy -starting the " wait and see " game

12/02 taking a cancer & doctor vacation

> on 1/2/03 4:22 AM, jdaxthelm at jdaxthelm@...

> wrote:

>

> I have read about Hypo hairloss but has anyone any info on hairloss 3

> months after RAI? My hair has always been the bane of my existence -

> very fine, very THIN - I have to use pony tail holders for children

> as they are the only ones that fit (wrapped 2 or 3 times around the

> paltry gathering of hair). Now (starting last week) it is really

> falling out - a few weeks of this and I fear I will be bald. Is it

> possibly hypo related? synthroid related? or can it only be

> something else - like stress?

>

> 08/12 - TT

> 09/24 - RAI

> 10/03/02 – started .150 Synthroid;

>

> I am trying out a new endo who I get to see at the endo of this

> month - it took 3 months for the appt - so i have little hope of

> getting in to see an endo in the near future (do not want to see my

> old one until after I see the new one...)- any ideas?

>

> Thanks in advance for your responses

> Joan

> Weston, FL

[Guest guest]

This might not have anything to do with anything, but just to put my 2 cents

worth in... I was hyper (3x too much cytomel) then immediately hypo for a

scan between Aug and the end of Oct.

For the first time, I didn't lose hair on my hair, but I did lose the

exterior 1/3 of my eyebrows and the interior 1/3 of my eyelashes. (weird, I

know!) I am still currently going through what I lovingly call hormonally

challenged hair, which is constant changes in my hair color, texture and

fullness that I go through for MONTHS after being back on meds.

On the up side, I have found that in the past, a common thread is that I

keep losing all my gray hair until about 4 months back on meds (then it

returns to normal).

To me it's all in the outlook... I have learned to enjoy the suspense and

amazement of " what I am going to look like this week " when I look in the

mirror. I have had both my mother and roommate accuse me of dying my hair to

get rid of my gray <laughing> like I would BOTHER.... but it's fun to

suddenly look so much younger after months of looking so much older being

hypo!

Keep looking for those silver lining where ever you can find them!!

--

Myke

6/99 Lumpectomy -neck - Pap CA - thyroglossal duct carcinoma?

7/99 TT no CA in thyroid

11/99 RAI - no scan

2/00 Lumpectomy -chest, benign

4/00 Clean scan

10/02 Dirty scan

11/02 MRI -lymph nodes look clean, larynx looks bad -but no solid mass to

biopsy -starting the " wait and see " game

12/02 taking a cancer & doctor vacation

> on 1/2/03 4:22 AM, jdaxthelm at jdaxthelm@...

> wrote:

>

> I have read about Hypo hairloss but has anyone any info on hairloss 3

> months after RAI? My hair has always been the bane of my existence -

> very fine, very THIN - I have to use pony tail holders for children

> as they are the only ones that fit (wrapped 2 or 3 times around the

> paltry gathering of hair). Now (starting last week) it is really

> falling out - a few weeks of this and I fear I will be bald. Is it

> possibly hypo related? synthroid related? or can it only be

> something else - like stress?

>

> 08/12 - TT

> 09/24 - RAI

> 10/03/02 – started .150 Synthroid;

>

> I am trying out a new endo who I get to see at the endo of this

> month - it took 3 months for the appt - so i have little hope of

> getting in to see an endo in the near future (do not want to see my

> old one until after I see the new one...)- any ideas?

>

> Thanks in advance for your responses

> Joan

> Weston, FL