Re: Sensorineural Hearing Loss & Positive ANA Screen Test

[Guest guest]

Having researched it in the past, I know it is imperative to treat

immediately though there are no conclusive results as to whether it will be

effective or not. I would contact your doctor immediately

Sensorineural Hearing Loss & Positive ANA Screen Test

> My 5 yr old daughter has moderate to profound sensorineural hearing loss

and just got her hearing aids last week. Our doctor ordered a lot of blood

tests and one of the tests that came back positive was the ANA (Anti-Nuclear

Antibody) screen.

>

> I have done a little bit of research on the internet today on ANA screen

and a lot of articles came up on Sudden Sensorneural Hearing Loss and

treatment with corticosteroids.

>

> We do not know how she lost her hearing and we think it has been recent

because of very good speech development. Does anyone have any information

on the ANA screen and sensorineural hearing loss? Has anyone read about

responsiveness to corticosteroid treatment?

>

> Thank you.

>

> Chad

>

>

>

[Guest guest]

Having researched it in the past, I know it is imperative to treat

immediately though there are no conclusive results as to whether it will be

effective or not. I would contact your doctor immediately

Sensorineural Hearing Loss & Positive ANA Screen Test

> My 5 yr old daughter has moderate to profound sensorineural hearing loss

and just got her hearing aids last week. Our doctor ordered a lot of blood

tests and one of the tests that came back positive was the ANA (Anti-Nuclear

Antibody) screen.

>

> I have done a little bit of research on the internet today on ANA screen

and a lot of articles came up on Sudden Sensorneural Hearing Loss and

treatment with corticosteroids.

>

> We do not know how she lost her hearing and we think it has been recent

because of very good speech development. Does anyone have any information

on the ANA screen and sensorineural hearing loss? Has anyone read about

responsiveness to corticosteroid treatment?

>

> Thank you.

>

> Chad

>

>

>

[Guest guest]

Having researched it in the past, I know it is imperative to treat

immediately though there are no conclusive results as to whether it will be

effective or not. I would contact your doctor immediately

Sensorineural Hearing Loss & Positive ANA Screen Test

> My 5 yr old daughter has moderate to profound sensorineural hearing loss

and just got her hearing aids last week. Our doctor ordered a lot of blood

tests and one of the tests that came back positive was the ANA (Anti-Nuclear

Antibody) screen.

>

> I have done a little bit of research on the internet today on ANA screen

and a lot of articles came up on Sudden Sensorneural Hearing Loss and

treatment with corticosteroids.

>

> We do not know how she lost her hearing and we think it has been recent

because of very good speech development. Does anyone have any information

on the ANA screen and sensorineural hearing loss? Has anyone read about

responsiveness to corticosteroid treatment?

>

> Thank you.

>

> Chad

>

>

>

[Guest guest]

Hi Chad,

ANA can indicate many diseases. My daughter's hearing loss is caused

by Cogan's syndrome which is a very rare auto-immune disease. Amazingly enough

even though she has all the sign of the disease she has never had positive

blood tests. In her case she also had initially normal hearing in one ear and

had

a fairly rapid loss. Her speech is normal. She was treated with prednisone,

and whenever she goes on it she has an improvement in her hearing. She was

treated for a long time with the drug. The problem with prednisone is it is not

a

good long term medication because of the amount of side effects. It would

definitely be worth trying to see if it does help though.

My daughter is currently on methlytrexate. Another immunosuppressent with

alot of side effects, but supposedly less than prednisone. Luckily so far she

has tolerated both medications well. I have to say a recent study showed that

methyltrexate is ineffective in treating auto-immune hearing loss, we

actually go back to the doctors tomorrow to see if it is worth keeping her on

it.

I hope some of this helps.

[Guest guest]

Hi Chad,

ANA can indicate many diseases. My daughter's hearing loss is caused

by Cogan's syndrome which is a very rare auto-immune disease. Amazingly enough

even though she has all the sign of the disease she has never had positive

blood tests. In her case she also had initially normal hearing in one ear and

had

a fairly rapid loss. Her speech is normal. She was treated with prednisone,

and whenever she goes on it she has an improvement in her hearing. She was

treated for a long time with the drug. The problem with prednisone is it is not

a

good long term medication because of the amount of side effects. It would

definitely be worth trying to see if it does help though.

My daughter is currently on methlytrexate. Another immunosuppressent with

alot of side effects, but supposedly less than prednisone. Luckily so far she

has tolerated both medications well. I have to say a recent study showed that

methyltrexate is ineffective in treating auto-immune hearing loss, we

actually go back to the doctors tomorrow to see if it is worth keeping her on

it.

I hope some of this helps.

[Guest guest]

Hi Chad,

ANA can indicate many diseases. My daughter's hearing loss is caused

by Cogan's syndrome which is a very rare auto-immune disease. Amazingly enough

even though she has all the sign of the disease she has never had positive

blood tests. In her case she also had initially normal hearing in one ear and

had

a fairly rapid loss. Her speech is normal. She was treated with prednisone,

and whenever she goes on it she has an improvement in her hearing. She was

treated for a long time with the drug. The problem with prednisone is it is not

a

good long term medication because of the amount of side effects. It would

definitely be worth trying to see if it does help though.

My daughter is currently on methlytrexate. Another immunosuppressent with

alot of side effects, but supposedly less than prednisone. Luckily so far she

has tolerated both medications well. I have to say a recent study showed that

methyltrexate is ineffective in treating auto-immune hearing loss, we

actually go back to the doctors tomorrow to see if it is worth keeping her on

it.

I hope some of this helps.

[Guest guest]

Chad,

I've been wondering how you're doing.

I am not a big fan of HEI since they turned my Hayley down for an

implant...but I would call House Ear Institute in Los Angeles.

http://www.hei.org/

I would think that if anybody could help, that they would be cutting edge.

In the meantime, I would make sure your daughter gets an IEP with speech

therapy. I say this because she didn't always have hearing loss, and you

want to ensure she retains the speech skills she had prior to losing her

hearing.

Very best wishes to you,

>

>Reply-To: Listen-Up

>To: <Listen-Up >

>Subject: Sensorineural Hearing Loss & Positive ANA Screen Test

>Date: Tue, 27 Jan 2004 13:13:32 -0600

>

>My 5 yr old daughter has moderate to profound sensorineural hearing loss

>and just got her hearing aids last week. Our doctor ordered a lot of blood

>tests and one of the tests that came back positive was the ANA

>(Anti-Nuclear Antibody) screen.

>

>I have done a little bit of research on the internet today on ANA screen

>and a lot of articles came up on Sudden Sensorneural Hearing Loss and

>treatment with corticosteroids.

>

>We do not know how she lost her hearing and we think it has been recent

>because of very good speech development. Does anyone have any information

>on the ANA screen and sensorineural hearing loss? Has anyone read about

>responsiveness to corticosteroid treatment?

>

>Thank you.

>

>Chad

>

>

>

[Guest guest]

Chad,

I've been wondering how you're doing.

I am not a big fan of HEI since they turned my Hayley down for an

implant...but I would call House Ear Institute in Los Angeles.

http://www.hei.org/

I would think that if anybody could help, that they would be cutting edge.

In the meantime, I would make sure your daughter gets an IEP with speech

therapy. I say this because she didn't always have hearing loss, and you

want to ensure she retains the speech skills she had prior to losing her

hearing.

Very best wishes to you,

>

>Reply-To: Listen-Up

>To: <Listen-Up >

>Subject: Sensorineural Hearing Loss & Positive ANA Screen Test

>Date: Tue, 27 Jan 2004 13:13:32 -0600

>

>My 5 yr old daughter has moderate to profound sensorineural hearing loss

>and just got her hearing aids last week. Our doctor ordered a lot of blood

>tests and one of the tests that came back positive was the ANA

>(Anti-Nuclear Antibody) screen.

>

>I have done a little bit of research on the internet today on ANA screen

>and a lot of articles came up on Sudden Sensorneural Hearing Loss and

>treatment with corticosteroids.

>

>We do not know how she lost her hearing and we think it has been recent

>because of very good speech development. Does anyone have any information

>on the ANA screen and sensorineural hearing loss? Has anyone read about

>responsiveness to corticosteroid treatment?

>

>Thank you.

>

>Chad

>

>

>

[Guest guest]

Chad,

I've been wondering how you're doing.

I am not a big fan of HEI since they turned my Hayley down for an

implant...but I would call House Ear Institute in Los Angeles.

http://www.hei.org/

I would think that if anybody could help, that they would be cutting edge.

In the meantime, I would make sure your daughter gets an IEP with speech

therapy. I say this because she didn't always have hearing loss, and you

want to ensure she retains the speech skills she had prior to losing her

hearing.

Very best wishes to you,

>

>Reply-To: Listen-Up

>To: <Listen-Up >

>Subject: Sensorineural Hearing Loss & Positive ANA Screen Test

>Date: Tue, 27 Jan 2004 13:13:32 -0600

>

>My 5 yr old daughter has moderate to profound sensorineural hearing loss

>and just got her hearing aids last week. Our doctor ordered a lot of blood

>tests and one of the tests that came back positive was the ANA

>(Anti-Nuclear Antibody) screen.

>

>I have done a little bit of research on the internet today on ANA screen

>and a lot of articles came up on Sudden Sensorneural Hearing Loss and

>treatment with corticosteroids.

>

>We do not know how she lost her hearing and we think it has been recent

>because of very good speech development. Does anyone have any information

>on the ANA screen and sensorineural hearing loss? Has anyone read about

>responsiveness to corticosteroid treatment?

>

>Thank you.

>

>Chad

>

>

>

[Guest guest]

Chad,

I don't know about ANA. I just wanted to say I'm sorry that you have to go

through this, but it's great they found something that may have caused her

hearing loss and that her language is good, that will help a lot as far as

accomidating for her loss. I hope her aids are a big help.

Sensorineural Hearing Loss & Positive ANA Screen Test

My 5 yr old daughter has moderate to profound sensorineural hearing loss and

just got her hearing aids last week. Our doctor ordered a lot of blood tests

and one of the tests that came back positive was the ANA (Anti-Nuclear Antibody)

screen.

I have done a little bit of research on the internet today on ANA screen and a

lot of articles came up on Sudden Sensorneural Hearing Loss and treatment with

corticosteroids.

We do not know how she lost her hearing and we think it has been recent

because of very good speech development. Does anyone have any information on

the ANA screen and sensorineural hearing loss? Has anyone read about

responsiveness to corticosteroid treatment?

Thank you.

Chad