RE: Tips on Keeping In Hearing Aides

[Guest guest]

Amy,

It's something a lot us have been through - Kennedy got hers at 9 months and

it took us awhile to get her keeping them in. It certainly did NOT happen

overnight! We would set small goals and get her to try for 15 minutes and keep

her hands totally occupied the whole time (used a special bag of " hearing aid

time " toys we only played with so they were cool, interesting and

hand-usage-intensive), then we built on it from there. Another thing we did

when she got glasses at 12 months was use " Critter Clips " that have little loops

go up over the hearing aids and a shot line that clips onto the clothes to

prevents loss. We used to run the loops up over her hearing aids AND the arm of

her glasses, so the glasses helped to keep the aids in place.

My best advice is to persevere and just keep trying it over and over,

eventually he'll realize that they help and he'll want them. Kennedy grew to

LOVE them and demanded them first thing every morning. Now, she has a BAHA and

still wants it on first thing every day.

Good luck - don't worry, you'll get there!

Weir

Visit the Weir family online: http://ca.geocities.com/weirfamilyrogers

Home: lisaweir@...

Work: lisa.weir@...

Phone:

[Guest guest]

Amy,

It's something a lot us have been through - Kennedy got hers at 9 months and

it took us awhile to get her keeping them in. It certainly did NOT happen

overnight! We would set small goals and get her to try for 15 minutes and keep

her hands totally occupied the whole time (used a special bag of " hearing aid

time " toys we only played with so they were cool, interesting and

hand-usage-intensive), then we built on it from there. Another thing we did

when she got glasses at 12 months was use " Critter Clips " that have little loops

go up over the hearing aids and a shot line that clips onto the clothes to

prevents loss. We used to run the loops up over her hearing aids AND the arm of

her glasses, so the glasses helped to keep the aids in place.

My best advice is to persevere and just keep trying it over and over,

eventually he'll realize that they help and he'll want them. Kennedy grew to

LOVE them and demanded them first thing every morning. Now, she has a BAHA and

still wants it on first thing every day.

Good luck - don't worry, you'll get there!

Weir

Visit the Weir family online: http://ca.geocities.com/weirfamilyrogers

Home: lisaweir@...

Work: lisa.weir@...

Phone:

[Guest guest]

katie got her first aids when she was even younger! The brilliant St. Louis

Childrens' Hospital folks first put them on with cute little ribbons. By the

time we got to the resort where we were joined by my family, my

sister-in-law and I resorted to Silly Putty despite 99 degree days. Not

good.

Huggies NEVER worked with , though I know that they have and do

with many others. Our only solution was toupee (sp) tape available from a

barber or beauty supply shop. It must be much, much stronger than the

regulaw double sided tape.

I think it's important to get this handled asap. 's old developmental

ped became convinced that the reason K was late in various things and

tended to stay in one position was that the darn aids kept going off when

she moved.. Once we got that settled, things were infinitely better.. Good

luck. Martha

[Guest guest]

Amy,

Eva has one aid on a deformed ear none the less...lol. But since she

is a girl we put headbands on her. I dont know if you can find

something like that, that will work for him. We also use tupa (sp)

tape. You know double sided tape men use to keep their fake hair

on...lol. As for the pulling them out you just have to keep putting

them back in. I know its a pain in the butt, but thats the only way

they will learn!!

Good luck,

Crystal and Eva

>

> A few months ago, Max received his first set of hearing

aides...and I was sooo excited! I thought oh we'll just pop them in

and no problem. Hmmm...not the case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8

months old and needs new molds every month due to growth 2) doesn't

have great head control yet and definitely doesn't sit so the aides

get knocked out of place and/or 3) he pulls them out

(developmentally I love that he does that, but c'mon Max, work with

me here!!!) and sometimes treats them as binkies (if I leave the

room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried

the plastic huggies (I think that is what they were called) but they

didn't seem to work very well...they thought because of his size.

Now we have little double sided circles that we put behind his ear

to help keep them in place. But the tape doesn't deter Max...he

pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm

sure many of you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find

myself not putting them in because they are such a headache. I feel

sooo incredibly guilty about this...it's the one " area " I don't feel

I am doing a good job, which is very frustrating. (He is making

great progress in some other areas which is very encouraging - will

post separately about that)

>

> We met with a speech therapist for the first time this past week

and then this week we have an eval with a speech pathologist. She

is supposed to be incredible, so I am hoping she may have some words

of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy,

Eva has one aid on a deformed ear none the less...lol. But since she

is a girl we put headbands on her. I dont know if you can find

something like that, that will work for him. We also use tupa (sp)

tape. You know double sided tape men use to keep their fake hair

on...lol. As for the pulling them out you just have to keep putting

them back in. I know its a pain in the butt, but thats the only way

they will learn!!

Good luck,

Crystal and Eva

>

> A few months ago, Max received his first set of hearing

aides...and I was sooo excited! I thought oh we'll just pop them in

and no problem. Hmmm...not the case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8

months old and needs new molds every month due to growth 2) doesn't

have great head control yet and definitely doesn't sit so the aides

get knocked out of place and/or 3) he pulls them out

(developmentally I love that he does that, but c'mon Max, work with

me here!!!) and sometimes treats them as binkies (if I leave the

room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried

the plastic huggies (I think that is what they were called) but they

didn't seem to work very well...they thought because of his size.

Now we have little double sided circles that we put behind his ear

to help keep them in place. But the tape doesn't deter Max...he

pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm

sure many of you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find

myself not putting them in because they are such a headache. I feel

sooo incredibly guilty about this...it's the one " area " I don't feel

I am doing a good job, which is very frustrating. (He is making

great progress in some other areas which is very encouraging - will

post separately about that)

>

> We met with a speech therapist for the first time this past week

and then this week we have an eval with a speech pathologist. She

is supposed to be incredible, so I am hoping she may have some words

of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy,

Eva has one aid on a deformed ear none the less...lol. But since she

is a girl we put headbands on her. I dont know if you can find

something like that, that will work for him. We also use tupa (sp)

tape. You know double sided tape men use to keep their fake hair

on...lol. As for the pulling them out you just have to keep putting

them back in. I know its a pain in the butt, but thats the only way

they will learn!!

Good luck,

Crystal and Eva

>

> A few months ago, Max received his first set of hearing

aides...and I was sooo excited! I thought oh we'll just pop them in

and no problem. Hmmm...not the case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8

months old and needs new molds every month due to growth 2) doesn't

have great head control yet and definitely doesn't sit so the aides

get knocked out of place and/or 3) he pulls them out

(developmentally I love that he does that, but c'mon Max, work with

me here!!!) and sometimes treats them as binkies (if I leave the

room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried

the plastic huggies (I think that is what they were called) but they

didn't seem to work very well...they thought because of his size.

Now we have little double sided circles that we put behind his ear

to help keep them in place. But the tape doesn't deter Max...he

pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm

sure many of you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find

myself not putting them in because they are such a headache. I feel

sooo incredibly guilty about this...it's the one " area " I don't feel

I am doing a good job, which is very frustrating. (He is making

great progress in some other areas which is very encouraging - will

post separately about that)

>

> We met with a speech therapist for the first time this past week

and then this week we have an eval with a speech pathologist. She

is supposed to be incredible, so I am hoping she may have some words

of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy - sometimes it works to start out with hearing time when you are able to

be right there with him, and do things that are auditory based. With CHARGE

the experts will often say - one sense at a time. This is different than

most fields where the goal is just to stimulate, simulate, stimulate.

Of course, it is best to have them in as much as possible, but not

necessarily if what he is hearing is not meaningful to him.

And we all do what we can do and often feel it is not enough and the truth

is we are best at what we get the most feedback from (and I don't mean

hearing aid feedback - lol). If he responds with the aides, you get that

bit of a rush of success and it is easier to persevere, but if you are not

yet seeing results it is natural to focus on things you get a positive

response from. Smile.

I have a friend who bought little baby caps that her son wore all the time

and helped keep his aides in. Here is her post about them. Kim

" Pilot caps work great! There are a couple colors on sale right now for

$6, but they are otherwise $10. I had a red, white and blue one for Sam and

he wore them until he decided to leave his aids alone. I also stuck one on

after his CI surgery when he was suppose to be bandaged but would NOT leave

his dressing alone.

I gave Sam's pilots caps to Sam's deaf educator and she emailed me saying

that the mom she gave them to was THRILLED that something finally worked for

her daughter. They are light-weight, like a onesie, so they don't feel hot

or heavy on the child's head.

Again, the website for the caps is www.hannaandersson.com

<http://www.hannaandersson.com> . I attached pictures for people if you are

scratching your head as to what I'm talking about. I think I have a picture

of Sam in one post-CI surgery. I'll post that picture another day.

"

> A few months ago, Max received his first set of hearing aides...and I was sooo

> excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

> case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months old and

> needs new molds every month due to growth 2) doesn't have great head control

> yet and definitely doesn't sit so the aides get knocked out of place and/or 3)

> he pulls them out (developmentally I love that he does that, but c'mon Max,

> work with me here!!!) and sometimes treats them as binkies (if I leave the

> room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the plastic

> huggies (I think that is what they were called) but they didn't seem to work

> very well...they thought because of his size. Now we have little double sided

> circles that we put behind his ear to help keep them in place. But the tape

> doesn't deter Max...he pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure many of

> you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find myself not

> putting them in because they are such a headache. I feel sooo incredibly

> guilty about this...it's the one " area " I don't feel I am doing a good job,

> which is very frustrating. (He is making great progress in some other areas

> which is very encouraging - will post separately about that)

>

> We met with a speech therapist for the first time this past week and then

> this week we have an eval with a speech pathologist. She is supposed to be

> incredible, so I am hoping she may have some words of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy - sometimes it works to start out with hearing time when you are able to

be right there with him, and do things that are auditory based. With CHARGE

the experts will often say - one sense at a time. This is different than

most fields where the goal is just to stimulate, simulate, stimulate.

Of course, it is best to have them in as much as possible, but not

necessarily if what he is hearing is not meaningful to him.

And we all do what we can do and often feel it is not enough and the truth

is we are best at what we get the most feedback from (and I don't mean

hearing aid feedback - lol). If he responds with the aides, you get that

bit of a rush of success and it is easier to persevere, but if you are not

yet seeing results it is natural to focus on things you get a positive

response from. Smile.

I have a friend who bought little baby caps that her son wore all the time

and helped keep his aides in. Here is her post about them. Kim

" Pilot caps work great! There are a couple colors on sale right now for

$6, but they are otherwise $10. I had a red, white and blue one for Sam and

he wore them until he decided to leave his aids alone. I also stuck one on

after his CI surgery when he was suppose to be bandaged but would NOT leave

his dressing alone.

I gave Sam's pilots caps to Sam's deaf educator and she emailed me saying

that the mom she gave them to was THRILLED that something finally worked for

her daughter. They are light-weight, like a onesie, so they don't feel hot

or heavy on the child's head.

Again, the website for the caps is www.hannaandersson.com

<http://www.hannaandersson.com> . I attached pictures for people if you are

scratching your head as to what I'm talking about. I think I have a picture

of Sam in one post-CI surgery. I'll post that picture another day.

"

> A few months ago, Max received his first set of hearing aides...and I was sooo

> excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

> case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months old and

> needs new molds every month due to growth 2) doesn't have great head control

> yet and definitely doesn't sit so the aides get knocked out of place and/or 3)

> he pulls them out (developmentally I love that he does that, but c'mon Max,

> work with me here!!!) and sometimes treats them as binkies (if I leave the

> room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the plastic

> huggies (I think that is what they were called) but they didn't seem to work

> very well...they thought because of his size. Now we have little double sided

> circles that we put behind his ear to help keep them in place. But the tape

> doesn't deter Max...he pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure many of

> you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find myself not

> putting them in because they are such a headache. I feel sooo incredibly

> guilty about this...it's the one " area " I don't feel I am doing a good job,

> which is very frustrating. (He is making great progress in some other areas

> which is very encouraging - will post separately about that)

>

> We met with a speech therapist for the first time this past week and then

> this week we have an eval with a speech pathologist. She is supposed to be

> incredible, so I am hoping she may have some words of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy - sometimes it works to start out with hearing time when you are able to

be right there with him, and do things that are auditory based. With CHARGE

the experts will often say - one sense at a time. This is different than

most fields where the goal is just to stimulate, simulate, stimulate.

Of course, it is best to have them in as much as possible, but not

necessarily if what he is hearing is not meaningful to him.

And we all do what we can do and often feel it is not enough and the truth

is we are best at what we get the most feedback from (and I don't mean

hearing aid feedback - lol). If he responds with the aides, you get that

bit of a rush of success and it is easier to persevere, but if you are not

yet seeing results it is natural to focus on things you get a positive

response from. Smile.

I have a friend who bought little baby caps that her son wore all the time

and helped keep his aides in. Here is her post about them. Kim

" Pilot caps work great! There are a couple colors on sale right now for

$6, but they are otherwise $10. I had a red, white and blue one for Sam and

he wore them until he decided to leave his aids alone. I also stuck one on

after his CI surgery when he was suppose to be bandaged but would NOT leave

his dressing alone.

I gave Sam's pilots caps to Sam's deaf educator and she emailed me saying

that the mom she gave them to was THRILLED that something finally worked for

her daughter. They are light-weight, like a onesie, so they don't feel hot

or heavy on the child's head.

Again, the website for the caps is www.hannaandersson.com

<http://www.hannaandersson.com> . I attached pictures for people if you are

scratching your head as to what I'm talking about. I think I have a picture

of Sam in one post-CI surgery. I'll post that picture another day.

"

> A few months ago, Max received his first set of hearing aides...and I was sooo

> excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

> case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months old and

> needs new molds every month due to growth 2) doesn't have great head control

> yet and definitely doesn't sit so the aides get knocked out of place and/or 3)

> he pulls them out (developmentally I love that he does that, but c'mon Max,

> work with me here!!!) and sometimes treats them as binkies (if I leave the

> room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the plastic

> huggies (I think that is what they were called) but they didn't seem to work

> very well...they thought because of his size. Now we have little double sided

> circles that we put behind his ear to help keep them in place. But the tape

> doesn't deter Max...he pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure many of

> you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find myself not

> putting them in because they are such a headache. I feel sooo incredibly

> guilty about this...it's the one " area " I don't feel I am doing a good job,

> which is very frustrating. (He is making great progress in some other areas

> which is very encouraging - will post separately about that)

>

> We met with a speech therapist for the first time this past week and then

> this week we have an eval with a speech pathologist. She is supposed to be

> incredible, so I am hoping she may have some words of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Hi Amy,

You might try saying Max's name in a sing-song voice as soon as his

aides are turned on, then offer your hands to him to interact in a

fingerplay or song that he likes...keep your voice interesting with

lots of inflection and intonation...if someone else is available,

they can also sing-song his name from other direction...keep him

interested in the auditory input...keep it fun...After a few minutes,

If he starts to take the aides out, you intercept and instead of

taking his hands away, you take the aides out, so he learns you are

the one who decides when his aides are removed, not him (as much as

we like to take a child's lead, this is one area we need to take the

lead)...repeat this often through the day and gradually increase

amount of time Max has his aides in. By using Mum's voice (probably

his favourite sound in the world!) and keeping him engaged you may

find he starts keeping the aides in for longer and longer periods of

time, because you are giving him a reason for wanting to keep them in!

Good luck!

Sharon from West Oz

>A few months ago, Max received his first set of hearing aides...and

>I was sooo excited! I thought oh we'll just pop them in and no

>problem. Hmmm...not the case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months

>old and needs new molds every month due to growth 2) doesn't have

>great head control yet and definitely doesn't sit so the aides get

>knocked out of place and/or 3) he pulls them out (developmentally I

>love that he does that, but c'mon Max, work with me here!!!) and

>sometimes treats them as binkies (if I leave the room for a sec)!!!

>Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the

>plastic huggies (I think that is what they were called) but they

>didn't seem to work very well...they thought because of his size.

>Now we have little double sided circles that we put behind his ear

>to help keep them in place. But the tape doesn't deter Max...he

>pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure

>many of you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find

>myself not putting them in because they are such a headache. I feel

>sooo incredibly guilty about this...it's the one " area " I don't feel

>I am doing a good job, which is very frustrating. (He is making

>great progress in some other areas which is very encouraging - will

>post separately about that)

>

> We met with a speech therapist for the first time this past week

>and then this week we have an eval with a speech pathologist. She

>is supposed to be incredible, so I am hoping she may have some words

>of wisdom too.

>

> Thanks everyone!!!

>

>

>Amy McKinley

>Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

>maxupdate.blogspot.com

>

>---------------------------------

>Yahoo! Mail

>Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Hi Amy,

You might try saying Max's name in a sing-song voice as soon as his

aides are turned on, then offer your hands to him to interact in a

fingerplay or song that he likes...keep your voice interesting with

lots of inflection and intonation...if someone else is available,

they can also sing-song his name from other direction...keep him

interested in the auditory input...keep it fun...After a few minutes,

If he starts to take the aides out, you intercept and instead of

taking his hands away, you take the aides out, so he learns you are

the one who decides when his aides are removed, not him (as much as

we like to take a child's lead, this is one area we need to take the

lead)...repeat this often through the day and gradually increase

amount of time Max has his aides in. By using Mum's voice (probably

his favourite sound in the world!) and keeping him engaged you may

find he starts keeping the aides in for longer and longer periods of

time, because you are giving him a reason for wanting to keep them in!

Good luck!

Sharon from West Oz

>A few months ago, Max received his first set of hearing aides...and

>I was sooo excited! I thought oh we'll just pop them in and no

>problem. Hmmm...not the case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months

>old and needs new molds every month due to growth 2) doesn't have

>great head control yet and definitely doesn't sit so the aides get

>knocked out of place and/or 3) he pulls them out (developmentally I

>love that he does that, but c'mon Max, work with me here!!!) and

>sometimes treats them as binkies (if I leave the room for a sec)!!!

>Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the

>plastic huggies (I think that is what they were called) but they

>didn't seem to work very well...they thought because of his size.

>Now we have little double sided circles that we put behind his ear

>to help keep them in place. But the tape doesn't deter Max...he

>pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure

>many of you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find

>myself not putting them in because they are such a headache. I feel

>sooo incredibly guilty about this...it's the one " area " I don't feel

>I am doing a good job, which is very frustrating. (He is making

>great progress in some other areas which is very encouraging - will

>post separately about that)

>

> We met with a speech therapist for the first time this past week

>and then this week we have an eval with a speech pathologist. She

>is supposed to be incredible, so I am hoping she may have some words

>of wisdom too.

>

> Thanks everyone!!!

>

>

>Amy McKinley

>Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

>maxupdate.blogspot.com

>

>---------------------------------

>Yahoo! Mail

>Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy,

I know you have told me that Max has to get new molds every month or so b/c is

ears grow, but have his hearing tests been repeated since getting the aides? I

know eyes are different than ears, but one thing I always keep in mind when

giving little kids glasses is that they will wear the prescription if they can

see it helps. Maybe Max's hearing has changed, and he can't really tell a

difference with the aides on.

Kim Lauger wrote:

Amy - sometimes it works to start out with hearing time when you are able to

be right there with him, and do things that are auditory based. With CHARGE

the experts will often say - one sense at a time. This is different than

most fields where the goal is just to stimulate, simulate, stimulate.

Of course, it is best to have them in as much as possible, but not

necessarily if what he is hearing is not meaningful to him.

And we all do what we can do and often feel it is not enough and the truth

is we are best at what we get the most feedback from (and I don't mean

hearing aid feedback - lol). If he responds with the aides, you get that

bit of a rush of success and it is easier to persevere, but if you are not

yet seeing results it is natural to focus on things you get a positive

response from. Smile.

I have a friend who bought little baby caps that her son wore all the time

and helped keep his aides in. Here is her post about them. Kim

" Pilot caps work great! There are a couple colors on sale right now for

$6, but they are otherwise $10. I had a red, white and blue one for Sam and

he wore them until he decided to leave his aids alone. I also stuck one on

after his CI surgery when he was suppose to be bandaged but would NOT leave

his dressing alone.

I gave Sam's pilots caps to Sam's deaf educator and she emailed me saying

that the mom she gave them to was THRILLED that something finally worked for

her daughter. They are light-weight, like a onesie, so they don't feel hot

or heavy on the child's head.

Again, the website for the caps is www.hannaandersson.com

<http://www.hannaandersson.com> . I attached pictures for people if you are

scratching your head as to what I'm talking about. I think I have a picture

of Sam in one post-CI surgery. I'll post that picture another day.

"

> A few months ago, Max received his first set of hearing aides...and I was sooo

> excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

> case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months old and

> needs new molds every month due to growth 2) doesn't have great head control

> yet and definitely doesn't sit so the aides get knocked out of place and/or 3)

> he pulls them out (developmentally I love that he does that, but c'mon Max,

> work with me here!!!) and sometimes treats them as binkies (if I leave the

> room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the plastic

> huggies (I think that is what they were called) but they didn't seem to work

> very well...they thought because of his size. Now we have little double sided

> circles that we put behind his ear to help keep them in place. But the tape

> doesn't deter Max...he pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure many of

> you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find myself not

> putting them in because they are such a headache. I feel sooo incredibly

> guilty about this...it's the one " area " I don't feel I am doing a good job,

> which is very frustrating. (He is making great progress in some other areas

> which is very encouraging - will post separately about that)

>

> We met with a speech therapist for the first time this past week and then

> this week we have an eval with a speech pathologist. She is supposed to be

> incredible, so I am hoping she may have some words of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy,

I know you have told me that Max has to get new molds every month or so b/c is

ears grow, but have his hearing tests been repeated since getting the aides? I

know eyes are different than ears, but one thing I always keep in mind when

giving little kids glasses is that they will wear the prescription if they can

see it helps. Maybe Max's hearing has changed, and he can't really tell a

difference with the aides on.

Kim Lauger wrote:

Amy - sometimes it works to start out with hearing time when you are able to

be right there with him, and do things that are auditory based. With CHARGE

the experts will often say - one sense at a time. This is different than

most fields where the goal is just to stimulate, simulate, stimulate.

Of course, it is best to have them in as much as possible, but not

necessarily if what he is hearing is not meaningful to him.

And we all do what we can do and often feel it is not enough and the truth

is we are best at what we get the most feedback from (and I don't mean

hearing aid feedback - lol). If he responds with the aides, you get that

bit of a rush of success and it is easier to persevere, but if you are not

yet seeing results it is natural to focus on things you get a positive

response from. Smile.

I have a friend who bought little baby caps that her son wore all the time

and helped keep his aides in. Here is her post about them. Kim

" Pilot caps work great! There are a couple colors on sale right now for

$6, but they are otherwise $10. I had a red, white and blue one for Sam and

he wore them until he decided to leave his aids alone. I also stuck one on

after his CI surgery when he was suppose to be bandaged but would NOT leave

his dressing alone.

I gave Sam's pilots caps to Sam's deaf educator and she emailed me saying

that the mom she gave them to was THRILLED that something finally worked for

her daughter. They are light-weight, like a onesie, so they don't feel hot

or heavy on the child's head.

Again, the website for the caps is www.hannaandersson.com

<http://www.hannaandersson.com> . I attached pictures for people if you are

scratching your head as to what I'm talking about. I think I have a picture

of Sam in one post-CI surgery. I'll post that picture another day.

"

> A few months ago, Max received his first set of hearing aides...and I was sooo

> excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

> case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months old and

> needs new molds every month due to growth 2) doesn't have great head control

> yet and definitely doesn't sit so the aides get knocked out of place and/or 3)

> he pulls them out (developmentally I love that he does that, but c'mon Max,

> work with me here!!!) and sometimes treats them as binkies (if I leave the

> room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the plastic

> huggies (I think that is what they were called) but they didn't seem to work

> very well...they thought because of his size. Now we have little double sided

> circles that we put behind his ear to help keep them in place. But the tape

> doesn't deter Max...he pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure many of

> you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find myself not

> putting them in because they are such a headache. I feel sooo incredibly

> guilty about this...it's the one " area " I don't feel I am doing a good job,

> which is very frustrating. (He is making great progress in some other areas

> which is very encouraging - will post separately about that)

>

> We met with a speech therapist for the first time this past week and then

> this week we have an eval with a speech pathologist. She is supposed to be

> incredible, so I am hoping she may have some words of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy,

I know you have told me that Max has to get new molds every month or so b/c is

ears grow, but have his hearing tests been repeated since getting the aides? I

know eyes are different than ears, but one thing I always keep in mind when

giving little kids glasses is that they will wear the prescription if they can

see it helps. Maybe Max's hearing has changed, and he can't really tell a

difference with the aides on.

Kim Lauger wrote:

Amy - sometimes it works to start out with hearing time when you are able to

be right there with him, and do things that are auditory based. With CHARGE

the experts will often say - one sense at a time. This is different than

most fields where the goal is just to stimulate, simulate, stimulate.

Of course, it is best to have them in as much as possible, but not

necessarily if what he is hearing is not meaningful to him.

And we all do what we can do and often feel it is not enough and the truth

is we are best at what we get the most feedback from (and I don't mean

hearing aid feedback - lol). If he responds with the aides, you get that

bit of a rush of success and it is easier to persevere, but if you are not

yet seeing results it is natural to focus on things you get a positive

response from. Smile.

I have a friend who bought little baby caps that her son wore all the time

and helped keep his aides in. Here is her post about them. Kim

" Pilot caps work great! There are a couple colors on sale right now for

$6, but they are otherwise $10. I had a red, white and blue one for Sam and

he wore them until he decided to leave his aids alone. I also stuck one on

after his CI surgery when he was suppose to be bandaged but would NOT leave

his dressing alone.

I gave Sam's pilots caps to Sam's deaf educator and she emailed me saying

that the mom she gave them to was THRILLED that something finally worked for

her daughter. They are light-weight, like a onesie, so they don't feel hot

or heavy on the child's head.

Again, the website for the caps is www.hannaandersson.com

<http://www.hannaandersson.com> . I attached pictures for people if you are

scratching your head as to what I'm talking about. I think I have a picture

of Sam in one post-CI surgery. I'll post that picture another day.

"

> A few months ago, Max received his first set of hearing aides...and I was sooo

> excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

> case I learned quickly!

>

> I have the hardest time keeping them in....1) he is only 8 months old and

> needs new molds every month due to growth 2) doesn't have great head control

> yet and definitely doesn't sit so the aides get knocked out of place and/or 3)

> he pulls them out (developmentally I love that he does that, but c'mon Max,

> work with me here!!!) and sometimes treats them as binkies (if I leave the

> room for a sec)!!! Nice $3K toys there buddy!!!

>

> ANY ADVICE???

>

> So far we have tried two things. First the audiologist tried the plastic

> huggies (I think that is what they were called) but they didn't seem to work

> very well...they thought because of his size. Now we have little double sided

> circles that we put behind his ear to help keep them in place. But the tape

> doesn't deter Max...he pulls it with the aide!

>

> So now I am turning to you my favorite panel of experts...I'm sure many of

> you have had this problem. Any advice for me?

>

> I want to have him wearing them more and more often, but I find myself not

> putting them in because they are such a headache. I feel sooo incredibly

> guilty about this...it's the one " area " I don't feel I am doing a good job,

> which is very frustrating. (He is making great progress in some other areas

> which is very encouraging - will post separately about that)

>

> We met with a speech therapist for the first time this past week and then

> this week we have an eval with a speech pathologist. She is supposed to be

> incredible, so I am hoping she may have some words of wisdom too.

>

> Thanks everyone!!!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> Yahoo! Mail

> Bring photos to life! New PhotoMail makes sharing a breeze.

>

>

[Guest guest]

Amy,

I am glad I kept reading before responding because Sharon said exactly what I

was going to say. And add...take your time. This is new for him, too and he

will need to get used to them and start to figure out that it can be more fun to

have them on than off.

pam

[Guest guest]

Amy,

You've mentioned both things I know of to keep the aids on. I am sure there

will be others who know more.

I have also seen a " clip " type of thing that if the aids fall out they are

clipped to the child's shirt so they won't get lost. It is kind of like how

mittens are clipped to children's jackets.

You do have good insurance on them, right? When Patty was a young child she

used to take hers out on purpose. We had to make believe it didn't bother us

or she just loved it! It killed her boredom that's for sure.

Bonnie, mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Amy - Ethan received his hearing aid at 3 months old and his ear has no lower

lobe and is floppy so from the beginning, we used paper tape and taped the

hearing aid onto his ear (without covering up the microphone). He couldn't and

didn't pull it out and it didn't irritate his skin. Now, he has a cochlear

implant so we have other struggles in keeping him to wear that!

Jody - mom to Ethan (3.5 yrs - ChARGE) and (6.5 yrs)

Amy McKinley wrote:

A few months ago, Max received his first set of hearing aides...and I was sooo

excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

case I learned quickly!

I have the hardest time keeping them in....1) he is only 8 months old and

needs new molds every month due to growth 2) doesn't have great head control yet

and definitely doesn't sit so the aides get knocked out of place and/or 3) he

pulls them out (developmentally I love that he does that, but c'mon Max, work

with me here!!!) and sometimes treats them as binkies (if I leave the room for a

sec)!!! Nice $3K toys there buddy!!!

ANY ADVICE???

So far we have tried two things. First the audiologist tried the plastic

huggies (I think that is what they were called) but they didn't seem to work

very well...they thought because of his size. Now we have little double sided

circles that we put behind his ear to help keep them in place. But the tape

doesn't deter Max...he pulls it with the aide!

So now I am turning to you my favorite panel of experts...I'm sure many of you

have had this problem. Any advice for me?

I want to have him wearing them more and more often, but I find myself not

putting them in because they are such a headache. I feel sooo incredibly guilty

about this...it's the one " area " I don't feel I am doing a good job, which is

very frustrating. (He is making great progress in some other areas which is

very encouraging - will post separately about that)

We met with a speech therapist for the first time this past week and then this

week we have an eval with a speech pathologist. She is supposed to be

incredible, so I am hoping she may have some words of wisdom too.

Thanks everyone!!!

Amy McKinley

Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

maxupdate.blogspot.com

---------------------------------

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Amy - Ethan received his hearing aid at 3 months old and his ear has no lower

lobe and is floppy so from the beginning, we used paper tape and taped the

hearing aid onto his ear (without covering up the microphone). He couldn't and

didn't pull it out and it didn't irritate his skin. Now, he has a cochlear

implant so we have other struggles in keeping him to wear that!

Jody - mom to Ethan (3.5 yrs - ChARGE) and (6.5 yrs)

Amy McKinley wrote:

A few months ago, Max received his first set of hearing aides...and I was sooo

excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

case I learned quickly!

I have the hardest time keeping them in....1) he is only 8 months old and

needs new molds every month due to growth 2) doesn't have great head control yet

and definitely doesn't sit so the aides get knocked out of place and/or 3) he

pulls them out (developmentally I love that he does that, but c'mon Max, work

with me here!!!) and sometimes treats them as binkies (if I leave the room for a

sec)!!! Nice $3K toys there buddy!!!

ANY ADVICE???

So far we have tried two things. First the audiologist tried the plastic

huggies (I think that is what they were called) but they didn't seem to work

very well...they thought because of his size. Now we have little double sided

circles that we put behind his ear to help keep them in place. But the tape

doesn't deter Max...he pulls it with the aide!

So now I am turning to you my favorite panel of experts...I'm sure many of you

have had this problem. Any advice for me?

I want to have him wearing them more and more often, but I find myself not

putting them in because they are such a headache. I feel sooo incredibly guilty

about this...it's the one " area " I don't feel I am doing a good job, which is

very frustrating. (He is making great progress in some other areas which is

very encouraging - will post separately about that)

We met with a speech therapist for the first time this past week and then this

week we have an eval with a speech pathologist. She is supposed to be

incredible, so I am hoping she may have some words of wisdom too.

Thanks everyone!!!

Amy McKinley

Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

maxupdate.blogspot.com

---------------------------------

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Amy - Ethan received his hearing aid at 3 months old and his ear has no lower

lobe and is floppy so from the beginning, we used paper tape and taped the

hearing aid onto his ear (without covering up the microphone). He couldn't and

didn't pull it out and it didn't irritate his skin. Now, he has a cochlear

implant so we have other struggles in keeping him to wear that!

Jody - mom to Ethan (3.5 yrs - ChARGE) and (6.5 yrs)

Amy McKinley wrote:

A few months ago, Max received his first set of hearing aides...and I was sooo

excited! I thought oh we'll just pop them in and no problem. Hmmm...not the

case I learned quickly!

I have the hardest time keeping them in....1) he is only 8 months old and

needs new molds every month due to growth 2) doesn't have great head control yet

and definitely doesn't sit so the aides get knocked out of place and/or 3) he

pulls them out (developmentally I love that he does that, but c'mon Max, work

with me here!!!) and sometimes treats them as binkies (if I leave the room for a

sec)!!! Nice $3K toys there buddy!!!

ANY ADVICE???

So far we have tried two things. First the audiologist tried the plastic

huggies (I think that is what they were called) but they didn't seem to work

very well...they thought because of his size. Now we have little double sided

circles that we put behind his ear to help keep them in place. But the tape

doesn't deter Max...he pulls it with the aide!

So now I am turning to you my favorite panel of experts...I'm sure many of you

have had this problem. Any advice for me?

I want to have him wearing them more and more often, but I find myself not

putting them in because they are such a headache. I feel sooo incredibly guilty

about this...it's the one " area " I don't feel I am doing a good job, which is

very frustrating. (He is making great progress in some other areas which is

very encouraging - will post separately about that)

We met with a speech therapist for the first time this past week and then this

week we have an eval with a speech pathologist. She is supposed to be

incredible, so I am hoping she may have some words of wisdom too.

Thanks everyone!!!

Amy McKinley

Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

maxupdate.blogspot.com

---------------------------------

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Jody, my daughter wears hearing aides currently. They do not help with her

deafness to our knowledge. She is on the CI list, and I see her ENT next

week to talk about getting the ball rolling on that. I have NO knowledge of

CI's. Can you recommend where I can learn about them? Do you have personal

stories or ideas you can share? My biggest question is, what are the chances

of it working? I hate to get my hopes up. I thought their would be a chance

of them turning it on, and it not working AT ALL. Her therapist from the

Deaf/Blind Project looked at me like I was from a different planet. She said

Meagan WILL hear her environment. I'm just so scared to believe that. I don

t want to be let down. Of all the things we have been through (TEF surgery,

heart surgery, brain surgery) this is the most devastating part of her

CHARGE for me. I want her to hear her family, more importantly, her twin

sister. : (

, mommy to Meagan (CHARGEr) and (17 months) and big brother

( 3 1/2)

-- Re: Tips on Keeping In Hearing Aides

Amy - Ethan received his hearing aid at 3 months old and his ear has no

lower lobe and is floppy so from the beginning, we used paper tape and taped

the hearing aid onto his ear (without covering up the microphone). He

couldn't and didn't pull it out and it didn't irritate his skin. Now, he

has a cochlear implant so we have other struggles in keeping him to wear

that!

Jody - mom to Ethan (3.5 yrs - ChARGE) and (6.5 yrs)

Amy McKinley wrote:

A few months ago, Max received his first set of hearing aides...and I was

sooo excited! I thought oh we'll just pop them in and no problem. Hmmm..

not the case I learned quickly!

I have the hardest time keeping them in....1) he is only 8 months old and

needs new molds every month due to growth 2) doesn't have great head control

yet and definitely doesn't sit so the aides get knocked out of place and/or

3) he pulls them out (developmentally I love that he does that, but c'mon

Max, work with me here!!!) and sometimes treats them as binkies (if I leave

the room for a sec)!!! Nice $3K toys there buddy!!!

ANY ADVICE???

So far we have tried two things. First the audiologist tried the plastic

huggies (I think that is what they were called) but they didn't seem to work

very well...they thought because of his size. Now we have little double

sided circles that we put behind his ear to help keep them in place. But

the tape doesn't deter Max...he pulls it with the aide!

So now I am turning to you my favorite panel of experts...I'm sure many of

you have had this problem. Any advice for me?

I want to have him wearing them more and more often, but I find myself not

putting them in because they are such a headache. I feel sooo incredibly

guilty about this...it's the one " area " I don't feel I am doing a good job,

which is very frustrating. (He is making great progress in some other areas

which is very encouraging - will post separately about that)

We met with a speech therapist for the first time this past week and then

this week we have an eval with a speech pathologist. She is supposed to be

incredible, so I am hoping she may have some words of wisdom too.

Thanks everyone!!!

Amy McKinley

Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

maxupdate.blogspot.com

---------------------------------

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Jody, my daughter wears hearing aides currently. They do not help with her

deafness to our knowledge. She is on the CI list, and I see her ENT next

week to talk about getting the ball rolling on that. I have NO knowledge of

CI's. Can you recommend where I can learn about them? Do you have personal

stories or ideas you can share? My biggest question is, what are the chances

of it working? I hate to get my hopes up. I thought their would be a chance

of them turning it on, and it not working AT ALL. Her therapist from the

Deaf/Blind Project looked at me like I was from a different planet. She said

Meagan WILL hear her environment. I'm just so scared to believe that. I don

t want to be let down. Of all the things we have been through (TEF surgery,

heart surgery, brain surgery) this is the most devastating part of her

CHARGE for me. I want her to hear her family, more importantly, her twin

sister. : (

, mommy to Meagan (CHARGEr) and (17 months) and big brother

( 3 1/2)

-- Re: Tips on Keeping In Hearing Aides

Amy - Ethan received his hearing aid at 3 months old and his ear has no

lower lobe and is floppy so from the beginning, we used paper tape and taped

the hearing aid onto his ear (without covering up the microphone). He

couldn't and didn't pull it out and it didn't irritate his skin. Now, he

has a cochlear implant so we have other struggles in keeping him to wear

that!

Jody - mom to Ethan (3.5 yrs - ChARGE) and (6.5 yrs)

Amy McKinley wrote:

A few months ago, Max received his first set of hearing aides...and I was

sooo excited! I thought oh we'll just pop them in and no problem. Hmmm..

not the case I learned quickly!

I have the hardest time keeping them in....1) he is only 8 months old and

needs new molds every month due to growth 2) doesn't have great head control

yet and definitely doesn't sit so the aides get knocked out of place and/or

3) he pulls them out (developmentally I love that he does that, but c'mon

Max, work with me here!!!) and sometimes treats them as binkies (if I leave

the room for a sec)!!! Nice $3K toys there buddy!!!

ANY ADVICE???

So far we have tried two things. First the audiologist tried the plastic

huggies (I think that is what they were called) but they didn't seem to work

very well...they thought because of his size. Now we have little double

sided circles that we put behind his ear to help keep them in place. But

the tape doesn't deter Max...he pulls it with the aide!

So now I am turning to you my favorite panel of experts...I'm sure many of

you have had this problem. Any advice for me?

I want to have him wearing them more and more often, but I find myself not

putting them in because they are such a headache. I feel sooo incredibly

guilty about this...it's the one " area " I don't feel I am doing a good job,

which is very frustrating. (He is making great progress in some other areas

which is very encouraging - will post separately about that)

We met with a speech therapist for the first time this past week and then

this week we have an eval with a speech pathologist. She is supposed to be

incredible, so I am hoping she may have some words of wisdom too.

Thanks everyone!!!

Amy McKinley

Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

maxupdate.blogspot.com

---------------------------------

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Jody, my daughter wears hearing aides currently. They do not help with her

deafness to our knowledge. She is on the CI list, and I see her ENT next

week to talk about getting the ball rolling on that. I have NO knowledge of

CI's. Can you recommend where I can learn about them? Do you have personal

stories or ideas you can share? My biggest question is, what are the chances

of it working? I hate to get my hopes up. I thought their would be a chance

of them turning it on, and it not working AT ALL. Her therapist from the

Deaf/Blind Project looked at me like I was from a different planet. She said

Meagan WILL hear her environment. I'm just so scared to believe that. I don

t want to be let down. Of all the things we have been through (TEF surgery,

heart surgery, brain surgery) this is the most devastating part of her

CHARGE for me. I want her to hear her family, more importantly, her twin

sister. : (

, mommy to Meagan (CHARGEr) and (17 months) and big brother

( 3 1/2)

-- Re: Tips on Keeping In Hearing Aides

Amy - Ethan received his hearing aid at 3 months old and his ear has no

lower lobe and is floppy so from the beginning, we used paper tape and taped

the hearing aid onto his ear (without covering up the microphone). He

couldn't and didn't pull it out and it didn't irritate his skin. Now, he

has a cochlear implant so we have other struggles in keeping him to wear

that!

Jody - mom to Ethan (3.5 yrs - ChARGE) and (6.5 yrs)

Amy McKinley wrote:

A few months ago, Max received his first set of hearing aides...and I was

sooo excited! I thought oh we'll just pop them in and no problem. Hmmm..

not the case I learned quickly!

I have the hardest time keeping them in....1) he is only 8 months old and

needs new molds every month due to growth 2) doesn't have great head control

yet and definitely doesn't sit so the aides get knocked out of place and/or

3) he pulls them out (developmentally I love that he does that, but c'mon

Max, work with me here!!!) and sometimes treats them as binkies (if I leave

the room for a sec)!!! Nice $3K toys there buddy!!!

ANY ADVICE???

So far we have tried two things. First the audiologist tried the plastic

huggies (I think that is what they were called) but they didn't seem to work

very well...they thought because of his size. Now we have little double

sided circles that we put behind his ear to help keep them in place. But

the tape doesn't deter Max...he pulls it with the aide!

So now I am turning to you my favorite panel of experts...I'm sure many of

you have had this problem. Any advice for me?

I want to have him wearing them more and more often, but I find myself not

putting them in because they are such a headache. I feel sooo incredibly

guilty about this...it's the one " area " I don't feel I am doing a good job,

which is very frustrating. (He is making great progress in some other areas

which is very encouraging - will post separately about that)

We met with a speech therapist for the first time this past week and then

this week we have an eval with a speech pathologist. She is supposed to be

incredible, so I am hoping she may have some words of wisdom too.

Thanks everyone!!!

Amy McKinley

Mom to MIGHTY MAX (CHARGE, 6 months old, 4 months corrected)

maxupdate.blogspot.com

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